Big Fatty! We wish!

Well Matt, the tube feeds must be doing something because you have gained 10 lbs in 8 days. They are continuing on the tube feed at night, but he is also eating better again. He doesn't eat breakfast but that will come. So Matt, keep on filling your face. I remember Matt as a little guy eating his meals. He would put his face down by his plate, open his mouth and shovel it in.
Mom and Matt were able to see the neatest wheelchair. It is from Europe and costs $30,000 but it has everything , Matt could even stand up in it. We are looking into having Telemiracle possibly paying for a portion and we would cough up the rest.
Yesterday went to visit the staff from ICU. Rehab went well. Matt did something new that he hasn't been able to do for 7 months. He laid on his stomach, maybe not the same way we do but they have to protect the trach site. Matt has to have his elbows bent and hands beside his head, and he is holding his head up for a short period of time. Then they get him to rock back and forth to strengthen his neck. Hard to explain but hopefully will see it one day. Everything seems to be gaining in strength but Matt is still mad at his left hand and lack of movement. The doctor is encouraging him to think of what Matt has, not what he doesn't have. Matt is not having as many spasms as much as he was having at Christmas. He was even able to get a nice massage, however it hurt a bit because that nasty knot is back. And Matt had trouble sleeping because he had a burning sensation in his right foot. The nerve endings are trying to retrieve signals from the brain but they are not coming through properly so causes him pain.
Lots of company today. Few black rings under his eyes but is feeling better. 2 more days of antibiotics and then he will be done. Tonight he was having trouble breathing, was having a hard time talking on the phone. So the RT came and suctioned Matt for large amount of phlegm, so doing better. It doesn't appear that the trach will be taken out any time soon, I think they are worried if Matt has more respiratory problem. It would be nice if it was removed because next weekend they are hoping Matt can go home for a few days. They are encouraging mom and dad to take Matt out somewhere at least every second weekend. So Matt is looking forward to that.
Mom is returning to work tomorrow so dad is coming in as a replacement. She will be there for the Family meeting which is great. Prayers that Matt will be infection free for a week and continue to gain weight. Go Matt Go!! Psalms 20:6 "Now I know the Lord saves his anointed; he answers him from his holy heaven with the saving power of his right hand."