Finally we have found a van big enough to transport Matthew. The original idea was to borrow a van from another quad patient, but it was just too small. They tried everything, but Matt would just not fit. Then he became very cold with all the maneuvering. So took awhile to warm up. Another quad patient was able to let us try out her old 1988 van, which will work. It is a bit of a gas guzzler, but it will work!! So it definitely sounds like Matt will be home on the 22nd of December. So now it is safe to tell everyone about a little get together they are planning for Matt at the skating rink in Porcupine There will be a hockey game between Kinistino and Porcupine, there will be a few silent auctions and raffles, and a dance afterwards. So mark December 29th on your calendar and be there at 7:30 p.m. For further information contact Dwayne Thorpe at 278-3163.
Matt didn't have the best day yesterday. Still not feeling well from the antibiotics so he didn't do well at rehab. They had a staff/patient Christmas party, but Matt was only able to atttend for a few minutes. That's alright Matt, you will make up for it when you go home.
I would like to write more but my computer is acting up an it has taken me 1/2 hour to write this, so will write more tonight.
Thursday, December 20, 2007
Tuesday, December 18, 2007
A New Development
I realize Jacki had already written the blog tonight however I received a bit of news that she didn't know about. After dad had spoken to Jacki on the phone, I phoned because...well... I am nosy and like to have first hand knowledge of every day's happenings. Matt was so excited. He had just received a Grey Cup Jersey signed by all the team members of the Saskatchewan Roughriders!! Also a signed bandanna! He couldn't believe it. Apparently, one of the nurses from ICU wrote a letter to the Riders explaining Matt's situation and asking what they could do. Their initial plan was to come and see Matt, however that didn't turn out but what they did was great! So a big thanks to all involved, and if any of the team members are in Saskatoon, swing by the City hospital for a visit. Will take pictures over the holidays to put on the blog.
A little unwell...
Matt had an OK day. Because he has a urinary tract infection, he's back on antibiotics which always make him sick (started on the pills yesterday which partly explains his nausea yesterday as well). Also, they did x-rays today which showed that Matt hasn't had proper bowel movements, and is a little "full". They've started him on medicine (oral fleet) which will help clear that up as well.
Despite the above issues, he still had a pretty good day. He was in and out of his chair about 3 times which is great. I remember when he used to battle when he was encouraged to get in his chair just once for about 1/2 hour. Now he asks to be in his chair so he can scope out the floor, go down to ICU and visit with his former nurses. By the way, he did go to RUH on Sunday for about 2 hrs to visit the staff there. I guess the staff were sure excited to see Matt, and how well he is doing. Anyway, he had a good rehab session where they mostly worked at transferring. Because he's getting stronger, they no longer need 3 people to transfer him. They need to use 2 people right now, but he's getting closer to just 1. Please pray that Matt will continue to strengthen his upper body to assist in this technique and so that he can eventually do this on his own. 1 John 5:14 "Now this is the confidence that we have in Him, that if we ask anything according to His will, He hears us."
Despite the above issues, he still had a pretty good day. He was in and out of his chair about 3 times which is great. I remember when he used to battle when he was encouraged to get in his chair just once for about 1/2 hour. Now he asks to be in his chair so he can scope out the floor, go down to ICU and visit with his former nurses. By the way, he did go to RUH on Sunday for about 2 hrs to visit the staff there. I guess the staff were sure excited to see Matt, and how well he is doing. Anyway, he had a good rehab session where they mostly worked at transferring. Because he's getting stronger, they no longer need 3 people to transfer him. They need to use 2 people right now, but he's getting closer to just 1. Please pray that Matt will continue to strengthen his upper body to assist in this technique and so that he can eventually do this on his own. 1 John 5:14 "Now this is the confidence that we have in Him, that if we ask anything according to His will, He hears us."
Monday, December 17, 2007
A big day
Today, Matt had about 3 hrs of rehab. Maybe a bit too much as he got tired, then didn't want to eat lunch because he felt nauseous, then he had to have gravel. This caused him to sleep from 3pm until 6pm - but once 7pm came along he ate all his supper from the hospital, plus poached eggs courtesy of dad.
Rehab highlights - He has a different therapist today who has a slightly different approach then some of the others, and wanted to see all he could do. She then tried 2 new exercises: 1) She got him sitting up on the mat, then lifted the mat hydraulically so that his feet were just barely above the floor. Then she asked him to straighten out his leg so it would be parallel with the floor. Matt was able to lift each leg one at a time almost level (about 2/3 extension), hold it for a couple seconds, and then back to the floor. Awesome job Matt! 2) She had him lie down on his back with his knees up, and his heels on the bed. Then she moved his legs apart, and he could pull them back together again. Praise God that his quadriceps and his groin muscles are working!!!! Phil 4:4 "Rejoice in the Lord always. Again I will say, rejoice!"
Matt continues to play cards - once someone shuffles for him, he uses his right hand to deal out the cards, put his cards in his holder, play out the cards, and move his own pegs. Also, he has started to go daily to the community computer on the floor to read people's comments. Thanks so much for your support and prayers as Matt continues his recovery.
A very rewarding day!
Rehab highlights - He has a different therapist today who has a slightly different approach then some of the others, and wanted to see all he could do. She then tried 2 new exercises: 1) She got him sitting up on the mat, then lifted the mat hydraulically so that his feet were just barely above the floor. Then she asked him to straighten out his leg so it would be parallel with the floor. Matt was able to lift each leg one at a time almost level (about 2/3 extension), hold it for a couple seconds, and then back to the floor. Awesome job Matt! 2) She had him lie down on his back with his knees up, and his heels on the bed. Then she moved his legs apart, and he could pull them back together again. Praise God that his quadriceps and his groin muscles are working!!!! Phil 4:4 "Rejoice in the Lord always. Again I will say, rejoice!"
Matt continues to play cards - once someone shuffles for him, he uses his right hand to deal out the cards, put his cards in his holder, play out the cards, and move his own pegs. Also, he has started to go daily to the community computer on the floor to read people's comments. Thanks so much for your support and prayers as Matt continues his recovery.
A very rewarding day!
Sunday, December 16, 2007
A normal weekend
As most of you know, Matt doesn't have any physio or planned activities on the weekends, but he was busy none the less as he had lots of company. This is appreciated so much as it helps to pass the time more quickly until Monday when he starts his hard work again (just like a regular work week!). I wasn't able to talk to dad today, so I'm not sure if anything out of the ordinary occurred. However, I did speak to my mom who talked to dad earlier in the day. They had planned to go to RUH to see his old nurses, but I'm not sure if they did or not. Will let you know tomorrow.
As for our Christmas plans, please pray that God will continue to lay the pathway for Matt to be able to go home to Weekes for the week. We will find out Tuesday whether or not we will have a van or not. Mr. Paul Gustafson (not sure if we're related or not), the paraplegic from Saskatoon who speaks at the hospital has told us we could borrow his old van as long as his new one is delivered on Tuesday. We are praying that his van is delivered on time as this had been a major obstacle for Matt getting home. Also pray that Matt's health continues to be strong for the week so that there are no setbacks in that area. Psalm 28:7 "The Lord is my strength and my shield; my heart trusted in Him, and I am helped; therefore my heart greatly rejoices, and with my song I will praise Him."
As for our Christmas plans, please pray that God will continue to lay the pathway for Matt to be able to go home to Weekes for the week. We will find out Tuesday whether or not we will have a van or not. Mr. Paul Gustafson (not sure if we're related or not), the paraplegic from Saskatoon who speaks at the hospital has told us we could borrow his old van as long as his new one is delivered on Tuesday. We are praying that his van is delivered on time as this had been a major obstacle for Matt getting home. Also pray that Matt's health continues to be strong for the week so that there are no setbacks in that area. Psalm 28:7 "The Lord is my strength and my shield; my heart trusted in Him, and I am helped; therefore my heart greatly rejoices, and with my song I will praise Him."
Friday, December 14, 2007
Best 2 days yet!
Emotionally & physically, Thursday was one of Matt's best days to date. The trip to the mall really boosted his spirits, and seemed to make him realize that there is life outside the hospital. We think he now wants to be part of it, and so he's making a more concentrated effort towards his physio and communication with people. Dad has never seen him eat like he did yesterday - almost continuously. Dad was feeling like a server at a restaurant, but with only one customer, and no tips!!! Also, Matt is no longer being reserved around other patients, but is actively engaging them in conversation. Praise the Lord for this change in outlook! Psalms 139:14"I will praise You, for I am fearfully and wonderfully made; Marvelous are Your works, and that my soul knows very well." Matt sat in his chair for 8 hours (a new record), and was able to hold 300 ml in his bladder without leaking. As well, Matt is being more conscious of doing his own exercising in his room (strengthening his neck muscles), and is really just trying a little bit harder. They are really working on his transfer from the chair to the raised mat, and they are trying different techniques to see which works best.
Today, he had another really good day. Because he's feeling better (pneumonia seems to be gone), he's more upbeat. He was in his chair for 8 1/2 hours - which is better than yesterday, and he also had a great day at physio. Dad said they put him on the tilt table today which is something they haven't done in a while (reminder - this table takes a person from lying down to standing up). They gradually increased the angle to 70 degrees, which is the highest he's ever gone - Way to go Matt! He only had one dizzy spell which is pretty good as his body is still adjusting to being upright. Once he was in his chair again, the therapist had Matt hold a substance similar to putty/playdoh in his right hand. He is able to squeeze this quite tightly and make fairly significant indents into the putty. The therapist than asked Matt to try squeeze the putty in his left hand. Matt was rather skeptical as he feels his left hand has no strength at all. But he tried anyway. Dad said he worked so hard he was sweating, and wouldn't you know, there was a little imprint in the putty! Thanks so much for your continued prayers for Matt's recovery and may God continue to restore his spirit.
Today, he had another really good day. Because he's feeling better (pneumonia seems to be gone), he's more upbeat. He was in his chair for 8 1/2 hours - which is better than yesterday, and he also had a great day at physio. Dad said they put him on the tilt table today which is something they haven't done in a while (reminder - this table takes a person from lying down to standing up). They gradually increased the angle to 70 degrees, which is the highest he's ever gone - Way to go Matt! He only had one dizzy spell which is pretty good as his body is still adjusting to being upright. Once he was in his chair again, the therapist had Matt hold a substance similar to putty/playdoh in his right hand. He is able to squeeze this quite tightly and make fairly significant indents into the putty. The therapist than asked Matt to try squeeze the putty in his left hand. Matt was rather skeptical as he feels his left hand has no strength at all. But he tried anyway. Dad said he worked so hard he was sweating, and wouldn't you know, there was a little imprint in the putty! Thanks so much for your continued prayers for Matt's recovery and may God continue to restore his spirit.
Thursday, December 13, 2007
First Outing since June
Even with the business of the season, Matt still wanted to go a fight the Christmas shoppers. And so he did. The first outing for 5 1/2 months. He was so worried people would stare at him and he would be too anxious. Dad told him everyone is too busy trying to get their shopping done to bother staring. And sure enough it went great. "Excellent" as dad put it and I have never heard him use those words. Matt was just beaming when he arrived at Midtown. It was like a kid in a candy store for the first time. He just couldn't get over the sights, all the different sounds, and the smells. Also, had to check out the girls walking by as well. Typical guy. They weren't there very long before he seen someone he knew. You know how it is when you go hunting for mushrooms. You don't see any for awhile, then all for a sudden you see hundreds. That's what it was like for Matt at the mall. Dad said his visiting took up all of his time. There were so many people he knew. They told Matt the first outing would be the hardest, and I think it is the fear of the unknown that is so difficult. But once you actually do it, it is a big relief.
Rehab went well. Still trying to increase the strength of his right arm and hand. However the physio states the left arm is definitely improving and getting stronger. Still praying for the left to kick into high moving mode, but praise for hope of regaining full movement. Hebrews 12:12 "Therefore strengthen your feeble arms and weak knees. Make level paths for your feet, so that the lame may not be disabled, but rather healed".
Matt was quite impressed last evening. He had told dad to call the nurse to do his catheter. He tries a bit by himself, and they see how much is left over. The total amount was 500mls, and he didn't bypass or "leak" at all. Great news. Dad had to go and pick up a prescription from the drugstore for an antispasmodic for his bladder. In other words, a pill that stops his bladder spasms, and will help his bladder to tone, so maybe soon he can go on his own. The medication just became available in Canada, so some of the pharmacies don't carry it, and the hospital doesn't either. So glad the doctor knew what pharmacy to send dad to in order to get it. Matt took his first pill last night, so we will have to wait and see.
Rehab went well. Still trying to increase the strength of his right arm and hand. However the physio states the left arm is definitely improving and getting stronger. Still praying for the left to kick into high moving mode, but praise for hope of regaining full movement. Hebrews 12:12 "Therefore strengthen your feeble arms and weak knees. Make level paths for your feet, so that the lame may not be disabled, but rather healed".
Matt was quite impressed last evening. He had told dad to call the nurse to do his catheter. He tries a bit by himself, and they see how much is left over. The total amount was 500mls, and he didn't bypass or "leak" at all. Great news. Dad had to go and pick up a prescription from the drugstore for an antispasmodic for his bladder. In other words, a pill that stops his bladder spasms, and will help his bladder to tone, so maybe soon he can go on his own. The medication just became available in Canada, so some of the pharmacies don't carry it, and the hospital doesn't either. So glad the doctor knew what pharmacy to send dad to in order to get it. Matt took his first pill last night, so we will have to wait and see.
Tuesday, December 11, 2007
Disappointing Day
Matt had a disappointing day. They had planned an outing for him to the Midtown Mall. However when the transportation arrived, Matt didn't fit. They tried reclining him, but they were unable to close the door because his feet stuck out. So to "vent" his frustrations, he went to ICU to visit. One of the nurses' stated her husband worked for a different cab company and she contacted him to see if he was free. So they went down and just tried to get Matt into her husband's cab. Matt fit, however the outing had been cancelled already, so hopefully they will go again tomorrow. Dad and Matt still took advantage of being all dressed up with no where to go. They took a spin outside for about 10 mins, but eventually the elements got the better of them and they came back inside.
Matt didn't get much in the way of rehab because he had to go for an ultrasound of his kidneys and bladder. Worried because it is not working properly and want to find out if there is a mechanical problem (tumor, blockage, etc) instead of a spinal cord problem.
It has been an adjustment to move from ICU to rehab. I think Matt is missing the one on one care. Hasn't really got to know the staff yet, as he doesn't see them as much. Hopefully that will change and they will come in to help a bit more with his activities of daily living. Thank goodness for the constant support of dad who is the cheerleader this week. Mom will not be back until next week. Prayers that Matt will continue to improve regardless of setbacks. God knows of our needs and the solutions to our problems, even when we don't. Proverbs 3:5-6 "Trust in the Lord with all your heart; lean not on your own understanding; in all ways acknowledge him, and he will make you paths straight."
Matt didn't get much in the way of rehab because he had to go for an ultrasound of his kidneys and bladder. Worried because it is not working properly and want to find out if there is a mechanical problem (tumor, blockage, etc) instead of a spinal cord problem.
It has been an adjustment to move from ICU to rehab. I think Matt is missing the one on one care. Hasn't really got to know the staff yet, as he doesn't see them as much. Hopefully that will change and they will come in to help a bit more with his activities of daily living. Thank goodness for the constant support of dad who is the cheerleader this week. Mom will not be back until next week. Prayers that Matt will continue to improve regardless of setbacks. God knows of our needs and the solutions to our problems, even when we don't. Proverbs 3:5-6 "Trust in the Lord with all your heart; lean not on your own understanding; in all ways acknowledge him, and he will make you paths straight."
Monday, December 10, 2007
Still a Annoying Little Brother
I was able to talk to Matt on the phone today. Sometimes it is like pulling teeth, my own. I was asking him in depth questions about how rehab was going, what exercises they were doing, etc. Pretty soon, he says he has to cough, so I begin speaking to dad. I little longer in the conversation, I ask dad how Matt is doing. Just great. He was watching wrestling on TV. I asked how his cough was, dad laughs and said Matt didn't have to cough, he just didn't want to miss his show!! Little stinker!
Yesterday Matt was treated like a sheik. One of the RN's from RUH came and gave Matt a pedicure and manicure. She spent the whole afternoon with him, which really perked him up. Also more company from Weekes, so even though it was a Sunday, it wasn't a quiet day. Just a little note of thanks for all those who take the time out of their day to visit Matt. It really helps him focus on other things beside the hospital.
Anyway, therapy is going okay. They are continuing to do exercises to make Matt more self reliant. They put Matt on the mat, situate him so he is on his side, then he has to roll onto his back. That is working out pretty well. The tricky one is trying to get him to sit up. They place his left arm in a hoop above his head (he is laying down), bent at the elbow, then while they are holding it in place, they put his right hand behind him so he can push himself up. So while his left arm is pulling, the right arm is pushing. It reminds me of that picture of two kids with a wagon, the caption reading "Are you pushing or pulling back there?" That exercise will take work, but it is progress.
Matt meet with a counsellor today regarding how he is doing emotionally. Matt old me he couldn't tell me what was said, but he did mention the therapist told Matt to be himself, because he has such an amazing attitude. We didn't need a psychologist to tell us that. We already know!!
Matt had a pulmonary test today. I took over one hour. Since Matt wouldn't talk to me because of stinky wrestling, I am not sure what tests were involved, but dad states they were pretty impressed with the outcome, and were generally surprised that Matt has only been off the ventilator for such a short time. There is even rumors going around they may take the trach out before Christmas. While they are at it, they can take that tube out his intestine as well. However, Matt did lose weight when he was sick, and is down to 165 lbs. But dad says they way Matt is eating, he will soon get that weight up. So prayers that if it the right decision they are able to remove both the trach and feeding tube before Christmas. It will make taking him home so much easier. Let us continue to have faith in Matt's progress. Hebrews 11:6 "And without faith it is impossible to please God, because anyone who comes to him must believe that he exists and that he rewards those who earnestly seek him."
Yesterday Matt was treated like a sheik. One of the RN's from RUH came and gave Matt a pedicure and manicure. She spent the whole afternoon with him, which really perked him up. Also more company from Weekes, so even though it was a Sunday, it wasn't a quiet day. Just a little note of thanks for all those who take the time out of their day to visit Matt. It really helps him focus on other things beside the hospital.
Anyway, therapy is going okay. They are continuing to do exercises to make Matt more self reliant. They put Matt on the mat, situate him so he is on his side, then he has to roll onto his back. That is working out pretty well. The tricky one is trying to get him to sit up. They place his left arm in a hoop above his head (he is laying down), bent at the elbow, then while they are holding it in place, they put his right hand behind him so he can push himself up. So while his left arm is pulling, the right arm is pushing. It reminds me of that picture of two kids with a wagon, the caption reading "Are you pushing or pulling back there?" That exercise will take work, but it is progress.
Matt meet with a counsellor today regarding how he is doing emotionally. Matt old me he couldn't tell me what was said, but he did mention the therapist told Matt to be himself, because he has such an amazing attitude. We didn't need a psychologist to tell us that. We already know!!
Matt had a pulmonary test today. I took over one hour. Since Matt wouldn't talk to me because of stinky wrestling, I am not sure what tests were involved, but dad states they were pretty impressed with the outcome, and were generally surprised that Matt has only been off the ventilator for such a short time. There is even rumors going around they may take the trach out before Christmas. While they are at it, they can take that tube out his intestine as well. However, Matt did lose weight when he was sick, and is down to 165 lbs. But dad says they way Matt is eating, he will soon get that weight up. So prayers that if it the right decision they are able to remove both the trach and feeding tube before Christmas. It will make taking him home so much easier. Let us continue to have faith in Matt's progress. Hebrews 11:6 "And without faith it is impossible to please God, because anyone who comes to him must believe that he exists and that he rewards those who earnestly seek him."
Sunday, December 9, 2007
Brushing His Teeth
Matt can brush his own teeth. Yesterday, dad was getting the toothbrush ready to brush Matt, teeth. Matt looked quizzically at the brush, then said"let me try". So dad put it in Matt's right hand and away Matt went. He was even able to turn his wrist to get the back of the mouth. He couldn't push really hard, so dad finished up for him. However, Matt must of felt dad didn't do a good job, because later, dad noticed Matt had grabbed the brush off the table and was working away again. Way to show dad how to do it right!
A social worker came in yesterday to tell Matt about having his signature photocopied from before the accident, then having it put into a stamp so we don't have to have power of attorney. He will have to go down to a govt office to make it legal, but then Matt can make his own decisions on what he will put his signature on.
One of the male nurses was really on Matt's case about eating. He told Matt that whenever he feels good, he must eat as much as he can. The nurse also encouraged dad to do whatever he can to make Matt's food more palatable. So dad brought an egg poacher form home, and made Matt poached egg. Dad said he couldn't make them fast enough! Matt sucked them back like a vacuum cleaner! Full of protein which is great. He needs protein in order for his muscles to build. Every movement he makes requires so much effort. Not only are his nerves damaged and the signals are not as strong as they should be, but his muscles have wasted away, so to brush his teeth takes quite a herculean effort.
More company from home in to visit, and the patient from Meadow Lake visited Matt for 2 hours. So even though it was a weekend, Matt was still busy. At 9 pm, feeling tired so hopefully he slept right through without waking up. He told dad when he has those panic attacks, they are awful. Matt wakes up having that overwhelming feeling of dread, and he feels like jumping out of bed and getting away, but he can't, so the cycle continues. Prayers for those feelings to stop and a peace surrounds Matt. 1Peter 5:7 "Cast all your anxiety on him, because he cares for you".
A social worker came in yesterday to tell Matt about having his signature photocopied from before the accident, then having it put into a stamp so we don't have to have power of attorney. He will have to go down to a govt office to make it legal, but then Matt can make his own decisions on what he will put his signature on.
One of the male nurses was really on Matt's case about eating. He told Matt that whenever he feels good, he must eat as much as he can. The nurse also encouraged dad to do whatever he can to make Matt's food more palatable. So dad brought an egg poacher form home, and made Matt poached egg. Dad said he couldn't make them fast enough! Matt sucked them back like a vacuum cleaner! Full of protein which is great. He needs protein in order for his muscles to build. Every movement he makes requires so much effort. Not only are his nerves damaged and the signals are not as strong as they should be, but his muscles have wasted away, so to brush his teeth takes quite a herculean effort.
More company from home in to visit, and the patient from Meadow Lake visited Matt for 2 hours. So even though it was a weekend, Matt was still busy. At 9 pm, feeling tired so hopefully he slept right through without waking up. He told dad when he has those panic attacks, they are awful. Matt wakes up having that overwhelming feeling of dread, and he feels like jumping out of bed and getting away, but he can't, so the cycle continues. Prayers for those feelings to stop and a peace surrounds Matt. 1Peter 5:7 "Cast all your anxiety on him, because he cares for you".
Friday, December 7, 2007
Mom left
I will have to write about yesterday. Unable to contact dad tonight. Mom had to go back to Weekes to work, feeling down and teary, she will be gone for 10 days. God doesn't prevent things from happening, but if we ask he will give us the strength to persevere. Hebrews 5:3
"Not only so, but we also rejoice in our sufferings, because we know that suffering produces perseverance; perseverance, character; and character, hope". We may not rejoice now, but maybe 1 year down the road we will. Hebrews 11:1 "Now faith is being sure of what we hope for and certain of what we do not see".
I think we see all the progress because we are not there for the day by day struggles, but mom, dad and Matt feel progress is slow. So to recap, 6 months ago, Matt was unable to move at all, not able to drink even a tiny sip of water, constant pain, unable to even mouth words due to the ventilator in his mouth, and prognosis was very bleak. So if you look at it that way, you've come a long way, baby!! Yesterday's teleconference was with the doctor in Vancouver, to give tips on what should be done and what may help. The urologist consult found that Matt's urinary sphincter, instead of releasing when he has to pee, actually constricts or tightens, so it is not quite working properly yet. Hoping they may give him some exercises to help that.
Talking about Matt going home for Christmas. Still up in the air. They want him to have an air mattress for the hospital bed, so we can rent one from the hospital for $100/week. Prayers that Matt's pneumonia will be better and he can come home to Weekes.
Matt is getting better at playing crib. He can pull out the card if you hold them, and then lay the card down. Not only that, he can peg on the crib board as well. That is fine motor skills and that is great news. When mom would lift his left hand, he could wiggle his four fingers, and his thumb would quiver. But that is how his right hand started and look what it is doing now. Matt's TV is one that comes out of the wall, like most hospital rooms. If situated so he can reach it, he can turn off the TV, change channels, turn volume up and down. Great job Matt! We are so proud of you! You keep astounding them everyday, and never give up. We have half the country rooting for you. Praise God for continued success. Joshua 1:5 "....as I was with Moses, so I will be with you; I will never leave you nor forsake you."
"Not only so, but we also rejoice in our sufferings, because we know that suffering produces perseverance; perseverance, character; and character, hope". We may not rejoice now, but maybe 1 year down the road we will. Hebrews 11:1 "Now faith is being sure of what we hope for and certain of what we do not see".
I think we see all the progress because we are not there for the day by day struggles, but mom, dad and Matt feel progress is slow. So to recap, 6 months ago, Matt was unable to move at all, not able to drink even a tiny sip of water, constant pain, unable to even mouth words due to the ventilator in his mouth, and prognosis was very bleak. So if you look at it that way, you've come a long way, baby!! Yesterday's teleconference was with the doctor in Vancouver, to give tips on what should be done and what may help. The urologist consult found that Matt's urinary sphincter, instead of releasing when he has to pee, actually constricts or tightens, so it is not quite working properly yet. Hoping they may give him some exercises to help that.
Talking about Matt going home for Christmas. Still up in the air. They want him to have an air mattress for the hospital bed, so we can rent one from the hospital for $100/week. Prayers that Matt's pneumonia will be better and he can come home to Weekes.
Matt is getting better at playing crib. He can pull out the card if you hold them, and then lay the card down. Not only that, he can peg on the crib board as well. That is fine motor skills and that is great news. When mom would lift his left hand, he could wiggle his four fingers, and his thumb would quiver. But that is how his right hand started and look what it is doing now. Matt's TV is one that comes out of the wall, like most hospital rooms. If situated so he can reach it, he can turn off the TV, change channels, turn volume up and down. Great job Matt! We are so proud of you! You keep astounding them everyday, and never give up. We have half the country rooting for you. Praise God for continued success. Joshua 1:5 "....as I was with Moses, so I will be with you; I will never leave you nor forsake you."
Thursday, December 6, 2007
Exercises
Jacki and the kids are leaving today, so last night was very busy. Jacki and Dad went to see Matt and Grandma got to stay with the kids. They are working on getting Matt to strengthen his neck muscles. When his head goes too far forward, he is unable to lift his head back up. And strong neck muscles are needed for most of his movements. The physio is working on transferring from the chair to the elevated mat, rolling over using the swinging motion of his arms and head, and starting to get him into a sitting position. That one will take more time a work, but it will come. Matt's stomach muscles are getting stronger every day, so time will tell.
Everyone ate in the lunchroom. A 25 year old patient in there keeps coming and asking Matt to join the group. However Matt is still self conscious and doesn't go in there too often. But last night he did. Jacki said that she would hold mini carrots in her hand and Matt would be able to pick them up and put them in his mouth. He dropped a few, but he did that before his accident as well! He doesn't really use his fingers for much, because the tips are still numb and he can't feel with them very well. So when he wants to scratch his nose, he curls his right hand into a fist and scratches with his knuckles.
Today will be a busy day. They have a teleconference with the specialists in Vancouver regarding the strength of his diaphragm. Way back in Sept I think, there was a discussion on implanting a "pacemaker"in his diaphragm to help him with his breathing. Matt's diaphragm still isn't the strongest, so not sure what they will discuss. Then his physio at 1100, urologist consult at 1 pm and then more exercises in the afternoon. So hopefully mom will be able to tell me some good things. Will write again tonight.
Everyone ate in the lunchroom. A 25 year old patient in there keeps coming and asking Matt to join the group. However Matt is still self conscious and doesn't go in there too often. But last night he did. Jacki said that she would hold mini carrots in her hand and Matt would be able to pick them up and put them in his mouth. He dropped a few, but he did that before his accident as well! He doesn't really use his fingers for much, because the tips are still numb and he can't feel with them very well. So when he wants to scratch his nose, he curls his right hand into a fist and scratches with his knuckles.
Today will be a busy day. They have a teleconference with the specialists in Vancouver regarding the strength of his diaphragm. Way back in Sept I think, there was a discussion on implanting a "pacemaker"in his diaphragm to help him with his breathing. Matt's diaphragm still isn't the strongest, so not sure what they will discuss. Then his physio at 1100, urologist consult at 1 pm and then more exercises in the afternoon. So hopefully mom will be able to tell me some good things. Will write again tonight.
Tuesday, December 4, 2007
Matt's new exercise partner
Matt had some very active visitors for his physio in the gym. Bobby, Jacki's boy, decided to help Matt with his exercises. Bobby loved playing with the balls, climbing the stairs, general 2 1/2 year old stuff. So Jacki could not tell me how Matt's exercises were, because she was preoccupied. And I thought all mom's had eyes in the back of their heads! After the gym, Matt took Amy, Jacki's girl, for a ride in his chair. She sat with him the whole time. Then Bobby got a turn, however he is a bit more busy, so it was a short lived ride.
Matt ate somewhat better today, and Jacki is supposed to encourage fluids, but "forcing" sounds more appropriate. Matt says he is going to swim pretty soon, he is so full. And Jacki tried to help him with his coughing. If you time it just right, when Matt is in the middle of a cough, you push on his stomach to "assist" him with coughing. However Jacki forgot to let go, so when he tried to breathe in, he couldn't because she still had her hand bearing down into his abdomen. She finally caught on when Matt started to turn blue! Well it wasn't quite that bad, but "assisted" breathing now has a whole new meaning!
Mom had bought Matt a Christmas tree, so his room is more festive. There are some stickers on his window as well, which prevents him from spying on the people in the parking lot. Just remember, if you come to visit, someone is watching you!
Whispers is now at the house waiting for surgery. He needs new batteries, but there is quite a waiting list, and it might not get done this year. And the surgeon went home, and the resident on call is not the best when it comes to these types of procedures (sorry mom!), so best to wait until the specialist comes back (dad, bring your tools)!
Last night, I prayed very hard for Matt to be free from anxiety during the night, however I forgot to pray for him to sleep. And wouldn't you know it, Matt was up from 4-6 am, just because he couldn't sleep, but he had no anxiety. I will have to be more specific tonight! Thanks for all the continued prayers for Matt, and keep them coming! James 5:11 "As you know we consider blessed those who have persevered. You have heard of Job's perseverance and have seen what the Lord finally brought about. The Lord is full of compassion and mercy."
Matt ate somewhat better today, and Jacki is supposed to encourage fluids, but "forcing" sounds more appropriate. Matt says he is going to swim pretty soon, he is so full. And Jacki tried to help him with his coughing. If you time it just right, when Matt is in the middle of a cough, you push on his stomach to "assist" him with coughing. However Jacki forgot to let go, so when he tried to breathe in, he couldn't because she still had her hand bearing down into his abdomen. She finally caught on when Matt started to turn blue! Well it wasn't quite that bad, but "assisted" breathing now has a whole new meaning!
Mom had bought Matt a Christmas tree, so his room is more festive. There are some stickers on his window as well, which prevents him from spying on the people in the parking lot. Just remember, if you come to visit, someone is watching you!
Whispers is now at the house waiting for surgery. He needs new batteries, but there is quite a waiting list, and it might not get done this year. And the surgeon went home, and the resident on call is not the best when it comes to these types of procedures (sorry mom!), so best to wait until the specialist comes back (dad, bring your tools)!
Last night, I prayed very hard for Matt to be free from anxiety during the night, however I forgot to pray for him to sleep. And wouldn't you know it, Matt was up from 4-6 am, just because he couldn't sleep, but he had no anxiety. I will have to be more specific tonight! Thanks for all the continued prayers for Matt, and keep them coming! James 5:11 "As you know we consider blessed those who have persevered. You have heard of Job's perseverance and have seen what the Lord finally brought about. The Lord is full of compassion and mercy."
Monday, December 3, 2007
Anxiety Begone!
Matt has been having some issues with anxiety attacks at night. He wakes up and can't go back to sleep. Those panic attacks make it hard for him to breathe properly, and his neck becomes really sore from being so tense. They didn't get him up for rehab until mom came, because Matt was so tired with dark circles under his eyes. But eventually he did make it to the gym, and mom was surprised at how much more strength Matt has. She hasn't been to rehab with him for a few weeks. When they hooked Matt up to the bicycle for his arms, he was able to push with his left wrist and arm, even though his hand doesn't move much. When he sits at a table, he is able to reach across and grab the edge of the table with his right hand. Also, by manipulating certain nerves and muscles in his butt, Matt is able to move his legs slightly up and down. The physio bends his knees, and then Matt slowly slides his feet towards his bum to bend his legs more. (When mom explains it, I try to visual it in my head to explain it to you, however it may not be exactly correct).
Since Matt has been on antibiotics, he hasn't been eating or drinking as well. It is more difficult for Matt to stay hydrated in rehab. In ICU, it was one on one care and the staff were continuously in and out to push fluids. In rehab, they only come when he calls with the buzzer, and he cannot drink without someone to help him. So the doctor encouraged Matt to ring every hour for something to drink. They are a little worried his secretions are getting too thick, and his cough isn't as strong. But Matt doesn't want any O2 or moisture at night, so hopefully he will drink enough fluids.
Jacki and the kids came down for a visit. Matt is always glad to see his niece and nephew. And of course Jacki as well, though I don't know why! She is terrible to play games with because she hates to lose! I know where Matt gets it from!
Prayers that the anxiety attacks will diminish, and Matt will get good nights rest. Needs to be strong for his workouts. 1 Thess 5:16 "Be joyful always; pray continually, give thanks in all circumstances, for this is God's will for you in Christ Jesus".
Since Matt has been on antibiotics, he hasn't been eating or drinking as well. It is more difficult for Matt to stay hydrated in rehab. In ICU, it was one on one care and the staff were continuously in and out to push fluids. In rehab, they only come when he calls with the buzzer, and he cannot drink without someone to help him. So the doctor encouraged Matt to ring every hour for something to drink. They are a little worried his secretions are getting too thick, and his cough isn't as strong. But Matt doesn't want any O2 or moisture at night, so hopefully he will drink enough fluids.
Jacki and the kids came down for a visit. Matt is always glad to see his niece and nephew. And of course Jacki as well, though I don't know why! She is terrible to play games with because she hates to lose! I know where Matt gets it from!
Prayers that the anxiety attacks will diminish, and Matt will get good nights rest. Needs to be strong for his workouts. 1 Thess 5:16 "Be joyful always; pray continually, give thanks in all circumstances, for this is God's will for you in Christ Jesus".
Sunday, December 2, 2007
Lots of company
Yesterday was quiet in regards to physio, but very busy with company. When Matt went to sleep at 11 pm, it was a good tired. He was exhausted, but it will help him sleep throughout the night. Friday night they had to suction him quite a bit, and then had to give him gravol for nausea. Mom is not sure how he slept last night, but hopefully it was better.
Yesterday he also joined the ICU staff for a pizza party. It was a party "just because", which is as good of reason as any to have a get together. Eating by himself is still progressing. Matt can get the spoon to his mouth about 5-6 times. The hardest part is getting the food on the spoon, or stabbing it with his fork. But it all helps that fine motor skills to "relearn" what is once knew to do, but now needs repetition to remember how it works properly.
3 more days worth of antibiotics and then the IV can come out. It is in a very awkward place, which makes it a pain, but hopefully this will be the last pneumonia Matt will ever get. Colds, okay, maybe an earache or two, but no more pneumonia!! However the respiratory therapist feels Matt's lungs and immune system have improved so much that he is fighting a lot of it on his own.
Prayers for no more pneumonia and home for Christmas. Praise for continued strength and recovery. Col. 3:15 "Let the peace of Christ rule in your hearts, since as members of one body your were called to peace. And be thankful."
Yesterday he also joined the ICU staff for a pizza party. It was a party "just because", which is as good of reason as any to have a get together. Eating by himself is still progressing. Matt can get the spoon to his mouth about 5-6 times. The hardest part is getting the food on the spoon, or stabbing it with his fork. But it all helps that fine motor skills to "relearn" what is once knew to do, but now needs repetition to remember how it works properly.
3 more days worth of antibiotics and then the IV can come out. It is in a very awkward place, which makes it a pain, but hopefully this will be the last pneumonia Matt will ever get. Colds, okay, maybe an earache or two, but no more pneumonia!! However the respiratory therapist feels Matt's lungs and immune system have improved so much that he is fighting a lot of it on his own.
Prayers for no more pneumonia and home for Christmas. Praise for continued strength and recovery. Col. 3:15 "Let the peace of Christ rule in your hearts, since as members of one body your were called to peace. And be thankful."
Friday, November 30, 2007
Boot Camp
Matt's day was very busy. Started the day with chest physio. Then stretches for 1 hour prior to going to the gym at 11 am. After lunch he went for more physical therapy at the gym. Matt tries so hard. Anyone who has every had pneumonia can attest for what it does to your strength and motivation. It sucks the life right out of you. But Matt didn't complain. They are really working on his transferring from the chair to the elevated mat. 2 physio therapist are on either side of Matt, who has a transfer belt around his waist. Then with his right hand he pushes slightly away from his chair. They can also feel that his legs are not just dead weight anymore, that if timed just right, he can push off every so slightly with them. You've come a long way Matt! He is still frustrated with his left hand, but it still has a positive response when hooked up to the tens machine, so it will come Matt, just remind everyone who comes in to visit to help you exercise it.
They also had Matt eating with a fork. It has a big foam handle for easier grip. He should be able to finish about a quarter of his meal with it, and dad said he did pretty well. Most times they have to start with special attachments on the wrist, so a fork can fit into a pouch and you scoop it that way. Matt is so strong already that he completely missed that beginner stage. He can scratch the top of his head as well, so the right arm is coming along nicely.
Prayers for continued recovery from pneumonia and better weather. Then Matt can start taking little trips to the mall, the house in Saskatoon, etc. Prayers also for Matt to stay focused on day to day recovery. 2 Cor. 4:18 "So we fix our eyes not on what is seen, but on what is unseen. For what is seen is temporary, but what is unseen is eternal".
They also had Matt eating with a fork. It has a big foam handle for easier grip. He should be able to finish about a quarter of his meal with it, and dad said he did pretty well. Most times they have to start with special attachments on the wrist, so a fork can fit into a pouch and you scoop it that way. Matt is so strong already that he completely missed that beginner stage. He can scratch the top of his head as well, so the right arm is coming along nicely.
Prayers for continued recovery from pneumonia and better weather. Then Matt can start taking little trips to the mall, the house in Saskatoon, etc. Prayers also for Matt to stay focused on day to day recovery. 2 Cor. 4:18 "So we fix our eyes not on what is seen, but on what is unseen. For what is seen is temporary, but what is unseen is eternal".
Thursday, November 29, 2007
Brand New Chair
Sorry about the late blog. Miscommunication. Mom and dad have just moved into the new place. It is a house and has lots of rooms, a fenced in backyard (so Shaunie can't run away!), and a dog and a cat to boot. Thanks so much to the Schekk's for the use of their apartment for the last 5 months. I don't believe Matt would have done as well without the cheerleaders near by. God's blessings on all of you.
Matt got a brand new chair yesterday. It is still not his officially, but we will take it for as long as they let us keep it. Hopefully we can keep it for the Christmas holidays. The physiotherapist brought it yesterday, handed the tools to dad and left. She knows that dad would do a better job of making it just right for Matt. It takes about 45 minutes of adjusting to make it work properly for Matt. Aunty Sandy came up for a few days and bought Matt a Billabong toque/hat. Not sure what that is but I will just have to wait and see. Matt is feeling quite a bit better, enough to tease Aunty and the nurses. He was suctioned a fair bit over the course of the day, and poor Aunty kept having to leave the room, the big baby. Mom was happy to be back with her "baby". She doesn't like to be away from Matt so long. I think he misses her as well. When you are sick it seems the one you want to be with is your mom. I guess we always think they will make it all better. Another blog tonight.
Matt got a brand new chair yesterday. It is still not his officially, but we will take it for as long as they let us keep it. Hopefully we can keep it for the Christmas holidays. The physiotherapist brought it yesterday, handed the tools to dad and left. She knows that dad would do a better job of making it just right for Matt. It takes about 45 minutes of adjusting to make it work properly for Matt. Aunty Sandy came up for a few days and bought Matt a Billabong toque/hat. Not sure what that is but I will just have to wait and see. Matt is feeling quite a bit better, enough to tease Aunty and the nurses. He was suctioned a fair bit over the course of the day, and poor Aunty kept having to leave the room, the big baby. Mom was happy to be back with her "baby". She doesn't like to be away from Matt so long. I think he misses her as well. When you are sick it seems the one you want to be with is your mom. I guess we always think they will make it all better. Another blog tonight.
Tuesday, November 27, 2007
Under the weather
Matt is still under the weather, lots of secretions from the infections. He didn't go for rehab today as he just was too tired. Matt was happy to have company today and tonight, God bless you all. Mom is back and is happy to take over. Prayers for tomorrow that the pneumonia will clear up, Matt's lungs will continue to get stronger and he will feel like eating and drinking more. Thank you so much for all the well wishes and prayers for Matt and our family. God continues to bless us as we take this journey. Psalms 62:8 Trust in him at all times, O people; pour out your hearts to him, for God is our refuge.
Monday, November 26, 2007
Tired
After all the excitement yesterday, Matt was really tired and slept a fair chunk of the day. I just found out Matt was up for 7 hours in his chair yesterday. Also they had got him showered & dressed in his Saskatchewan greens. After the game he had another 10 visitors come to see him. I think security was worried because he followed them right to Matt's room! I can imagine why! Had another game of crib with Nolan after the company had left, so I can believe he would be tired today. Dad said yesterday was one of the best days Matt has had. Thanks to all of you who shared this great day with Matt. I am sure it will be a day no one will forget.
Unfortunately, Matt does has pneumonia and they started antibiotics. Very little rehab today because of a slight mix up and Matt's overall physical fatigue. Mom should be arriving shortly, or may be in Saskatoon already. I think she missed being at the party. She never wants to miss anything! Prayers for God's healing hand on Matt and a quick recovery from the pneumonia. Malachi 4:2 "But for you who revere my name, the sun of righteousness will rise with healing in its wings..."
Unfortunately, Matt does has pneumonia and they started antibiotics. Very little rehab today because of a slight mix up and Matt's overall physical fatigue. Mom should be arriving shortly, or may be in Saskatoon already. I think she missed being at the party. She never wants to miss anything! Prayers for God's healing hand on Matt and a quick recovery from the pneumonia. Malachi 4:2 "But for you who revere my name, the sun of righteousness will rise with healing in its wings..."
Sunday, November 25, 2007
THEY DID IT!!
Wow, what an exciting game! I don't watch much football, but I still remember the excitement in 1989 when Kent Austin was the QB and Dave Ridgeway kicked that field goal. Today was no different, except I wasn't in Saskatoon. Wish we were there to share in the excitement.
I believe green took over the ICU today. They had an extra room so they moved the bed out and set up a TV in there for Matt and 10 of his friends and family. I was unable to get a hold of dad, but did manage to speak to Nolan for a few minutes. Nolan said the atmosphere was great. Matt stayed up in his chair for the whole game. He still wasn't feeling the best and didn't eat much. however he is getting enough fluids into him which is good. The ICU nurses were able to start an IV, but Nolan wasn't sure if they actually started antibiotics or not. Matt is so much stronger and can cough more efficiently than before so they may wait and see if it clears up on its own. The respiratory therapist did chest physio and suctioned out plenty of the stuff, so no meds would be preferable.
Hopefully I will have more to tell you tomorrow. Thank the Lord the riders won. I believe it really boosted Matt's spirits. I was really impressed with the team. Most of them thanked God for the win. I remember seeing Kent Austin at Nipawin Bible Institute after they had won in 1989, speaking to us about the importance of letting God in to every aspect of our lives. I think he conveys that message to his team. Psalms 119:105 "Your word is a lamp to my feet and a light for my path".
I believe green took over the ICU today. They had an extra room so they moved the bed out and set up a TV in there for Matt and 10 of his friends and family. I was unable to get a hold of dad, but did manage to speak to Nolan for a few minutes. Nolan said the atmosphere was great. Matt stayed up in his chair for the whole game. He still wasn't feeling the best and didn't eat much. however he is getting enough fluids into him which is good. The ICU nurses were able to start an IV, but Nolan wasn't sure if they actually started antibiotics or not. Matt is so much stronger and can cough more efficiently than before so they may wait and see if it clears up on its own. The respiratory therapist did chest physio and suctioned out plenty of the stuff, so no meds would be preferable.
Hopefully I will have more to tell you tomorrow. Thank the Lord the riders won. I believe it really boosted Matt's spirits. I was really impressed with the team. Most of them thanked God for the win. I remember seeing Kent Austin at Nipawin Bible Institute after they had won in 1989, speaking to us about the importance of letting God in to every aspect of our lives. I think he conveys that message to his team. Psalms 119:105 "Your word is a lamp to my feet and a light for my path".
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