I often would read the bible and learn of wonders that could not be fathomed and you think it will never happen to you. And now we can say that God does perform miracles everyday.
Today Matt was feeling really good this am and before mom and dad arrived they took Matt to rehab. They were so amazed by his previous stunt that they thought they would see what else he could do. They placed a belt around Matt's waist and 4 staff members helped Matt to a standing position in between the parallel bars (the kind you see when people are recovering from knee surgery for example and are retraining to walk after the cast removal). So after standing Matt up, they decided to let go. And wouldn't you know he stayed standing for 5 seconds all by himself!! The staff were there to steady him but Matt held all the weight on his legs (mostly the right) and his knees did not buckle. Matt, words cannot express how proud I am and so awed by God's grace. 7 months of not using your legs and very little exercise, you can imagine what it must be like on the body to do this. Matt was very light headed at first but he continued and did it 4 more times. Then he was literally exhauseted. But Matt you are getting so much stronger. He hasn't been suctioned for 9 days, he gets up earlier in his chair, his left side is moving easier, though very limited. When Paul, a fellow quad who works to improve the life af new quads met with Matt today, he was astonished. He has been working for over 20 years in Saskatoon and has never seen a c3c4 injury be as high functioning as Matt. The doctors are saying that Matt is making them rethink what they know about spinal cord injuries. Another person said he doesn't believe in divine intervention, but someone is sure looking out for Matt.
Matt, the Lord has put you in such a place to reach so many people. Psalms 34:6 'This poor man called, and the Lord heard him; he saved him out of all his troubles. The angel of the Lord encamps around those who fear him, and he delivers them."
Friday, February 1, 2008
Wednesday, January 30, 2008
On His Feet
Matt had a really good day. This is Day #6 with no suctioning and Matt is feeling great. The exciting thing was in rehab. They decided to try a new machine to see how Matt would do. It is a little complicated to explain, so forgive me if you don't quite understand. I haven't see it myself so I have to use my imagination.
This machine is different from the tilt table, where they strap Matt into it and tilt him into an upright position. He doesn't use his own muscles to do this, it is to see if he can handle the upright position without his blood pressure dropping.
So this "standing" machine looks like a hammock and Matt sits in this hammock/sling. They put straps around Matt's upper body so he won't fall out. In front of Matt is a table that he can rest his arms on that moves with the machine (hammock). Matt puts his feet on the floor on a blue sticky mat so his feet won't slide. So now Matt looks like he is sitting at a desk with his elbows and arms on the table. They slowly raise him up with the machine until Matt is almost in a standing position but his knees are slightly bent. Then the therapist asked Matt to use his arms, bum, and legs to push himself up the rest of the way. Matt was able to move about 3 inches off the hammock! Then he did it again 4 more times but stopped due to exhaustion. Way to go Matt! What a great feeling that must have been to put pressure on your feet for the first time in 7 months! And he had no dizzy spells or blood pressure dropping at all. Another plus!
I can't wait for mom to see him do this today and will give you feedback on her reaction later.
Signed Frosty the Snow-woman!
This machine is different from the tilt table, where they strap Matt into it and tilt him into an upright position. He doesn't use his own muscles to do this, it is to see if he can handle the upright position without his blood pressure dropping.
So this "standing" machine looks like a hammock and Matt sits in this hammock/sling. They put straps around Matt's upper body so he won't fall out. In front of Matt is a table that he can rest his arms on that moves with the machine (hammock). Matt puts his feet on the floor on a blue sticky mat so his feet won't slide. So now Matt looks like he is sitting at a desk with his elbows and arms on the table. They slowly raise him up with the machine until Matt is almost in a standing position but his knees are slightly bent. Then the therapist asked Matt to use his arms, bum, and legs to push himself up the rest of the way. Matt was able to move about 3 inches off the hammock! Then he did it again 4 more times but stopped due to exhaustion. Way to go Matt! What a great feeling that must have been to put pressure on your feet for the first time in 7 months! And he had no dizzy spells or blood pressure dropping at all. Another plus!
I can't wait for mom to see him do this today and will give you feedback on her reaction later.
Signed Frosty the Snow-woman!
Monday, January 28, 2008
Deep Freeze
Welcome to the Ice Age! It has finally hit Alberta with a vengeance! -50C with the wind chill this morning. However being a good Sask. girl I put on my ski-pants, 2 jackets, scarf, hat, mitts, Sorel boots. When I arrived at work the staff laughed! However I was warm and they were not. Practicality before fashion when winter comes knocking!
Continues to be cold in Sask. as well. Mat didn't have therapy because the staff couldn't make it. But dad still made Matt work. They bought some scratch and win tickets and dad wanted Matt to scratch it himself. So dad taped a fingernail file to Matt's right index finger, placed a flat surface on Matt's lap and placed the scratch and win ticket on the surface with fun tack (that blue stuff). Well Matt won, so they had to go back downstairs to buy another one. Wouldn't you know it Matt won again! So another trip downstairs. This went on for 3 hours!! Matt, having to scratch on his own got to be pretty tiring, but he kept on until he was finished. Matt also played crib and a game dad used to play when he was young called "High Q" . Not sure exactly what it is but it is a solitary game that consists of moving large pegs into holes, using different strategies until there is only one peg left. Good work Matt, you will have to teach me that one.
No suctioning for 5 days and counting!! What a blessing that is! Matt feels so much better today because the "internal" discomfort he was having has now been removed, so eating was again a thing of pleasure. I think back to how many days in a row Matt would feel terrible, and thank the Lord it isn't like that anymore. You've come a long way, baby! Psalms 92:4-5 "For you make me glad by your deeds, O Lord; I sing for joy at the works of your hands. How great are your works, O lord, how profound your thoughts."
Continues to be cold in Sask. as well. Mat didn't have therapy because the staff couldn't make it. But dad still made Matt work. They bought some scratch and win tickets and dad wanted Matt to scratch it himself. So dad taped a fingernail file to Matt's right index finger, placed a flat surface on Matt's lap and placed the scratch and win ticket on the surface with fun tack (that blue stuff). Well Matt won, so they had to go back downstairs to buy another one. Wouldn't you know it Matt won again! So another trip downstairs. This went on for 3 hours!! Matt, having to scratch on his own got to be pretty tiring, but he kept on until he was finished. Matt also played crib and a game dad used to play when he was young called "High Q" . Not sure exactly what it is but it is a solitary game that consists of moving large pegs into holes, using different strategies until there is only one peg left. Good work Matt, you will have to teach me that one.
No suctioning for 5 days and counting!! What a blessing that is! Matt feels so much better today because the "internal" discomfort he was having has now been removed, so eating was again a thing of pleasure. I think back to how many days in a row Matt would feel terrible, and thank the Lord it isn't like that anymore. You've come a long way, baby! Psalms 92:4-5 "For you make me glad by your deeds, O Lord; I sing for joy at the works of your hands. How great are your works, O lord, how profound your thoughts."
Sunday, January 27, 2008
To The Mall
When I phoned dad in the afternoon yesterday I asked to speak to Matthew. First dad had to catch up to him. I was a bit confused until he told me Matt, Nolan, and Lindsay were at the mall and had just went down in the elevator and dad was left holding the bag! Well actually the parcels they had purchased. so when dad finally handed the phone to Matt, I thought it was Nolan. His voice was so strong and he didn't have any difficulty talking at all. Matt had bought a heavy parka for himself and now they were off to have supper. And he can't talk and drive at the same time so was able to speak with dad again. When I asked how the start of the day was, Matt threw up for the first time in a few weeks. However it is hopefully soon rectified once he gets back to the hospital. "Full to the Brim" has a new meaning. I will speak to dad later today so will have more to write.
Friday, January 25, 2008
Tired muscles
Even though Matt's rehab yesterday was limited in the length of time, it was very productive and Matt was feeling sore today. Good!! That means you were working Matt. Tired also from being up in his chair for over 10 hours yesterday. Today was not quite as long, only 7 hours but that was good enough. Rehab consisted of putting the TENS machine on his left arm. It stimulates his muscle to contract and try to give the brain a memory of that arm moving. They didn't have to turn it up very high in order for it to contract, which is great. Also Matt "cycled" with his arms.Tomorrow it sounds like Nolan may take Matt to the mall and go for lunch, so good to rest up.
Matt's breathing is going great. Still haven't talked to him on the phone but Nolan said he sounds and looks so much better than he did at Christmas. Matt's cough is so much stronger he hasn't been suctioned for 2 days. Prayers that before discharge that trach comes out permanently. It will be so much easier on him and us. Suctioning is a time consuming endeavour and I don't like it!! It makes Matt cough so much and it hurts him as well. Travel will be much easier too. James 5:16 "Therefore confess your sins to each other and pray for each other so that you may be healed. The prayer of a righteous man is powerful and effective."
No throwing up for a while which is a definite bonus. Ate well at dinner and supper too. Pack on the pounds, Matt. I am sure there are many of us who would give you their "extra".
Matt's breathing is going great. Still haven't talked to him on the phone but Nolan said he sounds and looks so much better than he did at Christmas. Matt's cough is so much stronger he hasn't been suctioned for 2 days. Prayers that before discharge that trach comes out permanently. It will be so much easier on him and us. Suctioning is a time consuming endeavour and I don't like it!! It makes Matt cough so much and it hurts him as well. Travel will be much easier too. James 5:16 "Therefore confess your sins to each other and pray for each other so that you may be healed. The prayer of a righteous man is powerful and effective."
No throwing up for a while which is a definite bonus. Ate well at dinner and supper too. Pack on the pounds, Matt. I am sure there are many of us who would give you their "extra".
Thursday, January 24, 2008
New Trach
Wish I could have talked to Matt tonight but he was busy gallivanting around the hospital with friends. Spoke to dad and he stated that Matt had a new trach in yesterday, a smaller one with no cuff, so he can breathe much easier. Before when Matt would talk he would have to use his shoulder and abdominal muscles to breathe. Now dad says he looks more at ease. And his cough is so much more effective as well. Nolan and Lindsay went to visit Matt and are probably there already. Can't wait to talk to him and see what he thinks of Matt's improvements.
Rehab was limited today to just 1 hour, and they are really working on Matt to transfer. I had mentioned before if Matt could transfer he wouldn't need a lift to move him from the bed to the chair and vice versa. The physio had told dad that in the last few days Matt's right arm has gotten much stronger in all aspects, biceps, triceps etc. Keep up the good work Matt!! He played the game of "Sorry" and not sure how that turned out.
My cousin Shauna sent us an interesting website to look at from the states. It is called 'Project Walk", a facility where the motto is if you can feel, you can walk. If anyone wants to check it out it is www.projectwalk.org. A girl from Prince Albert is going in February after she suffered a C5 injury last July, I think. It is only in the states so might be an expense endeavour, but only time will tell. Prayers for continued guidance on God's pathway for Matt. Isaiah 58:11 "The Lord will guide you always; he will satisfy your needs in a sun-scorches land and will strengthen your frame. you will be like a well-watered garden, like a spring whose waters never fail."
Rehab was limited today to just 1 hour, and they are really working on Matt to transfer. I had mentioned before if Matt could transfer he wouldn't need a lift to move him from the bed to the chair and vice versa. The physio had told dad that in the last few days Matt's right arm has gotten much stronger in all aspects, biceps, triceps etc. Keep up the good work Matt!! He played the game of "Sorry" and not sure how that turned out.
My cousin Shauna sent us an interesting website to look at from the states. It is called 'Project Walk", a facility where the motto is if you can feel, you can walk. If anyone wants to check it out it is www.projectwalk.org. A girl from Prince Albert is going in February after she suffered a C5 injury last July, I think. It is only in the states so might be an expense endeavour, but only time will tell. Prayers for continued guidance on God's pathway for Matt. Isaiah 58:11 "The Lord will guide you always; he will satisfy your needs in a sun-scorches land and will strengthen your frame. you will be like a well-watered garden, like a spring whose waters never fail."
Wednesday, January 23, 2008
Tonight will be a quick blog, 6am comes quickly. Matt talked to his psychologist yesterday and said it went well, but won't tell us what was said. I guess he knows what a snoopy family we are and wants to keep some things private. He met with the activity worker and a fellow quadriplegic Paul Gustafson to discuss some hobbies or sports Matt could get involved in. During rehab Matt was able to be on his stomach again , and using his elbows could lift his head and neck up (like a baby does when first learning) for about 3 minutes. He can roll much quicker from the right to the left side while he is on the mat, however he cannot do it in the bed because the mattress is too soft. He can't pull his hips over so always needs help with that. When he is up on his elbows while on his stomach, he can push and move his body forward slightly, with minimal assistance, just to get him started.
Matt has dropped a few lbs, from 170 to 168. But when I spoke with dad he said they were at ICU and having salt and vinegar chips with ice tea. So I thought he meant at City ICU. No.. they are already visited there and were now at RUH ICU. Matt and dad braved the cold to go out visiting.
With occupational therapy, Matt ate a bowl of soup by himself just using a regular spoon. He finds it difficult to get the angle right and it takes a lot of work, but he perseveres. He also played checkers for a 1/2 hour, but I didn't find out who won. believe me if it was Matt, I would have heard about it so I can guess who lost!! Please pray for guidance for decisions that will have to be made regarding Matt' s future discharge. God has a perfect plan for all of us if we just let him take control. Romans 8:6 'The mind of a sinful man is death, but the mind controlled by the Spirit is life and peace."
Matt has dropped a few lbs, from 170 to 168. But when I spoke with dad he said they were at ICU and having salt and vinegar chips with ice tea. So I thought he meant at City ICU. No.. they are already visited there and were now at RUH ICU. Matt and dad braved the cold to go out visiting.
With occupational therapy, Matt ate a bowl of soup by himself just using a regular spoon. He finds it difficult to get the angle right and it takes a lot of work, but he perseveres. He also played checkers for a 1/2 hour, but I didn't find out who won. believe me if it was Matt, I would have heard about it so I can guess who lost!! Please pray for guidance for decisions that will have to be made regarding Matt' s future discharge. God has a perfect plan for all of us if we just let him take control. Romans 8:6 'The mind of a sinful man is death, but the mind controlled by the Spirit is life and peace."
Tuesday, January 22, 2008
Travelling Man
I had phoned dad yesterday morning to discuss some medications that he (dad) was prescribed, but he wasn't able to speak with me. They were getting Matt loaded up into the cab to take him to the movies! So last night mom phoned to update me on Matt's day. She doesn't know what movie he went to, but they took him to the mall on 8th and Acadia with another rehab patient. Matt really seemed to enjoy it. Mom was able to talk to Matt on the phone and he is sounding stronger and he doesn't struggle to talk so much. Matt's breathing has improved with his exercises. Last week he could do 2 sets of 5 repetitions, so he could do it total of 10 times. Now he can do 5 sets of 5 repetitions, which equals 25 times. That was doing it once a day, now he has to increase to twice a day.
Matt told mom he was eating better, but they increased his tube feed to 80 mls per hour instead of 60 mls. Their goal weight for him is 190 lbs. We won't know how he is progressing until his next bath when they weigh him. Matt was already pre-ordering what he wants mom to make and bring with her when she returns. Homemade pre-cooked fries, pork chops, ribs with the bones in etc. Not to found of the stew so that is out.
I have another funny story about Matt. It involves Nolan as well. When Matt was about 7 years old and Nolan 9, they were playing outside while we were busy cleaning the house. Soon Nolan came in to watch TV. We asked where Matt was, and Nolan replied he was still outside. We didn't think much of it until 1/2 hour had passed and Matt hadn't come in. So we went outside to look for him. You could say he was"tied up" with playing...Literally. Here was poor Matt tied to a tree with a sock in his mouth!! Needless to say, after we had rescued Matt we proceeded to look for Nolan. Where did we find him? Hiding under his bed! I think he knew what was going to happen. But Matt was upset with us, because he wanted to play with his brother!! Talk about forgiveness! Ephesians 4:32 "Be kind and compassionate to one another, forgiving each other, just as in Christ God forgave you."
Matt told mom he was eating better, but they increased his tube feed to 80 mls per hour instead of 60 mls. Their goal weight for him is 190 lbs. We won't know how he is progressing until his next bath when they weigh him. Matt was already pre-ordering what he wants mom to make and bring with her when she returns. Homemade pre-cooked fries, pork chops, ribs with the bones in etc. Not to found of the stew so that is out.
I have another funny story about Matt. It involves Nolan as well. When Matt was about 7 years old and Nolan 9, they were playing outside while we were busy cleaning the house. Soon Nolan came in to watch TV. We asked where Matt was, and Nolan replied he was still outside. We didn't think much of it until 1/2 hour had passed and Matt hadn't come in. So we went outside to look for him. You could say he was"tied up" with playing...Literally. Here was poor Matt tied to a tree with a sock in his mouth!! Needless to say, after we had rescued Matt we proceeded to look for Nolan. Where did we find him? Hiding under his bed! I think he knew what was going to happen. But Matt was upset with us, because he wanted to play with his brother!! Talk about forgiveness! Ephesians 4:32 "Be kind and compassionate to one another, forgiving each other, just as in Christ God forgave you."
Sunday, January 20, 2008
Quiet and Cold
Whew!! Can't believe how cold Saskatchewan is. Was at Jacki's over the weekend and we where complaining because the windchill made it -17. What a bunch of babies we have become!
Matt's weekend was quiet, but had lots of company. When I talked to Matt tonight, I asked him what he was up to and said he was sitting in the chair watching TV. I then asked what dad was doing... Matt replied "laying in my bed". However dad did have to help Matt with the phone occasionally because his arm would get tired.
Matt has been doing breathing exercises to strengthen his lungs. He has to breathe in and hold it for as long as he can. It is a special device dad has to hold for him. Matt doesn't like it too much because it is difficult for him and he gets tired quickly, but he keeps at it whenever he can.
When I talked to Matt, he is still concerned about his left hand. So please pray tonight that his left hand will get motivated and start to perform. If he had his left hand, he would be able to transfer from a wheelchair to a bed more easily, turn in bed, and eventually Matt would not need a motorized wheelchair, he could "downgrade" to one he moves himself. Psalms 32:10 "Many are the woes of the wicked, but the Lord's unfailing love surrounds the man who trusts in him."
Matt's weekend was quiet, but had lots of company. When I talked to Matt tonight, I asked him what he was up to and said he was sitting in the chair watching TV. I then asked what dad was doing... Matt replied "laying in my bed". However dad did have to help Matt with the phone occasionally because his arm would get tired.
Matt has been doing breathing exercises to strengthen his lungs. He has to breathe in and hold it for as long as he can. It is a special device dad has to hold for him. Matt doesn't like it too much because it is difficult for him and he gets tired quickly, but he keeps at it whenever he can.
When I talked to Matt, he is still concerned about his left hand. So please pray tonight that his left hand will get motivated and start to perform. If he had his left hand, he would be able to transfer from a wheelchair to a bed more easily, turn in bed, and eventually Matt would not need a motorized wheelchair, he could "downgrade" to one he moves himself. Psalms 32:10 "Many are the woes of the wicked, but the Lord's unfailing love surrounds the man who trusts in him."
Saturday, January 19, 2008
Thanks for all the support
Thanks to all for continued support of Matt and our family. Sometimes you feel like your in a bubble alone and it feels great when the bubble pops! Matt had a pretty good day. He bounces back so well from everything. Dad arrived at 1:30 pm and was glad to see Matt looking so chipper. Matt's day consisted of a bath, stretches, 3/4 hour on the mat, 1/2 in the gym, and an outing to Tim Horton's for coffee! Wish it wasn't so cold in Sask. but managed it anyway. Went by cab and really enjoyed it.
Dad said Matt had so much company from home that by the evening he was feeling pretty tired. Matt had also been up since 7 am and didn't nap much during the day. But when Kristen brought Matt some KFC, he seemed to bounce back! He ate most of the chicken, fries, and the drink by himself. However Kristen helped him with the last piece just so he could rest his arm. Thank you Lord for your continued hand upon Matt. Psalms 145:14 "The Lord upholds all those who fall and lifts up all who are bowed down."
Another funny story about Matt came to mind while I was watching my daughter Shaunie. When Matt was learning to use the potty, he would whip his pants down 50 feet from the bathroom and waddle like a penguin the rest of the way. Thought it was quite funny until he started kindergarten and I was in Grade 12 and seen him coming down the hallway with "everything" on display because he needed to use the washroom. You should have seen me run that day1 Now my daughter does the same thing! Thanks for passing that on, Matt!
Dad said Matt had so much company from home that by the evening he was feeling pretty tired. Matt had also been up since 7 am and didn't nap much during the day. But when Kristen brought Matt some KFC, he seemed to bounce back! He ate most of the chicken, fries, and the drink by himself. However Kristen helped him with the last piece just so he could rest his arm. Thank you Lord for your continued hand upon Matt. Psalms 145:14 "The Lord upholds all those who fall and lifts up all who are bowed down."
Another funny story about Matt came to mind while I was watching my daughter Shaunie. When Matt was learning to use the potty, he would whip his pants down 50 feet from the bathroom and waddle like a penguin the rest of the way. Thought it was quite funny until he started kindergarten and I was in Grade 12 and seen him coming down the hallway with "everything" on display because he needed to use the washroom. You should have seen me run that day1 Now my daughter does the same thing! Thanks for passing that on, Matt!
Friday, January 18, 2008
Blue Day
I could have written last night but was feeling blue regarding some news Matt received yesterday so I decided things always look brighter in the morning so I waited. Matt and mom attended a "Family Conference" to talk about the plans for Matt. They kept asking Matt what he wanted to do when he was discharged and what his plans are. He would just say "I want to feel better". So for now the discharge date from rehab is Feb. 29 (one day after his 21st birthday). They meeting was very discouraging because they feel that they have taken Matt as far as he will go and that he hasn't progressed in the last month. They really pointed at the fact that when we took him home, it was against their wishes and we had set him back. After the meeting Matt was feeling like a burden, that recovery may very well be impossible. I have a few things to say to you Matt. They are just human, and no one knows what the future will hold. Ephesians 6 tells us to put on the full armor of God, take up your shield of faith, because faith in the Lord gives you hope. He has done so much for you Matty, sometimes it seems so long ago that we forget.
And in regards of Matthew not progressing this last month, he can now write his name, not just print it, he plays Sudoku?(not sure how to spell it) and fill in the letter spaces himself, he can lift his right leg off the bed for a few seconds, and is gaining strength in his left arm. So Matt, you do not have to feel like there is no progress. But you do not have to do it yourself. Call on Him for the strength to continue, and every time you have rehab, ask him to carry you past the moment of stopping. Show them what the Lord and you can do together. Ephesians 6:16-18 "...take up the shield of faith, with which you can extinguish all the flaming arrows of the evil one. Take the helmet of salvation and the sword of God. And pray in the Spirit on all occasions with all kinds of prayers and requests."
And in regards of Matthew not progressing this last month, he can now write his name, not just print it, he plays Sudoku?(not sure how to spell it) and fill in the letter spaces himself, he can lift his right leg off the bed for a few seconds, and is gaining strength in his left arm. So Matt, you do not have to feel like there is no progress. But you do not have to do it yourself. Call on Him for the strength to continue, and every time you have rehab, ask him to carry you past the moment of stopping. Show them what the Lord and you can do together. Ephesians 6:16-18 "...take up the shield of faith, with which you can extinguish all the flaming arrows of the evil one. Take the helmet of salvation and the sword of God. And pray in the Spirit on all occasions with all kinds of prayers and requests."
Wednesday, January 16, 2008
Big Fatty! We wish!
Well Matt, the tube feeds must be doing something because you have gained 10 lbs in 8 days. They are continuing on the tube feed at night, but he is also eating better again. He doesn't eat breakfast but that will come. So Matt, keep on filling your face. I remember Matt as a little guy eating his meals. He would put his face down by his plate, open his mouth and shovel it in.
Mom and Matt were able to see the neatest wheelchair. It is from Europe and costs $30,000 but it has everything , Matt could even stand up in it. We are looking into having Telemiracle possibly paying for a portion and we would cough up the rest.
Yesterday went to visit the staff from ICU. Rehab went well. Matt did something new that he hasn't been able to do for 7 months. He laid on his stomach, maybe not the same way we do but they have to protect the trach site. Matt has to have his elbows bent and hands beside his head, and he is holding his head up for a short period of time. Then they get him to rock back and forth to strengthen his neck. Hard to explain but hopefully will see it one day. Everything seems to be gaining in strength but Matt is still mad at his left hand and lack of movement. The doctor is encouraging him to think of what Matt has, not what he doesn't have. Matt is not having as many spasms as much as he was having at Christmas. He was even able to get a nice massage, however it hurt a bit because that nasty knot is back. And Matt had trouble sleeping because he had a burning sensation in his right foot. The nerve endings are trying to retrieve signals from the brain but they are not coming through properly so causes him pain.
Lots of company today. Few black rings under his eyes but is feeling better. 2 more days of antibiotics and then he will be done. Tonight he was having trouble breathing, was having a hard time talking on the phone. So the RT came and suctioned Matt for large amount of phlegm, so doing better. It doesn't appear that the trach will be taken out any time soon, I think they are worried if Matt has more respiratory problem. It would be nice if it was removed because next weekend they are hoping Matt can go home for a few days. They are encouraging mom and dad to take Matt out somewhere at least every second weekend. So Matt is looking forward to that.
Mom is returning to work tomorrow so dad is coming in as a replacement. She will be there for the Family meeting which is great. Prayers that Matt will be infection free for a week and continue to gain weight. Go Matt Go!! Psalms 20:6 "Now I know the Lord saves his anointed; he answers him from his holy heaven with the saving power of his right hand."
Mom and Matt were able to see the neatest wheelchair. It is from Europe and costs $30,000 but it has everything , Matt could even stand up in it. We are looking into having Telemiracle possibly paying for a portion and we would cough up the rest.
Yesterday went to visit the staff from ICU. Rehab went well. Matt did something new that he hasn't been able to do for 7 months. He laid on his stomach, maybe not the same way we do but they have to protect the trach site. Matt has to have his elbows bent and hands beside his head, and he is holding his head up for a short period of time. Then they get him to rock back and forth to strengthen his neck. Hard to explain but hopefully will see it one day. Everything seems to be gaining in strength but Matt is still mad at his left hand and lack of movement. The doctor is encouraging him to think of what Matt has, not what he doesn't have. Matt is not having as many spasms as much as he was having at Christmas. He was even able to get a nice massage, however it hurt a bit because that nasty knot is back. And Matt had trouble sleeping because he had a burning sensation in his right foot. The nerve endings are trying to retrieve signals from the brain but they are not coming through properly so causes him pain.
Lots of company today. Few black rings under his eyes but is feeling better. 2 more days of antibiotics and then he will be done. Tonight he was having trouble breathing, was having a hard time talking on the phone. So the RT came and suctioned Matt for large amount of phlegm, so doing better. It doesn't appear that the trach will be taken out any time soon, I think they are worried if Matt has more respiratory problem. It would be nice if it was removed because next weekend they are hoping Matt can go home for a few days. They are encouraging mom and dad to take Matt out somewhere at least every second weekend. So Matt is looking forward to that.
Mom is returning to work tomorrow so dad is coming in as a replacement. She will be there for the Family meeting which is great. Prayers that Matt will be infection free for a week and continue to gain weight. Go Matt Go!! Psalms 20:6 "Now I know the Lord saves his anointed; he answers him from his holy heaven with the saving power of his right hand."
Monday, January 14, 2008
Home cooked meals
Matt continues on the tube feeds at night, however he is also eating better especially in the evenings. And who could blame him? Mom has been bringing him home cooked meals she had prepared when she was in Weekes. Pizza, stew, chili, etc. Tonight for supper he received a good meal from the hospital but the big baby wanted mom's cooking. However mom makes him work for it. He must turn the pages of his book himself.
Sat up in his chair for 9 hours today and even had a siesta for an hour in the afternoon. Mom finally convinced him to take an Advil for his sore neck because Matt is starting to really dislike taking so many meds. They had Matt quite busy and was able to meet with some players from the paraplegic basketball team. Matt will start attending a support group that is run through the hospital. However after Matt met with 2 psychiatrists, one for a follow-up from RUH and another from City, they think he is doing great. They just can't figure out why he is so positive. And I asked Matt what do they expect, for him to swear, bite, or hit? Actually they do expect that but Matt just replied"Oh, I could never do that". God always amazes me that he provides the much needed inner strength to those who need it the most. He paved the way for Matt, that Matt would arise to the challenges he is facing with dignity and grace. He got it all from me!! And Jacki, stop laughing, it is true!! Actually the following verses give a true picture. 2 Cor. 4;7-8 "But we have this treasure in jars of clay to show that this all-surpassing power is from God and not from us. We are hard pressed on every side, but not crushed; perplexed, but not on despair; persecuted, but not abandoned; struck down, but not destroyed."
Sat up in his chair for 9 hours today and even had a siesta for an hour in the afternoon. Mom finally convinced him to take an Advil for his sore neck because Matt is starting to really dislike taking so many meds. They had Matt quite busy and was able to meet with some players from the paraplegic basketball team. Matt will start attending a support group that is run through the hospital. However after Matt met with 2 psychiatrists, one for a follow-up from RUH and another from City, they think he is doing great. They just can't figure out why he is so positive. And I asked Matt what do they expect, for him to swear, bite, or hit? Actually they do expect that but Matt just replied"Oh, I could never do that". God always amazes me that he provides the much needed inner strength to those who need it the most. He paved the way for Matt, that Matt would arise to the challenges he is facing with dignity and grace. He got it all from me!! And Jacki, stop laughing, it is true!! Actually the following verses give a true picture. 2 Cor. 4;7-8 "But we have this treasure in jars of clay to show that this all-surpassing power is from God and not from us. We are hard pressed on every side, but not crushed; perplexed, but not on despair; persecuted, but not abandoned; struck down, but not destroyed."
Sunday, January 13, 2008
Apologies for not writing for awhile. So a little update is needed. Friday was uneventful. Matt had the tube feed on for 12 hours during the night at 40 mls/hour. However by Friday night they decided to increase it to 60 mls/hour. Matt's appetite is just not what it should be because of the lung infection and the antibiotics he is on. They started Matt on intravenous Penicillin and he also takes oral antibiotics as well. Dad went home for a break and is booked for a Dr's appt on Tuesday to see what is happening. Rehab wasn't overly productive because of Matt's weakness from the infection. However I do have a funny story to write, even though I promised mom I wouldn't. She is in Saskatoon, I in Red Deer, what can she do?! Mom helps Matt do leg exercises in bed. She bends those long legs and holds his knees together. Then she places her hands on the outside of his legs and gets him to push against her hands. To finish off he must pull his legs back together. However the clincher is that mom was unable to get her head back in time and he caught her in a WWF style headlock with his legs!! She couldn't get out, his legs were quite strong. So mom, for Matt's sake you have to do that everyday!! Just think of how strong he would get!
Saturday Matt was feeling better. At least he didn't have the dark circles under his eyes anymore. He stayed up in his chair and was feeling rather tired and wanting to go back to bed, but company came from Weekes and he immediately perked up and stayed in his chair for 5 hours. Matt ate better in the evening, which he generally does and didn't become sick. Regarding his trach, they decided not to keep Matt "capped" at night. That means the trach is left open and moisture and oxygen are attached to keep his secretions from getting too thick. Hopefully this will make him sleep better and be ready for the oncoming day. Thanks to all who come and visit and bring a little cheer into Matt's hospital stay. God provides comfort to his people so they in turn can provide comfort to others. 2 Cor. 1:3-4 "Praise be to the God and Father of our Lord Jesus Christ, the Father of compassion and the God of all comfort, who comforts us in all our troubles, so that we can comfort those in any trouble with the comfort we ourselves have received from God." That is a lot of comfort!!
Saturday Matt was feeling better. At least he didn't have the dark circles under his eyes anymore. He stayed up in his chair and was feeling rather tired and wanting to go back to bed, but company came from Weekes and he immediately perked up and stayed in his chair for 5 hours. Matt ate better in the evening, which he generally does and didn't become sick. Regarding his trach, they decided not to keep Matt "capped" at night. That means the trach is left open and moisture and oxygen are attached to keep his secretions from getting too thick. Hopefully this will make him sleep better and be ready for the oncoming day. Thanks to all who come and visit and bring a little cheer into Matt's hospital stay. God provides comfort to his people so they in turn can provide comfort to others. 2 Cor. 1:3-4 "Praise be to the God and Father of our Lord Jesus Christ, the Father of compassion and the God of all comfort, who comforts us in all our troubles, so that we can comfort those in any trouble with the comfort we ourselves have received from God." That is a lot of comfort!!
Thursday, January 10, 2008
Much Better
Yesterday Matt was feeling better, still not eating as much but his spirits have improved. Had some visitors from PP who were able to watch Matt "work out" in the gym. Then the occupational therapist played a game with Matt called "Connect Four". It is similar to checkers but it stands upright. Matt won that game however Devin challenged Matt to a game. When it seemed quite apparent the Matt would have to concede defeat, he quickly flicked the game to remove all the chips, so Matt, you are still a poor loser!! When we would play games when he was small, the crying that would go on because he had lost was something to behold, and of course the more we laughed the worse he got.
Dad was getting quite concerned about Matt's weight loss and lack of appetite. He discussed with the dietitian some of the food Matt likes and dislikes. At the beginning of the week, mom or dad fill out a card to say what is offered each day and some choices are available. However 90% of the time he never gets what he ordered. So hopefully the discussion with the dietitian will help matters. Because of the concern, they decided to put Matt back on the tube feeds at night. It isn't really a step back if it will help him regain strength and weight. Thank goodness they didn't take the tube feed out.
Mom arrived from her long hiatus from Matt tonight at 8pm. She observed a noticeable difference in the ease of movement for his right hand and arm. Also the left fingers continue to twitch, which is still hopeful. Also his right leg movements are somewhat stronger and he is having less spasms. We realize that Matt's improvement would be better if he had some private physiotherapy that could come when he feels at his best, say in the evening. So mom said she would look into it. Prayers that if this is the right decision, that things will work out, and that God will lead the way. Proverbs 3:7 "Do not be wise in your own eyes; fear the Lord and shun evil. This will bring health to your body and nourishment to your bones."
Dad was getting quite concerned about Matt's weight loss and lack of appetite. He discussed with the dietitian some of the food Matt likes and dislikes. At the beginning of the week, mom or dad fill out a card to say what is offered each day and some choices are available. However 90% of the time he never gets what he ordered. So hopefully the discussion with the dietitian will help matters. Because of the concern, they decided to put Matt back on the tube feeds at night. It isn't really a step back if it will help him regain strength and weight. Thank goodness they didn't take the tube feed out.
Mom arrived from her long hiatus from Matt tonight at 8pm. She observed a noticeable difference in the ease of movement for his right hand and arm. Also the left fingers continue to twitch, which is still hopeful. Also his right leg movements are somewhat stronger and he is having less spasms. We realize that Matt's improvement would be better if he had some private physiotherapy that could come when he feels at his best, say in the evening. So mom said she would look into it. Prayers that if this is the right decision, that things will work out, and that God will lead the way. Proverbs 3:7 "Do not be wise in your own eyes; fear the Lord and shun evil. This will bring health to your body and nourishment to your bones."
Tuesday, January 8, 2008
Another Bad Day
Before I get started, I would just like to thank the person who wrote the devotional message on the comments. We are very much in a world that tells us we must take control of our lives and change what is wrong. The difficulty in doing that is we are unsure of ourselves and often make the wrong choices. It was mentioned that God didn't make us strong, he made us vulnerable so we would turn to him. 1Cor. 1:25 "For the foolishness of God is wiser than man's wisdom, and the weakness of God is stronger than man's strength."
While speaking with dad tonight, he wanted to let me know that Matt's day yesterday wasn't all about eating. He actually only ate until 5 pm and then didn't eat again until tonight at 5 pm. So 24 hours without food isn't great. Matt weighed 174 lbs in November. Then pneumonia hit and the weight plummeted to 165 lbs. The weight today was 162 lbs. That is one skinny man. However Matt hit a record yesterday of being up in his chair for 10 hours, but it may have been too much as today he could hardly stay in his chair for 3 hours and just wanted to lay down. Rehab was very unsuccessful. They took one look at Matt's peaked and pale face and knew it was not a day for miracles. The doctors ordered x-rays of Matt's chest for tomorrow to see if another infection is taking hold. When they suctioned Matt it was very thick, which makes it difficult for Mattt to cough it up on his own. Thank goodness there is no fever at present and prayers that it stays that way.
I believe Matt is just so tired of being sick. He knows that rehab is so important and feels frustrated when he is unable to do it. Prayers that God will guide the physicians and nurses in discovering what bothers Matt's appetite so bad and that Matt will gain weight from now on.
2 Samuel 22:7 "In my distress I called to the Lord; I called out to my God. From his temple he heard my voice; my cry came to his ears."
While speaking with dad tonight, he wanted to let me know that Matt's day yesterday wasn't all about eating. He actually only ate until 5 pm and then didn't eat again until tonight at 5 pm. So 24 hours without food isn't great. Matt weighed 174 lbs in November. Then pneumonia hit and the weight plummeted to 165 lbs. The weight today was 162 lbs. That is one skinny man. However Matt hit a record yesterday of being up in his chair for 10 hours, but it may have been too much as today he could hardly stay in his chair for 3 hours and just wanted to lay down. Rehab was very unsuccessful. They took one look at Matt's peaked and pale face and knew it was not a day for miracles. The doctors ordered x-rays of Matt's chest for tomorrow to see if another infection is taking hold. When they suctioned Matt it was very thick, which makes it difficult for Mattt to cough it up on his own. Thank goodness there is no fever at present and prayers that it stays that way.
I believe Matt is just so tired of being sick. He knows that rehab is so important and feels frustrated when he is unable to do it. Prayers that God will guide the physicians and nurses in discovering what bothers Matt's appetite so bad and that Matt will gain weight from now on.
2 Samuel 22:7 "In my distress I called to the Lord; I called out to my God. From his temple he heard my voice; my cry came to his ears."
Sunday: Matt had a tough day on Sunday. Nothing was going well. Everything was bothering him and his neck was really sore. He did not eat anything all day. Dad was feeling bad for Matt and the nurse finally told dad to go home, take a break, and the staff would feed Matt when he got up from his afternoon nap. She said knowing Matt he was just having an off day, and would bounce right back tomorrow. Sure enough that is just what happened. However it is good to know that Matt has far fewer psychological "off" days than others in his position, so he is still pretty positive.
Monday: Matt really picked up today. By the time dad got there in the morning he was up in his chair wanting to eat! And he didn't stop eating all day. The occupational therapist worked with Matt in his room playing games and watching how he could brush his teeth and wash his face. She tried a peg board with small dime size pieces that he had to move, and he did very well. After lunch the physio therapist took Matt to the mat to assess his functional capacity again, just to see if there was any difference from the last one he had before Christmas. tThey stated Matt was gaining in what he could do, that his strength was improving however slowly.
Thanks again to everyone who comes to visit and writes on the blog. Also a great big heartfelt thank you to all who came Dec. 29th hockey game in Porcupine. It was so great for Matt not to think of hospitals and rehab for a short while and it lifted his spirits. We are unsure of the final tally but it was well over $5000. It is a real blessing and can help in so many ways.
Proverbs 18:16 "A gift opens the way for the giver and ushers him into the presence of the great."
Monday: Matt really picked up today. By the time dad got there in the morning he was up in his chair wanting to eat! And he didn't stop eating all day. The occupational therapist worked with Matt in his room playing games and watching how he could brush his teeth and wash his face. She tried a peg board with small dime size pieces that he had to move, and he did very well. After lunch the physio therapist took Matt to the mat to assess his functional capacity again, just to see if there was any difference from the last one he had before Christmas. tThey stated Matt was gaining in what he could do, that his strength was improving however slowly.
Thanks again to everyone who comes to visit and writes on the blog. Also a great big heartfelt thank you to all who came Dec. 29th hockey game in Porcupine. It was so great for Matt not to think of hospitals and rehab for a short while and it lifted his spirits. We are unsure of the final tally but it was well over $5000. It is a real blessing and can help in so many ways.
Proverbs 18:16 "A gift opens the way for the giver and ushers him into the presence of the great."
Sunday, January 6, 2008
Quiet Weekend
Not sure what happened today. We had company and they left a short while ago and didn't want to phone dad so late. Also Jacki and the kids were here for a late Christmas celebration. The kids were so excited to get more presents!
Yesterday Matt was able to get his TV hooked up again right before the Canada/Sweden game. Good thing Canada won! Matt had some relatives for company and since there is no rehab on the weekends, it was pretty quiet. The big concern with Matt is is inability to gain weight. He is so sensitive to coughing spells, and any change in body routine sets him feeling nauseated. So prayers that this will pass and we can start beefing him up to increase his strength. Matt also had some trouble breathing but was relieved quickly. Lamentations 3:22 "Because of the Lord's great love we are not consumed, for his compassions never fail. They are new every morning; great is your faithfulness."
Dad was feeling much better so I think he was able to visit better with Matt. Hopefully have some more exciting news tomorrow.
Yesterday Matt was able to get his TV hooked up again right before the Canada/Sweden game. Good thing Canada won! Matt had some relatives for company and since there is no rehab on the weekends, it was pretty quiet. The big concern with Matt is is inability to gain weight. He is so sensitive to coughing spells, and any change in body routine sets him feeling nauseated. So prayers that this will pass and we can start beefing him up to increase his strength. Matt also had some trouble breathing but was relieved quickly. Lamentations 3:22 "Because of the Lord's great love we are not consumed, for his compassions never fail. They are new every morning; great is your faithfulness."
Dad was feeling much better so I think he was able to visit better with Matt. Hopefully have some more exciting news tomorrow.
Friday, January 4, 2008
Parking Ticket
Just got off the phone with dad. He was just getting into the truck when he noticed a parking ticket on his windshield. The main parking lot has been so full the last 2 months he had been parking on the side streets and walking to the hospital. He has been physically unwell for awhile now and today was really bad, so a ticket was the icing on the cake. But what can you do?
Matt is feeling so much better. He was quite constipated and now he is "all cleaned out". His breathing is easier and he was able to sit up in his chair for 8 hours today. Rehab was productive and they are trying different ways to see how Matt can help transferring himself from the bed to the wheelchair. He is still so weak and has lost some weight again from loss of appetite, so it may take some time to build up those muscles. Tonight the menu was Salisbury steak and it was really good. Rehab has been encouraging Matt to eat as much as he can on his own and he does fairly well for a short period of time. However dad was finishing feeding Matt when he throw up all his meal. He has this annoying dry cough and and that's is, everything comes up. So I suggested to dad to buy some Vick's and rub it on the soles of Matt's feet and give him a teaspoon of honey after he eats to coat the throat. It may sound crazy but whenever the girls are sick and they are coughing, I do that every night and it works! Just ask my cousin Shauna, she thought I was crazy until she tried it on Jada. So dad will pick it up in the morning before going to see Matt.
Today dad was a bit shocked when they got back to the room after occupational therapy and the TV was disconnected. Not sure what happened but hopefully they will get it worked out tomorrow. Matt has not been asked to pay for the TV since he got to the hospital, so I guess they decided it was time to start charging. So tonight he is watching "Pirates of the Caribbean" the new one, but unfortunately he missed the hockey game. Need to get the TV up and running for the Canada /Sweden game tomorrow.
Prayers for that left arm and hand to start working to make the transfers easier and that the trach can be removed sometime this month. Luke 11:9-10 "So I say to you; Ask and it will be given to you; seek and you will find; knock and the door will be opened to you. For everyone who asks receives; he who seeks finds; and to him who knocks, the door will be opened."
Matt is feeling so much better. He was quite constipated and now he is "all cleaned out". His breathing is easier and he was able to sit up in his chair for 8 hours today. Rehab was productive and they are trying different ways to see how Matt can help transferring himself from the bed to the wheelchair. He is still so weak and has lost some weight again from loss of appetite, so it may take some time to build up those muscles. Tonight the menu was Salisbury steak and it was really good. Rehab has been encouraging Matt to eat as much as he can on his own and he does fairly well for a short period of time. However dad was finishing feeding Matt when he throw up all his meal. He has this annoying dry cough and and that's is, everything comes up. So I suggested to dad to buy some Vick's and rub it on the soles of Matt's feet and give him a teaspoon of honey after he eats to coat the throat. It may sound crazy but whenever the girls are sick and they are coughing, I do that every night and it works! Just ask my cousin Shauna, she thought I was crazy until she tried it on Jada. So dad will pick it up in the morning before going to see Matt.
Today dad was a bit shocked when they got back to the room after occupational therapy and the TV was disconnected. Not sure what happened but hopefully they will get it worked out tomorrow. Matt has not been asked to pay for the TV since he got to the hospital, so I guess they decided it was time to start charging. So tonight he is watching "Pirates of the Caribbean" the new one, but unfortunately he missed the hockey game. Need to get the TV up and running for the Canada /Sweden game tomorrow.
Prayers for that left arm and hand to start working to make the transfers easier and that the trach can be removed sometime this month. Luke 11:9-10 "So I say to you; Ask and it will be given to you; seek and you will find; knock and the door will be opened to you. For everyone who asks receives; he who seeks finds; and to him who knocks, the door will be opened."
Wednesday, January 2, 2008
Keep The Faith
Was able to speak with mom for a few minutes tonight. Matt missed his physio this am because they felt Matt needed a good "cleaning out" before getting him up in his chair. I beg to differ, physio should come before that other stuff but he was able to go to the gym for the afternoon session. We as a family realize the huge amount of physio needed to get Matt up walking again, it isn't easy to exercise that 6 foot 7 inch frame! But we truly believe it is attainable, so prayers that those working with him will come to realize it as well. Job 12:13 "To God belong wisdom and power; counsel and understanding are his." If we could just glimpse at what God has in store and to see what He can see would ease our worries and anxiety. But Hebrews 11:1 states"Now faith is being sure of what we hope for and certain of what we do not see."
Matt said he is feeling better and they now think his lung infection was caused by a virus, not a bacterial infection, so antibiotics will not help. However to be on the safe side they decided to give him antibiotics anyway orally. The medication usually makes him nauseated but he managed to eat most of his meals in spite of the meds side effects.
Matt, even though we are not with you physically, as Jonmarie puts it, you are always in our hearts. Keep the faith Matt. Cheerleaders form across the globe are praying for you.
Matt said he is feeling better and they now think his lung infection was caused by a virus, not a bacterial infection, so antibiotics will not help. However to be on the safe side they decided to give him antibiotics anyway orally. The medication usually makes him nauseated but he managed to eat most of his meals in spite of the meds side effects.
Matt, even though we are not with you physically, as Jonmarie puts it, you are always in our hearts. Keep the faith Matt. Cheerleaders form across the globe are praying for you.
Subscribe to:
Posts (Atom)
