Thursday, March 5, 2009

Surgery a success

Matt did have his surgery for bladder stone removal yesterday at 1100. The stones were so huge that they needed to break them up before pulling them out. Thank goodness they decided to to a spinal as opposed to being put right to sleep. The anesthesiologist was concerned with Matt's previous pneumonia's and compromised breathing. I visited him yesterday and he was still groggy, couldn't move his legs but was starting to get some feeling in them. He will need a indwelling catheter and an IV for the next few days, which will put a damper on his therapy and he won't be able to come home this weekend. Which might be for the best because Mom will be in Calgary for the Brier. Jacki and Gary got her some tickets for the Sunday game and she will go up Saturday.
Thanks for all the prayers and thoughts. Will keep you posted!

Tuesday, March 3, 2009

Happy Belated Matt

Thanks so much for all the comments. It is great to see how many cheerleaders on still cheering, even after all this time.
Matt spent his birthday in Calgary at Jacki's. Gary had a few friends over and I hear they had a great time playing risk, the golf card game, UNO. Matt was a bit disappointed he didn't win any of them, but felt better when he had cake on Sunday for Amy's early birthday party. Jacki put Matt's name on Amy's Dora and Diego cake. I think Matt's name was under the Dora doll but I may be mistaken!
God has truly blessed us. Thinking back to the beginning and all the difficulties Matt faced, the uncertainties, we are so much farther ahead then was ever thought possible. Matt continues to do well in therapy, but fatigues very easy. We had a family conference on Monday am to discuss Matt's therapy, tentative discharge date, meds, etc. The therapist feel that Matt's goals of going back for a few classes in school, standing without support, transferring by himself, are all attainable, but more time is needed. So they have moved his discharge date back to the end of March. I was surprised to hear that Red Deer has seen very few spinal cord injuries, most are transferred to Glenrose or Calgary. I told them what a fantastic job they are doing. We realize it makes such a difference from last year. Matt was sick most of the time, still had his trach in, his blood pressure would drop at a moment's notice. We thank God that Matt can go further with his rehab without all the other things hanging over his head.
We also discussed the possibility of Matt being seen in Glenrose Hospital in Edmonton after discharge. They will look into it. Glenrose has a spinal cord research center and have all the up to date technology.
Please remember Matt in your prayers for Wednesday. He is booked for surgery to remove stones from his bladder and he is quite nervous to be intubated again, since he has to be put under anesthesia. The anesthesiologist will come and talk to Matt again, to see if there is a possibility of getting a spinal instead. "Trust in the Lord with all your heart, lean not on your own understanding. In all ways acknowledge him, and He will make your paths straight". Proverbs.

Wednesday, February 25, 2009

Standing Man

Matt had a busy yesterday. I was thankful I wasn't working so was able to spend most of the day with Matt. Last week he met with the rehab physician and she arranged for an ultrasound on his kidneys and bladder, to see where the stones are and if they could be causing all the bladder spasms. I was going to spend some time with him watching the Scotties on TV but he was off to occupational therapy for writing exercises.
But the most exciting was physiotherapy in the afternoon. I had brought Matt's left leg brace on the chance they would try and stand Matt. The OT Matt had been seeing in outpatients was there so I knew they were going to try (she doesn't normally work with the inpatients, but she had been waiting for this moment). First they started with what looked like a foot massage, but what they were doing is stimulating the brain to remember how big Matt's foot is. Sounds weird but many pt's with strokes or spinal cord injuries, the brain tells the body that the foot is very small and they believe that is the reason many pt's walk on tiptoes or the side of their feet, loss of balance quickly etc. After they put his shoes and brace on, they placed a table with a box besides his right arm and had him place his hand on it for stability. My job was to take pictures so they could see Matt's alignment, Cecilia would lock his brace in place when he was standing, Sonja stood behind him on the mat and Margaret would make sure his knees didn't buckle. They put the mat/bed in the highest position, then got him to stand. The first time he stood for 3 minutes and they were just testing how he would do. He was able to support his own weight with his right leg and arm. Matt felt fine, no drop in blood pressure and only sat down after muscle fatigue. After a short rest where the therapists consulted over the pictures, they got him standing again, this time for about 5 mins. He noticed his left arm became numb from hanging down so Cecilia held it up for him. They also made him reach for the ceiling with his right hand, which is difficult because of lack of muscle tone but he didn't lose balance, which is what they were looking for (he actually did touch the ceiling he is so tall). We were all very excited and felt there should have been balloons coming from the ceiling or something!
Margaret was very optimistic, but told us that Matt may never walk without the brace or some walking aides and still have a long way to go. But she didn't expect Matt to do as well as he has done so quickly.
Must go, have to go back to work. Just had to write the good news!

Monday, February 23, 2009

Weekend at Home

Matt was glad to be home for a few days. He is such a trooper but his eyes always give him away. He doesn't enjoy going to the hospital but he knows it is for the best. We picked him up Friday late afternoon and took him back last evening. While at home he played some Wii, since he can't set his game up at the hospital. There is a room that he can go to but he must book a time for it. Matt enjoys Friday night movie night with the girls with often one or both girls are on his lap. Saturday we took Matt for a massage, sine we couldn't get him an appointment for last Wednesday. He really enjoys it and finds it so relaxing.
I think what Matt enjoys the most is he sleeps better when at home. During the week he doesn't get much sleep with all the different sounds and new bed. But he adapts so well to any situation, much better than I would be!
I forgot to mention on Friday I was there to see physio again. Margaret is really working his core muscles and what she made him do was sit up without help, which he finds he can do quite easily if it is a hard surface. Then she makes him lean to the right while holding himself up with his right hand and arm. Next she makes him lean back at the same time, than pulling himself into the upright position again. He tried it on the left but because his arm doesn't work very well, he must just use his oblique muscles, which is hard for anyone. Margaret is hoping to see him standing this week just to see how he does, so want to be there for that. More good news to come, I am sure.

Thursday, February 19, 2009

Work, work, work!

What familiar words from my childhood, arriving home from school to the sound of mom greeting us at the door "now it is time to work, work, work!" Well Matt, your time has come. Tuesday it already started with physio. Margaret, his therapist is great, really testing the waters and discovering what Matt can do. I watched her today and she is constantly watching Matt and then asking whether he can do a particular exercise or movement. However she is not satisfied with a negative response until he can prove that he truly cannot do something or Matt just thinks he can't. Yesterday, she asked if Matt can transfer from the chair to the bed by himself. He responded that he couldn't but she told him to try anyway. Cecilia was there to help but all she did was steady him with light touch and the Margaret talked him through it . Matt said it was the hardest thing he has ever had to do but he did it! He was very proud of himself and so were we. We took him to Tony Roma's that night for celebration wings and Matt can usually finish at least 20 but he was so tired his eyes looked like two holes in the snow. She has given some exercises to do, so he is constantly working on thins. For instance, Matt needs to be able to put his heels to the floor, so when he walks again, he won't walk on tiptoes. It will be a challenge though. Every time he tries to tell his brain to put his heel down while sitting in his chair, his leg spasms and he then must tell his brain to stop the clonus(spasm). So there is so much to think about with such a simple action but the more he does it, the more natural it will be.
What the staff are so impressed with is Matthew's attitude and already they love him. He has made friends with many of the patients, all who are much older than he is (by about 40 years). It is so nice to go a visit him and the staff have already warmed up to him.
Matt hasn't been sleeping well though so has been tired. He is also battling a cold and his O2 sats were only at 90%, but increased to 94% as the day progressed. Even though, he still gives his all and I think it makes a huge difference that we are so close and visit so often. Today Matt had an MRI on his brain, neck and left shoulder. The therapist really wants to see what is happening so she knows how to proceed. If Matt has a tear in his shoulder, than they will have to do things differently, such as focusing more on his core muscles and leave the left alone until it is healed, with or without surgery. We won't know until the results come back.
It is so great to write the blog again and have such positive news. God hasn't forgotten about us, He knows what Matt needs more than we do and was just waiting until Matt's body was ready.

Sunday, February 15, 2009

Hello everyone. Would love to tell you how Matt is doing but John and I are in Victoria for the weekend and Grandma is babysitting for the weekend. Jacki, Gary and the kids came up to help her out and I know Gary and Matt went into town on Saturday for shopping. I think Gary just wants to drive the new van!
On Friday Matt was official admitted to the rehab unit. However he was just there for the day and then was "discharged" for a weekend pass. They want him to come back Monday evening to be ready for "work" on Tuesday (family day in Alberta for Monday). It sounds like they will be quite strict with Matt and are really going to focus on him being more independent. So instead of us doing a lot of things for Matt, such as getting his money out of his wallet to pay for things, he will have to learn to do it himself. On Friday the physio worked with him for a bit and they are going to continue to build up his core muscles so when he stands again he will be ready. He can have visitors most times except when he has rehab. So it will be tough on him for awhile to adjust but he knows that it is for his best long term goals.
We were unable to take Matt for his weekly massage but will plan again for next week. Still going to go out for his Wednesday wings and massage.
Thanks for any comments you can add, love to hear from everybody.

Monday, February 9, 2009

New Van!!

Jacki, Gary and the kids arrived Sunday morning at 10 am with the new van and Matthew was still in bed. He was up and out to the van at 1030. It was so exciting. It is massive!! We are thinking to use it a charter for the times when Matthew isn't using it. To use the lift has one controller and no manual labour is needed to raise and lower it. We have nicknamed the new van Esmeralda because the old van is Quasimodo from "The Hunchback of Notre Dame". So for Matt's first official drive we all piled in, John driving, myself in the passenger seat, and the kids, Grandma, Jacki, Gary and Matt. Believe it or not we had room for one more passenger!! Too bad, Grandpa, you missed out! We then proceeded to drive to MacDonald's for lunch. However we couldn't go through the drive thru so we all went in to order. Now I know what Ma and Pa Kettle felt like!
We drove down some of the roads we had driven with Quasimodo and couldn't believe the difference, it was so comfortable. And it has heat! Lots and lots of heat. Because it is a diesel engine it was actually too warm and we had to keep turning it down. I must say we were glad for the tinted windows otherwise we would have made quite a sight.
And we already have used it for transporting furniture and equipment. The Serengeti spa had a booth at the bridal show this weekend and Gary and Matt showed up to transport the stuff back to the spa. We fit it all in and Matt (when we had taken the stuff to the bridal show, we used 3 vehicles!). I can definelty see us making more trips with Matt, rain, shine or freezing cold. Thanks for all the prayers and if you ever in Red Deer and need some transportation for large numbers, give us a call!

Thursday, February 5, 2009

Midweek Update

Since Matthew arrived in Red Deer in October, we have been in communication with the hospital regarding having him admitted into the rehab program for more intensive physio/occupational therapy. He has been rejected before and now with the positive outcomes from the outpatient occupational therapist, they have reconsidered and Matthew will become an inpatient next week. We are very excited to have this opportunity, as the facility is geared for learning about activities of daily living and how to become more independent. Matthew of course has some trepidations about entering the hospital again, as he has settled into a routine at home. However his goal is to walk again and in order for that to happen, he needs more intense rehab.
We as a family have very high hopes for a positive outcome, as he is much stronger now and no longer suffers with frequent illnesses. We will continue to have Cecilia come to the rehab unit everyday week day to help Matthew during the times he does not have rehab and also help the staff during his rehab. She and Airene have been key in his improved strength and health. I will continue to take Matt for his weekly wing and massage night and also bring him home every weekend when there is no therapy sessions.
The new van has now been modified and the new lift is great. Gary says if Bobby (Matt's nephew who is 3) can operate it, then surely Mom will be able to learn! Gary is taking it in on Friday to get the windows tinted, because now the huge windows make it look like Matt's on display. So by Monday it will be ready and Nolan will bring it down to Red Deer.
So everything is looking brighter everyday. We certainly expect more bumps in the road, but God has certainly answered many prayers and eased our concerns.
Just a note, Matt will be going home in mid March for Alberta's spring break and is looking forward to seeing everyone from home. If you are around during March 23-28, stop in for a visit.

Monday, February 2, 2009

Busy, busy, busy

Sorry about the late blog, weekends are so busy it is just an extension of the week.
Matt and I again took the nannies to Tony Roma's for wings, it is something we look forward to all week. Gives Grandma a break from Matt (& vice versa) and me a chance to go without the girls. Grandma loves to spend time with the grand kids. We are sure missing dad for snow clearing and transporting Matt to all his therapy sessions and bath. Hopefully he will be returning soon. Of course the big enticement will be the new van. John and I went up Saturday with the payment and Gary will take it to be modified on Tuesday. If all goes well, we may even have the van by this weekend. Can't wait to have heat without leaving it run for 1/2 hours. However the beast has been running great, no problems whatsoever so it will be like giving up an old ornery friend!
Matt's weekly massage has been great and OT has been very impressed with Matt's improvements. Cecilia has been trying to get Matt's left hand to open and close by using the stim machine but the pads are too big. You place the sticky pads on certain muscles which transmits an electrical impulse to get that muscle to move.So the pads we have now cover too much area and needs to be smaller for more precise movement. We will be on the lookout for smaller pads.
As I am writing this at work, I don't have my bible with me so an appropriate memory verse is eluding me so please reply with a verse in the comment section. Have a great week.

Saturday, January 24, 2009

Cold Weather has Returned

Well the brief reprieve from cold weather was just enough to ready us for the next blast from old man winter. Last night it dropped to -28, but thankfully no wind.
Another busy week for Matt. In OT Sonja, his therapist had a helper from physiotherapy with her and the two of them really worked Matt's abs. They notice after a weekend of doing very little therapy that Matt is not quite as strong but by Thursday he is gaining again. For a quad, he must work at least 3 hours a day to keep what he has and any extra hours are for improvement. Tough job day in and day out. On Thursday the girls called me down to see what Matt was up to. He was in the middle of his leg exercises by using the bike. Usually he needs Cecilia or Airene to hold his feet and push on his feet to get him started and to maintain movement. On this particular day Matt was doing it on his own. The spasms were hard to work through and his movements were very jerky, but he managed to do it for more about 20 cycles. Still rooting for you Matt!!
Wednesday Cecelia, Airene, Matt and I went for wing night at Tony Roma's. $3.50 for 10 wings and they were great. Matt was in his glory. He couldn't eat as much as he wanted because after supper it was off to the spa for his massage. The massage therapist also did some treatment for "backne", or back acne that worked fairly well. He was on the table for 2 hours and we had a tough time getting him off because he was so relaxed. The four of us must lift him from the bed to the chair which is no easy task for 4 women, but somehow we manage without dropping him on the floor!
Friday dad left to go home again, which is just after the weather turned cold. Wednesday night was -2 and by Thursday am it was blizzard condition with the thermostat rapidly decreasing in temperature. By the afternoon it was -30 with the windchill. So on Friday I again became the chauffeur, taking Matt for his bath. It wasn't bad going to Innisfail but was much colder on the way back and all of us couldn't wait to get in the nice warm house. The van just doesn't produce enough heat. That is why we were very excited to find a used Dodge Sprinter in Calgary and put a down payment on it. It is a 2.7 litre with a Mercedes engine in it. It holds up to ten passengers but will will take the seats out to fit his chair in. The roof is 6 feet in height and we will not have to raise the door because it it also high enough for Matt. We realize that even though we fixed up the old one, it just doesn't suffice for cold weather. So we are going to pick it the new one up sometime this coming week and the find a place that will put a lift in it for Matt. Great West Life will pay for the lift to be put in so that is one less expense that we are grateful we do not have to pay. The Lord constantly provides for our needs and for that we are continously grateful. Psalms 92:4-5 "For you make me glad by your deeds, O Lord: I sing for joy at the works of your hands. How great are your works, O Lord, how profound your thoughts!"

Friday, January 16, 2009

Great Weather

We have really been enjoying the spring like weather we are having. The only problem is the thick slush and Matt can't go through it with his manual chair, we are unable to push him. So he has been using his power chair when outside.
Matt again had OT on Monday and Thursday. She was happy with the slight progress she sees in his left hand. Matt's shoulder has been bothering him so I did LILT treatment to try and help.
Wednesday Matt had his first bath since he has gotten to Alberta. We have been trying to arrange it for months but always had to wait for permission and approval. Not like Porcupine were you can pay a little bit and just have a bath. Lots of hoops to go through but like Matt said it was so worth it. When the homecare nurse asked how long he would like to soak, he replied "forever". They were really good with him and couldn't stop gushing about how attractive he was. Poor Matt, he was blushing like a beet! Because we didn't feel Matt's day was busy enough we took him for a massage at our spa. The girl who did the massage was just great and very helpful, helping Cecilia, Airene and myself to lift him unto the bed. We could have used Gary or Nolan's muscles that's for sure! But she worked from his feet right to his neck and Matt loved it. He smelled like a peppermint tree. We asked him how it was and he replied "ow I know why the call it the stone room". I wasn't sure what he meant until I noticed that each room was labelled by the picture beside it. By the massage rooms door was pictures of stones. Funny Matt. He really did looked stoned. He woke up Thursday am feeling great and very refreshed. He gushed over it so much that Nolan went for one today and was very impressed. Mom said she is next. Not if I beat her to it.
Today was another beautiful day. +10 on the deck and sunny. When we went to the road the wind was cold but that didn't stop them from rigging up Matt's wheelchair to the toboggan and taking turns pulling everyone around. He even pulled Nolan on it and I got it on video.
Thanks everyone for writing comments on the blog. Matt, mom and dad sure miss home and love to get updates all the time. Please keep it up so home doesn't feel so far away.

Monday, January 12, 2009

No Occupational Therapy

Matt missed out on OT therapy last week due to the fact his therapist was sick. But she was back today and feeling better. However Matt continues to get his regular physio by Cecila and Airene. So he only has days off on the weekend and even then we don't let up on him much. Prior to his therapy, we would lift his feet off the floor and onto his chair rests. Now we make him do it. Sometimes he does well and other times his left foot gets caught on his right and he doesn't have enough strength to "untangle them". Also when Matt is lying in bed he must try to bend his knee for mom and I to get his shoes off and bridge to get his pants off.He is getting stronger everyday.
Jacki and the kids came this weekend and had a great time visiting. The weather was excellent, in the plus for Saturday and Sunday so we had four wet kids coming in from playing. Played a few games of crib and golf with Matt and he always helps Jonmarie with her reading.
Nolan is coming down to visit on Wednesday and to help pick up the electric bed from the Lending cupboard. We are still waiting for one from homecare more made for Matt's size but for now this will help out so much. Matt needs to rely on mom to change his bed positions for comfort and with an electric bed he can do it himself. Wednesday Matt is also going for a bath in Innisfail and then in the evening I will take him for a massage. It will be quite interesting because we need to take the lift and try to turn him on the very narrow massage table so he can lay on his stomach. Prayers that we don't drop him!
Dad is planning to go back to Weekes on Thursday and we will sure miss him for transporting Matt to his various places. But I am so glad the warm weather is going to hold for the week. The beast (van) likes it when it is warm!

Monday, January 5, 2009

Happy New Year

2009 is here and with it the cold weather continues. Mom, dad and Matt traveled to Calgary on New Year's Eve to go to watch the Oilers play the Flames. Mom stayed at the house to watch Bobby and Amy while Jacki, Gary, Nolan, Matt, Lindsay and dad went. Exciting game but unfortunately our team came up short, it was nice to be able to go. Met some nice people who want Matt to come and play wheelchair hockey in February in Calgary. Matt also played a few games of risk with some of Gary's friends. He won the second night and Gary pouted.
Today the weather improved, not quite the same as in Saskatchewan, lots of chinooks. Today it was -3 and sun was shining. Matt had LILT therapy today, but OT was cancelled as the therapist was sick. Matt's shoulder has been really giving him grief, so they are sending him for an MRI in the begining of Feb to see where the damage is and if there is something they can do. While doing his therapy today, Cecilia noted that when Matt was doing the arm bike therapy, after they had placed Matt's hand on the pedal, Matt was able to squeeze his left hand slightly to hang on to the pedal. Usually they would just tie his hand in place, but he wanted to help hold on so thought about it and was able to make his hand do want he wanted. However if he does it too much he starts to spasm. But anything is very encouraging. Sometimes it is very hard for us all to keep positive, but we are reminded in Luke 12:22-24 that God does not want us to be anxious and troubled with cares about our lives, because we know that we are very valuable to Him and that He will take care of us. Thank you all for your continued prayers for Matt, it is a comfort to him to know that so many friends and family are keeping him in there thoughts and prayers and he can feel there encouragement over the many miles. God bless each and everyone and all the best in the New Year.

Monday, December 29, 2008

Christmas Has Come And Gone

I so wanted to write a blog Christmas day but I was so busy stuffing myself and..well..that is about it. We all travelled to Jacki's on the 23rd for the big day. We left later than expected because Matt had OT at 1 pm and by the time we left it as after 4 pm. I followed behind the van and was worried about the icy conditions however we mad it without any major incidents except one. The van started to overheat and we realized the cardboard dad had put in to try and keep the van warm was too effective. Also the temp went from being a freezing -21 at Red Deer to -9 at Carstairs. Crazy weather in Alberta.
We opened the exchange gifts on the 23rd because Nolan and Lindsay travelled to her folks in Vernon on the 24th. Matt was very excited over the gift Mom and Dad gave him. It turns out Nolan was getting a ticket to see the Flames on New Year's, and that is also what Gary gave to Jacki. So now Matt and Mom are going to the game as well. So they will be travelling back to Calgary for the big game.
We tried out Matt's new mattress at Jacki's and it worked great. It is guaranteed to prevent bedsores. Matt and mom were so tired on the night of the 24th that neither one woke up for 6 hours. Mom was in a panic that Matt would have a pressure sore from not moving but the mattress did it's job. It is the first time since the accident that Matt has slept so many hours in a row. Far cry from last Christmas when he was still being suctioned, could hardly move more than his right arm, and was sick 90% of the time. At church on Sunday the minister spoke of a wonderful, not well known verses in Habakkuk 3:18-19. 'I will rejoice in the Lord, I will be joyful in God my Saviour. The sovereign Lord is my strength; He makes my feet like the feet of a deer, He enables me to go on the heights." Matt, you have reached heights that a year ago seemed impossible, but as we know, nothing is impossible with God.
Today Matt again back in Red Deer and has OT once again. So the break of Christmas is over and back to exercises and working towards Matt's goal of walking again. So a belated Merry Christmas to all and an early New year's greeting.

Monday, December 22, 2008

Christmas is coming

Well the cold weather has settled in for the long haul. We are travelling to Calgary tomorrow and the temp will remain about 20 below. Dad returned from Weekes today so I am gladly relinquishing the keys to the beast to him. Matt has one more OT therapy before they break for holidays and then off to Calgary.
This week has been fairly quiet due to the poor weather however we did manage to get into town for a LILT treatment and OT. The therapist is so good with trying to strengthen Matt's abs and trying to think of ways that will improve his turning ability while laying down. The Homecare nurse came to do an assessment of the house to see if everything was up to par. She was quite impressed on how sunny the basement is because of the walk-out. However she is trying to work out where we can take Matt for a bath. So much politics to go through first. We mentioned we would gladly pay but we have to wait for the okay from the powers that be. The Homecare nurse will also look into getting Matt an electric bed for more independence.
Dad picked up a special mattress to prevent breakdown in his skin from Saskatoon. Uncle Jim had picked it up a week early and was holding it for us. Thanks Uncle. Aunty Karen tried to fit it in her car but is was just too big. Another new thing we purchased was a stimulator machine. We couldn't get the one we wanted because of price however this one will be okey until we get a better one. It stimulates Matt's muscles to contract to increase muscle tone and will promote more movement. The girls are having a great time trying it out on Matt.
Everyone is getting ready for Christmas and mom and I spent all weekend baking. It scares me on how much time it takes to prepare food and how little time it takes to eat it! We would like to take this opportunity to thanks everyone who have keep Matt and our family in their prayers and thoughts, for all the kind words, help and encouragement. It has been so helpful and we want to wish all of you a very Merry Christmas and God's many blessing in 2009. Luke 2:11 For to you is born this day in the town of David a Savior, who is Christ the Lord. Luke 2:14 Glory to God in the highest and on earth peace and good will among men. Merry Christmas to you all from the Gustafson family.

Monday, December 15, 2008

No Internet

I am quickly updating the blog from work in between patients. Our Internet at home has been down since Friday night. Hoping to get it back soon however this freezing, mind numbing cold will continue for awhile and they cannot send out anyone to check the tower. -40 this am with the windchill so Matt is house bound for a few days. We did manage to make it to a Lacrosse game Saturday night. The van started great but I noticed it was not giving off any heat. By the time we got home from the game Matt was a little frozen ice cube in the back. Without heat, the hydraulic lift for the wheelchair was soo slow that John, Cecilia, and myself would get on with Matt to give it more weight to get it down. Ahh, lovely winter.
But Matt did enjoy the game between Calgary Roughnecks and Edmonton Rush. Disappointed in the food, not like the Porcupine rink where you order fries and can actually share with your friends.
Last night when we were putting Matt to bed, mom and I found that he was able to move easier than when he first got here. When lying in bed, he can make his knees bend one at a time with spastic movements. Also on Thursday he had a cold and was getting cold and hot. The interesting thing was he started to sweat in his lower back, which he hasn't done since the accident. So more nerve conduction is going through we hope.
Barry and Giselle stopped in for a short visit on Sunday. They had travelled from Victoria last week and it was nice to see them.
Have great day and stay warm.

Sunday, December 7, 2008

Starting to Snow

Well winter is trying to arrive in Alberta. I can see where it will be very difficult to travel with Matt. Hard to push the chair in the snow, even if it is only a little bit. When I drive the van, it makes me so nervous that it will be icy and so if you are ever behind a great big beast on the road and it is going very slowly, just be patient! It is just me! Psalms 4:8 "I will lie down and sleep in peace, for you alone, O Lord, make me dwell in safety". A verse for the winter!
Matt continues to go to OT at Red Deer Hospital. They are going to measure him for a wheelchair but it might not be done until January. Hopefully it will be done sooner so we can get it for the New Year. We found out that because the manual chair he is in now causes him to get neck aches.
Friday I took Matt for some LILT treatment for his neck. I give dad so much credit for driving the beast all the way from Sask. I gave myself a headache just driving 13 kms! The van sways like a boat in water when it hits a bump. And dad drove it before it was properly fixed so Matt said it was even worse. Matt and I went to look at a Dodge Sprinter. It is a great big 10 seater that has 5"9' doors at the back and when you stand inside it is over 6 feet. It wouldn't take much to make it wheelchair accessible and we would still have room for 5 people to sit. But will have to wait and see what the final cost will be. It is a buyers market right now so hopefully it will be reasonably priced. After we looked at the van, we went over to the mall to do some shopping. Found some great gifts and Matt enjoyed the outing. Their were many people in wheelchairs so we were checking out their wheels.
Yesterday Matt and I went back to town to pick up his computer, which is all fixed up. IT is working great. Decided to head to the mall again and ran in to some friends of ours that have read the blog since day one and were very excited to finally meet Matt. They couldn't get over how good he was looking. By the time we left it was dark and getting icy so we headed home slowly.
Right now Matt and Jonmarie are playing Wii and are having a great time. It is a wonderful way for Matt and Jonmarie to spend time together and also for Matt to get some exercise on the weekend. He was in bed most of the afternoon because our power was off for 4 hours and the house was freezing! Can't wait until they get our new natural gas fireplace hooked up so next time we can have heat.
Big hello to everyone and will keep you updated. Mom has a email address now. It is jgustafson1@hotmail.com

Monday, December 1, 2008

Dad went home for awhile

Dad went home with Nolan today to see how the house is holding up and to just get away for awhile. It is not easy living in someone house and I think a break is just what he needed. However we have lost our driver so back to taxi's for at least one day a week. On Wednesday I am not working so I will give it the old college try and drive the beast so lots of prayers for Matt's safety!! Dad gave me a run down but am very nervous about driving the beast. So far the weather is co-operating and still no snow. It did get colder with a massive wind today and risk of snow.
Last week we were unable to take Matt to the pool like we had planned. He wasn't feeling up to par with his blood pressure continuously dropping when he would stand or transfer.
Today he was much stronger. When the girls where doing his exercises on the floor, they had him doing bridging exercises. That is when he lays on his back, the girls lift his knees to a bent position with his feet still on the floor. Then he pushes up with his abdomen and lifts his bum off the floor. Today there was an extra twist. Shaunie thought it looked like great fun and sat on his stomach. Matt, die hard that he is, decided to keep going and completed 10 bridges in a row. Jonmarie felt left out and decided to sit with her 50 lbs of weight and Matt did another ten more. Even I can't do that, without whining and complaining. Keep it up Matt!!
John's birthday was last week and we had friends from Yorkton and Ontario come to the house to say hi to Matt. One was an orthopedic surgeon and was so shocked by the amount of dexterity Matt had in his right hand. He thought it was about a T1 injury (remember there are 7 cervical vertebrae before you get to the thoracic vertebrae and Matt's injury was at C2-C3).
Matt is waiting for an MRI for his head, neck and shoulder. Hopefully at the beginning of the new year. Still going for laser treatments and as usual Matt is still charming everyone he meets. A new Sask. roughriders hat now sits on his desk for him to wear because of his irresistible smile.
Love to all and special prayers and thoughts to our Weekes neighbor Alex who is recovering from a heart attack in Saskatoon. Thanks to Ardith and Tom for looking after the house and dog while everyone was away.
Ephesians 6:18 "And pray in the Spirit on all occasions with all kinds of prayers and requests."

Wednesday, November 26, 2008

Mid week update

Now that the van is fixed will venture to the swimming pool for the first time tonight. Matt's a bit apprehensive about going into the water again. Those of you who cannot swim, you feel very vulnerable and that is what Matt experiences, for he is completely dependent on others for his safety. Prayers that all goes well tonight.
Another point of interest, the girls tried to exercise Matt's legs with the bike machine (just like the top picture but instead of his arms, he uses his legs). It was difficult to get him started, just couldn't get the rhythm started and Matt's huge knees kept banging together. However through perseverance Matt got into a rhythm and was able to complete 23 mins! He was very excited and very anxious to start physio therapy at the hospital. So prayers that we will soon get the call for him to start. Still gets really dizzy when we try to stand him and is taking 3 meds to try and boost his blood pressure, but it still drops to 74/50 at times, which is much too low. Feeding him lots of salt! We may look into getting him a cow lick! Thanks for all the comments.

Monday, November 24, 2008

New Pictures

Finally got to sit down and change pictures on the blog. Renovations continue however we did get our dining room back so can sit in front of the computer in comfort. Matt's laptop is on not working so I couldn't even use his. Hoping to get it fixed soon. We are having the worst luck keeping things running!
Mom, dad, and Matt went to Jacki and Gary's this weekend for a visit. Some friends of Matt's who he had met while going to school in Calgary invited everyone to a Grey Cup party for Sunday. Everything worked out great. They were able to take the portable ramp and everyone did there best to make Matt feel right at home. Gary even shaved Matt's beard and it looks so much better. Saturday night Nolan came over to play games and they stayed up until 2 am. Matt didn't sleep great because of the pain in his neck. The OT thinks it is because Matt's manual wheelchair is not the right size for him, which it isn't. He just borrowed it from another patient while in Saskatoon. Great west Life has agreed to buy him a new one built for his size so ordering a new one as soon as possible. Van is working great so that is a blessing.
Jacki phoned today to tell us Bobby was crying this morning when he woke up and Uncle Matt was gone. Of course Jonmarie and Shaunie were so happy to see him back in Red Deer, so there may be a few scraps over Uncle Matt in the future. Jonmarie loves playing Wii games with him and is starting to get quite good at it. But she sure hates to lose! And Uncle Matt won't let her win which I find funny because he was such a poor loser when he was young and always wanted us to let him win.
Weather continues to be great with a high of +5 today and still no snow. We are definitely not complaining. Keep praying!