Last night, Matt completed 6 hours of being capped. Also he is still on the trach trail from yesterday, so that will be 36 hours. For those who are new to the blog or haven't read it for awhile, capping and trach trial are considered two different things. Trach trail refers to deflating the cuff in his trachea so he can speak and he is on minimal assistance of the ventilator. It still supplies him some moisture and O2, when he is in his room. However the capping refers to taking out the inner cannula of the trach, and putting a red cap on it, so Matt must breath through his nose and mouth. As you know, Matt has an extremely long neck, so he needs to work a bit harder to get the air he breathes to his lungs. So great job Matt and I love to say I knew you could do it! Today they again have capped his trach, and will probably go for another 6 hours. However tonight they may put him back on the ventilator, and not keep his trach deflated. Mom said she could tell he was tired, but Matt is so determined that he won't admit when he has had enough. But they don't want Matt to overdue it, so are encouraging him to speak up when he is tired. We don't want any setbacks. (But I think Matt likes to hear his own voice, that he feels nervous when he can't speak. It is very scary when you can't talk, this way during the night he can call out if he needs something). However there is One who can always hear you, Matt. Psalms 130:1 "Out of the depths I cry to you, O Lord; O Lord, hear my voice. Let your ears be attentive to my cry for mercy".
Matt went outside today, but it was too cold and was having some steering difficulties, so they came back in. Matt is eating extremely well and is getting no supplementary feeding from the tube in his abdomen. He was able to talk to Nolan on the phone, but otherwise had a quiet day for company. Dad is leaving tomorrow but mom will be there until she works again. Matt did not have any rehab this weekend or today because of holidays. Will get back on track tomorrow.
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10 comments:
way to go Matt- you are making headway with that breathing - and the eating so when you get back to rehab you will be in full swing!Everything is coming together and you are a step ahead of me---I haven't been out seeing the Christmas decorations or even dug mine out--but with programs in the planning that will soon come to pass at this house too! Ps. 33:20 yy
way to go matty. dont rush things okay. i know u like to talk but you dont have to all the time. its trying to rain as i write this. i hope it doesnt freeze cause geoff is working mornings and i hate it when he has to drive. take care matty and have a great day.el
Hi Matt! I've been keeping up with reading your blog and your progress is simply "awesome". I'm sure you must feel that the light at the end of the tunnel just keeps getting brighter and closer! What is your weight now? Sounds like when you're not talking, you're eating (those are both great things!!) Keep up the fight and hard work.
Patty H.
Matt~ you keep pushing more than most of us could keep hanging on.. Your blog either brings tears to my eyes or smilies for miles.. I am so happy to see you are doing so well.. Although I would hate to admit it, I think those nurses over there are doing a great job! I sure hope to be into see you soon.. You keep up the great work, and before you know it you will be home again..
Miss you lots,
Love Krista
I can do all things through Christ which strengthenth me.
Philippians 4:13
Good Morning Nephew!! Sounds like you have had quite the day. I feel like Krista does - sometimes when I read your blog I break into happy tears or have a smile across my face. You hang in there and keep working hard. We are all so VERY VERY proud of you and love you to pieces.
I can't wait to see you again. I will be there in a couple weeks to stay with your mom for a few days.
Love Aunty Sandy
Hi Matt....It is so great to hear how long you go on the trach trial...hard to believe not long ago when we were excited when it was 1/2hour...just goes to show how much you have moved forward...never forget that!!! Always keep looking ahead and focused on what is to come!!! I feel so bad I haven't been able to see you...this cold has really got me down but I still hope to go Weekes this weekend and see my own Mom for her birthday(your grandma HA!!)now you can understand how we feel when we don't see our Mom for awhile right??? Take Care and hope to see you again next week sometime...Love you lots..It is so wonderful to know how big our God is that He can see our needs and cares for each one of us...He truly does love us and it is through our FAITH in HIM that keeps us going and striving for achievement in all we do for HIS Glory!! LOve Aunty Karen
Hey Matt, keep on truckin buddy. I check up on how your doing when I get a chance, sounds like your comming along well... great to hear. Keep up the fight dude.
Bryden (Big Sky summer student)
Way to go! Looks like you are on track for Christmas.
May God continue to bless you and your family!!
Mandy Deditch
Wow - I can see you are striving hard for your Christmas goal. Looks like you're right on target. Way to go.
Ok - here's another one of my lame jokes for the day. Hope you get a little chuckle from them.
Bev H.
There was a church in Iowa that needed a new roof put on. The church budget hadn't allowed for this, so one Sunday the minister stood in front of the congregation and told them that all of the day's offerings would be put towards the roof fund. He told them the person giving the most would be able to choose three hymns for the congregation to sing that day. The collection plates were passed and filled to the brim. The minister looked through the plates and found a check written out for $2,000. With a smile on his face, he asked the congregation who had given the check. A hand went up in the back of the church and the minister called the person forward. A little 80 year old wisp up a woman walked to the front. The minister said "What a great offering you have given to the church. Please choose the three hymns you would like." The woman timidly looked out into the congregation and began to point..."I'll take HIM and HIM and HIM."
way to go matty, keep up the good work and you will b out in no time, can't wait to see you again bud.. love you and miss you so much!
Love: ky!!!
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