Sorry about such a long delay and hope people don't think we forgot about them but I have been on holidays for the last 2 weeks and just haven't had time to get on the computer. First we were off to Fairmont as soon as Jonmarie was done school and then did a quick turnaround at home to get ready for a camping trip with Shauna and Dale at Gull Lake. Not a great week for camping as it rained and was cold everyday but we still survived and made the best of it.
Matt has been busy. He said the RCMP dog show was fantastic and they did some demonstrations with the puppies first and then the mother of some of the puppies came out to show what she could do. Matt was very impressed and was shocked that each dog after training is worth around $16,000.
Continuing with weekly therapies and Matt had a good session today and then off to his bath in Innisfail. Watched him do some standing exercises and was impressed how much easier it looks to rig him up in his standing frame and how much more trunk control he has.
We have had lots of company lately. Uncle Wince and Auntie Carol from B.C. came to visit and it was so funny to watch him and dad argue and tease each other like they probably did when the were younger. They even came out for the afternoon to the campsite when Jacki brought the kids and Grandma. Matt was unable to come because of the rain.
John's son Kennie from New Zealand arrived at the end of June and Jonmarie is loving having her big brother to do things with. They are always off swimming or playing games and she will really miss him when he goes back at the end of July. Shaunie likes him too but likes to be with her mom and dad.
Matt, mom and dad have made many trips to Calgary and have watched Nolan play ball a few times. Lindsay has been off since injuring her knee ligament and is waiting for possible surgery. Not a happy camper! Matt again is going up this weekend to Calgary and it is great that Jacki and Gary get there house re-organized every time he visits. Nolan and Lindsay have bought a house together and made sure there is an entrance that Matt can get into, even if it is on the lower level it still helps for when he comes to visit.
Good luck with the wedding tomorrow Lanna and wish you both the best. Sorry we couldn't make it down but maybe will see you sometime in August. Dad is going back on Monday or Tuesday and I don't know what I will do without him helping in the garden which has survived and cutting grass. Matt and mom will head to Weekes August long weekend and stay until after Jamie's wedding. Things have been so busy here that Mom says she needs a holiday from her holiday!
Friday, July 10, 2009
Monday, June 22, 2009
Crazy weather
Some days I am not sure if summer is really here or winter/spring/fall is happening. Our garden has taken a hail beating twice and there was enough hail that we could make snowballs! The next day it was so hot we were thinking of setting up the inflatable pool, the following day we had the fireplace going!
Matt continues the slow onward trudge and works out everyday at home, plus physio and OT at the outpatient department. Monday he was unable to finish his rehab, the spasms take over his body and there is not much anyone can do. His body gets so toned you can't bend him. Last week he had a bad morning and had to give him some of Shaunie's ativan(the ones she will never take again!). I only gave him 1 mg and he slept for hours. Still groggy after he woke up but was feeling less anxiety. He doesn't ask for them very often but they sure helps when he needs them.
Matt and dad went on Saturday to watch Nolan play ball in Olds. Nolan's team won 2 games and were supposed to play on Sunday but it was rained out. That was okay. Matt was feeling pretty tired and had a bit of heat stroke, even though he had an umbrella over top and a hat. He reacts more quickly to changes in temp then he ever did so we must be more diligent.
It was great to see Heather on Saturday as she had to work in Red Deer over the weekend and stayed for supper and some wine. It was such a beautiful evening that we sat on the deck until 11 pm watching John's new bug zapper in action. It was a great source of entertainment!
On Wednesday Matt was invited to attend an RCMP dog show in Bowden by a good friend of ours so that should be exciting.
Mom is feeling much better, though she is still tired by the weekend. It will be a nice break in the summer for her to take some time and relax, though I doubt if she will. If she has a free moment she usually finds something else to fill it up with.
Dad is a great garden boy and has put up a snow fence to protect the garden against the deer and kids! We will have to replant the carrots and dill though. When it rained and hailed the plants were too delicate and were washed away. Not sure if the growing season is long enough but we shall see.
Matt continues the slow onward trudge and works out everyday at home, plus physio and OT at the outpatient department. Monday he was unable to finish his rehab, the spasms take over his body and there is not much anyone can do. His body gets so toned you can't bend him. Last week he had a bad morning and had to give him some of Shaunie's ativan(the ones she will never take again!). I only gave him 1 mg and he slept for hours. Still groggy after he woke up but was feeling less anxiety. He doesn't ask for them very often but they sure helps when he needs them.
Matt and dad went on Saturday to watch Nolan play ball in Olds. Nolan's team won 2 games and were supposed to play on Sunday but it was rained out. That was okay. Matt was feeling pretty tired and had a bit of heat stroke, even though he had an umbrella over top and a hat. He reacts more quickly to changes in temp then he ever did so we must be more diligent.
It was great to see Heather on Saturday as she had to work in Red Deer over the weekend and stayed for supper and some wine. It was such a beautiful evening that we sat on the deck until 11 pm watching John's new bug zapper in action. It was a great source of entertainment!
On Wednesday Matt was invited to attend an RCMP dog show in Bowden by a good friend of ours so that should be exciting.
Mom is feeling much better, though she is still tired by the weekend. It will be a nice break in the summer for her to take some time and relax, though I doubt if she will. If she has a free moment she usually finds something else to fill it up with.
Dad is a great garden boy and has put up a snow fence to protect the garden against the deer and kids! We will have to replant the carrots and dill though. When it rained and hailed the plants were too delicate and were washed away. Not sure if the growing season is long enough but we shall see.
Monday, June 15, 2009
Jeff Dunham
Matt, Nolan and Mom went to Edmonton yesterday to see Jeff Dunham, the ventriloquist comedian at Rexall Place. Matt and Nolan said it was hilarious and were really glad they went Couldn't have asked for better weather, 29 degrees. Thanks so much for Auntie Ardis and Uncle Ken who came to meet mom at Rexall Place to take her back to Shannon and Ray's for a visit. While they were gone Jacki brought the 3 munchkins to the house for a visit. Baby Anthony is so good that we went outside with the kids and grandpa stayed in the house to watch Anthony. We were busy doing yard work and got such a kick out of Bobby. He should be on the farm. He wanted to "dig something" so I told him to go dig the weeds. He was out there for over an hour with his shovel. We still have weeds but very little dirt anymore!
Matt now has physio/occupational therapy on Monday's and Friday's so 2 hours of "work" on those days. Wednesday he goes to Innisfail for a bath. We were happy to hear we got approval from the Alberta Government for payment of a nanny. Up until now Matt has been paying for Cecilia out of pocket and now with the funding we can get another one for weekends and evenings possibly. It will take some of the stress off mom and dad, who have been amazing troopers up until now. We aften have people look at us in amazement for what we have done for Matt and we realize not many families would change lifestyles and living situations to accomadate a person with disabilities. You must just look at the benefits and not just the negatives. We have been so blessed to have such a great family and we seem to make it work. Of course it helps when you have someone like Matt who has the most amazing attitude. And having the nannies help tremendously and we thank God everyday for them.
The other day I was watching Matt do his standing exercises and was amazed again at his continued progress. He may not see it but when he was standing they do not have to have the belt so tight and he can bend his right knee slightly and straighten it again. I have a great video on my camera of him reaching over a grabbing the control to let himself down when he was tired. Wish I could put it on the blog but the file is too big. Need to become more computer literate!
Matt now has physio/occupational therapy on Monday's and Friday's so 2 hours of "work" on those days. Wednesday he goes to Innisfail for a bath. We were happy to hear we got approval from the Alberta Government for payment of a nanny. Up until now Matt has been paying for Cecilia out of pocket and now with the funding we can get another one for weekends and evenings possibly. It will take some of the stress off mom and dad, who have been amazing troopers up until now. We aften have people look at us in amazement for what we have done for Matt and we realize not many families would change lifestyles and living situations to accomadate a person with disabilities. You must just look at the benefits and not just the negatives. We have been so blessed to have such a great family and we seem to make it work. Of course it helps when you have someone like Matt who has the most amazing attitude. And having the nannies help tremendously and we thank God everyday for them.
The other day I was watching Matt do his standing exercises and was amazed again at his continued progress. He may not see it but when he was standing they do not have to have the belt so tight and he can bend his right knee slightly and straighten it again. I have a great video on my camera of him reaching over a grabbing the control to let himself down when he was tired. Wish I could put it on the blog but the file is too big. Need to become more computer literate!
Sunday, June 7, 2009
Not so Beautiful Anymore!
I jinxed it all by saying we were having great weather. Last week it froze twice during the night and killed my beans and some of the corn. Turned the tops of the potatoes brown. So we did some replanting and hopefully everything will survive but they are predicting a frost warning again tonight. The tomato plants near the house are still thriving so that is one blessing.
Matt had a busy week as he had OT twice, a bath in Innisfail and started physiotherapy on Friday. However they mostly asked questions and will start the physio this week. Mom was telling me what Matt did the other morning. He could lift his head while lying in the bed and then pulled his knees to his chest after much thought and deliberation. Airene and Cecilia also mentioned when they use the standing frame, Matt is much stronger and I took and video of him standing with the frame and touching his head with his right hand at the same time. It doesn't seem like much to us but it takes alot of effort to do standing and moving at the same time.
Nolan and Lindsay came down for the weekend thank goodness to spend some quality time with Matt. The weekends get boring when the weather is poor and they play Wii and card games with Matt. Next weekend Matt got tickets to see Jeff Dunham at Rexall Place, a comedian/ventriloquist that both Matt and Nolan like so are going up to Edmonton on Sunday. I may have to go and be available for assistance but I didn't get tickets to the show. Wondering if any of the Edmonton relatives may be available for supper near the arena to visit with. Let me know.
Matt felt quite bad last week when Jonmarie and Shaunie were downstairs fighting and Uncle Matt was trying to get them to stop. He told Shaunie to go upstairs as she was being very mean to Jonmarie. Shaunie just would not listen and he yelled really loud and pinched her toe with his right fingers. By the time Grandma came down, Shaunie was backed up on the couch crying her eyes out. He didn't hurt her but she had very hurt feelings. But Shaunie needs to understand when Uncle Matt says something she must listen, especially if they are outside and she starts to run away. So I told Matt not to feel bad and she needs to be a little scared of what he might do (even if it is not much more than yelling). Welcome to the joys of having kids!
Matt had a busy week as he had OT twice, a bath in Innisfail and started physiotherapy on Friday. However they mostly asked questions and will start the physio this week. Mom was telling me what Matt did the other morning. He could lift his head while lying in the bed and then pulled his knees to his chest after much thought and deliberation. Airene and Cecilia also mentioned when they use the standing frame, Matt is much stronger and I took and video of him standing with the frame and touching his head with his right hand at the same time. It doesn't seem like much to us but it takes alot of effort to do standing and moving at the same time.
Nolan and Lindsay came down for the weekend thank goodness to spend some quality time with Matt. The weekends get boring when the weather is poor and they play Wii and card games with Matt. Next weekend Matt got tickets to see Jeff Dunham at Rexall Place, a comedian/ventriloquist that both Matt and Nolan like so are going up to Edmonton on Sunday. I may have to go and be available for assistance but I didn't get tickets to the show. Wondering if any of the Edmonton relatives may be available for supper near the arena to visit with. Let me know.
Matt felt quite bad last week when Jonmarie and Shaunie were downstairs fighting and Uncle Matt was trying to get them to stop. He told Shaunie to go upstairs as she was being very mean to Jonmarie. Shaunie just would not listen and he yelled really loud and pinched her toe with his right fingers. By the time Grandma came down, Shaunie was backed up on the couch crying her eyes out. He didn't hurt her but she had very hurt feelings. But Shaunie needs to understand when Uncle Matt says something she must listen, especially if they are outside and she starts to run away. So I told Matt not to feel bad and she needs to be a little scared of what he might do (even if it is not much more than yelling). Welcome to the joys of having kids!
Saturday, May 30, 2009
Beautiful Weather
We have been having some great weather and Matt has been soaking it in. On Sunday they went to Jacki and Gary's to see baby Anthony for the first time. He is so cute already and such a great baby. Sometimes you forget he is there. Sleeps. eats and makes good use of his diaper! Gary, Matt, and Dad then went to see the Calgary Vipers play baseball. Matt got a touch of heat stoke so wasn't feeling up to par the next day at rehab. He continues to do abdominal exercises so he will not lose what he has gained.
It has been great with dad being here. Grass is always cut and loves working in my garden. He takes Matt for his rehab and baths, so that is one less stress to think about. John has started Dad on some new medication that has done wonders. So that is certainly an answer to prayer.
Deanna, Matt's outpt occupational therapists has been to the house numerous times to make sure we have everything. Matt is going to get a new power chair from AADL, or Alberta activities of daily living program that gives financial assistance to people with disabilities. So we have spent time trying out different ones, including a manual chair as well. I am busy drafting a letter stating why Matt needs a power chair with all the whistles, such as tilt, recline, etc. They will look at all the applications they have had and see which one is most worthy at that time. So we have to make it look good. It is difficult to transfer him from chair to chair all the time because they only provide one cushion. Matt needs the special ROHO cushion which runs about $700, so they only give one per client. We are also trying out some new commodes as well. Matt's had to be custom made so they will provide the cost of the commode, but not the modifications. Paperwork, paperwork, paperwork! It is a full time job.
ON Wednesday night, Matt did some painting at the rehab department with the help of Cecilia. Some of it was pretty good, the easiest was coloring in the already traced picture.
Friday Matt had his bath in Innisfail and loves to soak in the tub. The home care aide really enjoys Matt and they are constantly teasing each other.
Mom has been feeling really under the weather and can't seem to shake it. Deep cough in her lungs and feeling prety exhausted most of the time. We had went to see Jonmarie's performance on Friday night and mom had a difficult time just making it to the end. So John has given her a req for a chest xray and some antibiotics to get her back into action. Prayers that God will heal her physically and emotionally, as being sick makes for a very frustated mom!
It has been great with dad being here. Grass is always cut and loves working in my garden. He takes Matt for his rehab and baths, so that is one less stress to think about. John has started Dad on some new medication that has done wonders. So that is certainly an answer to prayer.
Deanna, Matt's outpt occupational therapists has been to the house numerous times to make sure we have everything. Matt is going to get a new power chair from AADL, or Alberta activities of daily living program that gives financial assistance to people with disabilities. So we have spent time trying out different ones, including a manual chair as well. I am busy drafting a letter stating why Matt needs a power chair with all the whistles, such as tilt, recline, etc. They will look at all the applications they have had and see which one is most worthy at that time. So we have to make it look good. It is difficult to transfer him from chair to chair all the time because they only provide one cushion. Matt needs the special ROHO cushion which runs about $700, so they only give one per client. We are also trying out some new commodes as well. Matt's had to be custom made so they will provide the cost of the commode, but not the modifications. Paperwork, paperwork, paperwork! It is a full time job.
ON Wednesday night, Matt did some painting at the rehab department with the help of Cecilia. Some of it was pretty good, the easiest was coloring in the already traced picture.
Friday Matt had his bath in Innisfail and loves to soak in the tub. The home care aide really enjoys Matt and they are constantly teasing each other.
Mom has been feeling really under the weather and can't seem to shake it. Deep cough in her lungs and feeling prety exhausted most of the time. We had went to see Jonmarie's performance on Friday night and mom had a difficult time just making it to the end. So John has given her a req for a chest xray and some antibiotics to get her back into action. Prayers that God will heal her physically and emotionally, as being sick makes for a very frustated mom!
Thursday, May 21, 2009
Trip was a Success
Last Friday we left for Weekes at 10am and didn't get to there until 1030pm. We had to stop in Parkridge to see some of his friends and staff, which always takes awhile because everyone wants to talk to Matt. The girls are great travellers and the portable DVD player doesn't hurt either!
It was so good to see all the family members that were able to make it home. Aunty Karen and Uncle Neil have bought Grandma and Grandpa's house and it felt like old times, everyone trying to find a spot in the little house to sit and visit. Saturday Matt visited with some friends and didn't go to sleep until 2 am but we still managed to get him up for church the next morning. It was so good to see so many people and everyone helped get Matt into the church. IT has been the first time since his accident he has been in the church and it was a bit emotional. We did communion and on the way home I asked Matt how he was feeling and stated" I feel like nothing could get me down today". You could see in his eyes that he was relaxed and unburdened. The Spirit can do amazing things. It was so nice to see that there is finally a new minister and the message was charged with scripture and hope. I am not sure but I think it was hard for mom and Matt to see everyone and know that they were just visiting.
The trip back to Red Deer was uneventful but of course we had to stop at Parkridge again to visit. The weather cooperated for the weekend but sure was miserable for travelling. Cold, rain, wind. The van is very tall and catches the wind all the time so I needed to be diligent the whole time. Dad came in Nolan's mustang and he tried to drive the van for a bit but the seats are quite uncomfortable and his neck got too sore so we switched again.
Thanks everyone for the great trip, the fellowship, and the occasional tears that flowed. It was nice to know that Matt hasn't been forgotten and that people are still praying for his continued journey.
It was so good to see all the family members that were able to make it home. Aunty Karen and Uncle Neil have bought Grandma and Grandpa's house and it felt like old times, everyone trying to find a spot in the little house to sit and visit. Saturday Matt visited with some friends and didn't go to sleep until 2 am but we still managed to get him up for church the next morning. It was so good to see so many people and everyone helped get Matt into the church. IT has been the first time since his accident he has been in the church and it was a bit emotional. We did communion and on the way home I asked Matt how he was feeling and stated" I feel like nothing could get me down today". You could see in his eyes that he was relaxed and unburdened. The Spirit can do amazing things. It was so nice to see that there is finally a new minister and the message was charged with scripture and hope. I am not sure but I think it was hard for mom and Matt to see everyone and know that they were just visiting.
The trip back to Red Deer was uneventful but of course we had to stop at Parkridge again to visit. The weather cooperated for the weekend but sure was miserable for travelling. Cold, rain, wind. The van is very tall and catches the wind all the time so I needed to be diligent the whole time. Dad came in Nolan's mustang and he tried to drive the van for a bit but the seats are quite uncomfortable and his neck got too sore so we switched again.
Thanks everyone for the great trip, the fellowship, and the occasional tears that flowed. It was nice to know that Matt hasn't been forgotten and that people are still praying for his continued journey.
Thursday, May 14, 2009
Getting Ready
Well the weather is not cooperating for our trip. Yesterday we had a few snowflakes and today it is wet and cold. Much the same tomorrow I think. We will be arriving in Weekes late Friday night and not leaving until Tuesday.
Matt tried out a new power chair. Since he is in Alberta and the previous power chair is from Sask, we will have to return it sometime. So the Alberta government will purchase a new chair for Matt once we fill out the paper work and wait for approval. We can have one for a trial basis and Matt really likes it. It is more compact and turns on a dime, much more stable. However we don't think we can take it to Sask. because it is not the right size and needs a few more extras for such a long trip. We also looked at a few manual chairs but he will need a one hand chair, so all the movement comes from his right hand. However Matt may not have the strength he needs to use it properly so they are going to come back with some different models. The problem again is Matt is so tall that everything is too short so extra modifications need to be made and that isn't as easy as it sounds.
Prayers for a safe trip tomorrow and Thanks to God that we have a new van for the trip.
Matt tried out a new power chair. Since he is in Alberta and the previous power chair is from Sask, we will have to return it sometime. So the Alberta government will purchase a new chair for Matt once we fill out the paper work and wait for approval. We can have one for a trial basis and Matt really likes it. It is more compact and turns on a dime, much more stable. However we don't think we can take it to Sask. because it is not the right size and needs a few more extras for such a long trip. We also looked at a few manual chairs but he will need a one hand chair, so all the movement comes from his right hand. However Matt may not have the strength he needs to use it properly so they are going to come back with some different models. The problem again is Matt is so tall that everything is too short so extra modifications need to be made and that isn't as easy as it sounds.
Prayers for a safe trip tomorrow and Thanks to God that we have a new van for the trip.
Monday, May 11, 2009
Kitty is no more
We had a difficult experience for Mother's Day. Our little kitten was killed by the neighbor's dog in front of the kids. It was awful. Everyone had gotten so attached to Molly and Matt was so upset. We will probably get another one but it is hard to erase that image from everyone's head. Shaunie kept trying to pet it and saying "kitty sleeping, wake up kitty". Needless to say the rest of the day was not great.
Matt has been going for outpatient OT Mon and Wed. And the girls continue to keep him busy. I am finding he is more independent than before. If we don't lock the basement door he can open it. He can open the fridge door and get something out if not too heavy. Matt had a sore on his right thigh and states he can feel it better than he could before. That can be a good or bad thing. More sensation can lead to neuropathic pain which if any one has it, it is horrible. But it could mean more sensation, more movement. So prayers that it is a positive thing.
We went to the Red Deer College for the wheelchair ball hockey and basketball. Most of the participants were quite young and Matt mostly just observed. We tried some badminton and Matt did okay but his arm got so tired so fast. He couldn't do the basketball as they don't allow power chairs. They had an para-Olympic athlete there and he was so good. I think Matt gets a little jealous of the paripalegics because they have full use of their arms.
Jacki was down with the kids this weekend and she was having pretty consistent contractions but they subsided by Sunday. So no baby yet! But she is 38 weeks so anytime now.
Getting ready for the big drive this weekend. Matt is so excited to be going home and seeing everyone. So please, if you are in the area, pop over for a visit. The door will be open.
Matt has been going for outpatient OT Mon and Wed. And the girls continue to keep him busy. I am finding he is more independent than before. If we don't lock the basement door he can open it. He can open the fridge door and get something out if not too heavy. Matt had a sore on his right thigh and states he can feel it better than he could before. That can be a good or bad thing. More sensation can lead to neuropathic pain which if any one has it, it is horrible. But it could mean more sensation, more movement. So prayers that it is a positive thing.
We went to the Red Deer College for the wheelchair ball hockey and basketball. Most of the participants were quite young and Matt mostly just observed. We tried some badminton and Matt did okay but his arm got so tired so fast. He couldn't do the basketball as they don't allow power chairs. They had an para-Olympic athlete there and he was so good. I think Matt gets a little jealous of the paripalegics because they have full use of their arms.
Jacki was down with the kids this weekend and she was having pretty consistent contractions but they subsided by Sunday. So no baby yet! But she is 38 weeks so anytime now.
Getting ready for the big drive this weekend. Matt is so excited to be going home and seeing everyone. So please, if you are in the area, pop over for a visit. The door will be open.
Monday, May 4, 2009
Back at Home (Red Deer)
Matt was discharged from the rehab department on Friday. It was very bittersweet. The therapists became like friends and so did many of the staff and patients. They knew they could have kept Matt there indefinitely, there where so many things to work on but they can only do so much. Now it is up to him.
During the last 3 months, Matt has improved his core muscle strength, increased dexterity with his right hand and arm, able to move his left a bit more when he concentrates, stands with the machine for longer periods of time, had his bladder stones removed (which was one of the biggest blessings), and has more confidence and is becoming more independent.
This weekend Mom and Matt travelled to Calgary for Bobby's birthday party. They even got to see Lindsay play ball for a bit before she blew her knee out and had to spend hours in the ER waiting to see a doctor. The joys of playing sports!
Today the girls were hard at work doing Matt's exercises in the am. Matt had outpatient OT therapy at 1 pm so at my lunch break from work I drove home to pick up Matt and Cecilia and take them to the hospital. Shaunie was home from her school and Matt was already outside waiting. I needed to get something from the house and when Shaunie saw me, she said "Uncle Matthew gone!!" She was very worried that Matthew wasn't where he should be! Matt and Cecilia stayed after therapy and did some visiting until I picked them up after work so we could go to Walmart and get some goodies. We even went to the meat market to get some bison pepper jerky, which was so yummy. Mom bought $20 worth.
The weather was so good tonight that we were able to enjoy supper sitting on the deck. It is nice for Matt to be able to join the family for supper again. We must have been outside for 2 1/2 hours at least. Until the bugs came out.
During the last 3 months, Matt has improved his core muscle strength, increased dexterity with his right hand and arm, able to move his left a bit more when he concentrates, stands with the machine for longer periods of time, had his bladder stones removed (which was one of the biggest blessings), and has more confidence and is becoming more independent.
This weekend Mom and Matt travelled to Calgary for Bobby's birthday party. They even got to see Lindsay play ball for a bit before she blew her knee out and had to spend hours in the ER waiting to see a doctor. The joys of playing sports!
Today the girls were hard at work doing Matt's exercises in the am. Matt had outpatient OT therapy at 1 pm so at my lunch break from work I drove home to pick up Matt and Cecilia and take them to the hospital. Shaunie was home from her school and Matt was already outside waiting. I needed to get something from the house and when Shaunie saw me, she said "Uncle Matthew gone!!" She was very worried that Matthew wasn't where he should be! Matt and Cecilia stayed after therapy and did some visiting until I picked them up after work so we could go to Walmart and get some goodies. We even went to the meat market to get some bison pepper jerky, which was so yummy. Mom bought $20 worth.
The weather was so good tonight that we were able to enjoy supper sitting on the deck. It is nice for Matt to be able to join the family for supper again. We must have been outside for 2 1/2 hours at least. Until the bugs came out.
Tuesday, April 28, 2009
Stop the world, I want to get off!!
Working full time makes for a busy life!! Time is just flying and I keep forgetting to purchase my ticket!!
Matt seems to be feeling better. He is on antibiotics and we think he may have had strep throat. Mom and Matty were supposed to go to Calgary last weekend but Matt woke up on Saturday with a flaming red throat and was so sore he could hardly swallow. Good thing we have our own pharmacy in our cupboard we just fixed him right up! However we are hoping to go the Calgary this weekend for Bobby's birthday party since we were unable to go to Jacki's.
Tomorrow is Matt's monthly family meeting and we have a sneaky suspicion that Matt will be discharged by the end of the week. So we are preparing for that. So I will write in the blog tomorrow to let everyone know what is happening.
Last week Matt tried something new. The therapists got him to lay on his stomach on the plith board. They used a wedge under his tummy to get him up on all fours, like a baby ready to crawl. Then they asked him to arch his back like a cat. He was able to do one and was exhausted! That is not only working on his abs but also the lower back muscles which are extremely weak. Just getting him on all fours was a challenge!
So it is an exercise we will have to keep up at home.
May 8th there is a wheelchair open house at the Red Deer College to see if there is an interest in wheelchair sports, such as wheelchair basketball and wheelchair ball hockey. We are encouraging Matt to attend but he is like the rest of us, so competitive that if he isn't the best he doesn't want to try, but we are going to abduct him and take him anyway. The coordinator said he can just come and observe first and then participate later. However she has to look for a wheelchair big enough for his height.
Update you more tomorrow.
Pray for better Alberta weather!
Matt seems to be feeling better. He is on antibiotics and we think he may have had strep throat. Mom and Matty were supposed to go to Calgary last weekend but Matt woke up on Saturday with a flaming red throat and was so sore he could hardly swallow. Good thing we have our own pharmacy in our cupboard we just fixed him right up! However we are hoping to go the Calgary this weekend for Bobby's birthday party since we were unable to go to Jacki's.
Tomorrow is Matt's monthly family meeting and we have a sneaky suspicion that Matt will be discharged by the end of the week. So we are preparing for that. So I will write in the blog tomorrow to let everyone know what is happening.
Last week Matt tried something new. The therapists got him to lay on his stomach on the plith board. They used a wedge under his tummy to get him up on all fours, like a baby ready to crawl. Then they asked him to arch his back like a cat. He was able to do one and was exhausted! That is not only working on his abs but also the lower back muscles which are extremely weak. Just getting him on all fours was a challenge!
So it is an exercise we will have to keep up at home.
May 8th there is a wheelchair open house at the Red Deer College to see if there is an interest in wheelchair sports, such as wheelchair basketball and wheelchair ball hockey. We are encouraging Matt to attend but he is like the rest of us, so competitive that if he isn't the best he doesn't want to try, but we are going to abduct him and take him anyway. The coordinator said he can just come and observe first and then participate later. However she has to look for a wheelchair big enough for his height.
Update you more tomorrow.
Pray for better Alberta weather!
Tuesday, April 21, 2009
New Kitty
Sorry the blog is late, I have been working full time at the spa and time gets away from me. We have been having some beautiful weather, today hitting a high of 22 degrees, but will soon turn ugly again. Winter does not want to give up without a fight. Just like Matt, just keeps fighting.
Last week was very busy with continuation of rehab. Took him out for wing night again which is a real break for him and myself. I am not sure who enjoys it more. And the waitresses all fuss over him. Even the ones that don't serve our table come over to talk to him. What a charmer! They even know what he is going to order before he even says anything. It's like Norm on "Cheers", except cuter and less chubby! Matt has stopped going for massage because we have a new girl and we are not sure whether she can help us lift him on the bed, so we will wait and see.
Really noticed a difference in his core muscle strength when he was home. Matt is also incorporating doing some self exercises when in bed and then when we sit him up, trying to do leg and foot exercises. Before he would be so tired that he would just relax all weekend and regain his strength. Because of the weather, we had a great time outside, flying kites and breathing in the freshness. Matt and I laughed so hard watching mom try and run to fly her kite. The kite kept crashing and she would get mad and try again. We also got a new baby kitty, just weaned from its mother. It is ginger colored and has a striped tail. Matthew named her Molly and it really suits her. Mom and Matt went for a walk and Matt kept Molly in his jacket with the zipper done up. Was nervous going down the highway, was very nervous the cars would hit him or his chair would run out of batteries. still feels very vulnerable, which is is so very understandable.
But Mom went to see Matt yesterday and he looked awful. They think he has another bladder infection and is affecting him alot this time. He was so sick and hardly did any rehab. Hopefully he can fight it on his own and not have to take antibiotics. There is only a few that work with Matt because he has had so many he is resistant to a lot of them. They will have to pull out the big guns and probably have to start an IV and that would be disappointing. So please pray that God will bring his healing onto Matt and fight off the infection.
Just a note that we did not go home last weekend. We are actually going home May Long weekend.
Last week was very busy with continuation of rehab. Took him out for wing night again which is a real break for him and myself. I am not sure who enjoys it more. And the waitresses all fuss over him. Even the ones that don't serve our table come over to talk to him. What a charmer! They even know what he is going to order before he even says anything. It's like Norm on "Cheers", except cuter and less chubby! Matt has stopped going for massage because we have a new girl and we are not sure whether she can help us lift him on the bed, so we will wait and see.
Really noticed a difference in his core muscle strength when he was home. Matt is also incorporating doing some self exercises when in bed and then when we sit him up, trying to do leg and foot exercises. Before he would be so tired that he would just relax all weekend and regain his strength. Because of the weather, we had a great time outside, flying kites and breathing in the freshness. Matt and I laughed so hard watching mom try and run to fly her kite. The kite kept crashing and she would get mad and try again. We also got a new baby kitty, just weaned from its mother. It is ginger colored and has a striped tail. Matthew named her Molly and it really suits her. Mom and Matt went for a walk and Matt kept Molly in his jacket with the zipper done up. Was nervous going down the highway, was very nervous the cars would hit him or his chair would run out of batteries. still feels very vulnerable, which is is so very understandable.
But Mom went to see Matt yesterday and he looked awful. They think he has another bladder infection and is affecting him alot this time. He was so sick and hardly did any rehab. Hopefully he can fight it on his own and not have to take antibiotics. There is only a few that work with Matt because he has had so many he is resistant to a lot of them. They will have to pull out the big guns and probably have to start an IV and that would be disappointing. So please pray that God will bring his healing onto Matt and fight off the infection.
Just a note that we did not go home last weekend. We are actually going home May Long weekend.
Monday, April 13, 2009
Happy Easter!!
I am sure that I am not the only one to say "I ate too much!" for the weekend. We always make food like half the population of a small country is coming and then complain about the leftovers!
Sunday we tried to get Matt to come to church with us but he feels so uncomfortable in big crowds and our church holds over one thousand. So Grandma had to stay with Matt while the rest off us got to celebrate the resurrection at church. The kids love to go to Sunday school and learn about the Lord.
Mom picked up Matt on Thursday night because the therapists had Good Friday off and so did mom, so one extra day at home. Jacki, Gary and the kids came and Amy was back to her usual self, eating whatever she could get her hands on and even things she couldn't! (she is a great climber and doesn't take no for an answer!) The weather was gorgeous, between +16-+18 degrees all weekend. The snow is almost gone and Matt can go all over the yard. The new deck is great, as we did Easter crafts on Saturday and Matt could watch the kids and wait for hotdogs from the barbecue.
Mom can pretty much transfer Matt by herself using the transfer board and we haven't used the lift in months. His abs were hurting this weekend from the major workout his therapists give him during the week. Mom made him put on his long sleeve shirt by himself and this weekend he has to make the girls Kraft dinner by himself, to see how he does. The more he does for himself, the more independent he will become.
We are trying to make him use his left hand as much as possible. Before he gets up in the morning/afternoon!, Matt must lift his left arm with his right arm by "holding hands' with his fingers interlocked. Then he must try to put himself into a sitting position by pushing up with his right arm and hand, still needs lots more muscle strength for this one. When Matt brushes his teeth, mom got him to hold the toothbrush with his left hand, making his hand into a fist. Matt has trouble with this as he doesn't have the strength to hold the brush as it is too small, but it is making his brain remember the movements. After that he can squeeze the toothpaste on the toothbrush.
Hope to see a few family members and friends on May long weekend. We are taking Esmeralda to Weekes with Grandma, myself, the two nannies, and Jonmarie and Shaunie. I am forgetting someone... oh wait, Matthew too! And a partridge in a pear tree!
We actually could fit an extra person in but we want leg room! We are planning to go on Friday and return on Tuesday. We are unsure whether rehab will keep Matt one more month but we are planning the trip like he will be discharged.
Sunday we tried to get Matt to come to church with us but he feels so uncomfortable in big crowds and our church holds over one thousand. So Grandma had to stay with Matt while the rest off us got to celebrate the resurrection at church. The kids love to go to Sunday school and learn about the Lord.
Mom picked up Matt on Thursday night because the therapists had Good Friday off and so did mom, so one extra day at home. Jacki, Gary and the kids came and Amy was back to her usual self, eating whatever she could get her hands on and even things she couldn't! (she is a great climber and doesn't take no for an answer!) The weather was gorgeous, between +16-+18 degrees all weekend. The snow is almost gone and Matt can go all over the yard. The new deck is great, as we did Easter crafts on Saturday and Matt could watch the kids and wait for hotdogs from the barbecue.
Mom can pretty much transfer Matt by herself using the transfer board and we haven't used the lift in months. His abs were hurting this weekend from the major workout his therapists give him during the week. Mom made him put on his long sleeve shirt by himself and this weekend he has to make the girls Kraft dinner by himself, to see how he does. The more he does for himself, the more independent he will become.
We are trying to make him use his left hand as much as possible. Before he gets up in the morning/afternoon!, Matt must lift his left arm with his right arm by "holding hands' with his fingers interlocked. Then he must try to put himself into a sitting position by pushing up with his right arm and hand, still needs lots more muscle strength for this one. When Matt brushes his teeth, mom got him to hold the toothbrush with his left hand, making his hand into a fist. Matt has trouble with this as he doesn't have the strength to hold the brush as it is too small, but it is making his brain remember the movements. After that he can squeeze the toothpaste on the toothbrush.
Hope to see a few family members and friends on May long weekend. We are taking Esmeralda to Weekes with Grandma, myself, the two nannies, and Jonmarie and Shaunie. I am forgetting someone... oh wait, Matthew too! And a partridge in a pear tree!
We actually could fit an extra person in but we want leg room! We are planning to go on Friday and return on Tuesday. We are unsure whether rehab will keep Matt one more month but we are planning the trip like he will be discharged.
Monday, April 6, 2009
One More Month
The meeting last week was very successful and Matt will stay in rehab for one more month for sure. He has been feeling blue lately and tired. I asked if he just wanted to stop rehab, that maybe it was getting too tiresome and his response was "So I can sit at home and feel sorry for myself and do nothing for the rest of my life?" I guess that was my answer. I think he just gets tired from the physical and mental strain everyday and needs the weekend to relax. However this past weekend was not very relaxing because Jacki and the kids came to visit and Amy starting getting sick late Saturday night and ended up with rotovirus. Watery, awful smelling diarrhea and vomiting constantly. The washmachine worked non stop trying to keep up so Matt couldn't come upstairs to visit and we would only go down to see him if we disinfected ourselves. But Jonmarie and Uncle played Wii and Matt watched hockey, which he loves. Jacki phoned and Amy is still not eating and can only keep small amounts of fluid in so I think a trip tomorrow to her family physician may be in order. Little ones can dehydrate so fast.
Rehab continues in the same direction with Matt's goal of putting on a shirt without assistance has been accomplished. The new stand ARGO machine that we got through funding from Telemiracle is great! Took it to the rehab department last week and now the therapist can stand him by herself. Will work so well at home for toileting and standing when we only have one person for help. It builds bone/muscle strength and helps his posture, relieve his bottom and prevent pressure sores, help to stabilize blood pressure, etc. However Matt has been having some trouble with his blood pressure. The doctor (not John!) decided to take Matt off his remaining blood pressure pill, which was given to help elevate his low blood pressure and it will take awhile for his body to get used to it. When he stands, it drops to 70/40 and makes him feel dizzy and nauseated. But we are hoping by this week his body will adjust and he will feel better.
It didn't dampen his appetite on wing night at Tony Roma's. He had over 20 wings and they were huge! Always such a great time and the staff make him feel so special, coming over and chatting and remembering what drink he likes.
Thank goodness the weather is improving and we are grateful for the wind to dry things up. You know winter is finally leaving when they don't add a wind chill warning when they talk about it being windy.
Rehab continues in the same direction with Matt's goal of putting on a shirt without assistance has been accomplished. The new stand ARGO machine that we got through funding from Telemiracle is great! Took it to the rehab department last week and now the therapist can stand him by herself. Will work so well at home for toileting and standing when we only have one person for help. It builds bone/muscle strength and helps his posture, relieve his bottom and prevent pressure sores, help to stabilize blood pressure, etc. However Matt has been having some trouble with his blood pressure. The doctor (not John!) decided to take Matt off his remaining blood pressure pill, which was given to help elevate his low blood pressure and it will take awhile for his body to get used to it. When he stands, it drops to 70/40 and makes him feel dizzy and nauseated. But we are hoping by this week his body will adjust and he will feel better.
It didn't dampen his appetite on wing night at Tony Roma's. He had over 20 wings and they were huge! Always such a great time and the staff make him feel so special, coming over and chatting and remembering what drink he likes.
Thank goodness the weather is improving and we are grateful for the wind to dry things up. You know winter is finally leaving when they don't add a wind chill warning when they talk about it being windy.
Monday, March 30, 2009
Warming Up
Thank goodness the weather is improving. We still have quite a bit of snow in the yard but can now see some patches of road. I had taken Jonmarie to West Edmonton Mall On Friday and they have much less snow then we do. I wanted Matt to come with but he isn't quite ready yet. He likes to stay at places that are familiar to him, has always been like that. Would prefer to stay close to home and be with family.
Last week Matt went bowling with the recreational therapist and a few other patients. Cecilia took a great video from her phone but I couldn't beam it onto my phone. This bowling alley is great, really equipped for people with disabilities. On the one side of the bowling alley is regular bowling. On the other they have bumpers to prevent the ball from going in the gutter. Then they have stands that are shaped like a slide and Matt could just put his ball on the top of the stand, push it a little bit and the ball would go down the "slide" and eventually make it to the end where the pins are. Next they had Matt try and throw the ball using his right hand, and the therapist would just steady the elbow. He was able to do that a few times and almost beat one of the other patients. With Matt, it is all about the competition!
On the weekend Matt had company and was great to see Travis and Amy. Mom and I went to a baby shower so Airene and Cecilia came for the afternoon. They tried to get Matt to do some exercises but he is so exhausted from the week he didn't work as hard as he usually does. Think he just needs a break. Was very quiet and just said sometimes he gets mentally tired of thinking and trying so hard all the time. But Matt always pulls himself back and gives his all come Monday. Prayers that God continues to give Matt the strength to persevere. Today he was really exhausted. Margaret had him doing abdominal work and even I hate that! He said it was so tiring and didn't want to do anything until tomorrow.
Left hand and arm are noticeable getting better as long as he is feeling well. He is able to close it into a tighter fist than before and when laying on his right side with his left propped on a pillow, can move it off the pillow onto his hip (if not too much of a difference in height). Matt also practices lifting his left hand with his right hand and put it over his head. Good for strengthening his right and reminds his left what it should be doing.
Tomorrow is Matt's month end family conference so prayers that they will continue to keep Matt as long as possible.
Last week Matt went bowling with the recreational therapist and a few other patients. Cecilia took a great video from her phone but I couldn't beam it onto my phone. This bowling alley is great, really equipped for people with disabilities. On the one side of the bowling alley is regular bowling. On the other they have bumpers to prevent the ball from going in the gutter. Then they have stands that are shaped like a slide and Matt could just put his ball on the top of the stand, push it a little bit and the ball would go down the "slide" and eventually make it to the end where the pins are. Next they had Matt try and throw the ball using his right hand, and the therapist would just steady the elbow. He was able to do that a few times and almost beat one of the other patients. With Matt, it is all about the competition!
On the weekend Matt had company and was great to see Travis and Amy. Mom and I went to a baby shower so Airene and Cecilia came for the afternoon. They tried to get Matt to do some exercises but he is so exhausted from the week he didn't work as hard as he usually does. Think he just needs a break. Was very quiet and just said sometimes he gets mentally tired of thinking and trying so hard all the time. But Matt always pulls himself back and gives his all come Monday. Prayers that God continues to give Matt the strength to persevere. Today he was really exhausted. Margaret had him doing abdominal work and even I hate that! He said it was so tiring and didn't want to do anything until tomorrow.
Left hand and arm are noticeable getting better as long as he is feeling well. He is able to close it into a tighter fist than before and when laying on his right side with his left propped on a pillow, can move it off the pillow onto his hip (if not too much of a difference in height). Matt also practices lifting his left hand with his right hand and put it over his head. Good for strengthening his right and reminds his left what it should be doing.
Tomorrow is Matt's month end family conference so prayers that they will continue to keep Matt as long as possible.
Tuesday, March 24, 2009
The Saga Continues
Matt continues in rehab and we are hoping to keep him there as long as possible. He likes the staff and therapists, but still loves to come home on the weekends. This weekend the weather was great on Friday and he was able to sit out on the deck while John cooked on the barbeque. However the weather turned into that March lion and dumped over 15 cm of snow. Wet, cold, miserable. On Sunday our wonderful neighbors came and cleaned our driveway so we could get Matt back to rehab. By the time we returned a lot of the snow was blown back in and Matt's van barely made it through. No four wheel drive which makes it tough.
Matt was disappointed today because he couldn't stand without his brace. He wanted to try and the therapist said that he could but it might be difficult. He still stood three times. Matt is now trying to go from a standing position and then a slight sitting position and back up again. I will try to explain. When Matt goes to a standing position, they move the bed to the highest position so when he goes into a standing position, he doesn't have far to go. After he stands for a bit with the leg brace on the left leg in position, he tries to bend his right knee like he was about to sit down. because he cannot stand without his brace, it must stay locked in place and only the right knee is bending. Then Matt must push up back into a standing position. He is able to do it three or four times, each time he is standing so it adds up to 10 times. Mom says his right leg just shakes it takes so much effort with such a little bit of muscle to work with. The therapists are still amazed at his progress.
Yesterday they were working on his left arm, practicing supination and pronation. basically when his arm is resting on the table, Matt must try and turn his arm so his palm faces upwards and then back so his palm faces to the table. He does it better when he turns so his palm faces up. They are working on it to give Matt more mobility to help dress himself. He can now put his own shirt on by using his right arm and teeth. They got him doing his own buttons with the neatest little tool.
We are so grateful for all the prayers and thoughts regarding Shaunie. She is back to her normal self and the MRI did not show anything, however it wasn't the best diagnostic tool as Shaunie was unable to hold still enough in the machine. I had prayed that she would do well but just before she went into the room, I decided to give the Ativan the Dr. had prescribed to semi-sedate her. Thank goodness it did not take effect until after the MRI because it had the exact oppisite effect. We had to watch her like a hawk because she was like a drunk 4 year old, running into walls, jumping on the bed and off like it was still beneath her feet, screaming and agitated for 12 hours. Not a good day. Trust in the Lord and do not doubt, that is what I learned!
Matt was disappointed today because he couldn't stand without his brace. He wanted to try and the therapist said that he could but it might be difficult. He still stood three times. Matt is now trying to go from a standing position and then a slight sitting position and back up again. I will try to explain. When Matt goes to a standing position, they move the bed to the highest position so when he goes into a standing position, he doesn't have far to go. After he stands for a bit with the leg brace on the left leg in position, he tries to bend his right knee like he was about to sit down. because he cannot stand without his brace, it must stay locked in place and only the right knee is bending. Then Matt must push up back into a standing position. He is able to do it three or four times, each time he is standing so it adds up to 10 times. Mom says his right leg just shakes it takes so much effort with such a little bit of muscle to work with. The therapists are still amazed at his progress.
Yesterday they were working on his left arm, practicing supination and pronation. basically when his arm is resting on the table, Matt must try and turn his arm so his palm faces upwards and then back so his palm faces to the table. He does it better when he turns so his palm faces up. They are working on it to give Matt more mobility to help dress himself. He can now put his own shirt on by using his right arm and teeth. They got him doing his own buttons with the neatest little tool.
We are so grateful for all the prayers and thoughts regarding Shaunie. She is back to her normal self and the MRI did not show anything, however it wasn't the best diagnostic tool as Shaunie was unable to hold still enough in the machine. I had prayed that she would do well but just before she went into the room, I decided to give the Ativan the Dr. had prescribed to semi-sedate her. Thank goodness it did not take effect until after the MRI because it had the exact oppisite effect. We had to watch her like a hawk because she was like a drunk 4 year old, running into walls, jumping on the bed and off like it was still beneath her feet, screaming and agitated for 12 hours. Not a good day. Trust in the Lord and do not doubt, that is what I learned!
Tuesday, March 17, 2009
Left Hand Trying to Work
Last week Matt continued to be busy and pushing hard in rehab. He is standing everyday and they continue to be amazed at Matt's progress. Took him to Tony Roma's on Wednesday, was -20 with the windchill but with Esmeralda it isn't bad at all. There is a button you push which heats the vehicle without turning it on so the van is always toasty warm (when I remember to push the button). Friday Matt was supposed to go for a massage but Shaunie had a bad day and ended up in the hospital with another seizure so we postponed it until this week. Matt gets really upset when he sees Shaunie like that but came to ER as soon as we got there. Nice to have family around when it happens. He even came and visited her on the pediatric ward. I think he came for the free TV!
Lindsay, Nolan, Jacki and family, Bobby M came down for Saturday night and the ones without kids stayed up until the wee hours (except Mom but she had to look after Matt). They had a great time playing Wii and watching TV. However everyone seemed to get the flu bug that is going around. Cough, aches, runny nose, etc. Matt felt really bad on Monday am so they let him stay in bed but got him up for his therapy.
Today I was able to watch occupational therapy. She had Matt's left arm on the table on a pillowcase and was asking him to slide his arm toward a glass on the table. His shoulder is much stronger and he could do it quite easily. Then she asked him to open his left hand to grab the glass. The therapist holds his wrist and stimulates his proprioceptive, in other words by holding his wrist and pushing the joint together tells Matt's brain where his hand is in relation to his body. Then she rubs Matt's thumb and fingers on the sides of the cup to stimulate them to move. Matt was able to close his hand around the cup and hold it when she told him to bring his arm back. Then she lifted Matt's' hand up like his was going to take a sip out of the cup and he continued to hold it in his hand. I thought that was pretty impressive and then she took a jar full of beads for weight and told him to do the same thing, however he must try and slide the jar off the table and onto his lap without dropping it. He did. So not only does he have some movement in his fingers, he can grab things lightly to prevent them from falling. She asked him to put the jar back on the table and he was so close and tried so hard, but he could just not lift the bottom of the jar past the bottom of the table. It takes so much concentration and she had to continually tell him to stop trying to help with his right hand.
Keep up the awesome job Matt. We are so proud of you and thank the Lord you have continued to progress.
Lindsay, Nolan, Jacki and family, Bobby M came down for Saturday night and the ones without kids stayed up until the wee hours (except Mom but she had to look after Matt). They had a great time playing Wii and watching TV. However everyone seemed to get the flu bug that is going around. Cough, aches, runny nose, etc. Matt felt really bad on Monday am so they let him stay in bed but got him up for his therapy.
Today I was able to watch occupational therapy. She had Matt's left arm on the table on a pillowcase and was asking him to slide his arm toward a glass on the table. His shoulder is much stronger and he could do it quite easily. Then she asked him to open his left hand to grab the glass. The therapist holds his wrist and stimulates his proprioceptive, in other words by holding his wrist and pushing the joint together tells Matt's brain where his hand is in relation to his body. Then she rubs Matt's thumb and fingers on the sides of the cup to stimulate them to move. Matt was able to close his hand around the cup and hold it when she told him to bring his arm back. Then she lifted Matt's' hand up like his was going to take a sip out of the cup and he continued to hold it in his hand. I thought that was pretty impressive and then she took a jar full of beads for weight and told him to do the same thing, however he must try and slide the jar off the table and onto his lap without dropping it. He did. So not only does he have some movement in his fingers, he can grab things lightly to prevent them from falling. She asked him to put the jar back on the table and he was so close and tried so hard, but he could just not lift the bottom of the jar past the bottom of the table. It takes so much concentration and she had to continually tell him to stop trying to help with his right hand.
Keep up the awesome job Matt. We are so proud of you and thank the Lord you have continued to progress.
Tuesday, March 10, 2009
Back to the Grind
The weekend was uneventful because Matt stayed in the hospital. It was too cold to do much of anything. We had a blizzard on Saturday and the weather really turned cold. Mom went to the Brier with Jacki. She took Jonmarie with her to spend some time with Amy and Bobby. Shaunie stayed with us in Red Deer. Thought it would be too much for Uncle Gary to handle! I was able to go on Sunday and visit Matt for the afternoon. John still is able to pop in everyday for a few minutes.
Today it is -36 with the windchill. So not too much happening in the way of travel. However Matt's therapy is continuing strong after recovering nicely from surgery. He finds that his bladder is working much better and doesn't stress him out as much as it did. Yesterday Matt stood 3 times. The first time was very rough and he didn't last long. They have discontinued the one med to keep his blood pressure from dropping so his body can start adjusting itself. SO we were worried it would set back his rehab however the 2nd time he stood up was fine. The 3rd time Matt tried to pick up his right leg but the most he could do was lift his heel off the floor and bend his knee. I thought that was great but he was disappointed. Take it slow bud. It took over 21 months to get here, it will take just as long to get it all back. .
Mom visited with Matt last evening and he told us to stop worrying about him being alone, he has lots to do. A staff from John's office borrowed Matt 8 movies to watch and is looking forward to watching all 8. Thanks Stacey
Hoping to have some company over this weekend. Friends from home called Nolan and may come and visit. That would be great, we have a big house and lots of room.
More updates to come.
Today it is -36 with the windchill. So not too much happening in the way of travel. However Matt's therapy is continuing strong after recovering nicely from surgery. He finds that his bladder is working much better and doesn't stress him out as much as it did. Yesterday Matt stood 3 times. The first time was very rough and he didn't last long. They have discontinued the one med to keep his blood pressure from dropping so his body can start adjusting itself. SO we were worried it would set back his rehab however the 2nd time he stood up was fine. The 3rd time Matt tried to pick up his right leg but the most he could do was lift his heel off the floor and bend his knee. I thought that was great but he was disappointed. Take it slow bud. It took over 21 months to get here, it will take just as long to get it all back. .
Mom visited with Matt last evening and he told us to stop worrying about him being alone, he has lots to do. A staff from John's office borrowed Matt 8 movies to watch and is looking forward to watching all 8. Thanks Stacey
Hoping to have some company over this weekend. Friends from home called Nolan and may come and visit. That would be great, we have a big house and lots of room.
More updates to come.
Thursday, March 5, 2009
Surgery a success
Matt did have his surgery for bladder stone removal yesterday at 1100. The stones were so huge that they needed to break them up before pulling them out. Thank goodness they decided to to a spinal as opposed to being put right to sleep. The anesthesiologist was concerned with Matt's previous pneumonia's and compromised breathing. I visited him yesterday and he was still groggy, couldn't move his legs but was starting to get some feeling in them. He will need a indwelling catheter and an IV for the next few days, which will put a damper on his therapy and he won't be able to come home this weekend. Which might be for the best because Mom will be in Calgary for the Brier. Jacki and Gary got her some tickets for the Sunday game and she will go up Saturday.
Thanks for all the prayers and thoughts. Will keep you posted!
Thanks for all the prayers and thoughts. Will keep you posted!
Tuesday, March 3, 2009
Happy Belated Matt
Thanks so much for all the comments. It is great to see how many cheerleaders on still cheering, even after all this time.
Matt spent his birthday in Calgary at Jacki's. Gary had a few friends over and I hear they had a great time playing risk, the golf card game, UNO. Matt was a bit disappointed he didn't win any of them, but felt better when he had cake on Sunday for Amy's early birthday party. Jacki put Matt's name on Amy's Dora and Diego cake. I think Matt's name was under the Dora doll but I may be mistaken!
God has truly blessed us. Thinking back to the beginning and all the difficulties Matt faced, the uncertainties, we are so much farther ahead then was ever thought possible. Matt continues to do well in therapy, but fatigues very easy. We had a family conference on Monday am to discuss Matt's therapy, tentative discharge date, meds, etc. The therapist feel that Matt's goals of going back for a few classes in school, standing without support, transferring by himself, are all attainable, but more time is needed. So they have moved his discharge date back to the end of March. I was surprised to hear that Red Deer has seen very few spinal cord injuries, most are transferred to Glenrose or Calgary. I told them what a fantastic job they are doing. We realize it makes such a difference from last year. Matt was sick most of the time, still had his trach in, his blood pressure would drop at a moment's notice. We thank God that Matt can go further with his rehab without all the other things hanging over his head.
We also discussed the possibility of Matt being seen in Glenrose Hospital in Edmonton after discharge. They will look into it. Glenrose has a spinal cord research center and have all the up to date technology.
Please remember Matt in your prayers for Wednesday. He is booked for surgery to remove stones from his bladder and he is quite nervous to be intubated again, since he has to be put under anesthesia. The anesthesiologist will come and talk to Matt again, to see if there is a possibility of getting a spinal instead. "Trust in the Lord with all your heart, lean not on your own understanding. In all ways acknowledge him, and He will make your paths straight". Proverbs.
Matt spent his birthday in Calgary at Jacki's. Gary had a few friends over and I hear they had a great time playing risk, the golf card game, UNO. Matt was a bit disappointed he didn't win any of them, but felt better when he had cake on Sunday for Amy's early birthday party. Jacki put Matt's name on Amy's Dora and Diego cake. I think Matt's name was under the Dora doll but I may be mistaken!
God has truly blessed us. Thinking back to the beginning and all the difficulties Matt faced, the uncertainties, we are so much farther ahead then was ever thought possible. Matt continues to do well in therapy, but fatigues very easy. We had a family conference on Monday am to discuss Matt's therapy, tentative discharge date, meds, etc. The therapist feel that Matt's goals of going back for a few classes in school, standing without support, transferring by himself, are all attainable, but more time is needed. So they have moved his discharge date back to the end of March. I was surprised to hear that Red Deer has seen very few spinal cord injuries, most are transferred to Glenrose or Calgary. I told them what a fantastic job they are doing. We realize it makes such a difference from last year. Matt was sick most of the time, still had his trach in, his blood pressure would drop at a moment's notice. We thank God that Matt can go further with his rehab without all the other things hanging over his head.
We also discussed the possibility of Matt being seen in Glenrose Hospital in Edmonton after discharge. They will look into it. Glenrose has a spinal cord research center and have all the up to date technology.
Please remember Matt in your prayers for Wednesday. He is booked for surgery to remove stones from his bladder and he is quite nervous to be intubated again, since he has to be put under anesthesia. The anesthesiologist will come and talk to Matt again, to see if there is a possibility of getting a spinal instead. "Trust in the Lord with all your heart, lean not on your own understanding. In all ways acknowledge him, and He will make your paths straight". Proverbs.
Wednesday, February 25, 2009
Standing Man
Matt had a busy yesterday. I was thankful I wasn't working so was able to spend most of the day with Matt. Last week he met with the rehab physician and she arranged for an ultrasound on his kidneys and bladder, to see where the stones are and if they could be causing all the bladder spasms. I was going to spend some time with him watching the Scotties on TV but he was off to occupational therapy for writing exercises.
But the most exciting was physiotherapy in the afternoon. I had brought Matt's left leg brace on the chance they would try and stand Matt. The OT Matt had been seeing in outpatients was there so I knew they were going to try (she doesn't normally work with the inpatients, but she had been waiting for this moment). First they started with what looked like a foot massage, but what they were doing is stimulating the brain to remember how big Matt's foot is. Sounds weird but many pt's with strokes or spinal cord injuries, the brain tells the body that the foot is very small and they believe that is the reason many pt's walk on tiptoes or the side of their feet, loss of balance quickly etc. After they put his shoes and brace on, they placed a table with a box besides his right arm and had him place his hand on it for stability. My job was to take pictures so they could see Matt's alignment, Cecilia would lock his brace in place when he was standing, Sonja stood behind him on the mat and Margaret would make sure his knees didn't buckle. They put the mat/bed in the highest position, then got him to stand. The first time he stood for 3 minutes and they were just testing how he would do. He was able to support his own weight with his right leg and arm. Matt felt fine, no drop in blood pressure and only sat down after muscle fatigue. After a short rest where the therapists consulted over the pictures, they got him standing again, this time for about 5 mins. He noticed his left arm became numb from hanging down so Cecilia held it up for him. They also made him reach for the ceiling with his right hand, which is difficult because of lack of muscle tone but he didn't lose balance, which is what they were looking for (he actually did touch the ceiling he is so tall). We were all very excited and felt there should have been balloons coming from the ceiling or something!
Margaret was very optimistic, but told us that Matt may never walk without the brace or some walking aides and still have a long way to go. But she didn't expect Matt to do as well as he has done so quickly.
Must go, have to go back to work. Just had to write the good news!
But the most exciting was physiotherapy in the afternoon. I had brought Matt's left leg brace on the chance they would try and stand Matt. The OT Matt had been seeing in outpatients was there so I knew they were going to try (she doesn't normally work with the inpatients, but she had been waiting for this moment). First they started with what looked like a foot massage, but what they were doing is stimulating the brain to remember how big Matt's foot is. Sounds weird but many pt's with strokes or spinal cord injuries, the brain tells the body that the foot is very small and they believe that is the reason many pt's walk on tiptoes or the side of their feet, loss of balance quickly etc. After they put his shoes and brace on, they placed a table with a box besides his right arm and had him place his hand on it for stability. My job was to take pictures so they could see Matt's alignment, Cecilia would lock his brace in place when he was standing, Sonja stood behind him on the mat and Margaret would make sure his knees didn't buckle. They put the mat/bed in the highest position, then got him to stand. The first time he stood for 3 minutes and they were just testing how he would do. He was able to support his own weight with his right leg and arm. Matt felt fine, no drop in blood pressure and only sat down after muscle fatigue. After a short rest where the therapists consulted over the pictures, they got him standing again, this time for about 5 mins. He noticed his left arm became numb from hanging down so Cecilia held it up for him. They also made him reach for the ceiling with his right hand, which is difficult because of lack of muscle tone but he didn't lose balance, which is what they were looking for (he actually did touch the ceiling he is so tall). We were all very excited and felt there should have been balloons coming from the ceiling or something!
Margaret was very optimistic, but told us that Matt may never walk without the brace or some walking aides and still have a long way to go. But she didn't expect Matt to do as well as he has done so quickly.
Must go, have to go back to work. Just had to write the good news!
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