Home for Christmas

Sorry I haven't written on the blog for 2 days. Christmas is coming whether I am prepared for it or not, and I realized I am not! We are planning on leaving tomorrow early and driving all day until we get to Weekes. Hopefully everything is still a go. Matt wasn't feeling very well last night. Mom said she knew something was wrong but wasn't sure what it was. He was very flushed and had no appetite. States his body was achy. They took his temp and it was fine, but his pulse was high. Later Matt told mom that he wasn't getting in enough O2, so they checked his O2 sats, and it was only at 83%. Remember the normal range is 97% - 100%. The nurse tried to suction him with no relief. So they finally called down to respiratory, but they were busy in ICU, Matt's breathing became quite heavy and the nurse put O2 on Matt and turned it way up. Eventually when respiratory arrived, Matt's O2 was up to 95% and he was feeling better. He did not have chest physio yesterday and that may have been the problem. Hopefully it was just a mucus plug and was nothing more serious. Matt wants to go home more than anything. Prayers that today they will be on their way to Weekes. Psalms 6:9 "The Lord has heard my cry for mercy; the Lord accepts my prayer".
Mom says they have 5 huge bags worth of stuff for Matt, so dad has to take some of it home in his truck. And they also have to take a manual wheelchair in case the motorized one fails. Therapy is sending home some weights for Matt to use and Airene ( my physiotherapist nanny) and I already have some exercises in mind. The best thing about us being there is we can do Matt's exercises whenever he feels good, not just at certain times of the day. So if he feels good at 10 pm, we can work on him at that time.