Hope the title is right. Not sure how to spell the new nintendo game. Matt was able to play his game at occupational therapy on Friday. He played for one hour. Nolan was amazed at how well Matt did at most of the games. The backhand in tennis gave him some trouble but it is such a great tool for rehab! A real motivator. Matt was so proud to show Nolan all his tricks: lifting his left hand off the bed while bending it at the elbow, lifting his bum in bed, lifting his legs while in his chair. Actually dad said it was quite funny to see the 2 of them interact. Ever since Matt's accident, Nolan has continued to tease Matt, tickling his nose, feet, etc. When Nolan tried that again however, Matt grabbed a hold of Nolan's arm and squeezed! You just wait Nolan, your time will come!!
I must retract my statement on Friday. They were treating Mattt for a urinary infection but today the results came back negative. So the cranberry tabs are working so far. However Matt's breathing was heavier and they had respiratory up to do an assessment. Everything clear so far. Took bloodwork and some nose swabs. More sleepy and is having more spasms so they are suspecting something so prayers that it is nothing. God tells us to put things in his hands so we do not have to worry. Matt 6:27 "Who of you by worrying can add a single hour to his life?"
Saturday Matt and dad went to the Mac store, appr. 6 blocks away. But on their return they were trying to find a different way back and came upon a water main break. So they had to go back a block. Good to be outside when it isn't so cold. Dad said Matt ate almost his entire meal himself. It was food that was more difficult so kudo's to you Matt!! I think Matt gets a bit embarrassed when he has to eat in front of people. So good excuse to keep practicing! People will stare no matter what you do. Next time someone stares, wink at them. Or if it is a cute girl, blow them a kiss!! That will make them smile!!
I just thought I would try and explain what the big deal is regarding Matt's spasms. Unless you have seen them, it is difficult to comprehend. The way I think about it, Matt's brain is constantly trying to send messages down his spinal cord to other parts of his body. But with Matt the messages are not always getting through so the body reacts abnormally, causing his knees to bend and his arms to go straight out, fingers outstretched, etc. It takes a few seconds for his body to go back into a normal state. This is always worse when Matt has been resting for awhile and then reaches for something or starts to do an exercise. The brain knows he wants it to do something so it sends out signals that somehow lose their way. But by the 3rd attempt, Matt's body is receiving the signals more appropriately and the body works better. So that is why when he is having company, he may try not to do something that he know will start a spasm, because he is uncomfortable with the way his body reacts. Matt, we are all so grateful that your body is moving at all, you could jump up like a chicken and we would applaud! When I do it, people are asking if I need help(and not just with my physical abilities, they are questioning whether my signals are crossed!).
Love and prayers to those who read this blog. God knows who you are.
Sunday, March 9, 2008
Friday, March 7, 2008
tinysteps
Time just flies! This week has been so busy I hardly had time to phone for updates. But Matt is just so exciting to hear about I always want to phone.
Thursday they tried Matt on a new sit/stand/walk machine. They need 3 people to operate it and dad gets to be in charge of the controls. So Matt is in a sling and then dad raises to a height were Matt is almost standing. Then they really encourage him to push himself up the rest of the way. Once he is in the standing position, they lock his left leg in the brace so it is stable. Then with the 2 physio therapist helping Matt's feet to go forward, Matt has to try and walk. The left foot has a curling slider on it now to help him move it forward.
So Matt shifts his weight on his left leg (the weaker one). Then he bends his right leg and can almost take the step himself, but needs a little help to lift those Size 12 feet!! So Matt has now stepped forward with his right foot!! But it doesn't end there. He must now shift his weight on his good leg, or the right side and slide his left foot forward. The physio really needs to help him with that side, unlocking the brace so Matt can bend his leg, pushing his leg forward on the slider etc. Then the whole process begins again. In total, matt took 12 baby steps!! Dad said Matt was just sweating!! Dad says the steps equal to 3 big steps for him. Great work Team Matt!! Thanks to the rehab staff that continue to persevere and to Matt who has never lost sight of the goal line. Little by little, everyday.
Nolan and Lindsay drove up to see Matt last night and give him his belated birthday present. Nolan was able to purchase a W11 game off the internet. Of course the package was open because we all had to try it out to see if it was suitable for Matt!! You almost never received your present Matt!! What a great game!
Left hand continues to progress. He can make a noticeable dent in the putty when he squeezes his hand.
The only bad spot is Matt has another urinary tract infection. I had purchased some cranberry tablets when I was there in February and he has been taking them dilegently, however that nasty infection reared its ugly head. So feeling tired today. Started him on antibiotics. But that will soon clear up and next Thursday Matt starts in the pool. Dad has already found his swimshorts and has them hanging in his closet.
Praise God for his continued blessings on Matt. God has 3 answers to pray: No, Yes, and Wait awhile. We are seeing the benefits of patience!
Psalms 40:1-3 "I waited patiently for the Lord; he turned to me and heard my cry. He lifted me out of the slimy pit, out of the mud and mire; he set my feet on a rock and gave me a firm place to stand. He put a new song in my mouth, a hymn of praise to our God. Many will see and fear and put their trust in the Lord."
Thursday they tried Matt on a new sit/stand/walk machine. They need 3 people to operate it and dad gets to be in charge of the controls. So Matt is in a sling and then dad raises to a height were Matt is almost standing. Then they really encourage him to push himself up the rest of the way. Once he is in the standing position, they lock his left leg in the brace so it is stable. Then with the 2 physio therapist helping Matt's feet to go forward, Matt has to try and walk. The left foot has a curling slider on it now to help him move it forward.
So Matt shifts his weight on his left leg (the weaker one). Then he bends his right leg and can almost take the step himself, but needs a little help to lift those Size 12 feet!! So Matt has now stepped forward with his right foot!! But it doesn't end there. He must now shift his weight on his good leg, or the right side and slide his left foot forward. The physio really needs to help him with that side, unlocking the brace so Matt can bend his leg, pushing his leg forward on the slider etc. Then the whole process begins again. In total, matt took 12 baby steps!! Dad said Matt was just sweating!! Dad says the steps equal to 3 big steps for him. Great work Team Matt!! Thanks to the rehab staff that continue to persevere and to Matt who has never lost sight of the goal line. Little by little, everyday.
Nolan and Lindsay drove up to see Matt last night and give him his belated birthday present. Nolan was able to purchase a W11 game off the internet. Of course the package was open because we all had to try it out to see if it was suitable for Matt!! You almost never received your present Matt!! What a great game!
Left hand continues to progress. He can make a noticeable dent in the putty when he squeezes his hand.
The only bad spot is Matt has another urinary tract infection. I had purchased some cranberry tablets when I was there in February and he has been taking them dilegently, however that nasty infection reared its ugly head. So feeling tired today. Started him on antibiotics. But that will soon clear up and next Thursday Matt starts in the pool. Dad has already found his swimshorts and has them hanging in his closet.
Praise God for his continued blessings on Matt. God has 3 answers to pray: No, Yes, and Wait awhile. We are seeing the benefits of patience!
Psalms 40:1-3 "I waited patiently for the Lord; he turned to me and heard my cry. He lifted me out of the slimy pit, out of the mud and mire; he set my feet on a rock and gave me a firm place to stand. He put a new song in my mouth, a hymn of praise to our God. Many will see and fear and put their trust in the Lord."
Tuesday, March 4, 2008
Played Pool
Sunday: repeat of Saturday
Monday: rehab is going really well. Focusing on Matt transferring using the slide board. Doing so well they are talking of using just one person to assist instead of two. Matt starts in the wheelchair and wants to get to the raised mat. So he leans across and puts his right hand on the mat. Then they are encouraging him to use his legs, butt muscles, and abdominal muscles.
Was able to play pool for the first time. Since he cannot use his left hand yet, he uses the cue rest. So first someone has to line up the rest and the cue so Matt then can hit the ball. At first, Matt couldn't even move the cue ball, but after he got the hang of it dad said Matt did really well. Rocky and Barrette, 2 other paraplegics went and played too. They go to a billards place on Central Ave.
Tuesday am: Matt is just gaining every day!! It is just so exciting to hear all the good things. Matt was up in the sit/stand machine again. They have now taken off the curling slider off his right foot and are encouraging Matt to bend his knee and lift his foot. Dad says he almost has got it, and believes within the next week Matt should be able to take his first step. It takes so much concentration. First Matt has to shift his weight onto his left leg, and then mentally goes through all the stages of taking a step. Then he has to tell his body to do it. It comes so naturally to us, but if you break it down, it involves many processes.
The left foot is not quite advanced enough for the slider, but they want Matt to try and go through the process. So Matt has to try transferring his weight to the right side and try to move his foot. Then he has to twist from the waist to the left, and then the right. Also is bending ahead, all while standing. Matt accomplishes this all in about 6-7 minutes, but it is so good for his back and abdominal muscles. Also, this is usaully done on the 3 rd attempt. The first standing attempt always makes Matt nauseated and very green!!
After they put Matt to bed, he wanted to show Kristen (the physio) what he could do. So she bends his knees and holds his legs. Then Matt tries to lift his bum off the bed and support his weight on his shoulders. There is about 10 cms from the bed to Matt's bum. At x-mas, he could lift his right butt cheek 1 cm with great difficulty so just to emphasize the amazing gains Matt is making.
Another thing, when dad returned from "getting some fresh air" the physio was very excited about something Matt did. Matt wouldn't let her tell until dad guessed. So on the first guess dad got it! Matt had lifted his left forearm off the bed, bending at the elbow! How did dad know? Because the previous evening he had put the electrical muscle stimulator on and really worked Matt's bicep, making Matt move his elbow into a bent position. So the body remembered and did it without the stimulator!
I will write more tonight, realized this was a very long blog!!
Monday: rehab is going really well. Focusing on Matt transferring using the slide board. Doing so well they are talking of using just one person to assist instead of two. Matt starts in the wheelchair and wants to get to the raised mat. So he leans across and puts his right hand on the mat. Then they are encouraging him to use his legs, butt muscles, and abdominal muscles.
Was able to play pool for the first time. Since he cannot use his left hand yet, he uses the cue rest. So first someone has to line up the rest and the cue so Matt then can hit the ball. At first, Matt couldn't even move the cue ball, but after he got the hang of it dad said Matt did really well. Rocky and Barrette, 2 other paraplegics went and played too. They go to a billards place on Central Ave.
Tuesday am: Matt is just gaining every day!! It is just so exciting to hear all the good things. Matt was up in the sit/stand machine again. They have now taken off the curling slider off his right foot and are encouraging Matt to bend his knee and lift his foot. Dad says he almost has got it, and believes within the next week Matt should be able to take his first step. It takes so much concentration. First Matt has to shift his weight onto his left leg, and then mentally goes through all the stages of taking a step. Then he has to tell his body to do it. It comes so naturally to us, but if you break it down, it involves many processes.
The left foot is not quite advanced enough for the slider, but they want Matt to try and go through the process. So Matt has to try transferring his weight to the right side and try to move his foot. Then he has to twist from the waist to the left, and then the right. Also is bending ahead, all while standing. Matt accomplishes this all in about 6-7 minutes, but it is so good for his back and abdominal muscles. Also, this is usaully done on the 3 rd attempt. The first standing attempt always makes Matt nauseated and very green!!
After they put Matt to bed, he wanted to show Kristen (the physio) what he could do. So she bends his knees and holds his legs. Then Matt tries to lift his bum off the bed and support his weight on his shoulders. There is about 10 cms from the bed to Matt's bum. At x-mas, he could lift his right butt cheek 1 cm with great difficulty so just to emphasize the amazing gains Matt is making.
Another thing, when dad returned from "getting some fresh air" the physio was very excited about something Matt did. Matt wouldn't let her tell until dad guessed. So on the first guess dad got it! Matt had lifted his left forearm off the bed, bending at the elbow! How did dad know? Because the previous evening he had put the electrical muscle stimulator on and really worked Matt's bicep, making Matt move his elbow into a bent position. So the body remembered and did it without the stimulator!
I will write more tonight, realized this was a very long blog!!
Saturday, March 1, 2008
Another Saturday
Friday was a tiring day. Matt didn't sleep well, maybe too much excitement. However he was able to stand for a little while and the rehab staff were very impressed with how well his left arm is doing. The hand is very slow in coming, but it is more important for Matt to regain the bend in his elbow. And I must state a correction. Matt can lift 2 kg's with his right hand, not 2 lbs, which is a big difference. Mom had to go back to work so dad is there again to take the next shift.
Today was very quiet, no visitors but Matt was tired anyway. Was able to go outside for a few minutes to enjoy the brief interlude of warm weather. He continues to eat well and still unsure if his weight has increased. That is one massive hollow leg to fill!!
Matt no longer wearing a trach dressing, and he has a massive scar on his throat. What a story he'll have to tell his grandchildren. He said he would tell them he was shot and lived to tell the tale!!Actually he had said that about the scars on his chest from the chest tubes. That must have been a massive gun battle, just like the OK corral!!
When I talked to dad, he was at the new place. Nadine Smith was gracious enough to allow mom and dad to stay in her house in Saskatoon. God continues to bless us wilth wonderful people who come through when we need it the most. Family support is so important for the healing process and for stability.
Prayers for Matt's neck. Mom said he has contant pain in it and really gets him down somedays. psalms 86:6-7 "Hear my prayer, O Lord; listen to my cry for mercy. In the day of my trouble I will call to you, for you will answer me."
Today was very quiet, no visitors but Matt was tired anyway. Was able to go outside for a few minutes to enjoy the brief interlude of warm weather. He continues to eat well and still unsure if his weight has increased. That is one massive hollow leg to fill!!
Matt no longer wearing a trach dressing, and he has a massive scar on his throat. What a story he'll have to tell his grandchildren. He said he would tell them he was shot and lived to tell the tale!!Actually he had said that about the scars on his chest from the chest tubes. That must have been a massive gun battle, just like the OK corral!!
When I talked to dad, he was at the new place. Nadine Smith was gracious enough to allow mom and dad to stay in her house in Saskatoon. God continues to bless us wilth wonderful people who come through when we need it the most. Family support is so important for the healing process and for stability.
Prayers for Matt's neck. Mom said he has contant pain in it and really gets him down somedays. psalms 86:6-7 "Hear my prayer, O Lord; listen to my cry for mercy. In the day of my trouble I will call to you, for you will answer me."
Thursday, February 28, 2008
HAPPY BIRTHDAY!!
Hapyy 21st Birthday Matty! Hope you had great presents...I mean a great day! Wednesday Matt went out to watch the movie "Fool's Gold" with Kristan from rehab and another fellow outpatient. Said it wasn't too bad.
Today was quite exciting. At rehab Matt stood for 8 minutes!! That is a big jump from 1 min. What a birthday gift that was!! Matt aslo did some arm exercises but felt he didn't do very well because he was tired from all the standing. However the rehab staff disagreed and told him he just keeps getting better. Went to lunch in the hospital with Rocky. Matt was going to go out to supper tonight but he knew that he would have company this evening and didn't want to tire himself out. So took a short visit to ICU, but they were so busy they didn't have much time to chat. Had a short nap between 5-7pm until the hordes of visitors came bearing gifts. Balloons, chocolates, cake, movies, etc. I just finished on the phone with mom and all I could hear was noise in the background. Just one big party.
Thanks to everyone who continues to think about Matt, and all the visits and blog comments. They brighten his day so much and really encourage him to push himself. God bless each and every one of you!!PSalms 34:15 "The eyes of the Lord are on the rightgeous and his ears are attentive to their cry".
Today was quite exciting. At rehab Matt stood for 8 minutes!! That is a big jump from 1 min. What a birthday gift that was!! Matt aslo did some arm exercises but felt he didn't do very well because he was tired from all the standing. However the rehab staff disagreed and told him he just keeps getting better. Went to lunch in the hospital with Rocky. Matt was going to go out to supper tonight but he knew that he would have company this evening and didn't want to tire himself out. So took a short visit to ICU, but they were so busy they didn't have much time to chat. Had a short nap between 5-7pm until the hordes of visitors came bearing gifts. Balloons, chocolates, cake, movies, etc. I just finished on the phone with mom and all I could hear was noise in the background. Just one big party.
Thanks to everyone who continues to think about Matt, and all the visits and blog comments. They brighten his day so much and really encourage him to push himself. God bless each and every one of you!!PSalms 34:15 "The eyes of the Lord are on the rightgeous and his ears are attentive to their cry".
Tuesday, February 26, 2008
Computer up and Running (Matt is Next!)
Tonight was the first night Matt was able to really use his computer in his room. The one problem with this is my detail to the blog and the consistency of my writing will have to shapen up. Matt asked mom why I didn't write the blog last night! Every 2 nights are all I can seem to do but I will work on it Matt!
Monday Matt wasn't able to use the pool yet or do any standing, but the physio said Matt just keeps improving on his right arm. His coordiantion and strength is slowly growing. He was supposed to get an ingrown toenail removed but some miscommunication and it wasn't done. With quadrapelegics, any little thing can send them off into a potentially serious medical condition called autonomic hyperreflexia. A big word meaning his blood pressure goes up rapidly and his heart rate goes down. Other things happen as well. So something as simply as an ingrown toenail can cause all sorts of problems. But Matt seems to do better than most so don't worry Matt. You have the Great Physician looking out for you.
Today Matt was able to talk with the psychologist about not going home anytime soon and other things. Great they have that service so Matt is free to speak what he feels to someone else rather than his family. We are great, of course! but we don't know how to approach every situation. Again no standing but mom is vigilant on making Matt do whatever exercises he can while not at rehab. The physio stresses that if Matt wants to walk again he must exercise whenever he can. So she was very impressed today when Matt could turn his left wrist when held in the proper position. Mom says he starts with the palm facing down, then she asks Matt to turn it so the palm is facing his body, then so it is facing outwards. Mom has to hold it perfect in order for Matt to accomplish this feat, but he can do it! Matt was also able to hold his left arm straight above his head for a few seconds and his hand straight as well when he was in the bed. The natural tendency of Matt's hand is to either flop forward when lifted or flop backwards. Even with his right hand, if he lifts it above his head you must remind him to keep his hand straight. The physio was even more amazed when she asked Matt to then place his left hand on his chest from the elevated position. He was able to do it with alot of concentration and determination. So I asked mom , that would mean he bent his elbow and she said it appears so. That is a huge step and praise be to God for his continued blessings on Matt!! I get so excited to think of all the praise items we have, compared to last summer. There is a great song which has such wonderful words.
"Shout to the Lord, all the earth let us sing, Power and majesty praise to our King. Mountains bow down and the seas will roar at the sound of your name. I sing for joy at the works of your hands, Forever i'll love you forever I'll stand. Nothing compares to the promise I have in You".
P.S. I have a video of Matt standing, so if anyone would like it, please leave your email on the blog so I can send it. It is in JPEG format.
Monday Matt wasn't able to use the pool yet or do any standing, but the physio said Matt just keeps improving on his right arm. His coordiantion and strength is slowly growing. He was supposed to get an ingrown toenail removed but some miscommunication and it wasn't done. With quadrapelegics, any little thing can send them off into a potentially serious medical condition called autonomic hyperreflexia. A big word meaning his blood pressure goes up rapidly and his heart rate goes down. Other things happen as well. So something as simply as an ingrown toenail can cause all sorts of problems. But Matt seems to do better than most so don't worry Matt. You have the Great Physician looking out for you.
Today Matt was able to talk with the psychologist about not going home anytime soon and other things. Great they have that service so Matt is free to speak what he feels to someone else rather than his family. We are great, of course! but we don't know how to approach every situation. Again no standing but mom is vigilant on making Matt do whatever exercises he can while not at rehab. The physio stresses that if Matt wants to walk again he must exercise whenever he can. So she was very impressed today when Matt could turn his left wrist when held in the proper position. Mom says he starts with the palm facing down, then she asks Matt to turn it so the palm is facing his body, then so it is facing outwards. Mom has to hold it perfect in order for Matt to accomplish this feat, but he can do it! Matt was also able to hold his left arm straight above his head for a few seconds and his hand straight as well when he was in the bed. The natural tendency of Matt's hand is to either flop forward when lifted or flop backwards. Even with his right hand, if he lifts it above his head you must remind him to keep his hand straight. The physio was even more amazed when she asked Matt to then place his left hand on his chest from the elevated position. He was able to do it with alot of concentration and determination. So I asked mom , that would mean he bent his elbow and she said it appears so. That is a huge step and praise be to God for his continued blessings on Matt!! I get so excited to think of all the praise items we have, compared to last summer. There is a great song which has such wonderful words.
"Shout to the Lord, all the earth let us sing, Power and majesty praise to our King. Mountains bow down and the seas will roar at the sound of your name. I sing for joy at the works of your hands, Forever i'll love you forever I'll stand. Nothing compares to the promise I have in You".
P.S. I have a video of Matt standing, so if anyone would like it, please leave your email on the blog so I can send it. It is in JPEG format.
Sunday, February 24, 2008
Quiet Weekend
Not too much to report today. While I was in Saskatoon, I had bought Matt some stretchy bands and 1 lb weight's to work with while in his room. The physio gave mom some exercises to do with them and has been working pretty well. Continues to do the leg exercises while in the chair, up to 3 times a day. Matt's right leg can kick much higher than his left and is getting stronger everyday. They also encourage Matt to try and lift his bum up. He can lift the right butt cheek slightly but not the left. Prayers that the left arm and hand will wake up and start to move more. He is able to move it a bit but not enough to do anything with it. Prayers that the left elbow will bend as well, as that would help in Matt being able to transfer from bed to chair by himself. Paul writes in Ehesians about just how much we are cherished by God. Verse 18-19 "may have power together with all the saints, to grasp how wide and long and high and deep is th love of Christ, and to know this love that surpasses knowledge that you may be filled to the measure of all the fullness of God".
I forgot to mention while I was there we talked with the social worker. We were quite worried Matt would be discharged at the end of February and we were not prepared. We want Matt at home only when he is capable and shows more improvement. The hospitals understanding was that we wanted him at home as soon as possible. So some mixed communication there and everything is on hold for awhile. Matt will stay in the rehab department until a transition bed is available somewhere else in the city. Then Matt will likely stay at the transition facility for another 90 days. So that could give us until August, which would be better weather for moving (we hope, you never know in Canada when winter will come again!.
I forgot to mention while I was there we talked with the social worker. We were quite worried Matt would be discharged at the end of February and we were not prepared. We want Matt at home only when he is capable and shows more improvement. The hospitals understanding was that we wanted him at home as soon as possible. So some mixed communication there and everything is on hold for awhile. Matt will stay in the rehab department until a transition bed is available somewhere else in the city. Then Matt will likely stay at the transition facility for another 90 days. So that could give us until August, which would be better weather for moving (we hope, you never know in Canada when winter will come again!.
Saturday, February 23, 2008
Internet Hook-up
Matt finally was able to get wireless internet in his room. He is quite excited to be able to read the blog and the comments. Also we will get him Skype, which will enable him to phone from computer to computer for a very minimal price. Right now he is using his cell phone and it gets expensive.
Thursday the girls and I travelled back to Red Deer. However I was able to video tape Matt standing at the parallel bars with four people helping. He stood for over a minute and they even tried to give him minimal support. However his knees want to buckle so they have to keep them supported.
Yesterday Dad went home. Matt did not do any standing but did really well in his arm exercises. While I wa there, he tried to lift 3 lbs with his right arm. What he does is try to lower his arm to his side with the pulley. That day he wasn't able to do it but yesterday he did fine. He also lifted 3 lbs with his foream by flexing his wrist. Tried to do some leg exercises while in the chair. Mom takes off his leg rests so Matt's feet are dangling. Then he tries to lift his bottom leg up. His right is stonger than the left but he was able to do it with both legs. Keep it up Matt. Need to strengthen those muscles.
Matt received an early birthday present from Karl and Corina. A nice carrying case for his laptop. Before the computer just sat on a bedside table and was always at risk for spills and things.
While I was speakingto mom, she was giving Matt grief because he was trying to bite his fingernails on his left hand by holding it up with his right. Can't quite do it. States it feels like he is trying to lift 100lbs. I told her to leave him as it is a form of exercise.
Psalms 103:2-3 "Praise the Lord, o my soul, and forget not all his benefits- who forgives all your sins and heals all your diseases."
Thursday the girls and I travelled back to Red Deer. However I was able to video tape Matt standing at the parallel bars with four people helping. He stood for over a minute and they even tried to give him minimal support. However his knees want to buckle so they have to keep them supported.
Yesterday Dad went home. Matt did not do any standing but did really well in his arm exercises. While I wa there, he tried to lift 3 lbs with his right arm. What he does is try to lower his arm to his side with the pulley. That day he wasn't able to do it but yesterday he did fine. He also lifted 3 lbs with his foream by flexing his wrist. Tried to do some leg exercises while in the chair. Mom takes off his leg rests so Matt's feet are dangling. Then he tries to lift his bottom leg up. His right is stonger than the left but he was able to do it with both legs. Keep it up Matt. Need to strengthen those muscles.
Matt received an early birthday present from Karl and Corina. A nice carrying case for his laptop. Before the computer just sat on a bedside table and was always at risk for spills and things.
While I was speakingto mom, she was giving Matt grief because he was trying to bite his fingernails on his left hand by holding it up with his right. Can't quite do it. States it feels like he is trying to lift 100lbs. I told her to leave him as it is a form of exercise.
Psalms 103:2-3 "Praise the Lord, o my soul, and forget not all his benefits- who forgives all your sins and heals all your diseases."
Wednesday, February 20, 2008
Lunar Eclipse
Just wanted to drop a quick note. I am in the hospital with Matt watching the lunar eclipse. The colors were quite amazing and we watched it for over an hour. Today the trach site is healing nicely, they put only a tiny dry dressing on and the site is as big as a pencil. The trachea already has a thin membrane covering it so no more air leaking out. Matt states he can cough better, talk better, breath better. No more leaky tire sound from the trach. Yahoo!!
Exercises are still going well. The left was a little sluggish but still improving. Stood up four times, however he stood with the stand/walker. Tried to take a step again without the slidder, still toe dragging, so can't finish the step. Spasms still give him grief. Whenever he tries to do something, he spasms and then has to wait for his body to relax.
Just going to feed him some homemade perogies and chicken. Matt is looking over my shoulder telling me to hurry up and feed him! No chance yet of him being overweight, however he is now 180 lbs. Still getting tube feeds at night.
Praise for the trach being out and prayers for rehab to continue going strong. On Monday they may even try him in the pool. I think he is a bit nervous about drowning however has to learn to trust the rehab staff. Please add a verse to the comments, as I do not have a bible in the room with the computer.
Exercises are still going well. The left was a little sluggish but still improving. Stood up four times, however he stood with the stand/walker. Tried to take a step again without the slidder, still toe dragging, so can't finish the step. Spasms still give him grief. Whenever he tries to do something, he spasms and then has to wait for his body to relax.
Just going to feed him some homemade perogies and chicken. Matt is looking over my shoulder telling me to hurry up and feed him! No chance yet of him being overweight, however he is now 180 lbs. Still getting tube feeds at night.
Praise for the trach being out and prayers for rehab to continue going strong. On Monday they may even try him in the pool. I think he is a bit nervous about drowning however has to learn to trust the rehab staff. Please add a verse to the comments, as I do not have a bible in the room with the computer.
Tuesday, February 19, 2008
Trach Out Today
Shelley is in Sask till Thursday.Jonmarie and Shaunie got to visit their uncle Matt today, playing in gym and riding the wheelchair with Matt.
He was expecting his trach to be removed Friday but was suprised when it was done today. He was very anxious with the entire experience but in the end did fine.
There is also an apparatus to assist him with standing which takes 80lbs off the legs , so this is a great asset to his rehab.
After a meeting with the patient advocate today Matts discharge date is for now "unknown", this will give more planning time for this eventuality.
In Mike Horns Book Conquering the Impossible he uses 2 quuotes :
"We say something is impossible if no one has ever tried it"-Alexis De Tocqueville.
"The Impossible is the only adversary worthy of man"-Andree Chedid
Matt has always believed that he will walk out of that hospital in spite of what all the medical experts there have been telling him, he is not a statistic, or just a number who needs to be discharged ASAP so as to keep the almighty health budget on track.I wish they would ignore the statistics and look and the man and what he has achieved to date and give him the best chance they can.
Oh but we can only hope and pray that somebody will see the light.
Regards to all, thanks for all the prayers and support, it means the world to Matt.
John.
He was expecting his trach to be removed Friday but was suprised when it was done today. He was very anxious with the entire experience but in the end did fine.
There is also an apparatus to assist him with standing which takes 80lbs off the legs , so this is a great asset to his rehab.
After a meeting with the patient advocate today Matts discharge date is for now "unknown", this will give more planning time for this eventuality.
In Mike Horns Book Conquering the Impossible he uses 2 quuotes :
"We say something is impossible if no one has ever tried it"-Alexis De Tocqueville.
"The Impossible is the only adversary worthy of man"-Andree Chedid
Matt has always believed that he will walk out of that hospital in spite of what all the medical experts there have been telling him, he is not a statistic, or just a number who needs to be discharged ASAP so as to keep the almighty health budget on track.I wish they would ignore the statistics and look and the man and what he has achieved to date and give him the best chance they can.
Oh but we can only hope and pray that somebody will see the light.
Regards to all, thanks for all the prayers and support, it means the world to Matt.
John.
Saturday, February 16, 2008
Jacki & Amy to Visit
Jacki and Amy arrived Friday night to visit Matt. They left Bobby with his daddy because the hospital would never be the same otherwise! That is one busy boy. Matt really enjoyed Amy, who is standing as well, however she is not walking yet and there is fierce competition between Amy and Matt as who will walk first!! Matt loved when Amy crawled all over him until she decided to stand on a delicate area around the midsection, and she wasn't his favorite neice anymore!
Quite day spent after all the excitement of yesterday. Slept the morning away and they Jacki was up to visit. When I spoke to them they were watching hockey. I asked why they were not watching the Scott's Curling and Jacki told me Matt said it wasn't on. Somehow I think he knew it waas on and just didn't say. If he is anything like John, who likens watching curling to watching poop float, then Matt would probably like hockey better!
Continues to eat weel and jacki was feeding him a sub, although a bit fast he said. Poor Matt and Amy, food crammed in any which way.
Have more info tomorrow. If it remains nice they may go outside and tour the grounds, or maybe a trip to the mall.
Quite day spent after all the excitement of yesterday. Slept the morning away and they Jacki was up to visit. When I spoke to them they were watching hockey. I asked why they were not watching the Scott's Curling and Jacki told me Matt said it wasn't on. Somehow I think he knew it waas on and just didn't say. If he is anything like John, who likens watching curling to watching poop float, then Matt would probably like hockey better!
Continues to eat weel and jacki was feeding him a sub, although a bit fast he said. Poor Matt and Amy, food crammed in any which way.
Have more info tomorrow. If it remains nice they may go outside and tour the grounds, or maybe a trip to the mall.
Friday, February 15, 2008
Tried To Take A Step
Yesterday Matt tried once more with the Sask pole with no success, so I think that may be put on the back burner for awhile. Worked more on his left arm, which is constantly gaining but very slow compared to the right one.
Today Matt had to be at the Abilities Council for his leg brace at 8am, so another very early morning. Poor dad didn't have an alarm clock so hardly slept because he was afraid he would sleep in!
Matt found it much easier to stand with the brace on the left leg. He was able to stand up 4 times, each time getting better. Always dizzy at first and the spasms interfere alot, but each time less dizzy and less spasms. When Matt goes to stand, he places his arms on the parellel bars, leans ahead, and attempts to stand, but just too weak and body is having trouble remembering how. So the staff needs to lift him until he is 1/2 standing and then Matt is able to try and straighten his legs. By pushing with his legs from that position and pushing up with his right arm (and a tiny bit with his left) he can get to a standing position with less help. They thought they would try for Matt to take a step. He was able to lift his right leg, however he was unable to bend his ankle and the toes dragged on the floor preventing him from taking a step. So they put a half curling slider on the right foot so he could slide his foot forward. Once he slide it further then he had to slide it back to standing position and did well. They put a L shape brace on the top of his right foot inside his shoe to try and prevent his toes from getting in the way but may need some more adjusting. Keep up the good work, Matt!! Slow and sure, steady and strong. We are so proud of you!!
They are still talking of discharging Matt the end of February so please pray for continued guidance in the decisions we as a family need to make. He knows what is best for Matt and wants us to trust in Him. Proverbs 28:26 "He who trusts in himself is a fool, but he who walks in wisdom is kept safe."
Today Matt had to be at the Abilities Council for his leg brace at 8am, so another very early morning. Poor dad didn't have an alarm clock so hardly slept because he was afraid he would sleep in!
Matt found it much easier to stand with the brace on the left leg. He was able to stand up 4 times, each time getting better. Always dizzy at first and the spasms interfere alot, but each time less dizzy and less spasms. When Matt goes to stand, he places his arms on the parellel bars, leans ahead, and attempts to stand, but just too weak and body is having trouble remembering how. So the staff needs to lift him until he is 1/2 standing and then Matt is able to try and straighten his legs. By pushing with his legs from that position and pushing up with his right arm (and a tiny bit with his left) he can get to a standing position with less help. They thought they would try for Matt to take a step. He was able to lift his right leg, however he was unable to bend his ankle and the toes dragged on the floor preventing him from taking a step. So they put a half curling slider on the right foot so he could slide his foot forward. Once he slide it further then he had to slide it back to standing position and did well. They put a L shape brace on the top of his right foot inside his shoe to try and prevent his toes from getting in the way but may need some more adjusting. Keep up the good work, Matt!! Slow and sure, steady and strong. We are so proud of you!!
They are still talking of discharging Matt the end of February so please pray for continued guidance in the decisions we as a family need to make. He knows what is best for Matt and wants us to trust in Him. Proverbs 28:26 "He who trusts in himself is a fool, but he who walks in wisdom is kept safe."
Wednesday, February 13, 2008
Better Day
Dad thinks he finally figured out why Matt had such a bad day with spasms yesterday. Last Saturday, Matt ran out of the antispasm meds for his bladder that dad has to pick up from the drugstore. However the drugstore was closed on the weekend and dad couldn't get any until Tuesday. So Matt finally had his pills last night and this am, and has improved a great deal. I guess the spasms were so bad yesterday that Matt reacts very emotionally to upsets like that. But he always bounces back and today was a good day. I am so thankful there are more good days than bad days. I still get cold sweats when I remember it being the opposite, waiting for good news that didn't come for days on end.
Again in rehab for 1 1/2 hours. Exercised with the arm machine and was able to stand up twice. The first time again he was very dizzy, but refused to sit down and managed to reamin upright. They were very proud of his stance, he stood just like a soldier for 10-15 secs. They also tried the Sask pole in occupatinal therapy to see if Matt can transfer without using the board, but Matt just cannot get a grip on that pole. Don't worry about it Matt, that will come, but probably not for a long time. YOu need to crawl before you walk. He can transfer not too bad with board now, if everything is just right and 2 people are available. He can't slide over in one go, it takes him about 2-3 times. He was supposed to have therapy for another 1/2 hours this afternnon but he needded anothers chest xray instead. Not sure what for, but they didn't seem too concerned.
When dad left Matt tonight he was getting a massag, relaxing and enjoying the moment. He had been eating like a horse and will probalby fell sleepy in a little while. Good night, Matt. Matt 11:28 "Come to me, all you who are weary and burdened, and I will give yo rest."
P.S Sorry I cannot highlight the verses, not working and neither is spell check!!
Again in rehab for 1 1/2 hours. Exercised with the arm machine and was able to stand up twice. The first time again he was very dizzy, but refused to sit down and managed to reamin upright. They were very proud of his stance, he stood just like a soldier for 10-15 secs. They also tried the Sask pole in occupatinal therapy to see if Matt can transfer without using the board, but Matt just cannot get a grip on that pole. Don't worry about it Matt, that will come, but probably not for a long time. YOu need to crawl before you walk. He can transfer not too bad with board now, if everything is just right and 2 people are available. He can't slide over in one go, it takes him about 2-3 times. He was supposed to have therapy for another 1/2 hours this afternnon but he needded anothers chest xray instead. Not sure what for, but they didn't seem too concerned.
When dad left Matt tonight he was getting a massag, relaxing and enjoying the moment. He had been eating like a horse and will probalby fell sleepy in a little while. Good night, Matt. Matt 11:28 "Come to me, all you who are weary and burdened, and I will give yo rest."
P.S Sorry I cannot highlight the verses, not working and neither is spell check!!
Tuesday, February 12, 2008
Watched Sledge Hockey
Matt didn't have a great day yesterday. He felt sick to his stomach and so didn't do that well at rehab. However he still managed to stand up twice which is still progress.
Today Matt was feeling well enough to venture out to Rutherford Arena to watch Rocky play sledge hockey. You sit on a sled upright with your legs strapped in front of you so you can play hockey. It would be interesting to see how it is done. Rehab wasn't very successful today. Matt was having such bad spasms they had to stop. They are trying to figure out why it is so bad. Blood was taken, urine sample sent, x-ray of his chest done. They was no infection but they noticed the bottom part of the lungs are collapsed. However Matt is still breathing well and O2 Sats are 97%. I believe God made Matt's lungs extra large for just such an occassion! He has more than enough to go around. Colossians 1:15-16 "He (Christ)is the image of the invisible God, the firstborn over all creation. For by him all things were created: things in heaven and on earth, visible and invisible, whether thrones or powers or rulers or authorities: all things were created by him and for him."
Matt is able to move his left wrist slightly when someone is holding his hand up. And he finds it much easier to close his left hand rather than open it. More progress!!
More company from the wild University students. They really brighten Matt's day.
Couldn't get much more info from Matt. He was watching "American Idol" on TV. Anyone who knows Matt can attest that his attention span when the TV is on is zero! Except to the TV of course. I will have to come down and stand in front of the TV to get his attention!
Today Matt was feeling well enough to venture out to Rutherford Arena to watch Rocky play sledge hockey. You sit on a sled upright with your legs strapped in front of you so you can play hockey. It would be interesting to see how it is done. Rehab wasn't very successful today. Matt was having such bad spasms they had to stop. They are trying to figure out why it is so bad. Blood was taken, urine sample sent, x-ray of his chest done. They was no infection but they noticed the bottom part of the lungs are collapsed. However Matt is still breathing well and O2 Sats are 97%. I believe God made Matt's lungs extra large for just such an occassion! He has more than enough to go around. Colossians 1:15-16 "He (Christ)is the image of the invisible God, the firstborn over all creation. For by him all things were created: things in heaven and on earth, visible and invisible, whether thrones or powers or rulers or authorities: all things were created by him and for him."
Matt is able to move his left wrist slightly when someone is holding his hand up. And he finds it much easier to close his left hand rather than open it. More progress!!
More company from the wild University students. They really brighten Matt's day.
Couldn't get much more info from Matt. He was watching "American Idol" on TV. Anyone who knows Matt can attest that his attention span when the TV is on is zero! Except to the TV of course. I will have to come down and stand in front of the TV to get his attention!
Monday, February 11, 2008
Cold Weekend
Not much to write tonight. I was unable to get in touch with dad so I only have info regarding Sunday. Mom had mentioned that Matt was supposed to go to the field house on Saturday to watch the parapalegic team play, but was unable to attend due to the cold weather. It wasn't much better in Alberta but thankfully it warmed up today. Matt had some visitors on the weekend, a few brave souls who braved the elements to cheer up Matt. And he needed cheering up because dad beat him 2 games straight in crib!! Matt was always a poor loser, just like the rest of us, and didn't want to play anymore. However he did win in the scratch and win tickets. Dad says he has never seen anyone so lucky with those things. I remeber once winning $20 6 years ago, but that was it. So Matt, you didn't get it from me!
Matt also went and visited with the staff in ICU which is always a treat for him and maybe them as well. Hopefully today Matt's rehab went well and after all his sleeping he should be wired and ready to go!!
Praise for God's continued blessings on our family and prayers that Matt will only move forward. Paul had spoke to the believers in Rome about praying for him. As today we need to pray together for spiritual deliverence and guidance. Romans 15:30 "I urge you, brothers, by our Lord Jesus Christ and by the love of the Spirit, to join me in my struggle by praying to God for me."
Matt also went and visited with the staff in ICU which is always a treat for him and maybe them as well. Hopefully today Matt's rehab went well and after all his sleeping he should be wired and ready to go!!
Praise for God's continued blessings on our family and prayers that Matt will only move forward. Paul had spoke to the believers in Rome about praying for him. As today we need to pray together for spiritual deliverence and guidance. Romans 15:30 "I urge you, brothers, by our Lord Jesus Christ and by the love of the Spirit, to join me in my struggle by praying to God for me."
Saturday, February 9, 2008
Dad In Charge
Sorry it has taken so long to update. Even I get confused about who is with Matt. All Thursday evening I kept trying to call mom's cell phone and then realized at 1030pm that it was dad with Matt.
Thursday after Matt left he was so tired he slept from noon until 6pm, and then slept most of the night as well. A good catch-up day for sleep. All that exercise makes even me sleepy writing about it!
Friday Matt had one session of physio and was able to practice standing. He even tried a Sask pole, a pole that they will put beside someone's bed that needs assistance getting to a standing position. It reaches from the ceiling to the floor. However Matt doesn't have the grip strength yet to pull himself up. When they asked Matt to try and take a step forward while he was standing by the parallel bars, he said it was like he forgot how. And that is the way it is. Matt will have to train his body all over again, telling his knee to bend and push off with his foot, etc. The nerves that were damaged can't get the impulses through consistently, even if the brain is telling it too.
Today Matt didn't get up until 130pm! Lazy bum! I guess he was so tired from the long week of getting up early and the physio.
While talking to Matt on the phone, he was holding the cell phone the whole time which is another improvement. Dad was busy hooking Matt up to the Tens machine to stimulate the left arm to move. Dad says it looks like a chicken after the head comes off!! Sorry for those with a weak stomach but it is a fairly accurate description.
Matt also got a haircut and looks as cute as ever. He played crib with dad and skunked him so bad dad is sulking!
I don't have a verse for today. I am at Jacki's babysitting and have just got the kids to bed. Thank goodness Nolan and Lindsay showed up when they did. I had the three kids in the tub and little Amy was determined she was going to join the action... fully clothed!
Thursday after Matt left he was so tired he slept from noon until 6pm, and then slept most of the night as well. A good catch-up day for sleep. All that exercise makes even me sleepy writing about it!
Friday Matt had one session of physio and was able to practice standing. He even tried a Sask pole, a pole that they will put beside someone's bed that needs assistance getting to a standing position. It reaches from the ceiling to the floor. However Matt doesn't have the grip strength yet to pull himself up. When they asked Matt to try and take a step forward while he was standing by the parallel bars, he said it was like he forgot how. And that is the way it is. Matt will have to train his body all over again, telling his knee to bend and push off with his foot, etc. The nerves that were damaged can't get the impulses through consistently, even if the brain is telling it too.
Today Matt didn't get up until 130pm! Lazy bum! I guess he was so tired from the long week of getting up early and the physio.
While talking to Matt on the phone, he was holding the cell phone the whole time which is another improvement. Dad was busy hooking Matt up to the Tens machine to stimulate the left arm to move. Dad says it looks like a chicken after the head comes off!! Sorry for those with a weak stomach but it is a fairly accurate description.
Matt also got a haircut and looks as cute as ever. He played crib with dad and skunked him so bad dad is sulking!
I don't have a verse for today. I am at Jacki's babysitting and have just got the kids to bed. Thank goodness Nolan and Lindsay showed up when they did. I had the three kids in the tub and little Amy was determined she was going to join the action... fully clothed!
Thursday, February 7, 2008
Mom Went Home
Talked to mom yesterday. States Matt was pretty tired because even with the busy days he still doesn't sleep that well. But he still did alright in rehab. Matt tried 4 times to stand, was successful every one and then when pushed him to try the 5th time, ran out of juice. He had lots of spasms so makes it difficult. Mom happened to mention that prior to this week, when Matt spasms his left arm and elbow always remained straight. But now it bends. Not sure whether that is a positive thing or not but I will believe it is for the better. Matt also did his arm cycle exercises. He does it about 20 times, the left arm doesnt't have any weights and the right arm has 2 lbs. I think Matt still gets down about things not happening fast enough. It is easy for me to say what great progress he has made but I don't have to live it 24/7. But Matt, try and focus on what you can do, not on what you can't do. We are so amazed by your accomplishments and you still have a huge cheering section!! Go, Matt, Go!!
Mom was leaving today and dad may not be there yet, as he had to wait until mom got home. The heater in his truck wasn't working so needed mom's vehicle to return to Saskatoon. Not sure how today went but will find out tomorrow.
I noticed that Bev was wondering what sort of goodies Matt likes. He doesn't like baked goods that much but really likes oatmeal/banana cookies, chocolate macaroons (mudpies), and ginger snaps. Jesus talks about food to his disciples in Mark 7:19 "For it doesn't go into his heart but into his stomach, and then out of his body." (In saying this Jesus declared all foods clean). Now I think that is as good as reason as any to have some cookies!!
Mom was leaving today and dad may not be there yet, as he had to wait until mom got home. The heater in his truck wasn't working so needed mom's vehicle to return to Saskatoon. Not sure how today went but will find out tomorrow.
I noticed that Bev was wondering what sort of goodies Matt likes. He doesn't like baked goods that much but really likes oatmeal/banana cookies, chocolate macaroons (mudpies), and ginger snaps. Jesus talks about food to his disciples in Mark 7:19 "For it doesn't go into his heart but into his stomach, and then out of his body." (In saying this Jesus declared all foods clean). Now I think that is as good as reason as any to have some cookies!!
Wednesday, February 6, 2008
Earlier Morning
Yesterday was a long day for Matt. He was up at 5 am to get ready for his 7 am appt. at the Sask. Abilities Council across town. They took longer getting him ready and were late getting to the taxi. The driver was upset until he realized they had sent the wrong size cab and Matt couldn't fit. So had to phone abilities council to say they would be late and waited for another cab. Finally made it to the appt. at 9:30 and they were still able to make a space and fit Matt for a brace for his left leg. Did lots of occupational therapy today where they do games and fit Matt for special equipment so he can do activities of daily living. They tried him out with a special pool cue attachment so he can play pool and also got him an automatic card shuffler. Played WII, which is a Nintendo game that needs actions to play. Tried the boxing and Matt was able to box with the right hand, also tried air hockey as well. Great game to increase his physical mobility. Thinking of purchasing one for Matt's birthday on Feb. 28th (21st birthday) but most places are sold out.
Matt's weight is at a whopping 175 lbs. Better then 162 I guess. It sure takes alot of calories to get that boy fat!! Rehab went well. They have started the neuromuscular stimulator on Matt's left elbow and hand, instead of just the bicep. Hopefully soon Matt will be able to bend his elbow and eventually be as good as his right. Tried standing again with the sit/stand machine. The first time Matt was dizzy so had to sit back down. The 2nd time was much better. He stands with his kness braced against the machine, so he is in a standing position. They asked him to move his right arm in front of his body and his left arm behind his body, so he could stretch his neck to look behind him. Did really well. Then while stilll standing, they asked him to pull his knees away from the machine and stand on his own, which he was able to do. This all lasted about 30 secs. Good work Matt!! The 3rd time he didn't stay up as long and the 4th time he was too tired and sat down quickly. What improvements already!! Wait until the brace is ready and then the left leg can take some of the workload.
Forgot to mention Matt finally received his own wheelchair, but they are still working out all the kinks. Lots of work to do before he can actually use it.
Believe Matt would have slept well last night because he was up so early and didn't nap all day. They are trying to cut down on his sleeping pills, but he still is up at night beause his mind won't turn off. But they will try and keep him so busy in the day that hopefully he willl sleep all night. Matt 11:28 "Come to me, all you who are weary and burdened, and I will give you rest."
Matt's weight is at a whopping 175 lbs. Better then 162 I guess. It sure takes alot of calories to get that boy fat!! Rehab went well. They have started the neuromuscular stimulator on Matt's left elbow and hand, instead of just the bicep. Hopefully soon Matt will be able to bend his elbow and eventually be as good as his right. Tried standing again with the sit/stand machine. The first time Matt was dizzy so had to sit back down. The 2nd time was much better. He stands with his kness braced against the machine, so he is in a standing position. They asked him to move his right arm in front of his body and his left arm behind his body, so he could stretch his neck to look behind him. Did really well. Then while stilll standing, they asked him to pull his knees away from the machine and stand on his own, which he was able to do. This all lasted about 30 secs. Good work Matt!! The 3rd time he didn't stay up as long and the 4th time he was too tired and sat down quickly. What improvements already!! Wait until the brace is ready and then the left leg can take some of the workload.
Forgot to mention Matt finally received his own wheelchair, but they are still working out all the kinks. Lots of work to do before he can actually use it.
Believe Matt would have slept well last night because he was up so early and didn't nap all day. They are trying to cut down on his sleeping pills, but he still is up at night beause his mind won't turn off. But they will try and keep him so busy in the day that hopefully he willl sleep all night. Matt 11:28 "Come to me, all you who are weary and burdened, and I will give you rest."
Tuesday, February 5, 2008
Left Hand Is Coming
Yesterday Matt didn't do quite as well as last week with the standing. With the infection, he felt nauseated when trying to stand and his body was spasaming so bad that they decided to wait until today. However he did really well with the arm exercises. A physio therapist who has been off for a week was suprised at the increased strength and mobility. Mom said when Matt tries to squeeze the putty with his left hand, he can leave very distinct hand print. When mom asked him to bend his fingers ande make a fist, he could almost close his hand, though not quite like you or I would. But definitely an improvement.
Today Matt was getting up early, 7am, to be fitted for a brace for his left leg, wo when he stands, his right leg isn't doing all the work. They are trying to fill Matt's days and keep him busy. A social worker had met with mom and Matt and praised him for his accomplishments so far, but encouraged Matt to try even harder. Sometimes it is easier to have someone do things for him, such as eating, brushing his teeth, etc. So from now on, Matt has to do as much as he can by himself, and when he feels tired, he has to keep going. So Matt, I know you feel you are giving alot, but think of it as an 8 hour working day and use TV as a treat, instead the main meal! Work for a half an hour to start, and only then can you watch TV for a half hour. Time yourself so you don't watch too much and get complacent. God has giving you so much, but he doesn't want to do all the work! Your a team and He'll give you the stregth you need if you ask for it. Psalms 18:35 "You give me your shield of victory, and your right hand sustains me; and stoop down to make me great."
Did some visiting yesterday. Met with the ICU staff for awhile, and then got to see Rocky, who is doing great. He only comes for rehab a few times a week so matt can visit with him.
Mom didn't mention anything, but I assume his breathing continues to go well. So Matt, prayers are with you that today will go well.
Today Matt was getting up early, 7am, to be fitted for a brace for his left leg, wo when he stands, his right leg isn't doing all the work. They are trying to fill Matt's days and keep him busy. A social worker had met with mom and Matt and praised him for his accomplishments so far, but encouraged Matt to try even harder. Sometimes it is easier to have someone do things for him, such as eating, brushing his teeth, etc. So from now on, Matt has to do as much as he can by himself, and when he feels tired, he has to keep going. So Matt, I know you feel you are giving alot, but think of it as an 8 hour working day and use TV as a treat, instead the main meal! Work for a half an hour to start, and only then can you watch TV for a half hour. Time yourself so you don't watch too much and get complacent. God has giving you so much, but he doesn't want to do all the work! Your a team and He'll give you the stregth you need if you ask for it. Psalms 18:35 "You give me your shield of victory, and your right hand sustains me; and stoop down to make me great."
Did some visiting yesterday. Met with the ICU staff for awhile, and then got to see Rocky, who is doing great. He only comes for rehab a few times a week so matt can visit with him.
Mom didn't mention anything, but I assume his breathing continues to go well. So Matt, prayers are with you that today will go well.
Sunday, February 3, 2008
Another Infection
Matt does have another infection however thank goodness it is not in his lungs, it is a urinary tract infection. They started him on a mild antibiotic but an infection and the pills always makes Matt feel rough. As mom puts it, it knocks the stufing right out of him. Told her to go a buy some cranberry pills, medical proven to help stop the infection beffore it happens.
Still going strong with the breathing exercises. No suctioning for almost 2 weeks and O2 Sats always above 95%. Talked to the respiratory therapist about removing the trach all together and we will just wait and see.
Matt was complaining today of his legs being stiff and sore. Kept asking mom to move his legs because they hurt. Finally figured out it was his hips that were sore from his exercises and standing. My hips hurt after standing for any length of time so I can imagine what Matt must be going through. That is alot for his atrophied (wasted) muscles to hold right now. Encougraged to to stretching exercises on the weekends to prevent them from stiffening up.
Mom is going to ask the doctor tomorrow to order a bone density scan. Matt needs it in order to be accepted in Project walk in San Diego. Still have some things to look into, because the cost for one month is more then some people make in 6 months. But need prayers on what the right path is to choose. Without His guidance we will just struggle for answers. Eccl. 7:13-14 "Consider what God has done; Who can straighten what he has made crooked? When times are good, be happy; but when times are bad, consider: God has made the one as well as the other. Therefore, a man cannot discover anything about his future."
The staff are trying to encourage Matt ot eat more by himself. However Matt does alright for awhile, but then when he gets tired, not only does he stop feeding himself, he doesn't feel like eating. So in a Catch 22 situation . We want Matt's weight to increase so need him to eat, but also want him to feed himself to strengthen his right arm. Bit of a balancing act needed. They are continuing to feed Matt through the tube feed every night. He gets 80 mls/hour for a total of 1000mls /night. They will weigh him on Tuesday and then reassess.
While I was talking to mom, here cell phone said she had another caller. It was dad. So I waited and when she came back on the line she told me it was Matt looking for his home made wings! Talk about pushy! Mom was on her way back to the hospital and was almost there. I am sure he times it so she won't stop to chat with anyone (not that it would happen, because mom is known for her shyness!). I take after her!
More good news to come, I am sure of it.
Still going strong with the breathing exercises. No suctioning for almost 2 weeks and O2 Sats always above 95%. Talked to the respiratory therapist about removing the trach all together and we will just wait and see.
Matt was complaining today of his legs being stiff and sore. Kept asking mom to move his legs because they hurt. Finally figured out it was his hips that were sore from his exercises and standing. My hips hurt after standing for any length of time so I can imagine what Matt must be going through. That is alot for his atrophied (wasted) muscles to hold right now. Encougraged to to stretching exercises on the weekends to prevent them from stiffening up.
Mom is going to ask the doctor tomorrow to order a bone density scan. Matt needs it in order to be accepted in Project walk in San Diego. Still have some things to look into, because the cost for one month is more then some people make in 6 months. But need prayers on what the right path is to choose. Without His guidance we will just struggle for answers. Eccl. 7:13-14 "Consider what God has done; Who can straighten what he has made crooked? When times are good, be happy; but when times are bad, consider: God has made the one as well as the other. Therefore, a man cannot discover anything about his future."
The staff are trying to encourage Matt ot eat more by himself. However Matt does alright for awhile, but then when he gets tired, not only does he stop feeding himself, he doesn't feel like eating. So in a Catch 22 situation . We want Matt's weight to increase so need him to eat, but also want him to feed himself to strengthen his right arm. Bit of a balancing act needed. They are continuing to feed Matt through the tube feed every night. He gets 80 mls/hour for a total of 1000mls /night. They will weigh him on Tuesday and then reassess.
While I was talking to mom, here cell phone said she had another caller. It was dad. So I waited and when she came back on the line she told me it was Matt looking for his home made wings! Talk about pushy! Mom was on her way back to the hospital and was almost there. I am sure he times it so she won't stop to chat with anyone (not that it would happen, because mom is known for her shyness!). I take after her!
More good news to come, I am sure of it.
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