I will have to write about yesterday. Unable to contact dad tonight. Mom had to go back to Weekes to work, feeling down and teary, she will be gone for 10 days. God doesn't prevent things from happening, but if we ask he will give us the strength to persevere. Hebrews 5:3
"Not only so, but we also rejoice in our sufferings, because we know that suffering produces perseverance; perseverance, character; and character, hope". We may not rejoice now, but maybe 1 year down the road we will. Hebrews 11:1 "Now faith is being sure of what we hope for and certain of what we do not see".
I think we see all the progress because we are not there for the day by day struggles, but mom, dad and Matt feel progress is slow. So to recap, 6 months ago, Matt was unable to move at all, not able to drink even a tiny sip of water, constant pain, unable to even mouth words due to the ventilator in his mouth, and prognosis was very bleak. So if you look at it that way, you've come a long way, baby!! Yesterday's teleconference was with the doctor in Vancouver, to give tips on what should be done and what may help. The urologist consult found that Matt's urinary sphincter, instead of releasing when he has to pee, actually constricts or tightens, so it is not quite working properly yet. Hoping they may give him some exercises to help that.
Talking about Matt going home for Christmas. Still up in the air. They want him to have an air mattress for the hospital bed, so we can rent one from the hospital for $100/week. Prayers that Matt's pneumonia will be better and he can come home to Weekes.
Matt is getting better at playing crib. He can pull out the card if you hold them, and then lay the card down. Not only that, he can peg on the crib board as well. That is fine motor skills and that is great news. When mom would lift his left hand, he could wiggle his four fingers, and his thumb would quiver. But that is how his right hand started and look what it is doing now. Matt's TV is one that comes out of the wall, like most hospital rooms. If situated so he can reach it, he can turn off the TV, change channels, turn volume up and down. Great job Matt! We are so proud of you! You keep astounding them everyday, and never give up. We have half the country rooting for you. Praise God for continued success. Joshua 1:5 "....as I was with Moses, so I will be with you; I will never leave you nor forsake you."
Friday, December 7, 2007
Thursday, December 6, 2007
Exercises
Jacki and the kids are leaving today, so last night was very busy. Jacki and Dad went to see Matt and Grandma got to stay with the kids. They are working on getting Matt to strengthen his neck muscles. When his head goes too far forward, he is unable to lift his head back up. And strong neck muscles are needed for most of his movements. The physio is working on transferring from the chair to the elevated mat, rolling over using the swinging motion of his arms and head, and starting to get him into a sitting position. That one will take more time a work, but it will come. Matt's stomach muscles are getting stronger every day, so time will tell.
Everyone ate in the lunchroom. A 25 year old patient in there keeps coming and asking Matt to join the group. However Matt is still self conscious and doesn't go in there too often. But last night he did. Jacki said that she would hold mini carrots in her hand and Matt would be able to pick them up and put them in his mouth. He dropped a few, but he did that before his accident as well! He doesn't really use his fingers for much, because the tips are still numb and he can't feel with them very well. So when he wants to scratch his nose, he curls his right hand into a fist and scratches with his knuckles.
Today will be a busy day. They have a teleconference with the specialists in Vancouver regarding the strength of his diaphragm. Way back in Sept I think, there was a discussion on implanting a "pacemaker"in his diaphragm to help him with his breathing. Matt's diaphragm still isn't the strongest, so not sure what they will discuss. Then his physio at 1100, urologist consult at 1 pm and then more exercises in the afternoon. So hopefully mom will be able to tell me some good things. Will write again tonight.
Everyone ate in the lunchroom. A 25 year old patient in there keeps coming and asking Matt to join the group. However Matt is still self conscious and doesn't go in there too often. But last night he did. Jacki said that she would hold mini carrots in her hand and Matt would be able to pick them up and put them in his mouth. He dropped a few, but he did that before his accident as well! He doesn't really use his fingers for much, because the tips are still numb and he can't feel with them very well. So when he wants to scratch his nose, he curls his right hand into a fist and scratches with his knuckles.
Today will be a busy day. They have a teleconference with the specialists in Vancouver regarding the strength of his diaphragm. Way back in Sept I think, there was a discussion on implanting a "pacemaker"in his diaphragm to help him with his breathing. Matt's diaphragm still isn't the strongest, so not sure what they will discuss. Then his physio at 1100, urologist consult at 1 pm and then more exercises in the afternoon. So hopefully mom will be able to tell me some good things. Will write again tonight.
Tuesday, December 4, 2007
Matt's new exercise partner
Matt had some very active visitors for his physio in the gym. Bobby, Jacki's boy, decided to help Matt with his exercises. Bobby loved playing with the balls, climbing the stairs, general 2 1/2 year old stuff. So Jacki could not tell me how Matt's exercises were, because she was preoccupied. And I thought all mom's had eyes in the back of their heads! After the gym, Matt took Amy, Jacki's girl, for a ride in his chair. She sat with him the whole time. Then Bobby got a turn, however he is a bit more busy, so it was a short lived ride.
Matt ate somewhat better today, and Jacki is supposed to encourage fluids, but "forcing" sounds more appropriate. Matt says he is going to swim pretty soon, he is so full. And Jacki tried to help him with his coughing. If you time it just right, when Matt is in the middle of a cough, you push on his stomach to "assist" him with coughing. However Jacki forgot to let go, so when he tried to breathe in, he couldn't because she still had her hand bearing down into his abdomen. She finally caught on when Matt started to turn blue! Well it wasn't quite that bad, but "assisted" breathing now has a whole new meaning!
Mom had bought Matt a Christmas tree, so his room is more festive. There are some stickers on his window as well, which prevents him from spying on the people in the parking lot. Just remember, if you come to visit, someone is watching you!
Whispers is now at the house waiting for surgery. He needs new batteries, but there is quite a waiting list, and it might not get done this year. And the surgeon went home, and the resident on call is not the best when it comes to these types of procedures (sorry mom!), so best to wait until the specialist comes back (dad, bring your tools)!
Last night, I prayed very hard for Matt to be free from anxiety during the night, however I forgot to pray for him to sleep. And wouldn't you know it, Matt was up from 4-6 am, just because he couldn't sleep, but he had no anxiety. I will have to be more specific tonight! Thanks for all the continued prayers for Matt, and keep them coming! James 5:11 "As you know we consider blessed those who have persevered. You have heard of Job's perseverance and have seen what the Lord finally brought about. The Lord is full of compassion and mercy."
Matt ate somewhat better today, and Jacki is supposed to encourage fluids, but "forcing" sounds more appropriate. Matt says he is going to swim pretty soon, he is so full. And Jacki tried to help him with his coughing. If you time it just right, when Matt is in the middle of a cough, you push on his stomach to "assist" him with coughing. However Jacki forgot to let go, so when he tried to breathe in, he couldn't because she still had her hand bearing down into his abdomen. She finally caught on when Matt started to turn blue! Well it wasn't quite that bad, but "assisted" breathing now has a whole new meaning!
Mom had bought Matt a Christmas tree, so his room is more festive. There are some stickers on his window as well, which prevents him from spying on the people in the parking lot. Just remember, if you come to visit, someone is watching you!
Whispers is now at the house waiting for surgery. He needs new batteries, but there is quite a waiting list, and it might not get done this year. And the surgeon went home, and the resident on call is not the best when it comes to these types of procedures (sorry mom!), so best to wait until the specialist comes back (dad, bring your tools)!
Last night, I prayed very hard for Matt to be free from anxiety during the night, however I forgot to pray for him to sleep. And wouldn't you know it, Matt was up from 4-6 am, just because he couldn't sleep, but he had no anxiety. I will have to be more specific tonight! Thanks for all the continued prayers for Matt, and keep them coming! James 5:11 "As you know we consider blessed those who have persevered. You have heard of Job's perseverance and have seen what the Lord finally brought about. The Lord is full of compassion and mercy."
Monday, December 3, 2007
Anxiety Begone!
Matt has been having some issues with anxiety attacks at night. He wakes up and can't go back to sleep. Those panic attacks make it hard for him to breathe properly, and his neck becomes really sore from being so tense. They didn't get him up for rehab until mom came, because Matt was so tired with dark circles under his eyes. But eventually he did make it to the gym, and mom was surprised at how much more strength Matt has. She hasn't been to rehab with him for a few weeks. When they hooked Matt up to the bicycle for his arms, he was able to push with his left wrist and arm, even though his hand doesn't move much. When he sits at a table, he is able to reach across and grab the edge of the table with his right hand. Also, by manipulating certain nerves and muscles in his butt, Matt is able to move his legs slightly up and down. The physio bends his knees, and then Matt slowly slides his feet towards his bum to bend his legs more. (When mom explains it, I try to visual it in my head to explain it to you, however it may not be exactly correct).
Since Matt has been on antibiotics, he hasn't been eating or drinking as well. It is more difficult for Matt to stay hydrated in rehab. In ICU, it was one on one care and the staff were continuously in and out to push fluids. In rehab, they only come when he calls with the buzzer, and he cannot drink without someone to help him. So the doctor encouraged Matt to ring every hour for something to drink. They are a little worried his secretions are getting too thick, and his cough isn't as strong. But Matt doesn't want any O2 or moisture at night, so hopefully he will drink enough fluids.
Jacki and the kids came down for a visit. Matt is always glad to see his niece and nephew. And of course Jacki as well, though I don't know why! She is terrible to play games with because she hates to lose! I know where Matt gets it from!
Prayers that the anxiety attacks will diminish, and Matt will get good nights rest. Needs to be strong for his workouts. 1 Thess 5:16 "Be joyful always; pray continually, give thanks in all circumstances, for this is God's will for you in Christ Jesus".
Since Matt has been on antibiotics, he hasn't been eating or drinking as well. It is more difficult for Matt to stay hydrated in rehab. In ICU, it was one on one care and the staff were continuously in and out to push fluids. In rehab, they only come when he calls with the buzzer, and he cannot drink without someone to help him. So the doctor encouraged Matt to ring every hour for something to drink. They are a little worried his secretions are getting too thick, and his cough isn't as strong. But Matt doesn't want any O2 or moisture at night, so hopefully he will drink enough fluids.
Jacki and the kids came down for a visit. Matt is always glad to see his niece and nephew. And of course Jacki as well, though I don't know why! She is terrible to play games with because she hates to lose! I know where Matt gets it from!
Prayers that the anxiety attacks will diminish, and Matt will get good nights rest. Needs to be strong for his workouts. 1 Thess 5:16 "Be joyful always; pray continually, give thanks in all circumstances, for this is God's will for you in Christ Jesus".
Sunday, December 2, 2007
Lots of company
Yesterday was quiet in regards to physio, but very busy with company. When Matt went to sleep at 11 pm, it was a good tired. He was exhausted, but it will help him sleep throughout the night. Friday night they had to suction him quite a bit, and then had to give him gravol for nausea. Mom is not sure how he slept last night, but hopefully it was better.
Yesterday he also joined the ICU staff for a pizza party. It was a party "just because", which is as good of reason as any to have a get together. Eating by himself is still progressing. Matt can get the spoon to his mouth about 5-6 times. The hardest part is getting the food on the spoon, or stabbing it with his fork. But it all helps that fine motor skills to "relearn" what is once knew to do, but now needs repetition to remember how it works properly.
3 more days worth of antibiotics and then the IV can come out. It is in a very awkward place, which makes it a pain, but hopefully this will be the last pneumonia Matt will ever get. Colds, okay, maybe an earache or two, but no more pneumonia!! However the respiratory therapist feels Matt's lungs and immune system have improved so much that he is fighting a lot of it on his own.
Prayers for no more pneumonia and home for Christmas. Praise for continued strength and recovery. Col. 3:15 "Let the peace of Christ rule in your hearts, since as members of one body your were called to peace. And be thankful."
Yesterday he also joined the ICU staff for a pizza party. It was a party "just because", which is as good of reason as any to have a get together. Eating by himself is still progressing. Matt can get the spoon to his mouth about 5-6 times. The hardest part is getting the food on the spoon, or stabbing it with his fork. But it all helps that fine motor skills to "relearn" what is once knew to do, but now needs repetition to remember how it works properly.
3 more days worth of antibiotics and then the IV can come out. It is in a very awkward place, which makes it a pain, but hopefully this will be the last pneumonia Matt will ever get. Colds, okay, maybe an earache or two, but no more pneumonia!! However the respiratory therapist feels Matt's lungs and immune system have improved so much that he is fighting a lot of it on his own.
Prayers for no more pneumonia and home for Christmas. Praise for continued strength and recovery. Col. 3:15 "Let the peace of Christ rule in your hearts, since as members of one body your were called to peace. And be thankful."
Friday, November 30, 2007
Boot Camp
Matt's day was very busy. Started the day with chest physio. Then stretches for 1 hour prior to going to the gym at 11 am. After lunch he went for more physical therapy at the gym. Matt tries so hard. Anyone who has every had pneumonia can attest for what it does to your strength and motivation. It sucks the life right out of you. But Matt didn't complain. They are really working on his transferring from the chair to the elevated mat. 2 physio therapist are on either side of Matt, who has a transfer belt around his waist. Then with his right hand he pushes slightly away from his chair. They can also feel that his legs are not just dead weight anymore, that if timed just right, he can push off every so slightly with them. You've come a long way Matt! He is still frustrated with his left hand, but it still has a positive response when hooked up to the tens machine, so it will come Matt, just remind everyone who comes in to visit to help you exercise it.
They also had Matt eating with a fork. It has a big foam handle for easier grip. He should be able to finish about a quarter of his meal with it, and dad said he did pretty well. Most times they have to start with special attachments on the wrist, so a fork can fit into a pouch and you scoop it that way. Matt is so strong already that he completely missed that beginner stage. He can scratch the top of his head as well, so the right arm is coming along nicely.
Prayers for continued recovery from pneumonia and better weather. Then Matt can start taking little trips to the mall, the house in Saskatoon, etc. Prayers also for Matt to stay focused on day to day recovery. 2 Cor. 4:18 "So we fix our eyes not on what is seen, but on what is unseen. For what is seen is temporary, but what is unseen is eternal".
They also had Matt eating with a fork. It has a big foam handle for easier grip. He should be able to finish about a quarter of his meal with it, and dad said he did pretty well. Most times they have to start with special attachments on the wrist, so a fork can fit into a pouch and you scoop it that way. Matt is so strong already that he completely missed that beginner stage. He can scratch the top of his head as well, so the right arm is coming along nicely.
Prayers for continued recovery from pneumonia and better weather. Then Matt can start taking little trips to the mall, the house in Saskatoon, etc. Prayers also for Matt to stay focused on day to day recovery. 2 Cor. 4:18 "So we fix our eyes not on what is seen, but on what is unseen. For what is seen is temporary, but what is unseen is eternal".
Thursday, November 29, 2007
Brand New Chair
Sorry about the late blog. Miscommunication. Mom and dad have just moved into the new place. It is a house and has lots of rooms, a fenced in backyard (so Shaunie can't run away!), and a dog and a cat to boot. Thanks so much to the Schekk's for the use of their apartment for the last 5 months. I don't believe Matt would have done as well without the cheerleaders near by. God's blessings on all of you.
Matt got a brand new chair yesterday. It is still not his officially, but we will take it for as long as they let us keep it. Hopefully we can keep it for the Christmas holidays. The physiotherapist brought it yesterday, handed the tools to dad and left. She knows that dad would do a better job of making it just right for Matt. It takes about 45 minutes of adjusting to make it work properly for Matt. Aunty Sandy came up for a few days and bought Matt a Billabong toque/hat. Not sure what that is but I will just have to wait and see. Matt is feeling quite a bit better, enough to tease Aunty and the nurses. He was suctioned a fair bit over the course of the day, and poor Aunty kept having to leave the room, the big baby. Mom was happy to be back with her "baby". She doesn't like to be away from Matt so long. I think he misses her as well. When you are sick it seems the one you want to be with is your mom. I guess we always think they will make it all better. Another blog tonight.
Matt got a brand new chair yesterday. It is still not his officially, but we will take it for as long as they let us keep it. Hopefully we can keep it for the Christmas holidays. The physiotherapist brought it yesterday, handed the tools to dad and left. She knows that dad would do a better job of making it just right for Matt. It takes about 45 minutes of adjusting to make it work properly for Matt. Aunty Sandy came up for a few days and bought Matt a Billabong toque/hat. Not sure what that is but I will just have to wait and see. Matt is feeling quite a bit better, enough to tease Aunty and the nurses. He was suctioned a fair bit over the course of the day, and poor Aunty kept having to leave the room, the big baby. Mom was happy to be back with her "baby". She doesn't like to be away from Matt so long. I think he misses her as well. When you are sick it seems the one you want to be with is your mom. I guess we always think they will make it all better. Another blog tonight.
Tuesday, November 27, 2007
Under the weather
Matt is still under the weather, lots of secretions from the infections. He didn't go for rehab today as he just was too tired. Matt was happy to have company today and tonight, God bless you all. Mom is back and is happy to take over. Prayers for tomorrow that the pneumonia will clear up, Matt's lungs will continue to get stronger and he will feel like eating and drinking more. Thank you so much for all the well wishes and prayers for Matt and our family. God continues to bless us as we take this journey. Psalms 62:8 Trust in him at all times, O people; pour out your hearts to him, for God is our refuge.
Monday, November 26, 2007
Tired
After all the excitement yesterday, Matt was really tired and slept a fair chunk of the day. I just found out Matt was up for 7 hours in his chair yesterday. Also they had got him showered & dressed in his Saskatchewan greens. After the game he had another 10 visitors come to see him. I think security was worried because he followed them right to Matt's room! I can imagine why! Had another game of crib with Nolan after the company had left, so I can believe he would be tired today. Dad said yesterday was one of the best days Matt has had. Thanks to all of you who shared this great day with Matt. I am sure it will be a day no one will forget.
Unfortunately, Matt does has pneumonia and they started antibiotics. Very little rehab today because of a slight mix up and Matt's overall physical fatigue. Mom should be arriving shortly, or may be in Saskatoon already. I think she missed being at the party. She never wants to miss anything! Prayers for God's healing hand on Matt and a quick recovery from the pneumonia. Malachi 4:2 "But for you who revere my name, the sun of righteousness will rise with healing in its wings..."
Unfortunately, Matt does has pneumonia and they started antibiotics. Very little rehab today because of a slight mix up and Matt's overall physical fatigue. Mom should be arriving shortly, or may be in Saskatoon already. I think she missed being at the party. She never wants to miss anything! Prayers for God's healing hand on Matt and a quick recovery from the pneumonia. Malachi 4:2 "But for you who revere my name, the sun of righteousness will rise with healing in its wings..."
Sunday, November 25, 2007
THEY DID IT!!
Wow, what an exciting game! I don't watch much football, but I still remember the excitement in 1989 when Kent Austin was the QB and Dave Ridgeway kicked that field goal. Today was no different, except I wasn't in Saskatoon. Wish we were there to share in the excitement.
I believe green took over the ICU today. They had an extra room so they moved the bed out and set up a TV in there for Matt and 10 of his friends and family. I was unable to get a hold of dad, but did manage to speak to Nolan for a few minutes. Nolan said the atmosphere was great. Matt stayed up in his chair for the whole game. He still wasn't feeling the best and didn't eat much. however he is getting enough fluids into him which is good. The ICU nurses were able to start an IV, but Nolan wasn't sure if they actually started antibiotics or not. Matt is so much stronger and can cough more efficiently than before so they may wait and see if it clears up on its own. The respiratory therapist did chest physio and suctioned out plenty of the stuff, so no meds would be preferable.
Hopefully I will have more to tell you tomorrow. Thank the Lord the riders won. I believe it really boosted Matt's spirits. I was really impressed with the team. Most of them thanked God for the win. I remember seeing Kent Austin at Nipawin Bible Institute after they had won in 1989, speaking to us about the importance of letting God in to every aspect of our lives. I think he conveys that message to his team. Psalms 119:105 "Your word is a lamp to my feet and a light for my path".
I believe green took over the ICU today. They had an extra room so they moved the bed out and set up a TV in there for Matt and 10 of his friends and family. I was unable to get a hold of dad, but did manage to speak to Nolan for a few minutes. Nolan said the atmosphere was great. Matt stayed up in his chair for the whole game. He still wasn't feeling the best and didn't eat much. however he is getting enough fluids into him which is good. The ICU nurses were able to start an IV, but Nolan wasn't sure if they actually started antibiotics or not. Matt is so much stronger and can cough more efficiently than before so they may wait and see if it clears up on its own. The respiratory therapist did chest physio and suctioned out plenty of the stuff, so no meds would be preferable.
Hopefully I will have more to tell you tomorrow. Thank the Lord the riders won. I believe it really boosted Matt's spirits. I was really impressed with the team. Most of them thanked God for the win. I remember seeing Kent Austin at Nipawin Bible Institute after they had won in 1989, speaking to us about the importance of letting God in to every aspect of our lives. I think he conveys that message to his team. Psalms 119:105 "Your word is a lamp to my feet and a light for my path".
Saturday, November 24, 2007
Infection Back
Now we know why Matt was feeling so poor yesterday. Dad noticed Matt was having more trouble breathing, his cough was less effective, and he was spasming more in his limbs. His white blood count was way up, which is a sure sign of infection. The sputum coming up should be yellow and thin, his was thick and yellow-green. So they want to start him on antibiotics again, but they could not get an IV line established, so they were going to get someone up from ICU to do it. I think Matt's vessels have not recovered from the beating they took before. Dad says that even though Matt's coughing is weaker, if Dad times it right, he takes the cap off Matt's trach, pushes on his abdomen and lots of lovelies come out. Better than suctioning him.
But he was in good spirits nevertheless. Nolan and Lindsay arrived last night and visited for about an hour. Today again lots of company. Matt was up in his chair for 4 hours and did pretty well. They all went to the rec room and played crib. Nolan and Matt were about to win when Dad and Cory Ryhorski beat them. Lindsay was holding the cards for Matt.
So for tomorrow's big game, they will be watching at the hospital. Planning on pizza and pop with approximately 10 people coming. So it should be great. Too cold to go out anyway.
Prayers that Matt's infection will clear up quickly and he will be better for rehab on Monday. "If you believe, you will receive whatever you ask for in prayer".
But he was in good spirits nevertheless. Nolan and Lindsay arrived last night and visited for about an hour. Today again lots of company. Matt was up in his chair for 4 hours and did pretty well. They all went to the rec room and played crib. Nolan and Matt were about to win when Dad and Cory Ryhorski beat them. Lindsay was holding the cards for Matt.
So for tomorrow's big game, they will be watching at the hospital. Planning on pizza and pop with approximately 10 people coming. So it should be great. Too cold to go out anyway.
Prayers that Matt's infection will clear up quickly and he will be better for rehab on Monday. "If you believe, you will receive whatever you ask for in prayer".
Friday, November 23, 2007
Quiet Day
Matt's day was fairly quiet. Wasn't feeling so hot and nausea was not a welcome companion. However he still manged to eat some food and was up in his chair for 3 hours. His neck gets sore and increases his nausea, but the pain is relieved with Advil. Dad is really enjoying the amenities of rehab. Dad and Matt go and read the paper together in the "living room" and can watch TV or read books.
Physical rehab was short due to a general Friday off for most staff. In the 1/2 hour they applied the TENS machine to Matt's left leg and left arm. It stimulates the nerves and moves the extremity a bit. They didn't need to turn it up too much before the muscles start moving, which is good.
Nolan and Lindsay are driving up from Calgary and are due anytime. Matt worries about Nolan when he is driving and probably won't sleep until he arrives.
Unfortunately John and I are at a conference for the weekend and I don't have my bible at hand, but I will put down my favorite verse. "Trust in the Lord with all your heart; lean not on your own understanding; in all ways acknowledge him and he will make your path straight". I believe it is found in Proverbs.
Physical rehab was short due to a general Friday off for most staff. In the 1/2 hour they applied the TENS machine to Matt's left leg and left arm. It stimulates the nerves and moves the extremity a bit. They didn't need to turn it up too much before the muscles start moving, which is good.
Nolan and Lindsay are driving up from Calgary and are due anytime. Matt worries about Nolan when he is driving and probably won't sleep until he arrives.
Unfortunately John and I are at a conference for the weekend and I don't have my bible at hand, but I will put down my favorite verse. "Trust in the Lord with all your heart; lean not on your own understanding; in all ways acknowledge him and he will make your path straight". I believe it is found in Proverbs.
Thursday, November 22, 2007
Back to Old Wheelchair
Matt has lost his zero turn wheelchair. I never realized it wasn't actually his and now someone else needs it. He is still waiting for one that is made for him . So I hope whoever has it enjoys and can use all the gadgets dad had added to it. The old wheelchair is uncomfortable and Matt can only stay up for 3 hours in it. But hopefully his custom made chair will arrive before Christmas. Then he can go home in style!
I had talked to mom for a brief time, and she was excited that they found a hospital bed in Hudson Bay we can use. Just a few more details to work out (like building a ramp into the house) but we have great faith that if Matt is meant to come home, everything will work out.
Today was an assessment day to see how much Matt could do. They were surprised when they asked Matt if he could roll over. He said no but would try. They bent his right leg and placed it over his left leg and darned if he didn't roll over! I asked Matt if he used a bar to pull himself by using his right arm or hand, but he said no. He just used momentum of his body to roll himself. Matt, I love writing the blog with so much good happening. Praise for continued answers to prayer. 1 Thess. 5:16 "Be joyful always; pray continually; give thanks in all circumstances, for this is God's will for you in Christ Jesus".
Just an added note; Nolan is coming to Saskatoon for the weekend and is looking at renting or taking Matt to JT's for the football game. If anyone can make it that would be great. It will be the first time Matt has been off hospital grounds in 5 months. Hopefully it all works out.
I had talked to mom for a brief time, and she was excited that they found a hospital bed in Hudson Bay we can use. Just a few more details to work out (like building a ramp into the house) but we have great faith that if Matt is meant to come home, everything will work out.
Today was an assessment day to see how much Matt could do. They were surprised when they asked Matt if he could roll over. He said no but would try. They bent his right leg and placed it over his left leg and darned if he didn't roll over! I asked Matt if he used a bar to pull himself by using his right arm or hand, but he said no. He just used momentum of his body to roll himself. Matt, I love writing the blog with so much good happening. Praise for continued answers to prayer. 1 Thess. 5:16 "Be joyful always; pray continually; give thanks in all circumstances, for this is God's will for you in Christ Jesus".
Just an added note; Nolan is coming to Saskatoon for the weekend and is looking at renting or taking Matt to JT's for the football game. If anyone can make it that would be great. It will be the first time Matt has been off hospital grounds in 5 months. Hopefully it all works out.
Wednesday, November 21, 2007
Weightlifting
Well, Matt seems to be settling in well on the rehab ward. However he did go down to ICU and spend a 1/2 hour with his old crew (not old as in age, otherwise I may get in trouble!). Dad says he continues to eat really well. First thing he heard tonight when he walked into Matt's room was "I'm hungry". So dad had made some of Big Sky ham and kraft dinner, and a vacuum cleaner couldn't do a better job! Lots of nice protein to build those muscles. I had asked dad yesterday what weight Matt is able to lift. When Matt had first started, it was 0.25 lbs. Now it is up to 2 1/2 lbs. Great work Matt! The workouts really tire him out so he has a good sleep late afternoon and early evening.
Matt's secretions are getting a bit thick, so respiratory came down and hooked him back up to O2 and moisture for the night. So they uncap him and take out the inner cannula. His cuff is still deflated so he can talk. Also encouraged to drink lots of secretions. Prayers that secretions stay manageable and they are able to suction them out. Mark 11:24 "Therefore I tell you, whatever you ask for in prayer, believe that you have received it, and it will be yours". Still gets suctioned 4 times a day, which is not unusual.
Matt's getting to know some of the other patients in rehab. It is difficult because for 5 months he has really been on his own, but I'm sure it won't take him long. Dad says the facility has a laundry to wash Matt's clothes, and a microwave that is accessible to warm up food. So seems to be geared for everything.
Matt has been having the occasional hot flash. Will say to dad he is feeling warm. Dad will feel him and not notice any difference, However within a minute Matt will be pouring sweat. This a normal process and will diminishes as time goes on. After Matt's injury, he constantly fluctuated between hot and cold, so now it is only once every 2nd day. However they cautioned Matt to be aware that it could indicate and infection, so if the fluctuation in temp gets worse, to let them know.
Matt's secretions are getting a bit thick, so respiratory came down and hooked him back up to O2 and moisture for the night. So they uncap him and take out the inner cannula. His cuff is still deflated so he can talk. Also encouraged to drink lots of secretions. Prayers that secretions stay manageable and they are able to suction them out. Mark 11:24 "Therefore I tell you, whatever you ask for in prayer, believe that you have received it, and it will be yours". Still gets suctioned 4 times a day, which is not unusual.
Matt's getting to know some of the other patients in rehab. It is difficult because for 5 months he has really been on his own, but I'm sure it won't take him long. Dad says the facility has a laundry to wash Matt's clothes, and a microwave that is accessible to warm up food. So seems to be geared for everything.
Matt has been having the occasional hot flash. Will say to dad he is feeling warm. Dad will feel him and not notice any difference, However within a minute Matt will be pouring sweat. This a normal process and will diminishes as time goes on. After Matt's injury, he constantly fluctuated between hot and cold, so now it is only once every 2nd day. However they cautioned Matt to be aware that it could indicate and infection, so if the fluctuation in temp gets worse, to let them know.
Tuesday, November 20, 2007
THE BIG MOVE
Matt has now moved on up in the world (just like the Jefferson's from the 70's). He is in a private room in rehab. Finally! What an answer to prayer. I think God was tired or listening to us. So no more sleeping in for Matt! There wasn't a dry eye in ICU when they moved Matt. They had become very protective over him. But they all know this is the best place for him.
Dad says the view from Matt's room is great. It overlooks the Kinsmen Park and the university bridge. He seems to enjoy the facility. There is a communal dining area, and dad said for supper there were over 30 other patients, all different genders and ages. And Matt ate like a horse. Grandpa Gustafson used to say about himself that he doesn't eat much, he just eats long and fast. Matt it a chip off the Gustafson block. Dad had to go out and buy extra food.
Rehab was tough today. They worked Matt for 1 1/2 hours and he was tired. They are really working on what Matt could do to help with the transferring. For instance, when he transfers from his chair to the mat (it is elevated and at the same height as his chair), they got Matt to put some weight on his feet and try to swing himself over, also incorporating the use of his right arm. They were impressed by what he could do. Unlike a dead weight, Matt was able to assist, even if it was minimally. Also, when he was laying flat on this mat, they asked if he could lift his bum up. Dad said Matt was just sweating he was working so hard. And by gosh if he didn't do it. Matt, words are so vague when it comes to expressing how we truly feel. Proud just doesn't cut it. Great sense of jubilation is more like it! Rehab is so difficult for them to do on Matt because they need to work on everything. Shoulders, legs, arms, abdomen, the works. But they have a very willing patient so it makes their job easier.
Praise for God's continued grace and prayers for more! 1 Peter 4:11 "...If anyone serves, he should do it with the strength God provides, so that in all things God may be praised through Jesus Christ".
Dad says the view from Matt's room is great. It overlooks the Kinsmen Park and the university bridge. He seems to enjoy the facility. There is a communal dining area, and dad said for supper there were over 30 other patients, all different genders and ages. And Matt ate like a horse. Grandpa Gustafson used to say about himself that he doesn't eat much, he just eats long and fast. Matt it a chip off the Gustafson block. Dad had to go out and buy extra food.
Rehab was tough today. They worked Matt for 1 1/2 hours and he was tired. They are really working on what Matt could do to help with the transferring. For instance, when he transfers from his chair to the mat (it is elevated and at the same height as his chair), they got Matt to put some weight on his feet and try to swing himself over, also incorporating the use of his right arm. They were impressed by what he could do. Unlike a dead weight, Matt was able to assist, even if it was minimally. Also, when he was laying flat on this mat, they asked if he could lift his bum up. Dad said Matt was just sweating he was working so hard. And by gosh if he didn't do it. Matt, words are so vague when it comes to expressing how we truly feel. Proud just doesn't cut it. Great sense of jubilation is more like it! Rehab is so difficult for them to do on Matt because they need to work on everything. Shoulders, legs, arms, abdomen, the works. But they have a very willing patient so it makes their job easier.
Praise for God's continued grace and prayers for more! 1 Peter 4:11 "...If anyone serves, he should do it with the strength God provides, so that in all things God may be praised through Jesus Christ".
Sunday, November 18, 2007
One More Game To Go!
What an exciting game! Just one more win and then the Grey Cup is Saskatchewan's. It has been a long time coming. Matt had a busy day prior to game time. Dinner, then a whirlpool, then up in his chair at 2 pm. By the time the game started, he was so sleepy he slept through some of it. But he was up for the most important part. Tonight cousin Chris is his nurse, which he likes. Nothing like family looking out for you.
Matt has now been capped for 36 hours, so he isn't getting O2 or moisture anymore at night. No more trach trials! He is doing his own breathing. Rehab better find him a bed because he is ready!
Matt is a bit frustrated because his left side is so slow. Some days it moves slightly, the next day hardly at all. But it also didn't start to move until Sept. 28th, while the right side started Aug. 16th. So it has a ways to catch up. It was so good to see Matt throw the ball and bend his own arm. I even have a video of it. I tried to post it on the blog, but wouldn't upload. I sent it to Jacki and she will try again tomorrow.
Things are starting to look up for Christmas. The ball is definitely rolling and hopefully everything will be ironed out when the time arrives. Prayers that Matt's strength physically and mentally will continue to improve and that the left side will start responding better. Psalms 86 "Hear my prayer, O Lord; listen to my cry for mercy. In the day of my trouble I will call to you, for you will answer me".
Matt has now been capped for 36 hours, so he isn't getting O2 or moisture anymore at night. No more trach trials! He is doing his own breathing. Rehab better find him a bed because he is ready!
Matt is a bit frustrated because his left side is so slow. Some days it moves slightly, the next day hardly at all. But it also didn't start to move until Sept. 28th, while the right side started Aug. 16th. So it has a ways to catch up. It was so good to see Matt throw the ball and bend his own arm. I even have a video of it. I tried to post it on the blog, but wouldn't upload. I sent it to Jacki and she will try again tomorrow.
Things are starting to look up for Christmas. The ball is definitely rolling and hopefully everything will be ironed out when the time arrives. Prayers that Matt's strength physically and mentally will continue to improve and that the left side will start responding better. Psalms 86 "Hear my prayer, O Lord; listen to my cry for mercy. In the day of my trouble I will call to you, for you will answer me".
Saturday, November 17, 2007
Company and presents
Matt had a really good day, sister Shelley, John and Jonmarie made a quick one day trip up to see him. Shelley brought him some new clothes that are long enough for his long legs. He was happy to see them and beat his sister in a game of Scrabble. He also had company from home which he enjoys, thank you all. He had his cousin Chris for his RN today and there is always lots of teasing going on. Matt has lots of fun with all the staff and is known to give them a hard time and some laughs as well. He is doing so well off the ventilator, that they would really like him to move to rehab as quick as possible to open up an ICU bed, they know it is the best place for him to be. He is looking forward to the Rider game tomorrow, ready for a good game and hopefully a win. The Riders have a look of supporters and a lot riding on them. Go Riders. We will have lots of fun cheering them on. We had snow today so he didn't go outside, but had a great day anyway. We thank God for his blessings on Matt and our family. Isaiah 26:12 All that we have accomplished you have done for us, O Lord.
Friday, November 16, 2007
Lots of Company
Matt had a sleepy day today. He didn't get a lot of sleep last night, so thought he should sleep all day. Went for rehab for an hour, was having trouble with his neck so they had to be careful about what they did. Did some e-rays on his neck and they all came back fine. Lots of very tight muscles so will need more massages. Had lots of company today and got to do lots of talking. Didn't eat as much today, but will make up for it tomorrow. Matt is still off the ventilator. Praise our Lord. Prayers for tonight that Matt will continue to improve in his movement, his neck will relax and his lungs will continue to grow stronger each day. Psalm 68:19 Praise be to the Lord, to God our Savior, who daily bears our burdens.
Thursday, November 15, 2007
Breathing going well, Praise God
Matt had a busy day, he went up to rehab for a good hour to work out. He had company from RUH and enjoys when they drop by. He still gets tired after rehab and likes to nap. He is eating well and still loves his oven roasted chicken sub in the evening. Tonight he was going to have a Tim Hortons chocolate donut with the staff. They are spoiling him and he loves it. He is getting stronger in his right arm and hand, he can pick up a sponge ball and throw it at you. He is still off the vent and is doing really great, his lungs are getting stronger all the time. Praise God. He says hi to everyone back home and he misses you all. Prayers for tonight Matt will have a good nights rest and he will continue to get more movement on his left side. Romans 12:12 Be joyful in hope, patient in affliction, faithful in prayer.
Wednesday, November 14, 2007
Off the Ventilator
Can you believe it? I am still reeling from yesterday's big news and them mom slapped me back on my...posterior with more great news! They actually wheeled the ventilator out of his room. True it is still outside of his room, but he hasn't used it for over 3 days. He will be capped during the day, and be on the trach trial at night, with the cuff deflated, the inner cannula in for suctioning purposes, supplemental O2, and moisture to help keep his secretions from getting too thick. But no forced air into his lungs. He is breathing on his own! Praise God! Psalms 105:1 "Give thanks to the Lord, call on his name; make known among the nations what he has done".
They had a meeting with all the departments involved in Matt's care. They had a long discussion about Matt going home for Christmas. There was some scepticism, and the physician voiced her concerns about Matt going home. Most of the questions were answered and hopefully they can help us get everything in place. We need to look at getting a ramp built for him to get into the house, transportation (Leonard Jays has graciously offered the loan of his van), needs a hospital bed for the house, O2 for when he needs it. However the physician was still worried. Finally she told us that Matt had 3 things going for him. 1) His spinal cord is not severed, 2) He is young and the most determined man she has met, 3) Matt is her hero. I think that comment opened the floodgates for a lot of the staff. They all stated that Matt is just such a joy to have in there. Not many men who have gone through what he has gone through are so optimistic, his personality has never changed, and he is so determined. They are just so worried what could happen to him when he is not under their care.
The doctor went on to say that right now there is no bed in rehab because truthfully, they never expected Matt to be off the ventilator with the severity and location of his injury, and the long duration of being on the ventilator. Not to mention a collapsed lung, 3 chest tubes, and countless pneumonia's. They also never believed when they started the trach trials he would progress so quickly. "Leaps and bounds" are the terms they used. I used this verse at the beginning of Matt's journey, and now I use it as praise, not a prayer. Job 9:10 "He performs wonders that cannot be fathomed, miracles that cannot be counted."
There is continued talk of taking out his feeding tube. He is still only at 175 lbs, but he doesn't have much for muscles, which weigh quite a bit. He didn't eat as well today because he was tired. With only one sleeping pill, Matt isn't sleeping very good at night, but that will take some getting used to. It is not easy to go off sleeping pills. Matt also had a whirlpool bath, so that always plays him out. Prayers that Matt will have a good night sleep, and regain strength for tomorrow.
They had a meeting with all the departments involved in Matt's care. They had a long discussion about Matt going home for Christmas. There was some scepticism, and the physician voiced her concerns about Matt going home. Most of the questions were answered and hopefully they can help us get everything in place. We need to look at getting a ramp built for him to get into the house, transportation (Leonard Jays has graciously offered the loan of his van), needs a hospital bed for the house, O2 for when he needs it. However the physician was still worried. Finally she told us that Matt had 3 things going for him. 1) His spinal cord is not severed, 2) He is young and the most determined man she has met, 3) Matt is her hero. I think that comment opened the floodgates for a lot of the staff. They all stated that Matt is just such a joy to have in there. Not many men who have gone through what he has gone through are so optimistic, his personality has never changed, and he is so determined. They are just so worried what could happen to him when he is not under their care.
The doctor went on to say that right now there is no bed in rehab because truthfully, they never expected Matt to be off the ventilator with the severity and location of his injury, and the long duration of being on the ventilator. Not to mention a collapsed lung, 3 chest tubes, and countless pneumonia's. They also never believed when they started the trach trials he would progress so quickly. "Leaps and bounds" are the terms they used. I used this verse at the beginning of Matt's journey, and now I use it as praise, not a prayer. Job 9:10 "He performs wonders that cannot be fathomed, miracles that cannot be counted."
There is continued talk of taking out his feeding tube. He is still only at 175 lbs, but he doesn't have much for muscles, which weigh quite a bit. He didn't eat as well today because he was tired. With only one sleeping pill, Matt isn't sleeping very good at night, but that will take some getting used to. It is not easy to go off sleeping pills. Matt also had a whirlpool bath, so that always plays him out. Prayers that Matt will have a good night sleep, and regain strength for tomorrow.
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