Sorry it has taken me so long to write. The gang finally got here at 11:30pm Tuesday night. What a sorry looking bunch! Big circles under their eyes, and so tired. By the time they unpacked and got Matt settled, it was 1:30 am. I think they are still recuperating.
Things have been so hectic since they came I haven't been able to catch up on much, but things will settle once mom knows where to find things and stop phoning me at work!!
Matt has been getting in home therapy since Wednesday and there is a noticeable decline in some functions, however with the rehab plan the 2 nannies have in store for him, Matt will soon regain most of his lost function. We are still waiting to hear if Matt can attend some rehab as an outpatient at the hospital. So far everything is working out okay.
Right now Nolan and Lindsay came from Calgary for the weekend to help dad build a ramp for the front of the house to make it easier to get Matt in. Right now dad has the ramp but it is so steep that 2-3 people have to push him up. Matt has also gained some weight so makes him heavier to push. So we have a very full house but we are having a great time playing Yahtzee, sequence, crib, etc. The nannies like it too, learning all new games. Jonmarie and Shaunie love having family around.
Thanks for all the "safety" prayers that were sent on Tuesday. I was starting to get a bit worried but the arrived safe and sound. Continue to pray for Matt's rehab and that Matt will once again be progressing.
Friday, October 24, 2008
Tuesday, October 21, 2008
Slow Going
Another update, you can tell that I am anxiously waiting.
Mom had phoned me at 3:30 and the were just passing Rosthern! They again had trouble after filling up in Porcupine, with the van smelling of gas and bucking like a wild bronco. By Tisdale they were about to turn around and call it quits, but decided to press on until Melfort and go to the auto shop there. By the time they pulled up, the van started behaving better and they were able to continue on. At 8pm, they had gotten as far as Provost. Unfortunately because of losing so much time, they were unable to stop in Parkridge so Matt was quite disappointed.
Because they are travelling in 2 vehicles, when Matt has to use the facilities, they both must stop and that takes time. So praying they will make it by midnight.
Prayers,prayers,prayers!
Mom had phoned me at 3:30 and the were just passing Rosthern! They again had trouble after filling up in Porcupine, with the van smelling of gas and bucking like a wild bronco. By Tisdale they were about to turn around and call it quits, but decided to press on until Melfort and go to the auto shop there. By the time they pulled up, the van started behaving better and they were able to continue on. At 8pm, they had gotten as far as Provost. Unfortunately because of losing so much time, they were unable to stop in Parkridge so Matt was quite disappointed.
Because they are travelling in 2 vehicles, when Matt has to use the facilities, they both must stop and that takes time. So praying they will make it by midnight.
Prayers,prayers,prayers!
On Their Way!!
I can hardly believe that they are on their way! They left this am a little later than expected, always something last minute to do. We are busy on our end, getting the basement cleaned up and moving some things for more space. The cement walkway outside is ready to go and we are hoping to have the deck rebuilt in the next week, as the last one had to be tore down due to structural damage.
Please pray for God's guidance on their trip and for their safety. I believe Matt wants to stop in Parkridge to have a visit, so will be here after 9 pm.
Keeping fingers (and toes) crossed!
Please pray for God's guidance on their trip and for their safety. I believe Matt wants to stop in Parkridge to have a visit, so will be here after 9 pm.
Keeping fingers (and toes) crossed!
Saturday, October 18, 2008
Getting Closer
Just to give an update, Mom is busy packing and Dad is getting the yard cleaned up and they are planning on leaving Monday at the latest. I am scared to hold my breathe, as I have been disappointed before! But it sounds as if everything is a go. So will keep you posted!
Tuesday, October 14, 2008
Happy Belated Thanksgiving
Matt, all I can say about missing the football game in Calgary is you were lucky. It was so embarrassing to be sitting next to Calgary Stampeder fans with Saskatchewan playing so bad. I mean, my goodness! Jacki and I finally left with 6 minutes left, and got comments like "leaving so soon?". At least if you would have been there, I could have hid behind your chair! The one high note was the weather was great, 16 degrees.
Aunty Karen and Uncle Neil came out to the farm for Sunday and had a good visit. Alex was at the house for Thanksgiving Monday and shared in the festivities.
So things are looking up for Matt to come to Red Deer this weekend. Matt will be finished IV therapy on Wednesday, and dad will go to Melfort on Thursday for a part for the van. Also, Matt will try to get a day of rehab in Melfort on Thursday. So things are looking brighter. I know Matt is worrying about some loss of function in his legs and right hand, but don't worry, Matt. It will be better when you can have some more therapy. That old saying if you don't use it you will lose it is so true for Matt. He must continually keep at it to even keep what mobility and dexterity he has.
We have so much to be thankful for this past year. Last year, Matt was still in ICU and on a ventilator. Could hardly move at all, just his right hand and could barely bend his elbow. So just think of how much improvement we can write next Thanksgiving.
Give thanks in all things, for this is the will of God.
Aunty Karen and Uncle Neil came out to the farm for Sunday and had a good visit. Alex was at the house for Thanksgiving Monday and shared in the festivities.
So things are looking up for Matt to come to Red Deer this weekend. Matt will be finished IV therapy on Wednesday, and dad will go to Melfort on Thursday for a part for the van. Also, Matt will try to get a day of rehab in Melfort on Thursday. So things are looking brighter. I know Matt is worrying about some loss of function in his legs and right hand, but don't worry, Matt. It will be better when you can have some more therapy. That old saying if you don't use it you will lose it is so true for Matt. He must continually keep at it to even keep what mobility and dexterity he has.
We have so much to be thankful for this past year. Last year, Matt was still in ICU and on a ventilator. Could hardly move at all, just his right hand and could barely bend his elbow. So just think of how much improvement we can write next Thanksgiving.
Give thanks in all things, for this is the will of God.
Thursday, October 9, 2008
Intravenous
Well, things are again on hold. The van is working a bit better and dad was able to take it to Melfort and order a specific part, so hopefully the van troubles will be resolved. However Matt hasn't been feeling well since the beginning of the week, feeling unable to breathe, waking up with night sweats and unable to sleep, etc. So they found a infection in his urine that may also be in his lungs, not sure. So they started him on IV antibiotics to see if they can clear it up. Unfortunately he has to be on it for 10 days and is not advised to travel such a long distance. Matt is very disappointed not to be here for Thanksgiving as we had got tickets in Calgary for the Sask. roughriders game. But next time, right?
Matt went to Melfort on Wednesday for an ultrasound on his left shoulder. Luckily it is not a tear as they had first suspected, but his tendon is becoming "frozen" from lack of movement. Anyone who has suffered with a frozen shoulder knows how painful it is so mom, dad, and Matt have to remember to exercise it at least 4 times a day. They must be careful not to overdue it though, because it could easily become inflammed and Matt would have acute tendonitis, which hurts like anything.
So prayers that another hill will be scaled and that there will be a comfortable plateau on the other side. It is nothing like the mountains he scaled last year but it is still difficult.
Matt went to Melfort on Wednesday for an ultrasound on his left shoulder. Luckily it is not a tear as they had first suspected, but his tendon is becoming "frozen" from lack of movement. Anyone who has suffered with a frozen shoulder knows how painful it is so mom, dad, and Matt have to remember to exercise it at least 4 times a day. They must be careful not to overdue it though, because it could easily become inflammed and Matt would have acute tendonitis, which hurts like anything.
So prayers that another hill will be scaled and that there will be a comfortable plateau on the other side. It is nothing like the mountains he scaled last year but it is still difficult.
Sunday, October 5, 2008
Haircut
Well. Matt is still in Weekes. The van is running but is still not in great shape. The smell of gas is still there when they start it and let it idle, and it bucks every once in a while when they are driving. So is still a waiting game. The plans are for them to come on Wed. or Thurs, but we will have to make different arrangements for a few days for accommodations. We have been having water problems out of our walkout basement. We thought It would be a quick fix but no can do! We now have a 5 foot trench to find out where the water was coming from. Hopefully that will be filled in and cement poured sometime this week.
Matt was able to see Denita's new baby, so cute. Denita was even able to cut Matt's hair and trim his facial hair. I guess he is looking spiffy!
Because of the van, Matt hasn't been at rehab, so is stiff and losing a bit of his function, so really needs to have therapy. Mom & Dad will try to get Matt to Melfort this week and do more therapy at home.
Dad is busy getting the fall yard work done and trying to get as much stuff ready as they can. I hope they get here soon, I have been puttting off doing my fall work until dad can do it!
Please pray that the weather will again be nicer and that we will get our cement poured so Matt has a way into the house from the basement. Otherwise he will have to sleep in the dining room! I truly believe God is looking out for Matt and that great things are in store for him. God knows our family isn't great with patience and we are on his "continuing education" program. This verse is great, with Thanksgiving day soon upon us. Philippians 4:6-7 "Do not be anxious about anything, but in everything by prayer and petition, with thanksgiving, present your requests to God. And the peace of God, which transcends all understanding will guard your hearts and your minds in Jesus Christ".
Matt was able to see Denita's new baby, so cute. Denita was even able to cut Matt's hair and trim his facial hair. I guess he is looking spiffy!
Because of the van, Matt hasn't been at rehab, so is stiff and losing a bit of his function, so really needs to have therapy. Mom & Dad will try to get Matt to Melfort this week and do more therapy at home.
Dad is busy getting the fall yard work done and trying to get as much stuff ready as they can. I hope they get here soon, I have been puttting off doing my fall work until dad can do it!
Please pray that the weather will again be nicer and that we will get our cement poured so Matt has a way into the house from the basement. Otherwise he will have to sleep in the dining room! I truly believe God is looking out for Matt and that great things are in store for him. God knows our family isn't great with patience and we are on his "continuing education" program. This verse is great, with Thanksgiving day soon upon us. Philippians 4:6-7 "Do not be anxious about anything, but in everything by prayer and petition, with thanksgiving, present your requests to God. And the peace of God, which transcends all understanding will guard your hearts and your minds in Jesus Christ".
Monday, September 29, 2008
Still Waiting and Praying
Just to update. Matt is still in Weekes waiting for the van to be fixed. We are currently having reno's done so Matt can get in and out of the basement easier. Thank goodness for nice weather. It was 27 degrees today, it was actually too hot! Very dusty here as we have had no rain for weeks. great for the farmers, terrible for the windows and dusting!
I think Matt was missing his time at the Golden Age so mom and dad managed to transfer him into the old car. It worked okay and dad even managed to transfer him back into his wheelchair himself. Tried to do some more floor exercises but Matt still so stiff and sore that didn't work too well. Keep it up Matt, I know there is still a huge fan base out there that is rooting for you. I talked to the president of the paraplegic society in Alberta and he was very surprised at how much movement Matt has with such an injury. He suffered a cervical spinal cord injury 20 years ago and has movement in upper body but limited dexterity, so he is rooting for Matt too. Met with him to see what Alberta has to offer quads.
The two physiotherapist nannies can't wait to get there hands on Matt, and not in a bad way either! There are already planning his rehab schedule.
Please continue to pray that the van will be fixed this week and that the weather holds so we can pour cement for a ramp. Thanks for everyone who reads the blog and continues to add Matt to their prayers.
I think Matt was missing his time at the Golden Age so mom and dad managed to transfer him into the old car. It worked okay and dad even managed to transfer him back into his wheelchair himself. Tried to do some more floor exercises but Matt still so stiff and sore that didn't work too well. Keep it up Matt, I know there is still a huge fan base out there that is rooting for you. I talked to the president of the paraplegic society in Alberta and he was very surprised at how much movement Matt has with such an injury. He suffered a cervical spinal cord injury 20 years ago and has movement in upper body but limited dexterity, so he is rooting for Matt too. Met with him to see what Alberta has to offer quads.
The two physiotherapist nannies can't wait to get there hands on Matt, and not in a bad way either! There are already planning his rehab schedule.
Please continue to pray that the van will be fixed this week and that the weather holds so we can pour cement for a ramp. Thanks for everyone who reads the blog and continues to add Matt to their prayers.
Thursday, September 25, 2008
Breakdown
Not looking very good for Matt to come by the weekend. They were on there way back from getting Matt's eyes examined (which by the way means he is getting glasses!) and the van started acting funny. Yesterday the had it towed to Porcupine and they are not sure what is wrong. They have parts ordered but my not be here until next week. So disappointed. We so wanted him here before the snow flies and to get him settled in. Prayers that the van will be fixed and that in a week they will be on their way. Matt had to miss rehab today because he didn't have a way to get there. I will keep everyone updated.
Just a little note, Matt was able to get a good long look at the ceiling at the Golden Age. For some reason, when Matt was in his manual wheelchair and heading for the door, he starting to go up on the mat just before the door and his chair tipped backwards. Dad was on his own so he had to go back to the house and get the lift. But the funny thing was dad was so upset he forgot to unbuckle Matt from the chair, so he laid there, chair and all. Thank goodness he wasn't hurt. What is that old saying? "All's well that ends well".
Just a little note, Matt was able to get a good long look at the ceiling at the Golden Age. For some reason, when Matt was in his manual wheelchair and heading for the door, he starting to go up on the mat just before the door and his chair tipped backwards. Dad was on his own so he had to go back to the house and get the lift. But the funny thing was dad was so upset he forgot to unbuckle Matt from the chair, so he laid there, chair and all. Thank goodness he wasn't hurt. What is that old saying? "All's well that ends well".
Sunday, September 21, 2008
Apprehensive
Talked to both mom and Matt tonight and I think they are quite nervous about coming to Red Deer. Not the trip itself, but being away from home. However, I think once they are here and Matt being able to work out everyday will help in the long run.
Last Monday Matt was able to visit with the fellow from Saskatoon again. His dad and him went hunting but never got anything.
Matt has been going to the Golden Age quite often and enjoys playing cards with the men.
Wednesday they travelled to Melfort for rehab. The physio therapist working with Matt has family from Somme. His dad actually lived 4 miles away. What a small world. Matt was at rehab for 2 1/2 hours and felt he did really well. First on the agenda was the sit/stand machine. However it was not the right kind so it was a bit more difficult but Matt was still able to stand for 10 minutes the first time and 5 mins the second time. Second thing the PT worked on was rolling on the mat. Trying to strengthen Matt's core muscles so got him to lay on his back and put a small roll under his knees. Then Matt had to try and lift his bent leg up while keeping his stomach muscles tight. Matt's right leg is much sronger so was able to do about 10 reps. The left leg he was able to do almost 5. Very hard exercises for anyone. Worked out on weights as well and tried a new exercises again involving core strengthening. Sat Matt on a special cushion which helps stabilize him. But they wanted him to move back and forth to put him off balance so his body would try to straighten him out. By the time the left he was exhausted. Just wish his left arm didn't pain him so much. Please pray for improvement in the shoulder and arm.
Saturday Matt had a great massage. A girl he went to school with comes home every three weeks and brought her massage table with her so Matt was able to lay down on his stomach for 1 1/2 hours. Felt great. Hasn't laid on his stomach for that long since before his accident.
Tonight company came over to visit and wanted to help Matt stand. It was awkward and not the prettiest standing maneuver, but it wasn't bad. Thanks for helping! Any exercise Matt can get is great. Quite tired tonight when I talked with him so couldn't hold the phone for long. Still getting stuff ready for them when they come to Red Deer so have to sign off. Thanks again for those who continue to read the blog and pray for Matt's recovery.
Last Monday Matt was able to visit with the fellow from Saskatoon again. His dad and him went hunting but never got anything.
Matt has been going to the Golden Age quite often and enjoys playing cards with the men.
Wednesday they travelled to Melfort for rehab. The physio therapist working with Matt has family from Somme. His dad actually lived 4 miles away. What a small world. Matt was at rehab for 2 1/2 hours and felt he did really well. First on the agenda was the sit/stand machine. However it was not the right kind so it was a bit more difficult but Matt was still able to stand for 10 minutes the first time and 5 mins the second time. Second thing the PT worked on was rolling on the mat. Trying to strengthen Matt's core muscles so got him to lay on his back and put a small roll under his knees. Then Matt had to try and lift his bent leg up while keeping his stomach muscles tight. Matt's right leg is much sronger so was able to do about 10 reps. The left leg he was able to do almost 5. Very hard exercises for anyone. Worked out on weights as well and tried a new exercises again involving core strengthening. Sat Matt on a special cushion which helps stabilize him. But they wanted him to move back and forth to put him off balance so his body would try to straighten him out. By the time the left he was exhausted. Just wish his left arm didn't pain him so much. Please pray for improvement in the shoulder and arm.
Saturday Matt had a great massage. A girl he went to school with comes home every three weeks and brought her massage table with her so Matt was able to lay down on his stomach for 1 1/2 hours. Felt great. Hasn't laid on his stomach for that long since before his accident.
Tonight company came over to visit and wanted to help Matt stand. It was awkward and not the prettiest standing maneuver, but it wasn't bad. Thanks for helping! Any exercise Matt can get is great. Quite tired tonight when I talked with him so couldn't hold the phone for long. Still getting stuff ready for them when they come to Red Deer so have to sign off. Thanks again for those who continue to read the blog and pray for Matt's recovery.
Sunday, September 14, 2008
Busy Week
Matt travelled to Melfort on Tuesday for his first stint of rehab since leaving Parkridge. However, it was mostly an assessment to see what Matt's capabilities and limitations are. The therapist was quite encouraged but what she saw, but will need to see if she can get some equipment to aid in his recovery.
Matt went to a outside barbecue on Friday night, which was for the Big Sky workers. He had a great time, however dad was with him and was getting quite cold so they decided to leave. That is probably a good thing since Matt can't feel the same way we do and tends to underestimate how cold he is, and then is so stiff in the morning he can hardly move at all.
Bradon Kipling was over for the weekend and him and Kristen took Matt to the Weekes Hotel for supper on Saturday. Always nice to have friends come over.
Today mom and dad were able to get Matt to the floor using the lift and tried to do some "mat" exercises. However Matt is still on the antibiotics and needs to take gravol for the nausea, so still not feeling great and was pretty tired. He has been up in his manual chair for 2 days now, practicing moving it with his right hand and left hand(but actually the movement comes form his left shoulder) which makes his neck hurt. Good exercise though. Really tired himself out this afternoon. He had been playing Wii for 1 1/2 hours playing Wii Sports (bowling, golf, baseball) so he needed mom to prop the pillows so he could hold the phone! Good rehab tool.
Last week Matt was able to meet with the fellow quad when he came to hunt with his dad. He is returning sometime this week as well, so Matt will visit with him again.
Romans 15:13 "May the God of hope fill you with all joy and peace as you trust in him, so that you may overflow with hope by the power of the Holy Spirit".
Matt went to a outside barbecue on Friday night, which was for the Big Sky workers. He had a great time, however dad was with him and was getting quite cold so they decided to leave. That is probably a good thing since Matt can't feel the same way we do and tends to underestimate how cold he is, and then is so stiff in the morning he can hardly move at all.
Bradon Kipling was over for the weekend and him and Kristen took Matt to the Weekes Hotel for supper on Saturday. Always nice to have friends come over.
Today mom and dad were able to get Matt to the floor using the lift and tried to do some "mat" exercises. However Matt is still on the antibiotics and needs to take gravol for the nausea, so still not feeling great and was pretty tired. He has been up in his manual chair for 2 days now, practicing moving it with his right hand and left hand(but actually the movement comes form his left shoulder) which makes his neck hurt. Good exercise though. Really tired himself out this afternoon. He had been playing Wii for 1 1/2 hours playing Wii Sports (bowling, golf, baseball) so he needed mom to prop the pillows so he could hold the phone! Good rehab tool.
Last week Matt was able to meet with the fellow quad when he came to hunt with his dad. He is returning sometime this week as well, so Matt will visit with him again.
Romans 15:13 "May the God of hope fill you with all joy and peace as you trust in him, so that you may overflow with hope by the power of the Holy Spirit".
Sunday, September 7, 2008
Still in Weekes
Goes "uptown" to Golden Age to play crib with the men. I think Matt likes to be home but is difficult for him to do too much in ways of extra curricular activity. Matt met a fellow quad in Saskatoon when Matt was still in City rehab. He lives in Saskatoon and comes to Weekes to hunt every year. He can wheel himself around so is not a full quad. He was supposed to go to Beijing for the Olympics for rugby but felt he was too old. However he had went to Australia and Athens for the paralympics. He will be up to hunt next week so it will be nice for Matt to have a visit.
Still has urinary tract infection and it is now a new strain so has to go on a different antibiotic. Has been very stiff from lack of exercise and mom has been working. It is so hard to do any standing with only the two of them and no standing frame. Looking forward to coming to Red Deer in the near future. Matt's neck is hurting all the time so when he is here we will try our LILT, low intensity light therapy on him. I was having trouble with my hip for 3 years and had two therapy sessions and now I am running again, so hopefully Matt will have the same success.
I will probably write the blog every week now until Matt gets to rehab, unless something exciting happens. Thanks for all of you who continue to read the blog and for your continued support of Matt.
Still has urinary tract infection and it is now a new strain so has to go on a different antibiotic. Has been very stiff from lack of exercise and mom has been working. It is so hard to do any standing with only the two of them and no standing frame. Looking forward to coming to Red Deer in the near future. Matt's neck is hurting all the time so when he is here we will try our LILT, low intensity light therapy on him. I was having trouble with my hip for 3 years and had two therapy sessions and now I am running again, so hopefully Matt will have the same success.
I will probably write the blog every week now until Matt gets to rehab, unless something exciting happens. Thanks for all of you who continue to read the blog and for your continued support of Matt.
Sunday, August 31, 2008
Happy Belated Mom
Sorry the blog has been so long in coming. We are still in Fairmont B.C. and the Internet is not the best but will try to do the blog again. Has been cutting out and losing my info.
As everyone might have guessed, Matt is official out of Parkridge in in the care of mom and dad at home. Matt has improved with doing self catheterizations that he can almost do it himself, just needs some help for the set up. Before he left Parkridge, they discovered he has 4 kidney stones while doing a cystoscopy. They will need to blast them, or do lithotripsy. Not sure when that will happen.
On Wednesday Matt stood with the Argyl and mom was making sure she had everything to take Matt home. Part of Matt's therapy was wheeling himself to the rehab department.
Thursday Matt really stood well for 25 min. Krista, the nurse from RUH was there and I think that is a good motivator for pushing himself to the limit. Unfortunately/fortunately that is a Gustafson trait and we love to do well in front of an audience!! He also got a massage as well from the massage therapist.
Mom was quite excited to hear that there is a Project Walk in Victoria and will definitely look into that. Barry and Gisele are living there now and would be great to go somewhere where there is family.
Can't wait until the troop makes its way to Red Deer, hopes everything works out for the best. Prayers that Matt will continue to improve and that sometime in the future he will walk on his own.
Happy Birthday Mom for August 30th. Love you lots!!
As everyone might have guessed, Matt is official out of Parkridge in in the care of mom and dad at home. Matt has improved with doing self catheterizations that he can almost do it himself, just needs some help for the set up. Before he left Parkridge, they discovered he has 4 kidney stones while doing a cystoscopy. They will need to blast them, or do lithotripsy. Not sure when that will happen.
On Wednesday Matt stood with the Argyl and mom was making sure she had everything to take Matt home. Part of Matt's therapy was wheeling himself to the rehab department.
Thursday Matt really stood well for 25 min. Krista, the nurse from RUH was there and I think that is a good motivator for pushing himself to the limit. Unfortunately/fortunately that is a Gustafson trait and we love to do well in front of an audience!! He also got a massage as well from the massage therapist.
Mom was quite excited to hear that there is a Project Walk in Victoria and will definitely look into that. Barry and Gisele are living there now and would be great to go somewhere where there is family.
Can't wait until the troop makes its way to Red Deer, hopes everything works out for the best. Prayers that Matt will continue to improve and that sometime in the future he will walk on his own.
Happy Birthday Mom for August 30th. Love you lots!!
Monday, August 25, 2008
Our family is off to Fairmont for a week, and we are leaving in 10 mins,so I am told! So better hurry up.
Matt continues to progress in rehab, however slowly.
Thursday he did the slings on the mat again. Also had OT therapy with the group, usually arm exercises and upper extremity.
Friday Matt worked in the evening and we spoke quite late.
Saturday Matt had plans to go in his manual chair and do a spin around the atrium, however he only managed to do about half. Starts to feel dizzy, like he has exercised intensely and then his body is trying to recuperate. Eyes get hazy and feels exhausted. Matt, it is a heavy workout for you and still must build up slowly.
Sunday Matt was in the manual chair again, then was in his electric chair by 4 pm because dad had to leave early to wash Matt's dirty clothes. If Matt stays in his manual he needs someone to push him when he gets stuck.
Mom should be back today sometime.
Have a great week if I don't write again. will try to get internet while we are away. Need to beat Matt in Sea Battle, which I seem to continually lose at.
Matt continues to progress in rehab, however slowly.
Thursday he did the slings on the mat again. Also had OT therapy with the group, usually arm exercises and upper extremity.
Friday Matt worked in the evening and we spoke quite late.
Saturday Matt had plans to go in his manual chair and do a spin around the atrium, however he only managed to do about half. Starts to feel dizzy, like he has exercised intensely and then his body is trying to recuperate. Eyes get hazy and feels exhausted. Matt, it is a heavy workout for you and still must build up slowly.
Sunday Matt was in the manual chair again, then was in his electric chair by 4 pm because dad had to leave early to wash Matt's dirty clothes. If Matt stays in his manual he needs someone to push him when he gets stuck.
Mom should be back today sometime.
Have a great week if I don't write again. will try to get internet while we are away. Need to beat Matt in Sea Battle, which I seem to continually lose at.
Wednesday, August 20, 2008
Monday Matt finally had another haircut. he was starting to look like the shaggy dog! Monday he also worked in group doing upper extremity work and pulleys. That was about the extent of rehab because he wasn't feeling well.
Tuesday Matt was supposed to go on the Argyl but something got screwed up so instead he showed the new therapist how far he could push himself in his manual wheelchair. Matt estimated the distance at 200 feet. It took him along time and had to stop a few times. He was so tired that after lunch he went to sleep and didn't wake up until 4 pm! Good workout Matt! I asked how his shoulder was feeling afterwards and said it wasn't too bad, so thank you Lord for answered prayers.
Today Matt was able to get up in the argyl machine, or the sit stand for about 3-4 mins, however he had to sit down due to his fall in BP, 80/48. He didn't feel that bad and his O2 level was at 99%, but they decided not to push it. Matt finds it easier to breathe in the sit stand machine as opposed to the standing frame. The frame has a strap that goes around his chest and he can't take a deep breath. His lungs are still not what they were before being on the ventilator and so still does his deep breathing exercises to strengthen his lungs.
I was laughing at him tonight on Skype because he lifted up his left hand with his right hand so I could look at it. It looks as black as the ace of spades! His right hand is more a normal color, but his lack of mobility and all the edema he had while in ICU has changed his pigmentation. Anyone who has seen Matt will know what I am talking about.
Tuesday Matt was supposed to go on the Argyl but something got screwed up so instead he showed the new therapist how far he could push himself in his manual wheelchair. Matt estimated the distance at 200 feet. It took him along time and had to stop a few times. He was so tired that after lunch he went to sleep and didn't wake up until 4 pm! Good workout Matt! I asked how his shoulder was feeling afterwards and said it wasn't too bad, so thank you Lord for answered prayers.
Today Matt was able to get up in the argyl machine, or the sit stand for about 3-4 mins, however he had to sit down due to his fall in BP, 80/48. He didn't feel that bad and his O2 level was at 99%, but they decided not to push it. Matt finds it easier to breathe in the sit stand machine as opposed to the standing frame. The frame has a strap that goes around his chest and he can't take a deep breath. His lungs are still not what they were before being on the ventilator and so still does his deep breathing exercises to strengthen his lungs.
I was laughing at him tonight on Skype because he lifted up his left hand with his right hand so I could look at it. It looks as black as the ace of spades! His right hand is more a normal color, but his lack of mobility and all the edema he had while in ICU has changed his pigmentation. Anyone who has seen Matt will know what I am talking about.
Sunday, August 17, 2008
Birthday Weekend
A celebrating weekend for the Gustafson clan. Yesterday was dad's birthday and today is Shaunie's 4th birthday so all excited. She doesn't quite understand it is her birthday and trying to work on telling her she is 4 but didn't have much luck with the 3rd one either. High of 30 degrees today so will be melting.
Matt has been busy with his argyl exercises, strengthening his quads, bending his knees, and using his arms and back to help him stand as well. He said everyday he does well but on Friday was doing his exercises and got dizzy after a few reps.
Thursday Matt had his bone density test. They wanted to see if he had lost any bone mass due to lack of weight bearing exercises. However they feel he hasn't lost any so that is good news if he wants to go to project walk. Mom also left on Thursday to go back to work. Of course she is always working, but this job she gets paid for!!
God bless everyone on this beautiful Sunday!
Matt has been busy with his argyl exercises, strengthening his quads, bending his knees, and using his arms and back to help him stand as well. He said everyday he does well but on Friday was doing his exercises and got dizzy after a few reps.
Thursday Matt had his bone density test. They wanted to see if he had lost any bone mass due to lack of weight bearing exercises. However they feel he hasn't lost any so that is good news if he wants to go to project walk. Mom also left on Thursday to go back to work. Of course she is always working, but this job she gets paid for!!
God bless everyone on this beautiful Sunday!
Tuesday, August 12, 2008
Just talked to mom while she was on her way to get a sub from Subway, the big baby. Unfortunately when he comes to Red Deer after he is discharged from Parkridge he will have to put up with my cooking!
On Friday they tried something new on the sit stand machine. Before they would put Matt almost to a standing position and then have him use his legs to get him to full standing position. Now they make him do a partial squat, or bend his knees so his bum goes down. It is much harder but Matt really tries hard. He also does it with no brace on his left leg, which is getting stronger.
Monday Matt had group therapy at 10 am. Then practiced on the sit stand machine again. They don't really time him anymore, because he is doing the squats to strengthen his quads.
Today they tried a sit stand machine they were hoping to send Matt home with but he is just too big, so they will have to order one and then Matt will pay for it. The cost is $6000 and insurance will cover about $2000. They also want Matt to purchase a special $4000 mattress to prevent bedsores as well, but the new manual wheelchair costs around $8000,so have to hold back on something for now.
He wasn't feeling that well today, his shoulder really bugs him when he tries too hard at rehab and then he doesn't sleep well. But he still did really well in rehab and they had him on the mat. They wanted to see if Matt could move his left leg without the resistance of his right leg. Difficult to explain but I will try.
They get Matt to lay on his right side. Then they attach him to 3 ropes suspended from the ceiling and have slings on the end. The first goes under his thigh, the second under his knee and the third goes under his ankle. Then they pull on the ropes to suspend his left leg above the right, while laying on his side. Matt has to then try and straighten his left leg and then bend his knee, after he must try leg curls, and finally he works on the ankles, which is the hardest one of all. It is still slow, he can push down with his toes but not pull them upwards. They tried the same thing on his left arm with little success.
We are all still rooting for you Matt and pray everyday God will give you the strength to continue on your journey. 2 Samuel 22:33-34 "It is God who arms me with strength and makes my way perfect. He makes my feet like the feet of a deer; he enables me to stand on the heights." You will get there Matt, we believe with all our hearts.
On Friday they tried something new on the sit stand machine. Before they would put Matt almost to a standing position and then have him use his legs to get him to full standing position. Now they make him do a partial squat, or bend his knees so his bum goes down. It is much harder but Matt really tries hard. He also does it with no brace on his left leg, which is getting stronger.
Monday Matt had group therapy at 10 am. Then practiced on the sit stand machine again. They don't really time him anymore, because he is doing the squats to strengthen his quads.
Today they tried a sit stand machine they were hoping to send Matt home with but he is just too big, so they will have to order one and then Matt will pay for it. The cost is $6000 and insurance will cover about $2000. They also want Matt to purchase a special $4000 mattress to prevent bedsores as well, but the new manual wheelchair costs around $8000,so have to hold back on something for now.
He wasn't feeling that well today, his shoulder really bugs him when he tries too hard at rehab and then he doesn't sleep well. But he still did really well in rehab and they had him on the mat. They wanted to see if Matt could move his left leg without the resistance of his right leg. Difficult to explain but I will try.
They get Matt to lay on his right side. Then they attach him to 3 ropes suspended from the ceiling and have slings on the end. The first goes under his thigh, the second under his knee and the third goes under his ankle. Then they pull on the ropes to suspend his left leg above the right, while laying on his side. Matt has to then try and straighten his left leg and then bend his knee, after he must try leg curls, and finally he works on the ankles, which is the hardest one of all. It is still slow, he can push down with his toes but not pull them upwards. They tried the same thing on his left arm with little success.
We are all still rooting for you Matt and pray everyday God will give you the strength to continue on your journey. 2 Samuel 22:33-34 "It is God who arms me with strength and makes my way perfect. He makes my feet like the feet of a deer; he enables me to stand on the heights." You will get there Matt, we believe with all our hearts.
Saturday, August 9, 2008
Rehab Continues Forward
Talked to mom and Matt on skype on Thursday. Mom was trying to tell me about Matt's rehab and he kept putting on the Sea Battle game! It was very hard to concentrate on what mom was saying with all the winning (by me, of course)!
However Wednesday Matt did some exercises on the mat and was quite impressed with himself. He was on his belly and the situated his arms and elbows just right underneath him and he held himself up for 10 mins! Great work Matt, but be careful, because he ended up hurting his shoulder again. They think alot of his shoulder pain stems from his neck so I am hoping when he comes to Red Deer again, we can try a new machine we got at the office called a LILT machine, or low intensity light therapy. Works to stimulate increase in cell permeability to increase healing time, to put it in very simple terms. Worth a shot. Anyway, he also practiced some rolling exercises and did the arm bike for 15 mins, but feels very tight in his shoulders.
Thursday was on the mat again and tried holding himself up while sitting. You must put his left hand in the right position and he can do pretty well. They are trying to get his to sit by himself. Matt worked on the pulleys and did great. However they were giving him heck because he is supposed to do stretching exercises first thing in the morning but he stays up so late and sleeps in, so Matt, wake up call in our house will be earlier than you like, but just imagine you are training for the Olympics, with a gold medal for you when you walk again. Which you better start doing soon to work off some of that weight you have gained, 193 lbs. So great to see you regaining your strength and appetite.
Mom had briefly mentioned how great Matt did in rehab on Friday but was unable to speak to her long and so unsure what Matt did, but will find out tomorrow.
Continue to pray for Matt's shoulder and neck, and to allow them to heal and so progress can continue.
However Wednesday Matt did some exercises on the mat and was quite impressed with himself. He was on his belly and the situated his arms and elbows just right underneath him and he held himself up for 10 mins! Great work Matt, but be careful, because he ended up hurting his shoulder again. They think alot of his shoulder pain stems from his neck so I am hoping when he comes to Red Deer again, we can try a new machine we got at the office called a LILT machine, or low intensity light therapy. Works to stimulate increase in cell permeability to increase healing time, to put it in very simple terms. Worth a shot. Anyway, he also practiced some rolling exercises and did the arm bike for 15 mins, but feels very tight in his shoulders.
Thursday was on the mat again and tried holding himself up while sitting. You must put his left hand in the right position and he can do pretty well. They are trying to get his to sit by himself. Matt worked on the pulleys and did great. However they were giving him heck because he is supposed to do stretching exercises first thing in the morning but he stays up so late and sleeps in, so Matt, wake up call in our house will be earlier than you like, but just imagine you are training for the Olympics, with a gold medal for you when you walk again. Which you better start doing soon to work off some of that weight you have gained, 193 lbs. So great to see you regaining your strength and appetite.
Mom had briefly mentioned how great Matt did in rehab on Friday but was unable to speak to her long and so unsure what Matt did, but will find out tomorrow.
Continue to pray for Matt's shoulder and neck, and to allow them to heal and so progress can continue.
Tuesday, August 5, 2008
Long Weekend is Over
It feels like a tornado has hit and the aftermath has set in! Thank goodness for dad and mom to help restore order!
It wasn't really that bad and we had great weather with lots of beanbag games, with Shauna and I capturing the B side win. And I know because there are pictures to prove it! And Giselle and Brett won the A side, but I think the whole affair was rigged!
So great to see everyone and thanks for all the help. Matt has improved so much since he was here in May. If he really concentrated and was feeling good, he could bend his left elbow!! Also he is so much more easy to transfer. Uncle Jim made this amazing transfer board that is just perfect for Matt and I could almost transfer him myself. He is much stronger when he sits up and can balance himself a bit with his right hand. We were not able to do as much as we would have liked to but it was so busy with all the family that it was just nice to visit with everyone and sit by the campfire. Matt of course was the last one to bed most nights and that meant mom and I were also the last ones to bed. However Matt would sleep in to 11 am and I would be up by 8 am, so next time I will wake him up at 8 am!!
Matt returned back to Saskatoon on Tuesday and will be discharged from Parkridge on Aug. 29th, so getting things ready for the possibility of him coming here for a few months. We will see what happens so please pray for guidance on what would be the best for Matt.
It wasn't really that bad and we had great weather with lots of beanbag games, with Shauna and I capturing the B side win. And I know because there are pictures to prove it! And Giselle and Brett won the A side, but I think the whole affair was rigged!
So great to see everyone and thanks for all the help. Matt has improved so much since he was here in May. If he really concentrated and was feeling good, he could bend his left elbow!! Also he is so much more easy to transfer. Uncle Jim made this amazing transfer board that is just perfect for Matt and I could almost transfer him myself. He is much stronger when he sits up and can balance himself a bit with his right hand. We were not able to do as much as we would have liked to but it was so busy with all the family that it was just nice to visit with everyone and sit by the campfire. Matt of course was the last one to bed most nights and that meant mom and I were also the last ones to bed. However Matt would sleep in to 11 am and I would be up by 8 am, so next time I will wake him up at 8 am!!
Matt returned back to Saskatoon on Tuesday and will be discharged from Parkridge on Aug. 29th, so getting things ready for the possibility of him coming here for a few months. We will see what happens so please pray for guidance on what would be the best for Matt.
Friday, August 1, 2008
Travelling to Red Deer
This will be a short blog, getting ready for the reunion!
Tuesday Matt dressed himself, shirt over his head and able to get both arms in but unable to pull it down the back. Had company in evening and also did some mat work.
Wednesday had physiotherapy with the sit stand machine. Matt also tried the cycle machine, the one he sits on and can move with either his legs or arms. He didn't do that well and was a bit disappointed but on Thursday the therapist adjusted the seat so he was sitting more upright and then he could really go!! He told me he went the length of the driveway in Weekes! Totally exhausted after that. I should think so! Great work Matt! Maybe we will have to look into buying you one of those!
So today they are on there way here so looking forward to seeing how much he has improved. It is always a treat.
Happy Long weekend to everyone and prayers for everyone's safety.
Tuesday Matt dressed himself, shirt over his head and able to get both arms in but unable to pull it down the back. Had company in evening and also did some mat work.
Wednesday had physiotherapy with the sit stand machine. Matt also tried the cycle machine, the one he sits on and can move with either his legs or arms. He didn't do that well and was a bit disappointed but on Thursday the therapist adjusted the seat so he was sitting more upright and then he could really go!! He told me he went the length of the driveway in Weekes! Totally exhausted after that. I should think so! Great work Matt! Maybe we will have to look into buying you one of those!
So today they are on there way here so looking forward to seeing how much he has improved. It is always a treat.
Happy Long weekend to everyone and prayers for everyone's safety.
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