Yesterday Matt was feeling better, still not eating as much but his spirits have improved. Had some visitors from PP who were able to watch Matt "work out" in the gym. Then the occupational therapist played a game with Matt called "Connect Four". It is similar to checkers but it stands upright. Matt won that game however Devin challenged Matt to a game. When it seemed quite apparent the Matt would have to concede defeat, he quickly flicked the game to remove all the chips, so Matt, you are still a poor loser!! When we would play games when he was small, the crying that would go on because he had lost was something to behold, and of course the more we laughed the worse he got.
Dad was getting quite concerned about Matt's weight loss and lack of appetite. He discussed with the dietitian some of the food Matt likes and dislikes. At the beginning of the week, mom or dad fill out a card to say what is offered each day and some choices are available. However 90% of the time he never gets what he ordered. So hopefully the discussion with the dietitian will help matters. Because of the concern, they decided to put Matt back on the tube feeds at night. It isn't really a step back if it will help him regain strength and weight. Thank goodness they didn't take the tube feed out.
Mom arrived from her long hiatus from Matt tonight at 8pm. She observed a noticeable difference in the ease of movement for his right hand and arm. Also the left fingers continue to twitch, which is still hopeful. Also his right leg movements are somewhat stronger and he is having less spasms. We realize that Matt's improvement would be better if he had some private physiotherapy that could come when he feels at his best, say in the evening. So mom said she would look into it. Prayers that if this is the right decision, that things will work out, and that God will lead the way. Proverbs 3:7 "Do not be wise in your own eyes; fear the Lord and shun evil. This will bring health to your body and nourishment to your bones."
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4 comments:
Good to hear you are feeling some better and enjoying some games and hopefully you can do more exercises when you are feeling your best- having mom and dad there will be a big help. Another thot for the day--"the journey of a thousand miles begins with a single step" and "Challenges are like summer storms, Everything is more beautiful when they have passed"...you'll gain that weight back, you have likely worked a few pounds off with all the activities over Christmas!!!I need to start! See you soon!yy/by
Good morning Matt - and Jo & George .. Glad to hear you are feeling a little better. You are doing great - keep up the good work..
And again Shelly & Jackie thank you for the updates... love to read of all the new accomplishments.
Hang in there Matt - you are getting stronger - slow but steady - you will make it.
Love to you all .. Aunty Brenda
Hey Matt and all! Just wanted to let you know that we continue to read the blog every day and hold you in our prayers every night. I know the progress seems slow but you really are making progress! Like Aunty Brenda said, slow but steady! We know you're doing great! Hope to see you soon! Hang in there!
Love, Shannon xoxo
Hey Matt, Just had a good catch up phone call with your mom! Sounds as though you have a few yummy home cooked meals to enjoy .... bon apetite! It's hot and sunny here in Auckland so we're making the most of it. We'll be praying for you as keep on keeping on.Hold on to the thought that whatever the outcome of Thursday's meeting is, God already knows what it is and has prepared a way for you. Keep your eyes on the Son Matt, so the shadows will fall behind you.
God bless, Carol and family
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