Sunday: Matt had a tough day on Sunday. Nothing was going well. Everything was bothering him and his neck was really sore. He did not eat anything all day. Dad was feeling bad for Matt and the nurse finally told dad to go home, take a break, and the staff would feed Matt when he got up from his afternoon nap. She said knowing Matt he was just having an off day, and would bounce right back tomorrow. Sure enough that is just what happened. However it is good to know that Matt has far fewer psychological "off" days than others in his position, so he is still pretty positive.
Monday: Matt really picked up today. By the time dad got there in the morning he was up in his chair wanting to eat! And he didn't stop eating all day. The occupational therapist worked with Matt in his room playing games and watching how he could brush his teeth and wash his face. She tried a peg board with small dime size pieces that he had to move, and he did very well. After lunch the physio therapist took Matt to the mat to assess his functional capacity again, just to see if there was any difference from the last one he had before Christmas. tThey stated Matt was gaining in what he could do, that his strength was improving however slowly.
Thanks again to everyone who comes to visit and writes on the blog. Also a great big heartfelt thank you to all who came Dec. 29th hockey game in Porcupine. It was so great for Matt not to think of hospitals and rehab for a short while and it lifted his spirits. We are unsure of the final tally but it was well over $5000. It is a real blessing and can help in so many ways.
Proverbs 18:16 "A gift opens the way for the giver and ushers him into the presence of the great."
Tuesday, January 8, 2008
Sunday, January 6, 2008
Quiet Weekend
Not sure what happened today. We had company and they left a short while ago and didn't want to phone dad so late. Also Jacki and the kids were here for a late Christmas celebration. The kids were so excited to get more presents!
Yesterday Matt was able to get his TV hooked up again right before the Canada/Sweden game. Good thing Canada won! Matt had some relatives for company and since there is no rehab on the weekends, it was pretty quiet. The big concern with Matt is is inability to gain weight. He is so sensitive to coughing spells, and any change in body routine sets him feeling nauseated. So prayers that this will pass and we can start beefing him up to increase his strength. Matt also had some trouble breathing but was relieved quickly. Lamentations 3:22 "Because of the Lord's great love we are not consumed, for his compassions never fail. They are new every morning; great is your faithfulness."
Dad was feeling much better so I think he was able to visit better with Matt. Hopefully have some more exciting news tomorrow.
Yesterday Matt was able to get his TV hooked up again right before the Canada/Sweden game. Good thing Canada won! Matt had some relatives for company and since there is no rehab on the weekends, it was pretty quiet. The big concern with Matt is is inability to gain weight. He is so sensitive to coughing spells, and any change in body routine sets him feeling nauseated. So prayers that this will pass and we can start beefing him up to increase his strength. Matt also had some trouble breathing but was relieved quickly. Lamentations 3:22 "Because of the Lord's great love we are not consumed, for his compassions never fail. They are new every morning; great is your faithfulness."
Dad was feeling much better so I think he was able to visit better with Matt. Hopefully have some more exciting news tomorrow.
Friday, January 4, 2008
Parking Ticket
Just got off the phone with dad. He was just getting into the truck when he noticed a parking ticket on his windshield. The main parking lot has been so full the last 2 months he had been parking on the side streets and walking to the hospital. He has been physically unwell for awhile now and today was really bad, so a ticket was the icing on the cake. But what can you do?
Matt is feeling so much better. He was quite constipated and now he is "all cleaned out". His breathing is easier and he was able to sit up in his chair for 8 hours today. Rehab was productive and they are trying different ways to see how Matt can help transferring himself from the bed to the wheelchair. He is still so weak and has lost some weight again from loss of appetite, so it may take some time to build up those muscles. Tonight the menu was Salisbury steak and it was really good. Rehab has been encouraging Matt to eat as much as he can on his own and he does fairly well for a short period of time. However dad was finishing feeding Matt when he throw up all his meal. He has this annoying dry cough and and that's is, everything comes up. So I suggested to dad to buy some Vick's and rub it on the soles of Matt's feet and give him a teaspoon of honey after he eats to coat the throat. It may sound crazy but whenever the girls are sick and they are coughing, I do that every night and it works! Just ask my cousin Shauna, she thought I was crazy until she tried it on Jada. So dad will pick it up in the morning before going to see Matt.
Today dad was a bit shocked when they got back to the room after occupational therapy and the TV was disconnected. Not sure what happened but hopefully they will get it worked out tomorrow. Matt has not been asked to pay for the TV since he got to the hospital, so I guess they decided it was time to start charging. So tonight he is watching "Pirates of the Caribbean" the new one, but unfortunately he missed the hockey game. Need to get the TV up and running for the Canada /Sweden game tomorrow.
Prayers for that left arm and hand to start working to make the transfers easier and that the trach can be removed sometime this month. Luke 11:9-10 "So I say to you; Ask and it will be given to you; seek and you will find; knock and the door will be opened to you. For everyone who asks receives; he who seeks finds; and to him who knocks, the door will be opened."
Matt is feeling so much better. He was quite constipated and now he is "all cleaned out". His breathing is easier and he was able to sit up in his chair for 8 hours today. Rehab was productive and they are trying different ways to see how Matt can help transferring himself from the bed to the wheelchair. He is still so weak and has lost some weight again from loss of appetite, so it may take some time to build up those muscles. Tonight the menu was Salisbury steak and it was really good. Rehab has been encouraging Matt to eat as much as he can on his own and he does fairly well for a short period of time. However dad was finishing feeding Matt when he throw up all his meal. He has this annoying dry cough and and that's is, everything comes up. So I suggested to dad to buy some Vick's and rub it on the soles of Matt's feet and give him a teaspoon of honey after he eats to coat the throat. It may sound crazy but whenever the girls are sick and they are coughing, I do that every night and it works! Just ask my cousin Shauna, she thought I was crazy until she tried it on Jada. So dad will pick it up in the morning before going to see Matt.
Today dad was a bit shocked when they got back to the room after occupational therapy and the TV was disconnected. Not sure what happened but hopefully they will get it worked out tomorrow. Matt has not been asked to pay for the TV since he got to the hospital, so I guess they decided it was time to start charging. So tonight he is watching "Pirates of the Caribbean" the new one, but unfortunately he missed the hockey game. Need to get the TV up and running for the Canada /Sweden game tomorrow.
Prayers for that left arm and hand to start working to make the transfers easier and that the trach can be removed sometime this month. Luke 11:9-10 "So I say to you; Ask and it will be given to you; seek and you will find; knock and the door will be opened to you. For everyone who asks receives; he who seeks finds; and to him who knocks, the door will be opened."
Wednesday, January 2, 2008
Keep The Faith
Was able to speak with mom for a few minutes tonight. Matt missed his physio this am because they felt Matt needed a good "cleaning out" before getting him up in his chair. I beg to differ, physio should come before that other stuff but he was able to go to the gym for the afternoon session. We as a family realize the huge amount of physio needed to get Matt up walking again, it isn't easy to exercise that 6 foot 7 inch frame! But we truly believe it is attainable, so prayers that those working with him will come to realize it as well. Job 12:13 "To God belong wisdom and power; counsel and understanding are his." If we could just glimpse at what God has in store and to see what He can see would ease our worries and anxiety. But Hebrews 11:1 states"Now faith is being sure of what we hope for and certain of what we do not see."
Matt said he is feeling better and they now think his lung infection was caused by a virus, not a bacterial infection, so antibiotics will not help. However to be on the safe side they decided to give him antibiotics anyway orally. The medication usually makes him nauseated but he managed to eat most of his meals in spite of the meds side effects.
Matt, even though we are not with you physically, as Jonmarie puts it, you are always in our hearts. Keep the faith Matt. Cheerleaders form across the globe are praying for you.
Matt said he is feeling better and they now think his lung infection was caused by a virus, not a bacterial infection, so antibiotics will not help. However to be on the safe side they decided to give him antibiotics anyway orally. The medication usually makes him nauseated but he managed to eat most of his meals in spite of the meds side effects.
Matt, even though we are not with you physically, as Jonmarie puts it, you are always in our hearts. Keep the faith Matt. Cheerleaders form across the globe are praying for you.
Tuesday, January 1, 2008
Happy New Year!
From the Gustafson Family, we would like to extend best wishes to all in the New Year. And i I agree with one of the blog comments, let 2008 kick butt! Matt has settled back into the routine in the hospital. Mom had to go back to work so it is up to dad to do Matt's neck stretches and encourage him to exercise. The occupational therapist was impressed at the improvement in Matt's throwing ability. Believe me, he had lots of practice trying to aim at my head! He can actually lift his arm off the chair's arm rest to throw the ball. Before he would just use his forearm and not his upper arm. Also, we had encouraged Matt to try and help us when we got him dressed. Mom would hold his legs in a bent position, then Matt would count and try to lift his butt so Airene and I could pull up his pants. It worked much better when we were taking his pants off, but Matt tried his best to help and managed to lift his right butt off the bed.
They believed Matt had a chest infection so they took a sputum sample just to be sure and started him on antibiotics. They also said how important chest physio is, so hopefully he gets a good one today.Matt isn't struggling so much to breathe now which is good to hear. Prayers that sometime in January he will get that trach out. It will be so much easier to bring him home next time without it.
We had noticed at home that Matt had a pressure point on his heel, so prayers that it does not get worse. A pressure point is an area that the skin remains red and the skin tends to get thin. Because Matt is susceptible to skin breakdowns, we have to be especially cautious. We had to turn him every 2-3 hours when he was in bed at home.
Thank God we were able to keep Matt at home for as long as we did. He needed a lifting up of his spirits. God is always with us. Deuteronomy 4:39 "Acknowledge and take to heart this day that the Lord is God in heaven above and on the earth below. There is no other."
They believed Matt had a chest infection so they took a sputum sample just to be sure and started him on antibiotics. They also said how important chest physio is, so hopefully he gets a good one today.Matt isn't struggling so much to breathe now which is good to hear. Prayers that sometime in January he will get that trach out. It will be so much easier to bring him home next time without it.
We had noticed at home that Matt had a pressure point on his heel, so prayers that it does not get worse. A pressure point is an area that the skin remains red and the skin tends to get thin. Because Matt is susceptible to skin breakdowns, we have to be especially cautious. We had to turn him every 2-3 hours when he was in bed at home.
Thank God we were able to keep Matt at home for as long as we did. He needed a lifting up of his spirits. God is always with us. Deuteronomy 4:39 "Acknowledge and take to heart this day that the Lord is God in heaven above and on the earth below. There is no other."
Sunday, December 30, 2007
A nice tribute...
Sorry for not keeping the blog updated the last few days - I've had trouble getting in touch with the family as they has been so busy!
Matt had been feeling poorly since Christmas (trouble breathing and feeling nauseous), but had recovered quite a bit after his big brother Nolan showed up on the the 27th (Nolan couldn't get off work until then). The family basically had another gift exchange on the 27th as Nolan brought gifts from Jacki & Gary and himself. Then they had two games of dice where Matt held the cup himself, and Nolan would sometimes help him lift his elbow so he could dump the dice a little better. Shelley said that whenever Nolan helped in this way, Matt would roll a 1000, so she protested that they were cheating and wouldn't let Nolan help him anymore!!! (poor loser).
Friday (the 28th), Matt's employer held their annual Christmas dinner at the Weekes Arena, and Matt was able to attend. He had a great meal and stayed at the dinner for about 3 hrs and had a wonderful time seeing his coworkers. His coworkers had a scrimmage game of hockey, and Matt hung out in the dressing room while they changed, and then watched the game from inside. By the time he got home, his neck was really sore, but Irene did some really good stretches on his neck to ease the ache.
Yesterday (the 29th), there was a benefit hosted for Matt at the Porcupine Arena that included a hockey game, 50/50 and a silent auction. I guess Matt had cold feet just before the opening ceremonies, and didn't want to go in, but Shelley and dad encouraged him and he was able to get up his nerve and "drive" himself to centre ice (Shelley stayed with him). For those of you who were there, Matt just couldn't look at the crowd he was so nervous, but he was grateful you were there just the same!!! He enjoyed the raising of the Provincial Champion flag and the singing, and was happy to see his former team members get recognized. After the formalities were over, Matt was able to visit with people inside the arena and watch a bit of the game. Mom thought there was approx. 400 people at the function, and we want everyone to know how much we appreciate you attendance and your generosity for Matt! He had a wonderful time and we hope you did as well!
The women of the family are quite exhausted from dealing with the 3 kids - Shaunie, Jonmarie & Matt! Matt's daily care is quite extensive as getting him up in a chair takes all 3 women, and doing his exercises usually takes 2, and suctioning him with a broken suction takes 2 people. So Shelley now needs a vacation from her vacation!!!! Irene was really impressed with how Matt tried to do everything she asked no matter how hard it was to do. When he is lying down, he is able to lift his right leg off the bed about 4 inches, and hold it for a second or 2. Keep of the improvements Matt!
Mom & dad were planning on taking Matt back to Saskatoon today, much to his dismay, but he really needs to go back and start on his daily physio again. Please pray that they have a safe trip back to the city, and that Matt will be able to stay motivated back in the hospital so that he can continue to improve his range of motion. Phil 4:6 "Be anxious for nothing, but in everything by prayer and supplication, with thanksgiving, let your request be made known to God."
Matt had been feeling poorly since Christmas (trouble breathing and feeling nauseous), but had recovered quite a bit after his big brother Nolan showed up on the the 27th (Nolan couldn't get off work until then). The family basically had another gift exchange on the 27th as Nolan brought gifts from Jacki & Gary and himself. Then they had two games of dice where Matt held the cup himself, and Nolan would sometimes help him lift his elbow so he could dump the dice a little better. Shelley said that whenever Nolan helped in this way, Matt would roll a 1000, so she protested that they were cheating and wouldn't let Nolan help him anymore!!! (poor loser).
Friday (the 28th), Matt's employer held their annual Christmas dinner at the Weekes Arena, and Matt was able to attend. He had a great meal and stayed at the dinner for about 3 hrs and had a wonderful time seeing his coworkers. His coworkers had a scrimmage game of hockey, and Matt hung out in the dressing room while they changed, and then watched the game from inside. By the time he got home, his neck was really sore, but Irene did some really good stretches on his neck to ease the ache.
Yesterday (the 29th), there was a benefit hosted for Matt at the Porcupine Arena that included a hockey game, 50/50 and a silent auction. I guess Matt had cold feet just before the opening ceremonies, and didn't want to go in, but Shelley and dad encouraged him and he was able to get up his nerve and "drive" himself to centre ice (Shelley stayed with him). For those of you who were there, Matt just couldn't look at the crowd he was so nervous, but he was grateful you were there just the same!!! He enjoyed the raising of the Provincial Champion flag and the singing, and was happy to see his former team members get recognized. After the formalities were over, Matt was able to visit with people inside the arena and watch a bit of the game. Mom thought there was approx. 400 people at the function, and we want everyone to know how much we appreciate you attendance and your generosity for Matt! He had a wonderful time and we hope you did as well!
The women of the family are quite exhausted from dealing with the 3 kids - Shaunie, Jonmarie & Matt! Matt's daily care is quite extensive as getting him up in a chair takes all 3 women, and doing his exercises usually takes 2, and suctioning him with a broken suction takes 2 people. So Shelley now needs a vacation from her vacation!!!! Irene was really impressed with how Matt tried to do everything she asked no matter how hard it was to do. When he is lying down, he is able to lift his right leg off the bed about 4 inches, and hold it for a second or 2. Keep of the improvements Matt!
Mom & dad were planning on taking Matt back to Saskatoon today, much to his dismay, but he really needs to go back and start on his daily physio again. Please pray that they have a safe trip back to the city, and that Matt will be able to stay motivated back in the hospital so that he can continue to improve his range of motion. Phil 4:6 "Be anxious for nothing, but in everything by prayer and supplication, with thanksgiving, let your request be made known to God."
Wednesday, December 26, 2007
Twas a Merry Christmas!
Just wanted to give a quick update on Matt's Christmas.... Matt had trouble with his fever on the 24th, trouble breathing,and he wasn't eating - to the point that Mom & Dad tried to convince him that they should return to Saskatoon. Matt was determined that he was going to stay home for Christmas though, and with lots of prayer and diligence on the part of the "doctor" (John) and "nurses" (Mom, Shelley & Irene), and the use of some equipment from the Porcupine Hospital (I can't remember what it was called, but it helped Matt to breathe) Matt's condition had improved that evening. Having got through an emotional day, everyone had a great time celebrating Christ's birthday!! Matt was able to get up in his chair a few times to visit with everyone (there was about 15 adults at the house yesterday for Christmas), play games, and of course, eat turkey dinner! Late last night he was still playing "Scene It" with the family. Praise God for blessing Matt with a wonderful day! Hope everyone had a wonderful Christmas with friends and family, and will post more in a few days.
Sunday, December 23, 2007
A fever strikes
Well, despite our prayers to the contrary, Matt developed a fever around 2pm of 101.2. He was adamant that he was going to be all right and not have to go back to Saskatoon early. It seems that God agreed and his temperature has been going down all day and at 10pm SK time, it was only 98.9. Because he felt poorly, he did not get up in his chair today. However, Mom & Dad have to be more strict as he needs to sit up everyday to help clear his lungs. Because of this fever, he did not have any visitors today, but I'm sure he'll be up for some company tomorrow. Matt has able to eat supper (sweet & sour meatballs & rice - one of his favorites!) and keep it down which is good. Please pray that Matt will recover from this fever by tomorrow and have a good day and week. James 5:15 "And prayer of faith will save the sick, and the Lord will raise him up. And if he has committed sins, he will be forgiven"
The cavalry arrived in the form of Shelley, John, Irene and girls at 7:30pm, and Shelley was able to suction Matt and get a lot of secretions out. I guess she's taking over, and Mom is quite happy about that. She'll do the night shift she says.
In case we miss the next few days due to the craziness of the season, we want to wish you all a very Merry Christmas and God's Blessing on each of you.
The cavalry arrived in the form of Shelley, John, Irene and girls at 7:30pm, and Shelley was able to suction Matt and get a lot of secretions out. I guess she's taking over, and Mom is quite happy about that. She'll do the night shift she says.
In case we miss the next few days due to the craziness of the season, we want to wish you all a very Merry Christmas and God's Blessing on each of you.
Saturday, December 22, 2007
Finally home!!!
Matt is finally home, and couldn't be happier. It was sure a process to actually get from the hospital to the van, and then to the house, and then into the house.... Special thanks to a neighbor who came to the house to help dad lay the ramp, bring everything into the house including the bed and lift, and help get Matt himself into the house. Mom & dad couldn't have done it without him!
It was fairly late when they arrived in Weekes (8pm), but they had started leaving at 12pm!!! But the hospital was super busy, and Matt has a lot of luggage (extra wheelchair, lift, bed, portable suction, ramps, etc...). The van worked a expected - drove well, ate lots of gas, and was a little cold. But it got them home!
I know some friends had hoped to see Matt this evening, but he was just too tired with all the activity from the day. Mom said he's sound asleep right now! Please pray that Matt will stay healthy with no infections or other complications so that he can remain at the house all week. Praise God that Matt is home for as it says in Psalms 9:1 "I will praise You, O Lord, with my whole heart; I will tell of all Your marvelous works."
It was fairly late when they arrived in Weekes (8pm), but they had started leaving at 12pm!!! But the hospital was super busy, and Matt has a lot of luggage (extra wheelchair, lift, bed, portable suction, ramps, etc...). The van worked a expected - drove well, ate lots of gas, and was a little cold. But it got them home!
I know some friends had hoped to see Matt this evening, but he was just too tired with all the activity from the day. Mom said he's sound asleep right now! Please pray that Matt will stay healthy with no infections or other complications so that he can remain at the house all week. Praise God that Matt is home for as it says in Psalms 9:1 "I will praise You, O Lord, with my whole heart; I will tell of all Your marvelous works."
Home for Christmas
Sorry I haven't written on the blog for 2 days. Christmas is coming whether I am prepared for it or not, and I realized I am not! We are planning on leaving tomorrow early and driving all day until we get to Weekes. Hopefully everything is still a go. Matt wasn't feeling very well last night. Mom said she knew something was wrong but wasn't sure what it was. He was very flushed and had no appetite. States his body was achy. They took his temp and it was fine, but his pulse was high. Later Matt told mom that he wasn't getting in enough O2, so they checked his O2 sats, and it was only at 83%. Remember the normal range is 97% - 100%. The nurse tried to suction him with no relief. So they finally called down to respiratory, but they were busy in ICU, Matt's breathing became quite heavy and the nurse put O2 on Matt and turned it way up. Eventually when respiratory arrived, Matt's O2 was up to 95% and he was feeling better. He did not have chest physio yesterday and that may have been the problem. Hopefully it was just a mucus plug and was nothing more serious. Matt wants to go home more than anything. Prayers that today they will be on their way to Weekes. Psalms 6:9 "The Lord has heard my cry for mercy; the Lord accepts my prayer".
Mom says they have 5 huge bags worth of stuff for Matt, so dad has to take some of it home in his truck. And they also have to take a manual wheelchair in case the motorized one fails. Therapy is sending home some weights for Matt to use and Airene ( my physiotherapist nanny) and I already have some exercises in mind. The best thing about us being there is we can do Matt's exercises whenever he feels good, not just at certain times of the day. So if he feels good at 10 pm, we can work on him at that time.
Mom says they have 5 huge bags worth of stuff for Matt, so dad has to take some of it home in his truck. And they also have to take a manual wheelchair in case the motorized one fails. Therapy is sending home some weights for Matt to use and Airene ( my physiotherapist nanny) and I already have some exercises in mind. The best thing about us being there is we can do Matt's exercises whenever he feels good, not just at certain times of the day. So if he feels good at 10 pm, we can work on him at that time.
Thursday, December 20, 2007
We Have Found A Van
Finally we have found a van big enough to transport Matthew. The original idea was to borrow a van from another quad patient, but it was just too small. They tried everything, but Matt would just not fit. Then he became very cold with all the maneuvering. So took awhile to warm up. Another quad patient was able to let us try out her old 1988 van, which will work. It is a bit of a gas guzzler, but it will work!! So it definitely sounds like Matt will be home on the 22nd of December. So now it is safe to tell everyone about a little get together they are planning for Matt at the skating rink in Porcupine There will be a hockey game between Kinistino and Porcupine, there will be a few silent auctions and raffles, and a dance afterwards. So mark December 29th on your calendar and be there at 7:30 p.m. For further information contact Dwayne Thorpe at 278-3163.
Matt didn't have the best day yesterday. Still not feeling well from the antibiotics so he didn't do well at rehab. They had a staff/patient Christmas party, but Matt was only able to atttend for a few minutes. That's alright Matt, you will make up for it when you go home.
I would like to write more but my computer is acting up an it has taken me 1/2 hour to write this, so will write more tonight.
Matt didn't have the best day yesterday. Still not feeling well from the antibiotics so he didn't do well at rehab. They had a staff/patient Christmas party, but Matt was only able to atttend for a few minutes. That's alright Matt, you will make up for it when you go home.
I would like to write more but my computer is acting up an it has taken me 1/2 hour to write this, so will write more tonight.
Tuesday, December 18, 2007
A New Development
I realize Jacki had already written the blog tonight however I received a bit of news that she didn't know about. After dad had spoken to Jacki on the phone, I phoned because...well... I am nosy and like to have first hand knowledge of every day's happenings. Matt was so excited. He had just received a Grey Cup Jersey signed by all the team members of the Saskatchewan Roughriders!! Also a signed bandanna! He couldn't believe it. Apparently, one of the nurses from ICU wrote a letter to the Riders explaining Matt's situation and asking what they could do. Their initial plan was to come and see Matt, however that didn't turn out but what they did was great! So a big thanks to all involved, and if any of the team members are in Saskatoon, swing by the City hospital for a visit. Will take pictures over the holidays to put on the blog.
A little unwell...
Matt had an OK day. Because he has a urinary tract infection, he's back on antibiotics which always make him sick (started on the pills yesterday which partly explains his nausea yesterday as well). Also, they did x-rays today which showed that Matt hasn't had proper bowel movements, and is a little "full". They've started him on medicine (oral fleet) which will help clear that up as well.
Despite the above issues, he still had a pretty good day. He was in and out of his chair about 3 times which is great. I remember when he used to battle when he was encouraged to get in his chair just once for about 1/2 hour. Now he asks to be in his chair so he can scope out the floor, go down to ICU and visit with his former nurses. By the way, he did go to RUH on Sunday for about 2 hrs to visit the staff there. I guess the staff were sure excited to see Matt, and how well he is doing. Anyway, he had a good rehab session where they mostly worked at transferring. Because he's getting stronger, they no longer need 3 people to transfer him. They need to use 2 people right now, but he's getting closer to just 1. Please pray that Matt will continue to strengthen his upper body to assist in this technique and so that he can eventually do this on his own. 1 John 5:14 "Now this is the confidence that we have in Him, that if we ask anything according to His will, He hears us."
Despite the above issues, he still had a pretty good day. He was in and out of his chair about 3 times which is great. I remember when he used to battle when he was encouraged to get in his chair just once for about 1/2 hour. Now he asks to be in his chair so he can scope out the floor, go down to ICU and visit with his former nurses. By the way, he did go to RUH on Sunday for about 2 hrs to visit the staff there. I guess the staff were sure excited to see Matt, and how well he is doing. Anyway, he had a good rehab session where they mostly worked at transferring. Because he's getting stronger, they no longer need 3 people to transfer him. They need to use 2 people right now, but he's getting closer to just 1. Please pray that Matt will continue to strengthen his upper body to assist in this technique and so that he can eventually do this on his own. 1 John 5:14 "Now this is the confidence that we have in Him, that if we ask anything according to His will, He hears us."
Monday, December 17, 2007
A big day
Today, Matt had about 3 hrs of rehab. Maybe a bit too much as he got tired, then didn't want to eat lunch because he felt nauseous, then he had to have gravel. This caused him to sleep from 3pm until 6pm - but once 7pm came along he ate all his supper from the hospital, plus poached eggs courtesy of dad.
Rehab highlights - He has a different therapist today who has a slightly different approach then some of the others, and wanted to see all he could do. She then tried 2 new exercises: 1) She got him sitting up on the mat, then lifted the mat hydraulically so that his feet were just barely above the floor. Then she asked him to straighten out his leg so it would be parallel with the floor. Matt was able to lift each leg one at a time almost level (about 2/3 extension), hold it for a couple seconds, and then back to the floor. Awesome job Matt! 2) She had him lie down on his back with his knees up, and his heels on the bed. Then she moved his legs apart, and he could pull them back together again. Praise God that his quadriceps and his groin muscles are working!!!! Phil 4:4 "Rejoice in the Lord always. Again I will say, rejoice!"
Matt continues to play cards - once someone shuffles for him, he uses his right hand to deal out the cards, put his cards in his holder, play out the cards, and move his own pegs. Also, he has started to go daily to the community computer on the floor to read people's comments. Thanks so much for your support and prayers as Matt continues his recovery.
A very rewarding day!
Rehab highlights - He has a different therapist today who has a slightly different approach then some of the others, and wanted to see all he could do. She then tried 2 new exercises: 1) She got him sitting up on the mat, then lifted the mat hydraulically so that his feet were just barely above the floor. Then she asked him to straighten out his leg so it would be parallel with the floor. Matt was able to lift each leg one at a time almost level (about 2/3 extension), hold it for a couple seconds, and then back to the floor. Awesome job Matt! 2) She had him lie down on his back with his knees up, and his heels on the bed. Then she moved his legs apart, and he could pull them back together again. Praise God that his quadriceps and his groin muscles are working!!!! Phil 4:4 "Rejoice in the Lord always. Again I will say, rejoice!"
Matt continues to play cards - once someone shuffles for him, he uses his right hand to deal out the cards, put his cards in his holder, play out the cards, and move his own pegs. Also, he has started to go daily to the community computer on the floor to read people's comments. Thanks so much for your support and prayers as Matt continues his recovery.
A very rewarding day!
Sunday, December 16, 2007
A normal weekend
As most of you know, Matt doesn't have any physio or planned activities on the weekends, but he was busy none the less as he had lots of company. This is appreciated so much as it helps to pass the time more quickly until Monday when he starts his hard work again (just like a regular work week!). I wasn't able to talk to dad today, so I'm not sure if anything out of the ordinary occurred. However, I did speak to my mom who talked to dad earlier in the day. They had planned to go to RUH to see his old nurses, but I'm not sure if they did or not. Will let you know tomorrow.
As for our Christmas plans, please pray that God will continue to lay the pathway for Matt to be able to go home to Weekes for the week. We will find out Tuesday whether or not we will have a van or not. Mr. Paul Gustafson (not sure if we're related or not), the paraplegic from Saskatoon who speaks at the hospital has told us we could borrow his old van as long as his new one is delivered on Tuesday. We are praying that his van is delivered on time as this had been a major obstacle for Matt getting home. Also pray that Matt's health continues to be strong for the week so that there are no setbacks in that area. Psalm 28:7 "The Lord is my strength and my shield; my heart trusted in Him, and I am helped; therefore my heart greatly rejoices, and with my song I will praise Him."
As for our Christmas plans, please pray that God will continue to lay the pathway for Matt to be able to go home to Weekes for the week. We will find out Tuesday whether or not we will have a van or not. Mr. Paul Gustafson (not sure if we're related or not), the paraplegic from Saskatoon who speaks at the hospital has told us we could borrow his old van as long as his new one is delivered on Tuesday. We are praying that his van is delivered on time as this had been a major obstacle for Matt getting home. Also pray that Matt's health continues to be strong for the week so that there are no setbacks in that area. Psalm 28:7 "The Lord is my strength and my shield; my heart trusted in Him, and I am helped; therefore my heart greatly rejoices, and with my song I will praise Him."
Friday, December 14, 2007
Best 2 days yet!
Emotionally & physically, Thursday was one of Matt's best days to date. The trip to the mall really boosted his spirits, and seemed to make him realize that there is life outside the hospital. We think he now wants to be part of it, and so he's making a more concentrated effort towards his physio and communication with people. Dad has never seen him eat like he did yesterday - almost continuously. Dad was feeling like a server at a restaurant, but with only one customer, and no tips!!! Also, Matt is no longer being reserved around other patients, but is actively engaging them in conversation. Praise the Lord for this change in outlook! Psalms 139:14"I will praise You, for I am fearfully and wonderfully made; Marvelous are Your works, and that my soul knows very well." Matt sat in his chair for 8 hours (a new record), and was able to hold 300 ml in his bladder without leaking. As well, Matt is being more conscious of doing his own exercising in his room (strengthening his neck muscles), and is really just trying a little bit harder. They are really working on his transfer from the chair to the raised mat, and they are trying different techniques to see which works best.
Today, he had another really good day. Because he's feeling better (pneumonia seems to be gone), he's more upbeat. He was in his chair for 8 1/2 hours - which is better than yesterday, and he also had a great day at physio. Dad said they put him on the tilt table today which is something they haven't done in a while (reminder - this table takes a person from lying down to standing up). They gradually increased the angle to 70 degrees, which is the highest he's ever gone - Way to go Matt! He only had one dizzy spell which is pretty good as his body is still adjusting to being upright. Once he was in his chair again, the therapist had Matt hold a substance similar to putty/playdoh in his right hand. He is able to squeeze this quite tightly and make fairly significant indents into the putty. The therapist than asked Matt to try squeeze the putty in his left hand. Matt was rather skeptical as he feels his left hand has no strength at all. But he tried anyway. Dad said he worked so hard he was sweating, and wouldn't you know, there was a little imprint in the putty! Thanks so much for your continued prayers for Matt's recovery and may God continue to restore his spirit.
Today, he had another really good day. Because he's feeling better (pneumonia seems to be gone), he's more upbeat. He was in his chair for 8 1/2 hours - which is better than yesterday, and he also had a great day at physio. Dad said they put him on the tilt table today which is something they haven't done in a while (reminder - this table takes a person from lying down to standing up). They gradually increased the angle to 70 degrees, which is the highest he's ever gone - Way to go Matt! He only had one dizzy spell which is pretty good as his body is still adjusting to being upright. Once he was in his chair again, the therapist had Matt hold a substance similar to putty/playdoh in his right hand. He is able to squeeze this quite tightly and make fairly significant indents into the putty. The therapist than asked Matt to try squeeze the putty in his left hand. Matt was rather skeptical as he feels his left hand has no strength at all. But he tried anyway. Dad said he worked so hard he was sweating, and wouldn't you know, there was a little imprint in the putty! Thanks so much for your continued prayers for Matt's recovery and may God continue to restore his spirit.
Thursday, December 13, 2007
First Outing since June
Even with the business of the season, Matt still wanted to go a fight the Christmas shoppers. And so he did. The first outing for 5 1/2 months. He was so worried people would stare at him and he would be too anxious. Dad told him everyone is too busy trying to get their shopping done to bother staring. And sure enough it went great. "Excellent" as dad put it and I have never heard him use those words. Matt was just beaming when he arrived at Midtown. It was like a kid in a candy store for the first time. He just couldn't get over the sights, all the different sounds, and the smells. Also, had to check out the girls walking by as well. Typical guy. They weren't there very long before he seen someone he knew. You know how it is when you go hunting for mushrooms. You don't see any for awhile, then all for a sudden you see hundreds. That's what it was like for Matt at the mall. Dad said his visiting took up all of his time. There were so many people he knew. They told Matt the first outing would be the hardest, and I think it is the fear of the unknown that is so difficult. But once you actually do it, it is a big relief.
Rehab went well. Still trying to increase the strength of his right arm and hand. However the physio states the left arm is definitely improving and getting stronger. Still praying for the left to kick into high moving mode, but praise for hope of regaining full movement. Hebrews 12:12 "Therefore strengthen your feeble arms and weak knees. Make level paths for your feet, so that the lame may not be disabled, but rather healed".
Matt was quite impressed last evening. He had told dad to call the nurse to do his catheter. He tries a bit by himself, and they see how much is left over. The total amount was 500mls, and he didn't bypass or "leak" at all. Great news. Dad had to go and pick up a prescription from the drugstore for an antispasmodic for his bladder. In other words, a pill that stops his bladder spasms, and will help his bladder to tone, so maybe soon he can go on his own. The medication just became available in Canada, so some of the pharmacies don't carry it, and the hospital doesn't either. So glad the doctor knew what pharmacy to send dad to in order to get it. Matt took his first pill last night, so we will have to wait and see.
Rehab went well. Still trying to increase the strength of his right arm and hand. However the physio states the left arm is definitely improving and getting stronger. Still praying for the left to kick into high moving mode, but praise for hope of regaining full movement. Hebrews 12:12 "Therefore strengthen your feeble arms and weak knees. Make level paths for your feet, so that the lame may not be disabled, but rather healed".
Matt was quite impressed last evening. He had told dad to call the nurse to do his catheter. He tries a bit by himself, and they see how much is left over. The total amount was 500mls, and he didn't bypass or "leak" at all. Great news. Dad had to go and pick up a prescription from the drugstore for an antispasmodic for his bladder. In other words, a pill that stops his bladder spasms, and will help his bladder to tone, so maybe soon he can go on his own. The medication just became available in Canada, so some of the pharmacies don't carry it, and the hospital doesn't either. So glad the doctor knew what pharmacy to send dad to in order to get it. Matt took his first pill last night, so we will have to wait and see.
Tuesday, December 11, 2007
Disappointing Day
Matt had a disappointing day. They had planned an outing for him to the Midtown Mall. However when the transportation arrived, Matt didn't fit. They tried reclining him, but they were unable to close the door because his feet stuck out. So to "vent" his frustrations, he went to ICU to visit. One of the nurses' stated her husband worked for a different cab company and she contacted him to see if he was free. So they went down and just tried to get Matt into her husband's cab. Matt fit, however the outing had been cancelled already, so hopefully they will go again tomorrow. Dad and Matt still took advantage of being all dressed up with no where to go. They took a spin outside for about 10 mins, but eventually the elements got the better of them and they came back inside.
Matt didn't get much in the way of rehab because he had to go for an ultrasound of his kidneys and bladder. Worried because it is not working properly and want to find out if there is a mechanical problem (tumor, blockage, etc) instead of a spinal cord problem.
It has been an adjustment to move from ICU to rehab. I think Matt is missing the one on one care. Hasn't really got to know the staff yet, as he doesn't see them as much. Hopefully that will change and they will come in to help a bit more with his activities of daily living. Thank goodness for the constant support of dad who is the cheerleader this week. Mom will not be back until next week. Prayers that Matt will continue to improve regardless of setbacks. God knows of our needs and the solutions to our problems, even when we don't. Proverbs 3:5-6 "Trust in the Lord with all your heart; lean not on your own understanding; in all ways acknowledge him, and he will make you paths straight."
Matt didn't get much in the way of rehab because he had to go for an ultrasound of his kidneys and bladder. Worried because it is not working properly and want to find out if there is a mechanical problem (tumor, blockage, etc) instead of a spinal cord problem.
It has been an adjustment to move from ICU to rehab. I think Matt is missing the one on one care. Hasn't really got to know the staff yet, as he doesn't see them as much. Hopefully that will change and they will come in to help a bit more with his activities of daily living. Thank goodness for the constant support of dad who is the cheerleader this week. Mom will not be back until next week. Prayers that Matt will continue to improve regardless of setbacks. God knows of our needs and the solutions to our problems, even when we don't. Proverbs 3:5-6 "Trust in the Lord with all your heart; lean not on your own understanding; in all ways acknowledge him, and he will make you paths straight."
Monday, December 10, 2007
Still a Annoying Little Brother
I was able to talk to Matt on the phone today. Sometimes it is like pulling teeth, my own. I was asking him in depth questions about how rehab was going, what exercises they were doing, etc. Pretty soon, he says he has to cough, so I begin speaking to dad. I little longer in the conversation, I ask dad how Matt is doing. Just great. He was watching wrestling on TV. I asked how his cough was, dad laughs and said Matt didn't have to cough, he just didn't want to miss his show!! Little stinker!
Yesterday Matt was treated like a sheik. One of the RN's from RUH came and gave Matt a pedicure and manicure. She spent the whole afternoon with him, which really perked him up. Also more company from Weekes, so even though it was a Sunday, it wasn't a quiet day. Just a little note of thanks for all those who take the time out of their day to visit Matt. It really helps him focus on other things beside the hospital.
Anyway, therapy is going okay. They are continuing to do exercises to make Matt more self reliant. They put Matt on the mat, situate him so he is on his side, then he has to roll onto his back. That is working out pretty well. The tricky one is trying to get him to sit up. They place his left arm in a hoop above his head (he is laying down), bent at the elbow, then while they are holding it in place, they put his right hand behind him so he can push himself up. So while his left arm is pulling, the right arm is pushing. It reminds me of that picture of two kids with a wagon, the caption reading "Are you pushing or pulling back there?" That exercise will take work, but it is progress.
Matt meet with a counsellor today regarding how he is doing emotionally. Matt old me he couldn't tell me what was said, but he did mention the therapist told Matt to be himself, because he has such an amazing attitude. We didn't need a psychologist to tell us that. We already know!!
Matt had a pulmonary test today. I took over one hour. Since Matt wouldn't talk to me because of stinky wrestling, I am not sure what tests were involved, but dad states they were pretty impressed with the outcome, and were generally surprised that Matt has only been off the ventilator for such a short time. There is even rumors going around they may take the trach out before Christmas. While they are at it, they can take that tube out his intestine as well. However, Matt did lose weight when he was sick, and is down to 165 lbs. But dad says they way Matt is eating, he will soon get that weight up. So prayers that if it the right decision they are able to remove both the trach and feeding tube before Christmas. It will make taking him home so much easier. Let us continue to have faith in Matt's progress. Hebrews 11:6 "And without faith it is impossible to please God, because anyone who comes to him must believe that he exists and that he rewards those who earnestly seek him."
Yesterday Matt was treated like a sheik. One of the RN's from RUH came and gave Matt a pedicure and manicure. She spent the whole afternoon with him, which really perked him up. Also more company from Weekes, so even though it was a Sunday, it wasn't a quiet day. Just a little note of thanks for all those who take the time out of their day to visit Matt. It really helps him focus on other things beside the hospital.
Anyway, therapy is going okay. They are continuing to do exercises to make Matt more self reliant. They put Matt on the mat, situate him so he is on his side, then he has to roll onto his back. That is working out pretty well. The tricky one is trying to get him to sit up. They place his left arm in a hoop above his head (he is laying down), bent at the elbow, then while they are holding it in place, they put his right hand behind him so he can push himself up. So while his left arm is pulling, the right arm is pushing. It reminds me of that picture of two kids with a wagon, the caption reading "Are you pushing or pulling back there?" That exercise will take work, but it is progress.
Matt meet with a counsellor today regarding how he is doing emotionally. Matt old me he couldn't tell me what was said, but he did mention the therapist told Matt to be himself, because he has such an amazing attitude. We didn't need a psychologist to tell us that. We already know!!
Matt had a pulmonary test today. I took over one hour. Since Matt wouldn't talk to me because of stinky wrestling, I am not sure what tests were involved, but dad states they were pretty impressed with the outcome, and were generally surprised that Matt has only been off the ventilator for such a short time. There is even rumors going around they may take the trach out before Christmas. While they are at it, they can take that tube out his intestine as well. However, Matt did lose weight when he was sick, and is down to 165 lbs. But dad says they way Matt is eating, he will soon get that weight up. So prayers that if it the right decision they are able to remove both the trach and feeding tube before Christmas. It will make taking him home so much easier. Let us continue to have faith in Matt's progress. Hebrews 11:6 "And without faith it is impossible to please God, because anyone who comes to him must believe that he exists and that he rewards those who earnestly seek him."
Sunday, December 9, 2007
Brushing His Teeth
Matt can brush his own teeth. Yesterday, dad was getting the toothbrush ready to brush Matt, teeth. Matt looked quizzically at the brush, then said"let me try". So dad put it in Matt's right hand and away Matt went. He was even able to turn his wrist to get the back of the mouth. He couldn't push really hard, so dad finished up for him. However, Matt must of felt dad didn't do a good job, because later, dad noticed Matt had grabbed the brush off the table and was working away again. Way to show dad how to do it right!
A social worker came in yesterday to tell Matt about having his signature photocopied from before the accident, then having it put into a stamp so we don't have to have power of attorney. He will have to go down to a govt office to make it legal, but then Matt can make his own decisions on what he will put his signature on.
One of the male nurses was really on Matt's case about eating. He told Matt that whenever he feels good, he must eat as much as he can. The nurse also encouraged dad to do whatever he can to make Matt's food more palatable. So dad brought an egg poacher form home, and made Matt poached egg. Dad said he couldn't make them fast enough! Matt sucked them back like a vacuum cleaner! Full of protein which is great. He needs protein in order for his muscles to build. Every movement he makes requires so much effort. Not only are his nerves damaged and the signals are not as strong as they should be, but his muscles have wasted away, so to brush his teeth takes quite a herculean effort.
More company from home in to visit, and the patient from Meadow Lake visited Matt for 2 hours. So even though it was a weekend, Matt was still busy. At 9 pm, feeling tired so hopefully he slept right through without waking up. He told dad when he has those panic attacks, they are awful. Matt wakes up having that overwhelming feeling of dread, and he feels like jumping out of bed and getting away, but he can't, so the cycle continues. Prayers for those feelings to stop and a peace surrounds Matt. 1Peter 5:7 "Cast all your anxiety on him, because he cares for you".
A social worker came in yesterday to tell Matt about having his signature photocopied from before the accident, then having it put into a stamp so we don't have to have power of attorney. He will have to go down to a govt office to make it legal, but then Matt can make his own decisions on what he will put his signature on.
One of the male nurses was really on Matt's case about eating. He told Matt that whenever he feels good, he must eat as much as he can. The nurse also encouraged dad to do whatever he can to make Matt's food more palatable. So dad brought an egg poacher form home, and made Matt poached egg. Dad said he couldn't make them fast enough! Matt sucked them back like a vacuum cleaner! Full of protein which is great. He needs protein in order for his muscles to build. Every movement he makes requires so much effort. Not only are his nerves damaged and the signals are not as strong as they should be, but his muscles have wasted away, so to brush his teeth takes quite a herculean effort.
More company from home in to visit, and the patient from Meadow Lake visited Matt for 2 hours. So even though it was a weekend, Matt was still busy. At 9 pm, feeling tired so hopefully he slept right through without waking up. He told dad when he has those panic attacks, they are awful. Matt wakes up having that overwhelming feeling of dread, and he feels like jumping out of bed and getting away, but he can't, so the cycle continues. Prayers for those feelings to stop and a peace surrounds Matt. 1Peter 5:7 "Cast all your anxiety on him, because he cares for you".
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