Thursday, June 10, 2010

Rain, Go Away!

3 days of solid rain, we might turn into a tropical rain forest without the tropical!
Thank goodness on Sunday night Jonmarie helped me put the garden in so at least that is done. Talked to dad and he told me seeding in Sask. is still a long way from completion. So much for a dry spring!
So we did it, Matt bought a camper and so did we. Matt is so excited, he can't wait until it is ready to go. He purchased a toy trailer that needs no modifications to it in order for him to get into it. The whole back wall comes down and he just rolls on into the camper. So many times Matt wants to visit with people, however he has a ramp to get into certain houses but then always has to set up a bed for him and can be quite a hassle. This way he can have his own bed and privacy during "personal care" times. He is so excited to maybe going to Greenwater this summer and the reunion with it. We also purchased one and will bring it to the reunion.
Yesterday we met with a physiotherapist that specializes in taping of injured areas. This tape works differently than normal taping and they assess the way the joint moves and where the muscle is moving. Matt's shoulder is giving him grief again so they taped the lt shoulder to see if it would help him use the deltoid, or the shoulder muscle instead of the trapezius muscle which joins to the neck. When you are injured, the body using the path of least resistance. However that can cause pain so they are trying to tell the body to use it the right way. The interesting part about this physio is he is married to Deana, the occupational therapist from Innisfail who came to the house many times to see what kind of wheelchair would be best for Matt! So he already knew Matt from reputation!
Mom was telling me that Matt stood really well the other day with the standing frame and even brought the back of his foot off the floor. Don't loose hope on him yet. We are still looking for a physio in Red Deer that knows about spinal cord injuries and we may try to get him back on the outpatient occupational and physio at the hospital. Especially when Matt comes back from the holiday in Weekes.
John is doing better after a weekends rest but I am keeping at him to cut back a bit. so a good friend of his goes walking with him every 3 days and is great. Otherwise John trys to run and then gets too tired and we may end up in the same boat.
Everyone keep the umbrella's handy and hopefully they will not be needed in a few days. By then, we will need a rowboat to get to the road!

Saturday, June 5, 2010

Summer, Summer, Where are You?

I think the snow will start flying again before we have any summer. 3 cold weekends in a row, at least there is no snow predicted for today, but we did have a heavy frost on Thursday night. Thank goodness I didn't plant my tomatoes.
Last weekend for Matt and mom was fairly quiet. I think mom gets so tired sometimes that she wants to just relax and do nothing. On Wednesday Matt and I went to Tony Roma's together and he was enjoying the outing so much that we also went to Pet Land, Chapter's and Future Shop.
I was about to leave mom's with the girls when John phoned that he was a patient in ER. He was having some weird chest pains so the girls ended up staying at grandma's and after I had seen John so did I, so that way I was close by. They did the full cardiac work-up and so far everything is fine except he works to hard and doesn't sleep enough. His blood pressure was also too high so he is on meds for that. So we are making plans on how to decrease stress and have more constructive time off. We may buy a camper so that way, when he is not on call, we will go somewhere where we are out of cellphone range so he can't answer the phone! Even when he is not on call he is working. Matt is also looking at a toy trailer for himself. That way when he goes to visit, he has a place to sleep. Many houses he can get into with his ramp but the host would have to set up a bed in the living room, as all the bedrooms are upstairs. This way, he has a comfortable setting.
Today Matt and mom are going to Jacki's for the night, and I hope the weather improves a bit. Next week I arranged for a physio therapist to come and see what he can do to help Matt's left shoulder, as it is paining him again.
Happy June to everyone!

Tuesday, May 25, 2010

To Prince George

I completely forgot to write the blog! I was so busy at work and planning the trip to Prince George that it passed right on by. Sorry!
Last week mom and Matt travelled to High Level to look at a toy trailers and Matt was seriously considering buying one. The back goes down into a ramp and the bed is on a hydraulic. So he can get inside easy with no modifications. He would really like to go camping this year and also have a place that he can go into, especially if mom and Matt decide to travel and visit and many houses are not wheelchair accessible.
Mom came with us to B.C. and we really picked a bad weekend. We left on Friday and by the time we hit the Icefield's it was snowing! And of course I had packed a lunch so we stopped when the snow and the wind slowed down, however it was still only 3 degrees. Poor mom was so cold she couldn't get her food in her mouth, her hands were shaking so bad. Our stay in Prince George was great but short. John, myself and the girls stayed at Patty and Dean's and mom stayed at Auntie Brenda and Uncle Bob's. We also visited with Cassie and Matt and Darryl for a bit. Matt was going to come with us, however he decided it was too long of a drive for such a short visit. We made him babysit the cat, even though poor airene was allergic. It had to stay in the garage most of the time. Airene was a trooper and stayed with Matt the whole weekend. They couldn't even go outside until Sunday, the weather was so cold. On Sunday, Jacki, Gary and the kids along with Nolan and Erin travelled to Red Deer to visit their lonely brother and ordered in pizza and wings and played hand and foot. Matt was very sad the Canadians lost, even if he felt it was inevitable.
John and I have a new version of the song "the cat came back the very next day" and we have changed it to "the bat came back". So far this spring we have had 4 bats in the house. Let's just say, John and I are not fans of the little critters, no matter how many insects they eat!! We are now sleeping with the vents covered with duct tape, tennis rackets in our hands while we sleep, and mosquito netting over the bed. We may buy a camper just so we can sleep in it at night to get a good nights rest. We are also getting a contractor to put up a 20 foot pole to put out our "bat house" so they will hopefully enjoy it's comforts as opposed to our house. I may like visitors but I draw the line at bats!

Saturday, May 8, 2010

Snow Gone, Still Cold

We went for a 5km walk with the girls today and the wind is still so bitter. Last night it dropped down to -8 and the frost was heavy on the ground. I know many farmers here had put in some spring seeding prior to the snow, but I think the idea was too premature. However, the early bird does get the worm!
Last weekend was busy. Jacki and Gary were playing in a volleyball tournament in Olds and mom had all three munchkins. I picked up Amy and Bobby Saturday for some time at the acreage, and also on Sunday after church. Our neighbor's kids came over and Bobby loved having a boy to play with, instead of all the girls. Anthony is crawling everywhere and very proud of himself. I know he is my nephew and I am bias, but he is so stinking cute! He has that look on his face that he knows something that you don't. He loves crawling up to Uncle Matt's wheelchair and pull himself up. Anthony then stands there looking at Uncle Matt with that "I know something" look and it is hilarious.
The whole gang came on Sunday for steaks and we were able to sit outside for awhile, but it was chilly. Mom and John went for a walk and Matt and I watched some hockey. He was so embarrassed when I asked who was playing. So much for the little brother looking up to the older sister with admiration! That dies when they are still young!
Mom and Matt are coming for supper tonight (homemade pizza) and hopefully for a few games of cards.
Mom said Matt is getting stronger on the transfers for the bed to the chair. He can almost do it himself, so that is great. She has to set everything up for him of course and make sure he doesn't fall. He is still doing his own "personal care" every three to four hours and that helps him feel more independent.
Matt and mom both went to the dentist and mom is horrified to learn she needs a root canal. She knew it was coming but if you never visit a dentist, then nothing is wrong... right? Matt's teeth are great however they did order him another bite guard because since the accident he still grinds his teeth at night.
Oh I almost forgot the most important. I finally convinced Matt to go to the movies with me and the girls last Friday. Mom came too and we watched "How to Train Your Dragon" in 3D. It was fantastic! I did get nauseated during some of the flying scenes and felt like the water was coming right at me. The girls loved it too. Matt was being a grouchy old bear before it started, but once it was on he loved it too.
Hope everyone has great weekend (or what is left of it).

Thursday, April 29, 2010

Spring Storm

I was so grateful for the rain yesterday. It has been so dry and dusty. The rain started to turn everything green and it was feeling very spring like. However, last evening watching the white stuff come down was bittersweet. As i look out my window now, it continues to snow and all the green grass is covered. I am just thankful we are not Calgary. They are literally getting dumped on and highway 2 by Airdrie was closed. Buses are shut down due to icy conditions and it looks like there is no end in sight today. Old man winter is not giving up without a fight!
Mom and Matt had a quiet weekend. I was away to Radium Hot Springs with some girlfriends of mine and John was watching the girls. Mom only had to babysit part of the evening on Saturday. I arrived back Sunday evening and stopped at mom's house. i had to tease her because she was still in her pyjama's!
It has been a busy week for me but a quiet week for Matt. Jonmarie received the Terrific Kid award at her school. I took videos and she couldn't stop smiling. Mom took Matt for his bath in Innisfail yesterday and I am taking him for a haircut today. I hope the roads improve. Tonight Matt and Mom are babysitting the kids because John and I are going to a fundraiser for Shaunie's school. It is called the Evening of Decadent Dessert's and it is so much fun. Shaunie's class made art work and they put it together and then auction it off. Last year they had hand prints on a quilt and it went for $4000. It is then donated back to the Center to hang on the wall. Can't wait to see what it will go for this year.
Matt's back is starting to clear up somewhat, however the scarring is really bad. We are hoping to do some treatments at the spa but it is difficult because I am always working and can't go and pick him up. Trying to convince him to come in the Handi Van but he is so stubborn!! He wants either myself or mom to drive him. Just like a man. Dad is hoping to come sometime in May so maybe he can drive Matt. He hasn't heard his test results yet but should in the next week.

Thursday, April 22, 2010

Visitors

The weather has sure warmed up with a high of 23 yesterday. The wind consistently blows so that creates a bit of a hassle because it is so dry. Dust everywhere. This weekend it will again become cold with a high of 3 degrees.
We enjoyed a surprise visit from Uncle Bob and Auntie Brenda. They had been in Swift Current for a memorial service for Uncle Bob's late brother and decided to go back to Prince George via Red Deer. yesterday we took the kids to the park and Shaunie loves to ride on Uncle Matt's lap because "I'm tired, legs not working". John and I took Auntie and uncle, mom and Matt for supper at Tony Roma's for wing night and had a great time. The waitresses were laughing because our group keeps getting bigger and bigger. Friends of ours from Red Deer also joined us so there was eight people.
Matt has been feeling under the weather suffering from sinus congestion which has really run him down but Matt is starting to feel better. It started when they were in Calgary over the weekend and kept getting worse. However Matt still went to watch Jacki play volleyball and have a rousing game of Risk with Gary and his friends. Nolan was there as well.
This weekend I am going with friends to Radium Hot Springs and very happy to have a break for a few days. John is going to be watching the girls with Grandma on standby! This week I was so busy with work related issues that the girls stayed at grandma's for 2 nights! Sure miss them when they are not sleeping in there own bed but they didn't seem to mind. they love being at Grandma's house.
Prayers for dad as he is right now in Saskatoon having a carotid ultrasound ans is a little worried about the possible results. It is a very non-invasive procedure so no pain associated with it. Dad probably won't hear about the results for a few weeks.

Monday, April 12, 2010

Arrived back to Red Deer Safely

Well the troop arrived back in Red Deer Sunday evening just in time for mom to start work today. I was surprised to hear her say she did miss working at the school and the staff members sure missed all the work she does! Jonmarie was ecstatic and every time she saw Grandma she ran up and gave her a big kiss. Mom said there were days prior to the holidays that she wouldn't even see Jonmarie but today it was over 20 times!!
I think Matt is happy to be back but you could hear in his voice he missed Weekes terribly. He loved going uptown to play cards and chat with the men, and Tony Roma's wings hold nothing to the Weekes bar's hot wings!! I think the familiarity of it all is very comforting to Matt and he gets lonesome for his friends. While in Red Deer he is closer to family but it is not the same. I think time will tell if they decide to make Red Deer permanent (mom still has her Sask plates on her truck!).
Prior to leaving Mom and some of the Aunties went to a mini ladies retreat at the church. Mom said the speaker was very good and became legally blind from a genetic condition at 11 years old. I always thought I could handle losing my hearing (some days I pretend I do!) but losing my vision would be so difficult. God gives us all different burdens to bear and with His guidance we can truly see the path to ease those burdens.
Thanks for all those who could stop in to visit and say a quick hello. I believe the plan for the summer is to go home for 2 months. However I know they are trying to get in touch with the "Project Walk" in Regina. They heard about it through the grapevine and would love to have a chance to see what it is all about. They have tried to email but have no response as of yet. On the website there was no other contact so pray that if Matt and mom are meant to go, it will work out.

Saturday, April 3, 2010

Having a Great Time

It was a busy week for the folks in Weekes. During the week, Jacki took the kids to Deb and Rod's to see baby calves, which Bobby just loved. I think he wants to be a farmer, just don't tell Gary! They also went to visit a school chum of mine, Twyla Pugh and got to see baby calves. However Bobby was more excited to have a friend to play with . Twyla had her 4 year old boy and 2 1/2 month baby.
Bradon Kipling has been a Godsend. He took Matt uptown and keeps him company while mom was working for a few days. I believe he was a better driver than Jacki, who has forgotten how to drive in the Saskatchewan mud. She took Matt to the Weekes Hotel for wing night and got stuck with Esmeralda (the van) in the mud. Matt thought it was hilarious until him and Bradon took a tour of the farm and got stuck with his wheelcahir! Thank goodness Bradon has got some muscle so he could push him out. However mom is still mad about all the mud in the house. It will be stuck in his wheels for weeks! Still getting mom mad hey Matt?
Last night they stayed up quite late visiting with Aunty Karen and Uncle Neil. Dad, Neil, Matt and Jacki played 6 hands of hand and foot. Aunty Karen and mom played Wii however mom states she was so good they wouldn't let her play. However, I believe that she was so bad the game wouldn't let her play anymore! Everyone was laughing so hard at her.
Jacki and the kids are on their way home right now and pray everything goes okay. They looked for Easter candy this morning so they could be nice and wound up for the trip. The grandparents were so excited to see Anthony crawling all over the place, getting into all kinds of mischief.
Wishing everyone a happy Easter and safe journeys for all who are travelling.

Sunday, March 28, 2010

Home for Awhile

Mom and Matt made it okay to Weekes. The weather was great. Mom said the trip went really well and they are glad they kept the winter tires on, because there is still lots of snow in the yard. Mom said that dad has gained 20 lbs, which is still underwieght for him however we will take it! He is looking much better. I found out that he had a episode a few weeks ago and Dr Pieterse feels dad needs a carotid ultraound to see if there is a blockage in his carotid arteries (feeds the brain blood). The appt is for April 22 in Saskatoon .
A big thanks to Bob Lindenback for making a ramp in the house for Matt. Mom just has to paint it. It is so much better than the metal one, and Matt doesn't have to change his chair setting (he can go straight into the house without having to stop and re adjust his chair settings).
Mom, Aunty Karen, and Aunty Sandy are planning on attending the Weekes Ladies retreat on the weekend. Have fun ladies! Also they are going to celebrate Aunty Margaret's birthday Friday night before they (Terry and Aunty Margaret)leave on a trip to Mexico.
Bobby and Amy are really enjoying the farm and they found the mud puddle that we used to play in when we were kids. They think Grandpa looks so 'silly" because he has a Grizzly Adams style beard.
Matt is looking forward to wing night with some friends and going uptown for crib and coffee.
Hope everyone is planning to spend some time with family this Easter holiday and remember what the holiday means (it just isn't all about the food and chocolate!).

Tuesday, March 23, 2010

Winter Snowfall

Winter just doesn't want to let go. Had quite a bit of snow fall last night and more than a few accidents this morning. The roads were quite icy. However it will soon melt with the +5 weather we are having right now.
Matt is again on antibiotics for we are not sure what. His bloodwork showed a very high white blood count so that is why he hasn't been feeling well last week. It may be a urinary tract infection again, however once he takes the meds we will see if they are the right antibiotics for whatever ails him.
Matt and mom still had a good time in Calgary. Gary arranged a game of Risk with some of the other people living in their crescent and Matt lost again by the smallest of margins. Too bad for you Matt.
Mom and Matt are already packing to leave for Saskatchewan for 2 weeks on Saturday. I am already having a panic attack thinking about it. No one to babysit! Jacki and the kids are taking their own vehicle and going as well. I think dad will be happy to see everyone. He had went to see Dr. Pieterse (I can't remember how to spell it!)and found out he had bursitis in his hip, which the Dr. gave him a shot of cortisone which really helped.
Hope everyone is having a great week and Matt is hoping to see some familiar faces while in Weekes.

Saturday, March 20, 2010

Spring is in the Air!

I am sitting in front of the computer with the sun shining in the window and it is warm! I may even have to close the blinds. Or maybe not! Of course when the weather warms up, even though there is still snow on the ground, the flies are waking up and making their appearance known. Jonmarie would not go to the washroom until I killed all the flies (there was 8). You take the good with the bad.
On March 14th, Matt and mom came for a barbecue, hamburgers and hotdogs and we sat outside on the deck. It was so nice we had to put up the umbrella because the sun was so bright. We had live entertainment (Jonmarie on the ukulele and Shaunie on the harmonica). I have no idea what they were playing but they were wonderfully received by the audience. Rosco (the dog) added her accompaniment with a few howls.
I noticed Matt starting to talk about school again, which is great. This week he went and seen Dr. Myburgh for some medication changes, went for a dentist appt (teeth are great)and some shopping at the mall, and today they are in Calgary visiting with everyone there. Matt told me he was getting cabin fever, which is great motivation to go and do something. He hasn't been feeling that great, having a temperature in the middle of the night for 2 days running but seems to perk up about mid day. He went a got some bloodwork done at the hospital so hopefully it is something minor that will clear up on its own.
Matt's been checking on some travel trailers because he wants to do some camping this year. Those trailers made for bringing your quads(cute play on words) or ATV's are perfect. They have a ramp to get your machine into the trailer and the bed is on hydraulics to raise or lower them when the ATV is in the trailer or when you move it out and it is time for bed. Now that the weather is nice, we may go and check out a few.
Hope everyone had a great St. Patrick's day. Next up, Easter!

Friday, March 12, 2010

Matt's First Conference

I have been bugging Matt to go a do something for the last year and I think he was finally tired of listening to me harp at him he finally relented. The paraplegic Society was having a two day course on living an fruitful life. It was 2 full days, Tuesday and Wednesday. Nolan came from Calgary on Sunday night so was able to take Matt both days. The first day was hard because Matt was not used to getting up so early and it was hard to stay focused. However Monday night he was so tired that he slept really well and Wednesday was much better.
I asked what it was about and the speaker asked each person of one thing they would change about themselves. Of course all the attendees were in wheelchairs or had other disabilities and most said they would love to be walking or back to their normal self. The speaker then asked if it was actually something they could change and all replied no. He then asked why they would focus so much on something they couldn't change anyway and start re-focusing on something they could actually change. To illustrate, he showed them a video with two teams with 3 players on each team. One team was dressed in black and one team was dressed in white. Each team had a basketball and you had to count how many passed the white team makes. To make it even more difficult, the teams keep moving. At the end of the video, the question it asked is "did you see the gorilla?" Apparently a gorilla had walked with the group and not one of the attendees had seen it. It was showing you how you can focus so much on one thing that you miss other opportunities right in front of your nose.
Matt said it was really good and meet some new people, so that was great.
We are trying to encourage him to socialize more, however after he saw what happened to the fellow in the wheelchair in Australia, Matt gets worried all over again. For those of you who didn't see it, a guy from Canada is in a wheelchair and was visiting in Australia. He was going to catch the train when two teenagers came up to him and started to beat him with fists, a metal bar, and then he fell over out of his chair and they started to kick him. They apparently didn't steal anything and the Canadian is in critical condition from serious head injuries. The world is made up of all kinds and Matt does get worried about being unable to defend himself. Pray that Matt will try and look past those that will do him harm and see the good in people, that the majority would only try and be helpful.

Monday, March 1, 2010

Happy Gold Birthday Matt!!

What could be better than a gold medal on your birthday? Matt was so pumped. We were at Jacki's for Amy and Matt's birthday party and were watching the game with some of the parents of the kids who attended. Poor Amy had a very disorganized party, as we opened presents and had cake during the intermission and then after that they were on their own! If any kid came in front of the TV, you could hear the yelling to move from the street. I could hardly watch the final period and when USA scored, their was a definite sick feeling throughout the room. The sudden death overtime was too much for me to handle and I sat watching while reading (or looking) at the paper but still listening. When Crosby actually scored, the paper went flying, the cheers went up, and Anthony got such a fright he screamed for 10 minutes!
I also got Matt some scratch and win tickets (Jacki picked them out) and Matt won $100 on one ticket. He said it was the best birthday ever. The only damper is Dad and Nolan were in Saskatchewan, but phoned him as soon as the goal went in the net. I hope everyone was able to watch as Canada won the most Gold medals in a winter Olympics EVER!!Congrats to all our athletes.

Friday, February 26, 2010

Congratulations

Congrats go out to Michelle on the birth of her twins. Deb, if you could tell us what the weights were and everything, that would be great. I heard they were over 6 lbs each but don't know for sure.
The weather has certainly warmed up and the sun, when it shines, actually feels like it is working! Shanie and I went for a walk yesterday and it was -10. I hadn't dressed appropriately so when we came to a open spot, i stood in the rays of the sun and it was so great to feel the heat! Spring is in the air, although I won't get my hopes up too much, winter always has a hard time saying goodbye and usually gives us one more Hooray (snow storm) before it leaves. There is some clear patches on the ground and the roads are relatively clear of ice and snow, except on the roads less travelled.
Matt has been watching the Olympics, as are many people, and he keeps me informed of all the happenings. I try to watch when I can, however Jonmarie said a funny thing yesterday. we have a rule in the house there is no TV watching during the week. So when she comes home yesterday and sees the TV on, she said that she would like to watch a movie. I again explained the rules, however I forgot the TV was on the Olympic station at that time. she said if the rules apply to her they should apply to me. Hard to argue with that reasoning, but I did answer back and a typical mother was, "When you start paying rent, then you can watch TV too!" Not my most brilliant comeback.
Matt, mom, John and I went to Tony Roma's on Wednesday for wings. it was so crowded in the the lounge area because of the men's hockey that we had to sit in hte dining room. It was easy to know what was happening though. Every time we heard a loud cheer, we knew Canada had scored and when there was a loud Booo, the Russian team had scored. However when the game was over and they was still cheering, i was sent to check out what was happening and that is when Canada got 2 medals in the bobsled racing. Very exciting. An interesting thing happened when we were about to leave. One of the waitresses Bradie, who we have seen since we started going to the restaurant ran over to our table and started to chat. She asked if we remembered when Matt had accidentally left his oiler cup holder there over 8 months ago. We had tried to find him a replacement but they are scarce or we are just not looking in the right stores. Well, Bradie said they had actually found it but when she had seen us a month later, she went to go get it and it was gone. It must have bothered her alot because when she went home to Manitoba over the Christmas holidays, she looked and found one in Fields store and bought it for Matt. She had it in her car for 2 months waiting for him to come back in the evening (we had started going in the day) so she could give it to him. We could hardly believe she remembered and then had taken the time to go and try to find another one. Matt was so happy because without his cup holder, he can't lift hot/cold drinks because his hand spasms and was always having to ask someone to test the glass. It just goes to show you never know who's life you may end up affecting. It sure made Matt's day!

Wednesday, February 17, 2010

Great Weekend with Auntie Karen

What a busy week we just had. Jonmarie had production week at her school. The whole school is involved in the play and mom was working late every night, helping behind the scenes, making sure the kids were where they were supposed to be, helping with the props, etc. Auntie Karen flew into to Calgary and stayed the night with Jacki. Jacki wasn't sure how to get Auntie Karen from the airport to her house because the flight was late in the evening and Gary was in Newfoundland for his Auntie's funeral (sorry to hear of her passing Gary). So Jacki asked Nolan to watch the kids. When he found out the time, he just laughed. Apparently his new girlfriend from Melfort was flying in on the same flight! So he just picked up both of them at the airport. Auntie Karen knew that Nolan's girlfriend was going to be on the flight, so prior to boarding, she was asking people if their name was Erin! When she went to sit down, she overheard a young lady talking on her cell phone and was almost certain she heard Nolan's voice on the other end and this girl's reply "Wouldn't it be funny if we sat together?" Once she was off the phone, Auntie leaned over and asked "Erin?" and the girl replied "Karen?" Very funny story.
Jacki drove Auntie as far as Olds and then I picked her up to bring her the rest of the way to Red Deer. Poor Auntie, she has some great stories to tell about her time with us, losing Bobby at the zoo, trying to keep up with our busy schedule, forgetting the tickets to the production, the list goes on and on. You must ask her about it at the reunion. She said when they had visited Patti and Dean's, the chaos wasn't much different. Mom's with their kids is multi tasking to the extreme. They should actually make it an Olympic sport!
On Sunday, mom and Auntie went to see Aunt Eveyln and Uncle Hughie in Edmonton and Jonmarie, Shaunie and I babysat Matt. It was great to get to watch the Olympics together. However Matt has this new app on his cell phone. It converts English into Afrikaans. He is driving me crazy with it. He enters "Shelley has a big...." and then it replies in Afrikaans. It sounds like a cyborg version though and some of the words are way off.
Matt still has some off days, but thank goodness no more episodes like 2 weeks ago. I took for wings last week and they were the best we had ever had! Maybe it was because we hadn't been there for so long, but they were goooood! I think tonight we may partake in wing night again. Tony Roma's here we come!

Wednesday, February 3, 2010

Autonomic Dysreflexia

Well Matt had an interesting spell 2 days ago, which hasn't happened to him since leaving the hospital 2 years ago. He was with Cecilia and was using the 'facilities" when he felt the back of his head explode and started losing his vision. It didn't literally however that is the way he described the intense, immediate headache he experienced and knew he was in trouble. It is called autonomic dysreflexia (hope I spelled it right) and it is a condition many quads and paraplegics suffer from and can be fatal. It is when something bothers the autonomic nervous system and because of their condition, the body responds incorrectly because it doesn't have the same regulatory response that we have due to the spinal injury. It can be anything from a crinkle in his shirt pushing on his skin, to his shoes too tight. So Matt's blood pressure was shooting through the roof and if they didn't do something to correct it, the consequences could be deadly. Matt had experienced it once before while in City Hospital and they told him if it ever happened, to catheterize immediately. Cecilia had just done this prior to the incident however Matt was alert enough to tell her to do it again. The drained off 1200 mls of urine. Any one in the health profession knows that is alot for a bladder to hold. Immediately the headache was reduced to a dull throb and his vision returned. Scared everyone though. Thank goodness Matt knows his body well enough and remembered what they had told him at the hospital. What is worring him know is the same thing happening again. Matt has always been able to feel when he has to use the washroom, but this time he didn't feel a thing. So they have contacted Dr. Maclean to see if she knows why it has happened now.
Hopefully it was a one time thing to keep us on our toes and won't ever happen again. We were just thinking of Matt being able to stay by himself for an hour a day, however I think we will reconsider that decision!
Thank you Lord for continuing to watch over Matthew and help us to be constantly grateful for what we have.

Thursday, January 28, 2010

Keeping Busy

Well the weather was great for awhile but has turned cold again. However we didn't get dumped on like Saskatchewan and Manitoba. We were treated to the thickest frost I had ever seen. Took some pictures of the girls shaking the trees and letting the frost fall on them. It has been an adjustment getting back into the swing of things, and my palm treo phone with calendar has become my best friend again.
Matt is keeping busy with his exercises and looks so much stronger. His acne has really come along way and I hope we can start doing laser treatments for the scarring. He is going to the Red Deer College in February to sign up for classes. I think he is leaning towards history for now. They are also signing up for the handi bus. When he lived out here the bus wouldn't come for him but now that he is in the city he arranges for transport at a minimal cost. Matt can't just phone them on the spur of the moment however he books a week or so ahead of time and then he has more freedom to travel. Dad left back to Sask. last week so Matt is dependent on a hired driver or myself again.
Today they are going to Fabricland to pick out material for his pants. A lady mom knows will sew some pants for him with velcro in the front so he has an easier time with self catheterization. Then off for his bath in Innisfail. We still haven't arranged for anything in Red Deer yet, and the sliding tub chair they tried out was again too short for Matt's height.
Jonmarie and Shaunie love to go to Matt's house when I work after school to play Wii. There is a no TV rule at our house during the week and they get spoiled when the go to Uncle Matt's!
Grandma is enjoying more extra curricular activities and has been going for supper with some of the ladies from school. It is like trying to pull teeth for her to do something for herself. Tonight she is booked for a massage and then supper again, and she keeps thinking she should cancel because I will have to go a watch Matt and take him with me to Jonmarie's swimming lesson. Like she doesn't help me at the drop of a hat!
I think Auntie Karen is coming in the middle of February to visit and I booked them for pedicures at the spa for the Friday. Nice treat when the winter blues are getting you down. So remember, if family comes and visit I will treat you so let that be an incentive to come down! We have an extra room again and so does mom.

Friday, January 15, 2010

Safely Returned

Has it really been since Dec. 21st since I wrote? Terrible. However I have a very good excuse. It was difficult for me to get online. The connection was poor while we were on holidays and when we arrived in Cape Town in the New Year, we were so busy.
But we arrived safe and sound on Wednesday January 13th. The "sound" part is not exactly accurate after 21 hours of flying. Thank goodness for the one day stop over in Amsterdam. We may have arrived back in Canada minus two children!! Jacki and the kids met us at the airport because Grandma was late. Matt had a meeting with Dr. Mclean and it was longer than they expected. But the kids were so happy to see each other and we spent the time waiting at the new play center in the Calgary airport. It was awesome, the best in all the airports we have seen. If anyone is flying, make sure you check it out. There were adults in there too!! But it didn't compare to when Grandma came to pick us up. Shaunie couldn't quit hugging her and Jonmarie didn't quit talking the whole way back to red Deer.
Matt, dad, Cecilia and Airene, and Grandma came for supper last night and the girls were so excited to show everyone the presents they had brought from Africa and John was just as excited to show the videos/pictures. Matt is looking so good. His acne has really cleared up and he is still as handsome as ever. They had been busy over the holiday season, making a trip to Calgary to spend with Jacki, Gary and the kids and Nolan. They also made a trip to Weekes, but we were so busy talking about his latest appts that I forgot to ask how it went! Will update on that later.
Monday they went to Edmonton to meet with the rehab nurse. She showed Matt how to self-catheterize himself. It lets him be more self sufficient and now he can travel by himself more, such as to the mall or the college and be able to use the washroom without having someone to help him all the time. Prior to this, someone always had to be near by in case he needed to go to the washroom. He still has some trouble and needs help with setting up, but with more practice he should be able to be completely self sufficient. Hooray! He will have further appts with her re: other things, however that is not in the near future.
The meeting with Dr. McLean was on Wednesday and went over well. She discussed the MRI and it has not changed since the previous one last year. So she will send it to Dr. Guthrie to see what he has to say. He spasms have improved a bit since decreasing the Accutane dose, however they are still bothersome so she increased his anti-spasm meds. Matt strength and movement are slowly coming back so we think the Accutane was inhibiting that as well. His standing exercises have improved, however they are still not to where they were a year ago. But it will get there, now that he has more room in his new house to do exercises. I forgot to mention they have moved into the new house in town and it is great! Matt is able to get into the washroom and do self catheters in privacy. They are going to order a special bath chair so he can use the shower. That will rally save on the trips to Innisfail for baths. Matt is also excited to be able to phone for take away when Mom is not at home and again can be on his own more. I am very excited about the possibilities and thank God that He has been so wonderful to our family. Thank you to all who still continue to read the blog after 2 1/2 years and have followed Matt's journey through some very difficult times and still see him as the same lovable, funny guy he was prior to the accident. I will sure miss going downstairs and seeing him sitting there watching TV. And it is already difficult without mom, because now I have to take Jonmarie to school in the morning. I think that Jonmarie will be spending some nights at Grandmas and and also go home with her after school. So it will all work out, it will just take some juggling.
Happy belated Christmas and Happy New Year to all.

Monday, December 21, 2009

News from Dr.Guthrie

Spoke with mom and Matt this morning, it was actually Sunday night in Alberta. Matt talked to Dr. Guthrie last week and the bladder test showed no abnormalities, which was what we had expected. However Dr. Guthrie reviewed the MRI of Matt's neck and was concerned over the sac or pocket that surrounds his spinal cord where the injury occurred. He feels it may be impinging on the spinal cord and causing some pressure, which could have a correlation why Matt has regressed with movement and the spasms. By now the spasms should have subsided and be almost non-existent. And the bridging and standing should be going better not worse. Matt is scheduled to have another MRI Jan. 7th and they will see if it is getting worse or staying the same. Matt will then have to decide if another surgery is the best option, however he is very concerned about having the ventilator in again and battling the same problems as before. I can't say I blame him for that. Such traumatic experience (and painful)is difficult to put behind you. Please pray that God will direct Matt in what decision to make, as it will be his alone. We may all think we know what is best, but only He can predict the future.
They went shopping now that school is closed and got all their Christmas shopping done. The weather has turned almost balmy, up to -3 the other day. Thank goodness for them. Hope everyone else is doing some last minute shopping and getting down to the celebration of Jesus' birthday. The girls are so excited about Christmas, however it isn't quite the same. Even though I don't like the cold, I will always consider a white Christmas the best.

Tuesday, December 15, 2009

Sunny South Africa

Well we made it and it actually went well. Shaunie loved being in the plane and didn't experience any trouble with her ears, which I was quite worried. I gave her Dimetapp and Tylenol with a decongestant before hand and seemed to work well. We are now in Arch Rock near Plettenburg Bay on the Garden Route and it has been fascinating for the girls to watch the dolphins play in the surf, which we can see from our balcony. I had trouble sleeping the first few nights because the surf sounds like a blizzard storm. We chatted with Matt and mom on Skype the other night (day for us) and we had the video so they could see the scenery. All was quite on their end and I asked if they were still there. Matt's voice came up saying quietly "I hate you". I do believe the -35 without the wind was causing him to be a little bitter. Bitterly cold that is! It seems since we left, everything is acting up. Within a few days the furnace quit and the satellite downstairs is not working. The snow keeps blowing and dad is having a hard time keeping up with the snow removal. I think they are definitely wishing they were here.
We have been having a great time, however having some problems with Shaunie. 2 really bad days in a row. I think the change of diet, lack of routine and missing her house are a few of the problems. Let us just say, our trip to Monkeyland to see the monkeys in their natural habitat was not the best thing for her to do. So we may try some medications, just to see if it helps.
Thanks for all the thoughts and prayers. Hopefully I will be able to get to another place with Internet access and update some more.