Matt's Big Belly

Yesterday was able to see/hear Matt on Skype. I made him show me all of his moves. It took awhile because they would have to reposition the camera for different angles. It was amazing the difference from the end of February until now. He lifted his bum way off the bed 5 times in a row, was able to cross his legs in bed, however was difficult with the spasms at times. His left hand is what really amazed me. When I was there, he could barely move his fingers at all. Now if mom holds the hand just right, he can move his fingers more easily. It reminded me so much of the video I have of Matt's right arm moving at first. Of course I also saw Matt's big belly!! On most people that would be not a great thing, however it is wonderful to see on Matt!! I thinks he may be over 190lbs, a far cry from the measly 165 lbs he once was.
Rehab has been a bit slow. No standing for awhile, many staff are sick. However they did a re-evaluation of Matt's strength in his right arm. He can now lift 1 kg with his bicep, which is the weakest muscle on his arm, 3 kg weight when he pulls his arm across the chest, and 3 kg when using his tricep. That is kg, not lbs! Keep up the good work! They had Matt transfer to the elevated mat in gym by using the transfer board. It takes two people to help him, but once he gains more strength he could do it himself. The got Matt to then practice rolling on the mat. He did really well turning on his left side, but needs work to be able to turn on right side.
Mom arrived yesterday so I was able to speak/see her on Skype. Matt was glad to see her back. Today they were able to visit for over an hour with Casey Peterson, a quad from Kelvington. He had a C6 injury 6 years ago so great to hear about some of the things he has tried. He went to China for stem cell replacement?, but not much improvement with feeling in his legs, however it helped with his bowels, which is a huge issue. He also attended a few months at ProjectWalk. It helped a little but not to much. He has no movement or feeling below the chest, I believe.
Tomorrow they are trying a new machine so can't wait to hear all about it. Praise for Matt's continued progress, God truly is never far away, He is just one step behind Matt, encouraging him all the way. Isaiah 30:21 "Whether you turn to the right or to the left, your ears will hear a voice behind you,saying, 'This is the way;walk in it'"

Seen Matt on WebCam

Well I had an exciting call this evening. Matt has now signed up with Skype on the computer, which allows him to talk for free via the internet if someone else has Skype. Not only did I speak with him, I was able to see him via webcam and he could see me. It was great!! So if anyone wants to talk to Matt, sign up with Skype. It is free download and free computer to computer talking. Saves a bundle. However I have to wait until the kids are asleep, can't chase after them sitting at the computer.
Matt says he gained weight, appr. 190lbs. Dad says that Matt is eating the hospital food now, which probably means he is starving and anything tastes good then!
On Friday, Matt had forgot to mention he tried something new. He baked cookies!! I teased him and said that is something completely new, he didn't even do that before the accident!! He poured the ingredients, stirred the batter, and dropped them on the sheet. However the therapist had to put them in the oven, the tray was too heavy.
Weekend was quiet, did go outside today and took a tour of the park grounds. Not too cold. Really lazy day. Mom will be back tomorrow after her shift to give dad a break. Prayers for her safe travel and Matt's continued progress.

No Swimming For Awhile

Matt was unable to do any swimming this week. They have closed down for maintenance and it may not be up and running for a long time. However Matt's week has been pretty full(so has mine, that's why it has taken me so long to update!). Wednesday Matt wasn't feeling very well, hadn't slept much and just general tired and nauseated. He did try and stand during rehab, but they had the old standing machine where he is on a treadmill and put into a "jolly jumper" type contraption. It wasn't as good but it serves the purpose.
However Thursday he was more like himself and did well with his exercises. They had the old sit/stand machine back and Matt was quite strong. When he tried to take a step forward, they were suprised when his left foot came right off the floor by itself and he took one step!! Very unusual since it is Matt's right leg that is stronger. Maybe it is because Matt has a brace on his left leg, who knows. We are just thankful he did it. Dad, Matt and Bradon braved the elements and decided to head for the Mac store. Dad would ask Matt if he was getting cold and Matt would check his left hand with his right hand to see if it was getting too cold. Lots of company in the evening so that always lifts his spirits.
Today Matt's feet were rooted in cement. He just couldn't take a step forward however it beat his own record in standing, appr. 10 mins. Physio saff is impressed with Matt's weight training, gaining more strength all the time in his left and right arms. Slow but sure, Matty. We all like turtles! Spasms have really diminished since the weekend. Whenever Matt has any little cold, infection, or pain, the spasms get worse. So prior to Easter he had a toenail reoved and his feeding tube removed so that had started his funky chicken dance!
Thanks to all who continue to remember Matt in their prayers, who come to see him, who help out in any way. By doing so you show a love for your fellow man. 1 Cor. 13:13 "And now these three remain: faith, hope and love. But the greatest of these is love". You have helped all of us transition to a "new kind of normal".

Back To the Hospital

Monday Matt was supposed to return to the hospital, however the weather decided Matt should stay in Weekes for one more day. Nolan and Lindsay left in the morning and phoned back to say the road conditions were not great and Dad and Matt should not travel. So Matt was happy to stay on for an extra day. When I talked to him he was visiting with Bryan, Brenda, and Bradon Kipling and was just about to play the Wii. I asked him how the dance went and said it was great. Whenever a cute girl would walk by, he would pinch her on the bottom. when they would turn to him and give him what for, he would always say "It was a spasm". I don't think too many of them fell for that!! Sneaky, Matt, sneaky.
Today Dad and Matt travelled back to rehab. Mom worked a double shift today, and had just enough time to come home for a few hours to get Matt out of bed and get his stuff ready to go. Work, work, work!!
Thanks to all who stopped in to visit Matt. Loves to see familiar faces in a familiar surrounding. Hoping Matt can come visit Red Deer in May. We purchasd a new laser machine to help promote healing and feel Matt could benefit from it, especially with the pain in his neck. We tried it on Gary's sore knee, and after one treatment the pain was gone. Hopefully it will also work on the black spots on the bottom of Matt's heals. They were pressure sores that went bad. Just have to see if old Betsy can make it this far (again, not mom!).
Prayers for continued recovery and by August of this year, Matt will be home for good. I think he has had enough of hospitals, however they do become a safe zone after you have been there for so long. I found a poem in the Daily Bread. It says "Where Jesus reigns there is no fear, no restless doubt, no hopeless tear. No raging sea nor tempest dread, but quietness and calm instead." With fresh memories of Easter, let's trust that He CAN do all things.

Easter Sunday

Matt had a laid back weekend. Mom was at work until the afternoon both Saturday and Sunday, so Matt got to stay in bed until she got back. However on Saturday Auntie Karen and Uncle Neil came over and played Wii with Matt. He said it is very addicting and doesn't realize he has over done it until his neck is stiff and sore later on. So when it was time to go to the wedding dance of a friend of Nolan's on Saturday night, Matt really didn't feel like going. However he got there aroung 10:30pm and at first felt very nervous and awkward with everyone looking at him. However he stayed for 3 hours until dad came and picked him up. Nolan and Lindsay were there for moral support.
Today Brenda and Bryan Kipling were there with Bradon and were just about to play Wii when I phoned at 7:30 pm. Matt is really enjoying being at home with family and friends. Mom says Matt can help out so much more with his care, leaning forward in the chair when mom dresses him, helping roll over in the bed, feeding himself, etc. Tomorrow he has to return to the hospital and realizes it is necessary, but doesn't make it any easier. Unfortunately with mom working Matt hasn't been getting as much exercises as he needs. The Wii helps alot, but it doesn't help with the legs.
Prayers that when Matt comes home the next time, he can transfer from the wheelchair to the bed on the board with 2 people. The lift they had this time was a manual lift and it didn't lift Matt up very high so you always needed 2 people.
Today at church, the pastor spoke of the greatest miracle, the resurrection. After Jesus was raised from the dead, many didn't believe it. Jesus said to them in Luke 24:25-26 "..how foolish you are, and how slow of heart to believe all that the prophets have spoken! Did not the Christ have to suffer these things and then enter his glory?" Believing is so much easier when it is seen, and our weak human natures have difficulty with the unseen. Thank you Lord for your word that is proof of the greatest miracle.

A Very Good Friday

Matthew is home again! So wish that we could be there as well, but work prevails.
Prior to leaving on Thursday, they took off Matt's bandage on his toe and he did some standing exercises, which was so much better than the episode last week. No attempts at taking any steps however because the foot was too painful. They didn't do any swimming because of the toe (toenail removed) but Matt did play Wii for 2 hours, so that's great exercise. They also tried something new. They put Matt in a manual wheelchair, one he has to make it move with his arms. All the gears and things are on the right side, so Matt can control the turning and going forward with only his right arm. He didn't think he could move it at all, but the physio gave him a little push to get him started. It wasn't easy and the mechanism is difficult to figure out, but they were amazed at how quickly Matt understood the mechanics and went about 20 feet. Now that is great exercise. When you try to move yourself in a wheelchair, you realize how much upper body strength is needed. Keep up the good work. Pretty soon you won't need the mechanized chair, only the manual, and then on to walking.
Travelled last evening to Weekes with old Betsy (not mom, I meant the van!!)and made it safe and sound. I phoned this morning to see how everything went and Matt answered the phone. It was so great to hear his voice, knowing he had picked the phone up by himself. Mom was at work and dad had just went outside for some "fresh air". Matt was still in bed and watching some TV, able to change the channels on the remote himself. So much better than at Christmas. You couldn't leave him alone for very long, always checking to see if he needed suctioning, something to eat, water, channels changed, turned, etc. Still need to turn him every two hours, but he can help so much more and is starting to grip the rail to pull himself over. Not quite there yet, but that will come.
Mom had borrowed an exercises bicycle for Matt's arms so he can still keep up with his workouts. Of course he brought the Wii home. Nolann and Lindsay will be there later this evening so they should have fun.
Take a moment today to remember why it is such a special day. In Jesus' time, I am sure they did not feel it was so special, to see the Savior they loved die, unsure if he would rise again. Many doubted whether He truly was the son of God. But in Matt27:54 "When the centurion and those with him who were guarding Jesus saw the earthquake and all that had happened, they were terrified, and exclaimed, 'surely he was the Son of God!'"

Stomach Tube Out

Well Matt, I guess they think you are eating enough to fill that hollow leg so they removed the feeding tube. One more obstacle removed which just makes it that much easier to take him home for the weekend. Mom says Matt is looking great. Rehab in the last 2 days has been less exercise and more getting everything ready to take with him. What a difference from Christmas time!! Then we had to take a truck load of boxes and supplies, plus the van was loaded down as well. This time it is just one box of supplies and the van with Matt, the mattress, and the lift. No more suctioning, dressing changes, etc. Matt is still apprehensive and prayers that everything goes well and the experience will be much better. Plans to attend a wedding while at home so will be a great time to see everyone. There is a chance Mom and Dad can borrow a sit/stand machine from a fellow in Kelvinton so Matt can continue to do his exercises. Nolan and Lindsay are planning on coming so will have lots of muscles!!
Matt had a toenail removed on Monday. They felt they needed to do it because Matt is susceptible to infections and need to be more cautious. However it has been causing him to spasm alot and he can't get his shoes on due to the dressing so no standing exercises. Hopefully today they will remove the dressing and try some more exercises.
Big plans for rehab in the next 2 days, swimming, Wii, etc. They are also organizing the handivan once a week to take Matt to see Rocky and get him out of the hospital for awhile.
Mom is leaving today and dad will again take over. Matt and dad will travel to Weekes Thursday after rehab.
Mom talked with the patient coordinator of services and as of Thursday, Matt will pay to stay in rehab. However we feel it is money well spent if he continues to progress with the rehab. So thank the Lord for all the fundraising that was done since Matt injury. He knew the money would be needed for Matt's care.
Still looking into "Project Walk" in San Diego. Cost is enormous (25,000 per month!!)but if it will help Matt walk faster then so be it. One thing needed is a bone density scan and the waiting list is 2 years!! So looking into paying to have it done if possible.
Lots of things to pray about, guidance for they right path for Matt, safety for the weekend, and continued improvement in strength.

Keep The Faith

Friday was a slow rehab day, just did some stretches. However Matt made the mistake of saying to some of the staff that "if" he started to walk, instead of "when". They tore a strip off him and said he has kept the faith for so long he couldn't give up now. Make a mantra of the verse from Hebrews, Matt. Chapter 11:1 "Now faith is being sure of what we hope for and certain of what we do not see".
That evening Matt and mom went to the fieldhouse to watch wheelchair racing for parapalegics. Matt found it interesting but still gets uncomfortable when he leaves the hospital and has to be around too many people. When the accident first happened, matt just wanted to leave the hospital. But now it has become a 'new kind of normal" (read Carol Kent's book). After being in the hospital for almost 9 months, it is Matt's safe zone. So mom and dad are hoping to take Matt home for Easter to be around more familiar surroundings which would be an easier transition.
Saturday was bath day, but Matt was really tired and went to sleep right afterwards. The weekends are his lazy days and a good time to catch up on sleep. Continues to eat well and watched curling (disappointing loss by Sask). Had some company from the hospital staff and also family. It is so great that so many people continue to think of Matt and take the time to visit.
Please pray for Matt's movement of his left arm and hand, increased grip strength of his right hand, and an increase in overall strength needed for walking. Psalms 147:5"Great is our Lord and mighty in power; his understanding has no limit".

Swimming!

Let's start off talking about Wednesday. It was a funny day. Dad said Matt went to rehab in the am to do some standing exercises and just had such a bad go of it. They kept telling Matt to tighten and straighten up, and he just couldn't do it. He was trying so hard and was becoming so discouraged. Nothing was working and Matt couldn't explain what was wrong. He wasn't having spasms, feeling sick, weak, anything. By the time he got back to his room he was exhausted and wanted to go to bed. However when he woke up 2 hours later he was back to his old self. So hopefully whatever it was was self limiting.
Thursday Matt got in the pool for the first time. He was apprehensive but still pushed himself to do it. They get Matt into the pool with a chair, then they encouraged him to do a back float while they helped him. Matt was nervous because he felt so light!! Since the accident, Matt has felt so heavy because he was unable to move his limbs properly, and so in the water he felt very bouyant. It was much easier to move all his extremeties and do his exercises. When I asked Matt what felt the best, he responded" Getting fully immerged in the water, like a big tub bath". The things the rest of us take for granted. Makes me want to go have a tub right now!! Mom was dad were both there for the big event and stood by as lifeguards. Of course if something were to happen I wouldn't want them trying to save me in the water!!

No more tube feeds

Actually this statement is about 10 days late! I asked dad tonight how Matt's weight was and said it was around 185 lbs. So I asked if they would continue the tube feeds and dad replied they had stopped them awhile ago! I then asked why he didn't mention this before and he stated I didn't ask!! I will have to do more investigative reporting from now on! Matt's stomach has been doing well, so well that he is eating everyone out of house and home. His "nighttime snack consists of more food than some people eat all day! Keep it up Matt. Your body needs all the calories it can get. Must be nice!
Matt's rehab went well again. They did not try any walking but continue to do standing exercises: twisting the upper body, turning and bending. All to strengthen his abdominal muscles. Matt was quite stiff form the W11 workout so was really feeling it during his arm exercises. They tried him on a machine that is similiar to rowing, however they need to clamp his wrist in because his hand grasp is too weak yet. Worked on the pulley exercises and the arm cycle machine.
Dad said he was really chatty and upbeat today. Had some company this evening and was in fine form. Somedays his mood is more quiet but today he really perked up.
Matt is enjoying surfing the net with his computer. Dad says he can do everything himself with his right hand: loading the DVD, pushing the buttons, checks the blog, etc. Breaks the monotony of the day.
Thanks again to everyone who remembers Matt in any way, whether it is through prayer, reading the blog, or coming to visit. Matt thinks so much of people back home and really appreciates what everyone has done for him. Our thoughts and prayers are with all of you tonight. Romans 1:12 "that is, that you and I may be encouraged by each other's faith". James 5:13 "Is any one of you in trouble? He should pray. Is anyone happy? Let him sing songs of praise.'

Played W11

Hope the title is right. Not sure how to spell the new nintendo game. Matt was able to play his game at occupational therapy on Friday. He played for one hour. Nolan was amazed at how well Matt did at most of the games. The backhand in tennis gave him some trouble but it is such a great tool for rehab! A real motivator. Matt was so proud to show Nolan all his tricks: lifting his left hand off the bed while bending it at the elbow, lifting his bum in bed, lifting his legs while in his chair. Actually dad said it was quite funny to see the 2 of them interact. Ever since Matt's accident, Nolan has continued to tease Matt, tickling his nose, feet, etc. When Nolan tried that again however, Matt grabbed a hold of Nolan's arm and squeezed! You just wait Nolan, your time will come!!
I must retract my statement on Friday. They were treating Mattt for a urinary infection but today the results came back negative. So the cranberry tabs are working so far. However Matt's breathing was heavier and they had respiratory up to do an assessment. Everything clear so far. Took bloodwork and some nose swabs. More sleepy and is having more spasms so they are suspecting something so prayers that it is nothing. God tells us to put things in his hands so we do not have to worry. Matt 6:27 "Who of you by worrying can add a single hour to his life?"
Saturday Matt and dad went to the Mac store, appr. 6 blocks away. But on their return they were trying to find a different way back and came upon a water main break. So they had to go back a block. Good to be outside when it isn't so cold. Dad said Matt ate almost his entire meal himself. It was food that was more difficult so kudo's to you Matt!! I think Matt gets a bit embarrassed when he has to eat in front of people. So good excuse to keep practicing! People will stare no matter what you do. Next time someone stares, wink at them. Or if it is a cute girl, blow them a kiss!! That will make them smile!!
I just thought I would try and explain what the big deal is regarding Matt's spasms. Unless you have seen them, it is difficult to comprehend. The way I think about it, Matt's brain is constantly trying to send messages down his spinal cord to other parts of his body. But with Matt the messages are not always getting through so the body reacts abnormally, causing his knees to bend and his arms to go straight out, fingers outstretched, etc. It takes a few seconds for his body to go back into a normal state. This is always worse when Matt has been resting for awhile and then reaches for something or starts to do an exercise. The brain knows he wants it to do something so it sends out signals that somehow lose their way. But by the 3rd attempt, Matt's body is receiving the signals more appropriately and the body works better. So that is why when he is having company, he may try not to do something that he know will start a spasm, because he is uncomfortable with the way his body reacts. Matt, we are all so grateful that your body is moving at all, you could jump up like a chicken and we would applaud! When I do it, people are asking if I need help(and not just with my physical abilities, they are questioning whether my signals are crossed!).
Love and prayers to those who read this blog. God knows who you are.

tinysteps

Time just flies! This week has been so busy I hardly had time to phone for updates. But Matt is just so exciting to hear about I always want to phone.
Thursday they tried Matt on a new sit/stand/walk machine. They need 3 people to operate it and dad gets to be in charge of the controls. So Matt is in a sling and then dad raises to a height were Matt is almost standing. Then they really encourage him to push himself up the rest of the way. Once he is in the standing position, they lock his left leg in the brace so it is stable. Then with the 2 physio therapist helping Matt's feet to go forward, Matt has to try and walk. The left foot has a curling slider on it now to help him move it forward.
So Matt shifts his weight on his left leg (the weaker one). Then he bends his right leg and can almost take the step himself, but needs a little help to lift those Size 12 feet!! So Matt has now stepped forward with his right foot!! But it doesn't end there. He must now shift his weight on his good leg, or the right side and slide his left foot forward. The physio really needs to help him with that side, unlocking the brace so Matt can bend his leg, pushing his leg forward on the slider etc. Then the whole process begins again. In total, matt took 12 baby steps!! Dad said Matt was just sweating!! Dad says the steps equal to 3 big steps for him. Great work Team Matt!! Thanks to the rehab staff that continue to persevere and to Matt who has never lost sight of the goal line. Little by little, everyday.
Nolan and Lindsay drove up to see Matt last night and give him his belated birthday present. Nolan was able to purchase a W11 game off the internet. Of course the package was open because we all had to try it out to see if it was suitable for Matt!! You almost never received your present Matt!! What a great game!
Left hand continues to progress. He can make a noticeable dent in the putty when he squeezes his hand.
The only bad spot is Matt has another urinary tract infection. I had purchased some cranberry tablets when I was there in February and he has been taking them dilegently, however that nasty infection reared its ugly head. So feeling tired today. Started him on antibiotics. But that will soon clear up and next Thursday Matt starts in the pool. Dad has already found his swimshorts and has them hanging in his closet.
Praise God for his continued blessings on Matt. God has 3 answers to pray: No, Yes, and Wait awhile. We are seeing the benefits of patience!
Psalms 40:1-3 "I waited patiently for the Lord; he turned to me and heard my cry. He lifted me out of the slimy pit, out of the mud and mire; he set my feet on a rock and gave me a firm place to stand. He put a new song in my mouth, a hymn of praise to our God. Many will see and fear and put their trust in the Lord."

Played Pool

Sunday: repeat of Saturday
Monday: rehab is going really well. Focusing on Matt transferring using the slide board. Doing so well they are talking of using just one person to assist instead of two. Matt starts in the wheelchair and wants to get to the raised mat. So he leans across and puts his right hand on the mat. Then they are encouraging him to use his legs, butt muscles, and abdominal muscles.
Was able to play pool for the first time. Since he cannot use his left hand yet, he uses the cue rest. So first someone has to line up the rest and the cue so Matt then can hit the ball. At first, Matt couldn't even move the cue ball, but after he got the hang of it dad said Matt did really well. Rocky and Barrette, 2 other paraplegics went and played too. They go to a billards place on Central Ave.
Tuesday am: Matt is just gaining every day!! It is just so exciting to hear all the good things. Matt was up in the sit/stand machine again. They have now taken off the curling slider off his right foot and are encouraging Matt to bend his knee and lift his foot. Dad says he almost has got it, and believes within the next week Matt should be able to take his first step. It takes so much concentration. First Matt has to shift his weight onto his left leg, and then mentally goes through all the stages of taking a step. Then he has to tell his body to do it. It comes so naturally to us, but if you break it down, it involves many processes.
The left foot is not quite advanced enough for the slider, but they want Matt to try and go through the process. So Matt has to try transferring his weight to the right side and try to move his foot. Then he has to twist from the waist to the left, and then the right. Also is bending ahead, all while standing. Matt accomplishes this all in about 6-7 minutes, but it is so good for his back and abdominal muscles. Also, this is usaully done on the 3 rd attempt. The first standing attempt always makes Matt nauseated and very green!!
After they put Matt to bed, he wanted to show Kristen (the physio) what he could do. So she bends his knees and holds his legs. Then Matt tries to lift his bum off the bed and support his weight on his shoulders. There is about 10 cms from the bed to Matt's bum. At x-mas, he could lift his right butt cheek 1 cm with great difficulty so just to emphasize the amazing gains Matt is making.
Another thing, when dad returned from "getting some fresh air" the physio was very excited about something Matt did. Matt wouldn't let her tell until dad guessed. So on the first guess dad got it! Matt had lifted his left forearm off the bed, bending at the elbow! How did dad know? Because the previous evening he had put the electrical muscle stimulator on and really worked Matt's bicep, making Matt move his elbow into a bent position. So the body remembered and did it without the stimulator!
I will write more tonight, realized this was a very long blog!!

Another Saturday

Friday was a tiring day. Matt didn't sleep well, maybe too much excitement. However he was able to stand for a little while and the rehab staff were very impressed with how well his left arm is doing. The hand is very slow in coming, but it is more important for Matt to regain the bend in his elbow. And I must state a correction. Matt can lift 2 kg's with his right hand, not 2 lbs, which is a big difference. Mom had to go back to work so dad is there again to take the next shift.
Today was very quiet, no visitors but Matt was tired anyway. Was able to go outside for a few minutes to enjoy the brief interlude of warm weather. He continues to eat well and still unsure if his weight has increased. That is one massive hollow leg to fill!!
Matt no longer wearing a trach dressing, and he has a massive scar on his throat. What a story he'll have to tell his grandchildren. He said he would tell them he was shot and lived to tell the tale!!Actually he had said that about the scars on his chest from the chest tubes. That must have been a massive gun battle, just like the OK corral!!
When I talked to dad, he was at the new place. Nadine Smith was gracious enough to allow mom and dad to stay in her house in Saskatoon. God continues to bless us wilth wonderful people who come through when we need it the most. Family support is so important for the healing process and for stability.
Prayers for Matt's neck. Mom said he has contant pain in it and really gets him down somedays. psalms 86:6-7 "Hear my prayer, O Lord; listen to my cry for mercy. In the day of my trouble I will call to you, for you will answer me."

HAPPY BIRTHDAY!!

Hapyy 21st Birthday Matty! Hope you had great presents...I mean a great day! Wednesday Matt went out to watch the movie "Fool's Gold" with Kristan from rehab and another fellow outpatient. Said it wasn't too bad.
Today was quite exciting. At rehab Matt stood for 8 minutes!! That is a big jump from 1 min. What a birthday gift that was!! Matt aslo did some arm exercises but felt he didn't do very well because he was tired from all the standing. However the rehab staff disagreed and told him he just keeps getting better. Went to lunch in the hospital with Rocky. Matt was going to go out to supper tonight but he knew that he would have company this evening and didn't want to tire himself out. So took a short visit to ICU, but they were so busy they didn't have much time to chat. Had a short nap between 5-7pm until the hordes of visitors came bearing gifts. Balloons, chocolates, cake, movies, etc. I just finished on the phone with mom and all I could hear was noise in the background. Just one big party.
Thanks to everyone who continues to think about Matt, and all the visits and blog comments. They brighten his day so much and really encourage him to push himself. God bless each and every one of you!!PSalms 34:15 "The eyes of the Lord are on the rightgeous and his ears are attentive to their cry".

Computer up and Running (Matt is Next!)

Tonight was the first night Matt was able to really use his computer in his room. The one problem with this is my detail to the blog and the consistency of my writing will have to shapen up. Matt asked mom why I didn't write the blog last night! Every 2 nights are all I can seem to do but I will work on it Matt!
Monday Matt wasn't able to use the pool yet or do any standing, but the physio said Matt just keeps improving on his right arm. His coordiantion and strength is slowly growing. He was supposed to get an ingrown toenail removed but some miscommunication and it wasn't done. With quadrapelegics, any little thing can send them off into a potentially serious medical condition called autonomic hyperreflexia. A big word meaning his blood pressure goes up rapidly and his heart rate goes down. Other things happen as well. So something as simply as an ingrown toenail can cause all sorts of problems. But Matt seems to do better than most so don't worry Matt. You have the Great Physician looking out for you.
Today Matt was able to talk with the psychologist about not going home anytime soon and other things. Great they have that service so Matt is free to speak what he feels to someone else rather than his family. We are great, of course! but we don't know how to approach every situation. Again no standing but mom is vigilant on making Matt do whatever exercises he can while not at rehab. The physio stresses that if Matt wants to walk again he must exercise whenever he can. So she was very impressed today when Matt could turn his left wrist when held in the proper position. Mom says he starts with the palm facing down, then she asks Matt to turn it so the palm is facing his body, then so it is facing outwards. Mom has to hold it perfect in order for Matt to accomplish this feat, but he can do it! Matt was also able to hold his left arm straight above his head for a few seconds and his hand straight as well when he was in the bed. The natural tendency of Matt's hand is to either flop forward when lifted or flop backwards. Even with his right hand, if he lifts it above his head you must remind him to keep his hand straight. The physio was even more amazed when she asked Matt to then place his left hand on his chest from the elevated position. He was able to do it with alot of concentration and determination. So I asked mom , that would mean he bent his elbow and she said it appears so. That is a huge step and praise be to God for his continued blessings on Matt!! I get so excited to think of all the praise items we have, compared to last summer. There is a great song which has such wonderful words.
"Shout to the Lord, all the earth let us sing, Power and majesty praise to our King. Mountains bow down and the seas will roar at the sound of your name. I sing for joy at the works of your hands, Forever i'll love you forever I'll stand. Nothing compares to the promise I have in You".
P.S. I have a video of Matt standing, so if anyone would like it, please leave your email on the blog so I can send it. It is in JPEG format.

Quiet Weekend

Not too much to report today. While I was in Saskatoon, I had bought Matt some stretchy bands and 1 lb weight's to work with while in his room. The physio gave mom some exercises to do with them and has been working pretty well. Continues to do the leg exercises while in the chair, up to 3 times a day. Matt's right leg can kick much higher than his left and is getting stronger everyday. They also encourage Matt to try and lift his bum up. He can lift the right butt cheek slightly but not the left. Prayers that the left arm and hand will wake up and start to move more. He is able to move it a bit but not enough to do anything with it. Prayers that the left elbow will bend as well, as that would help in Matt being able to transfer from bed to chair by himself. Paul writes in Ehesians about just how much we are cherished by God. Verse 18-19 "may have power together with all the saints, to grasp how wide and long and high and deep is th love of Christ, and to know this love that surpasses knowledge that you may be filled to the measure of all the fullness of God".
I forgot to mention while I was there we talked with the social worker. We were quite worried Matt would be discharged at the end of February and we were not prepared. We want Matt at home only when he is capable and shows more improvement. The hospitals understanding was that we wanted him at home as soon as possible. So some mixed communication there and everything is on hold for awhile. Matt will stay in the rehab department until a transition bed is available somewhere else in the city. Then Matt will likely stay at the transition facility for another 90 days. So that could give us until August, which would be better weather for moving (we hope, you never know in Canada when winter will come again!.

Internet Hook-up

Matt finally was able to get wireless internet in his room. He is quite excited to be able to read the blog and the comments. Also we will get him Skype, which will enable him to phone from computer to computer for a very minimal price. Right now he is using his cell phone and it gets expensive.
Thursday the girls and I travelled back to Red Deer. However I was able to video tape Matt standing at the parallel bars with four people helping. He stood for over a minute and they even tried to give him minimal support. However his knees want to buckle so they have to keep them supported.
Yesterday Dad went home. Matt did not do any standing but did really well in his arm exercises. While I wa there, he tried to lift 3 lbs with his right arm. What he does is try to lower his arm to his side with the pulley. That day he wasn't able to do it but yesterday he did fine. He also lifted 3 lbs with his foream by flexing his wrist. Tried to do some leg exercises while in the chair. Mom takes off his leg rests so Matt's feet are dangling. Then he tries to lift his bottom leg up. His right is stonger than the left but he was able to do it with both legs. Keep it up Matt. Need to strengthen those muscles.
Matt received an early birthday present from Karl and Corina. A nice carrying case for his laptop. Before the computer just sat on a bedside table and was always at risk for spills and things.
While I was speakingto mom, she was giving Matt grief because he was trying to bite his fingernails on his left hand by holding it up with his right. Can't quite do it. States it feels like he is trying to lift 100lbs. I told her to leave him as it is a form of exercise.
Psalms 103:2-3 "Praise the Lord, o my soul, and forget not all his benefits- who forgives all your sins and heals all your diseases."

Lunar Eclipse

Just wanted to drop a quick note. I am in the hospital with Matt watching the lunar eclipse. The colors were quite amazing and we watched it for over an hour. Today the trach site is healing nicely, they put only a tiny dry dressing on and the site is as big as a pencil. The trachea already has a thin membrane covering it so no more air leaking out. Matt states he can cough better, talk better, breath better. No more leaky tire sound from the trach. Yahoo!!
Exercises are still going well. The left was a little sluggish but still improving. Stood up four times, however he stood with the stand/walker. Tried to take a step again without the slidder, still toe dragging, so can't finish the step. Spasms still give him grief. Whenever he tries to do something, he spasms and then has to wait for his body to relax.
Just going to feed him some homemade perogies and chicken. Matt is looking over my shoulder telling me to hurry up and feed him! No chance yet of him being overweight, however he is now 180 lbs. Still getting tube feeds at night.
Praise for the trach being out and prayers for rehab to continue going strong. On Monday they may even try him in the pool. I think he is a bit nervous about drowning however has to learn to trust the rehab staff. Please add a verse to the comments, as I do not have a bible in the room with the computer.

Trach Out Today

Shelley is in Sask till Thursday.Jonmarie and Shaunie got to visit their uncle Matt today, playing in gym and riding the wheelchair with Matt.
He was expecting his trach to be removed Friday but was suprised when it was done today. He was very anxious with the entire experience but in the end did fine.
There is also an apparatus to assist him with standing which takes 80lbs off the legs , so this is a great asset to his rehab.
After a meeting with the patient advocate today Matts discharge date is for now "unknown", this will give more planning time for this eventuality.
In Mike Horns Book Conquering the Impossible he uses 2 quuotes :
"We say something is impossible if no one has ever tried it"-Alexis De Tocqueville.
"The Impossible is the only adversary worthy of man"-Andree Chedid
Matt has always believed that he will walk out of that hospital in spite of what all the medical experts there have been telling him, he is not a statistic, or just a number who needs to be discharged ASAP so as to keep the almighty health budget on track.I wish they would ignore the statistics and look and the man and what he has achieved to date and give him the best chance they can.
Oh but we can only hope and pray that somebody will see the light.
Regards to all, thanks for all the prayers and support, it means the world to Matt.
John.

Jacki & Amy to Visit

Jacki and Amy arrived Friday night to visit Matt. They left Bobby with his daddy because the hospital would never be the same otherwise! That is one busy boy. Matt really enjoyed Amy, who is standing as well, however she is not walking yet and there is fierce competition between Amy and Matt as who will walk first!! Matt loved when Amy crawled all over him until she decided to stand on a delicate area around the midsection, and she wasn't his favorite neice anymore!
Quite day spent after all the excitement of yesterday. Slept the morning away and they Jacki was up to visit. When I spoke to them they were watching hockey. I asked why they were not watching the Scott's Curling and Jacki told me Matt said it wasn't on. Somehow I think he knew it waas on and just didn't say. If he is anything like John, who likens watching curling to watching poop float, then Matt would probably like hockey better!
Continues to eat weel and jacki was feeding him a sub, although a bit fast he said. Poor Matt and Amy, food crammed in any which way.
Have more info tomorrow. If it remains nice they may go outside and tour the grounds, or maybe a trip to the mall.

Tried To Take A Step

Yesterday Matt tried once more with the Sask pole with no success, so I think that may be put on the back burner for awhile. Worked more on his left arm, which is constantly gaining but very slow compared to the right one.
Today Matt had to be at the Abilities Council for his leg brace at 8am, so another very early morning. Poor dad didn't have an alarm clock so hardly slept because he was afraid he would sleep in!
Matt found it much easier to stand with the brace on the left leg. He was able to stand up 4 times, each time getting better. Always dizzy at first and the spasms interfere alot, but each time less dizzy and less spasms. When Matt goes to stand, he places his arms on the parellel bars, leans ahead, and attempts to stand, but just too weak and body is having trouble remembering how. So the staff needs to lift him until he is 1/2 standing and then Matt is able to try and straighten his legs. By pushing with his legs from that position and pushing up with his right arm (and a tiny bit with his left) he can get to a standing position with less help. They thought they would try for Matt to take a step. He was able to lift his right leg, however he was unable to bend his ankle and the toes dragged on the floor preventing him from taking a step. So they put a half curling slider on the right foot so he could slide his foot forward. Once he slide it further then he had to slide it back to standing position and did well. They put a L shape brace on the top of his right foot inside his shoe to try and prevent his toes from getting in the way but may need some more adjusting. Keep up the good work, Matt!! Slow and sure, steady and strong. We are so proud of you!!
They are still talking of discharging Matt the end of February so please pray for continued guidance in the decisions we as a family need to make. He knows what is best for Matt and wants us to trust in Him. Proverbs 28:26 "He who trusts in himself is a fool, but he who walks in wisdom is kept safe."

Better Day

Dad thinks he finally figured out why Matt had such a bad day with spasms yesterday. Last Saturday, Matt ran out of the antispasm meds for his bladder that dad has to pick up from the drugstore. However the drugstore was closed on the weekend and dad couldn't get any until Tuesday. So Matt finally had his pills last night and this am, and has improved a great deal. I guess the spasms were so bad yesterday that Matt reacts very emotionally to upsets like that. But he always bounces back and today was a good day. I am so thankful there are more good days than bad days. I still get cold sweats when I remember it being the opposite, waiting for good news that didn't come for days on end.
Again in rehab for 1 1/2 hours. Exercised with the arm machine and was able to stand up twice. The first time again he was very dizzy, but refused to sit down and managed to reamin upright. They were very proud of his stance, he stood just like a soldier for 10-15 secs. They also tried the Sask pole in occupatinal therapy to see if Matt can transfer without using the board, but Matt just cannot get a grip on that pole. Don't worry about it Matt, that will come, but probably not for a long time. YOu need to crawl before you walk. He can transfer not too bad with board now, if everything is just right and 2 people are available. He can't slide over in one go, it takes him about 2-3 times. He was supposed to have therapy for another 1/2 hours this afternnon but he needded anothers chest xray instead. Not sure what for, but they didn't seem too concerned.
When dad left Matt tonight he was getting a massag, relaxing and enjoying the moment. He had been eating like a horse and will probalby fell sleepy in a little while. Good night, Matt. Matt 11:28 "Come to me, all you who are weary and burdened, and I will give yo rest."
P.S Sorry I cannot highlight the verses, not working and neither is spell check!!

Watched Sledge Hockey

Matt didn't have a great day yesterday. He felt sick to his stomach and so didn't do that well at rehab. However he still managed to stand up twice which is still progress.
Today Matt was feeling well enough to venture out to Rutherford Arena to watch Rocky play sledge hockey. You sit on a sled upright with your legs strapped in front of you so you can play hockey. It would be interesting to see how it is done. Rehab wasn't very successful today. Matt was having such bad spasms they had to stop. They are trying to figure out why it is so bad. Blood was taken, urine sample sent, x-ray of his chest done. They was no infection but they noticed the bottom part of the lungs are collapsed. However Matt is still breathing well and O2 Sats are 97%. I believe God made Matt's lungs extra large for just such an occassion! He has more than enough to go around. Colossians 1:15-16 "He (Christ)is the image of the invisible God, the firstborn over all creation. For by him all things were created: things in heaven and on earth, visible and invisible, whether thrones or powers or rulers or authorities: all things were created by him and for him."
Matt is able to move his left wrist slightly when someone is holding his hand up. And he finds it much easier to close his left hand rather than open it. More progress!!
More company from the wild University students. They really brighten Matt's day.
Couldn't get much more info from Matt. He was watching "American Idol" on TV. Anyone who knows Matt can attest that his attention span when the TV is on is zero! Except to the TV of course. I will have to come down and stand in front of the TV to get his attention!

Cold Weekend

Not much to write tonight. I was unable to get in touch with dad so I only have info regarding Sunday. Mom had mentioned that Matt was supposed to go to the field house on Saturday to watch the parapalegic team play, but was unable to attend due to the cold weather. It wasn't much better in Alberta but thankfully it warmed up today. Matt had some visitors on the weekend, a few brave souls who braved the elements to cheer up Matt. And he needed cheering up because dad beat him 2 games straight in crib!! Matt was always a poor loser, just like the rest of us, and didn't want to play anymore. However he did win in the scratch and win tickets. Dad says he has never seen anyone so lucky with those things. I remeber once winning $20 6 years ago, but that was it. So Matt, you didn't get it from me!
Matt also went and visited with the staff in ICU which is always a treat for him and maybe them as well. Hopefully today Matt's rehab went well and after all his sleeping he should be wired and ready to go!!
Praise for God's continued blessings on our family and prayers that Matt will only move forward. Paul had spoke to the believers in Rome about praying for him. As today we need to pray together for spiritual deliverence and guidance. Romans 15:30 "I urge you, brothers, by our Lord Jesus Christ and by the love of the Spirit, to join me in my struggle by praying to God for me."

Dad In Charge

Sorry it has taken so long to update. Even I get confused about who is with Matt. All Thursday evening I kept trying to call mom's cell phone and then realized at 1030pm that it was dad with Matt.
Thursday after Matt left he was so tired he slept from noon until 6pm, and then slept most of the night as well. A good catch-up day for sleep. All that exercise makes even me sleepy writing about it!
Friday Matt had one session of physio and was able to practice standing. He even tried a Sask pole, a pole that they will put beside someone's bed that needs assistance getting to a standing position. It reaches from the ceiling to the floor. However Matt doesn't have the grip strength yet to pull himself up. When they asked Matt to try and take a step forward while he was standing by the parallel bars, he said it was like he forgot how. And that is the way it is. Matt will have to train his body all over again, telling his knee to bend and push off with his foot, etc. The nerves that were damaged can't get the impulses through consistently, even if the brain is telling it too.
Today Matt didn't get up until 130pm! Lazy bum! I guess he was so tired from the long week of getting up early and the physio.
While talking to Matt on the phone, he was holding the cell phone the whole time which is another improvement. Dad was busy hooking Matt up to the Tens machine to stimulate the left arm to move. Dad says it looks like a chicken after the head comes off!! Sorry for those with a weak stomach but it is a fairly accurate description.
Matt also got a haircut and looks as cute as ever. He played crib with dad and skunked him so bad dad is sulking!
I don't have a verse for today. I am at Jacki's babysitting and have just got the kids to bed. Thank goodness Nolan and Lindsay showed up when they did. I had the three kids in the tub and little Amy was determined she was going to join the action... fully clothed!

Mom Went Home

Talked to mom yesterday. States Matt was pretty tired because even with the busy days he still doesn't sleep that well. But he still did alright in rehab. Matt tried 4 times to stand, was successful every one and then when pushed him to try the 5th time, ran out of juice. He had lots of spasms so makes it difficult. Mom happened to mention that prior to this week, when Matt spasms his left arm and elbow always remained straight. But now it bends. Not sure whether that is a positive thing or not but I will believe it is for the better. Matt also did his arm cycle exercises. He does it about 20 times, the left arm doesnt't have any weights and the right arm has 2 lbs. I think Matt still gets down about things not happening fast enough. It is easy for me to say what great progress he has made but I don't have to live it 24/7. But Matt, try and focus on what you can do, not on what you can't do. We are so amazed by your accomplishments and you still have a huge cheering section!! Go, Matt, Go!!
Mom was leaving today and dad may not be there yet, as he had to wait until mom got home. The heater in his truck wasn't working so needed mom's vehicle to return to Saskatoon. Not sure how today went but will find out tomorrow.
I noticed that Bev was wondering what sort of goodies Matt likes. He doesn't like baked goods that much but really likes oatmeal/banana cookies, chocolate macaroons (mudpies), and ginger snaps. Jesus talks about food to his disciples in Mark 7:19 "For it doesn't go into his heart but into his stomach, and then out of his body." (In saying this Jesus declared all foods clean). Now I think that is as good as reason as any to have some cookies!!

Earlier Morning

Yesterday was a long day for Matt. He was up at 5 am to get ready for his 7 am appt. at the Sask. Abilities Council across town. They took longer getting him ready and were late getting to the taxi. The driver was upset until he realized they had sent the wrong size cab and Matt couldn't fit. So had to phone abilities council to say they would be late and waited for another cab. Finally made it to the appt. at 9:30 and they were still able to make a space and fit Matt for a brace for his left leg. Did lots of occupational therapy today where they do games and fit Matt for special equipment so he can do activities of daily living. They tried him out with a special pool cue attachment so he can play pool and also got him an automatic card shuffler. Played WII, which is a Nintendo game that needs actions to play. Tried the boxing and Matt was able to box with the right hand, also tried air hockey as well. Great game to increase his physical mobility. Thinking of purchasing one for Matt's birthday on Feb. 28th (21st birthday) but most places are sold out.
Matt's weight is at a whopping 175 lbs. Better then 162 I guess. It sure takes alot of calories to get that boy fat!! Rehab went well. They have started the neuromuscular stimulator on Matt's left elbow and hand, instead of just the bicep. Hopefully soon Matt will be able to bend his elbow and eventually be as good as his right. Tried standing again with the sit/stand machine. The first time Matt was dizzy so had to sit back down. The 2nd time was much better. He stands with his kness braced against the machine, so he is in a standing position. They asked him to move his right arm in front of his body and his left arm behind his body, so he could stretch his neck to look behind him. Did really well. Then while stilll standing, they asked him to pull his knees away from the machine and stand on his own, which he was able to do. This all lasted about 30 secs. Good work Matt!! The 3rd time he didn't stay up as long and the 4th time he was too tired and sat down quickly. What improvements already!! Wait until the brace is ready and then the left leg can take some of the workload.
Forgot to mention Matt finally received his own wheelchair, but they are still working out all the kinks. Lots of work to do before he can actually use it.
Believe Matt would have slept well last night because he was up so early and didn't nap all day. They are trying to cut down on his sleeping pills, but he still is up at night beause his mind won't turn off. But they will try and keep him so busy in the day that hopefully he willl sleep all night. Matt 11:28 "Come to me, all you who are weary and burdened, and I will give you rest."

Left Hand Is Coming

Yesterday Matt didn't do quite as well as last week with the standing. With the infection, he felt nauseated when trying to stand and his body was spasaming so bad that they decided to wait until today. However he did really well with the arm exercises. A physio therapist who has been off for a week was suprised at the increased strength and mobility. Mom said when Matt tries to squeeze the putty with his left hand, he can leave very distinct hand print. When mom asked him to bend his fingers ande make a fist, he could almost close his hand, though not quite like you or I would. But definitely an improvement.
Today Matt was getting up early, 7am, to be fitted for a brace for his left leg, wo when he stands, his right leg isn't doing all the work. They are trying to fill Matt's days and keep him busy. A social worker had met with mom and Matt and praised him for his accomplishments so far, but encouraged Matt to try even harder. Sometimes it is easier to have someone do things for him, such as eating, brushing his teeth, etc. So from now on, Matt has to do as much as he can by himself, and when he feels tired, he has to keep going. So Matt, I know you feel you are giving alot, but think of it as an 8 hour working day and use TV as a treat, instead the main meal! Work for a half an hour to start, and only then can you watch TV for a half hour. Time yourself so you don't watch too much and get complacent. God has giving you so much, but he doesn't want to do all the work! Your a team and He'll give you the stregth you need if you ask for it. Psalms 18:35 "You give me your shield of victory, and your right hand sustains me; and stoop down to make me great."
Did some visiting yesterday. Met with the ICU staff for awhile, and then got to see Rocky, who is doing great. He only comes for rehab a few times a week so matt can visit with him.
Mom didn't mention anything, but I assume his breathing continues to go well. So Matt, prayers are with you that today will go well.

Another Infection

Matt does have another infection however thank goodness it is not in his lungs, it is a urinary tract infection. They started him on a mild antibiotic but an infection and the pills always makes Matt feel rough. As mom puts it, it knocks the stufing right out of him. Told her to go a buy some cranberry pills, medical proven to help stop the infection beffore it happens.
Still going strong with the breathing exercises. No suctioning for almost 2 weeks and O2 Sats always above 95%. Talked to the respiratory therapist about removing the trach all together and we will just wait and see.
Matt was complaining today of his legs being stiff and sore. Kept asking mom to move his legs because they hurt. Finally figured out it was his hips that were sore from his exercises and standing. My hips hurt after standing for any length of time so I can imagine what Matt must be going through. That is alot for his atrophied (wasted) muscles to hold right now. Encougraged to to stretching exercises on the weekends to prevent them from stiffening up.
Mom is going to ask the doctor tomorrow to order a bone density scan. Matt needs it in order to be accepted in Project walk in San Diego. Still have some things to look into, because the cost for one month is more then some people make in 6 months. But need prayers on what the right path is to choose. Without His guidance we will just struggle for answers. Eccl. 7:13-14 "Consider what God has done; Who can straighten what he has made crooked? When times are good, be happy; but when times are bad, consider: God has made the one as well as the other. Therefore, a man cannot discover anything about his future."
The staff are trying to encourage Matt ot eat more by himself. However Matt does alright for awhile, but then when he gets tired, not only does he stop feeding himself, he doesn't feel like eating. So in a Catch 22 situation . We want Matt's weight to increase so need him to eat, but also want him to feed himself to strengthen his right arm. Bit of a balancing act needed. They are continuing to feed Matt through the tube feed every night. He gets 80 mls/hour for a total of 1000mls /night. They will weigh him on Tuesday and then reassess.
While I was talking to mom, here cell phone said she had another caller. It was dad. So I waited and when she came back on the line she told me it was Matt looking for his home made wings! Talk about pushy! Mom was on her way back to the hospital and was almost there. I am sure he times it so she won't stop to chat with anyone (not that it would happen, because mom is known for her shyness!). I take after her!
More good news to come, I am sure of it.

The Lord is Good

I often would read the bible and learn of wonders that could not be fathomed and you think it will never happen to you. And now we can say that God does perform miracles everyday.
Today Matt was feeling really good this am and before mom and dad arrived they took Matt to rehab. They were so amazed by his previous stunt that they thought they would see what else he could do. They placed a belt around Matt's waist and 4 staff members helped Matt to a standing position in between the parallel bars (the kind you see when people are recovering from knee surgery for example and are retraining to walk after the cast removal). So after standing Matt up, they decided to let go. And wouldn't you know he stayed standing for 5 seconds all by himself!! The staff were there to steady him but Matt held all the weight on his legs (mostly the right) and his knees did not buckle. Matt, words cannot express how proud I am and so awed by God's grace. 7 months of not using your legs and very little exercise, you can imagine what it must be like on the body to do this. Matt was very light headed at first but he continued and did it 4 more times. Then he was literally exhauseted. But Matt you are getting so much stronger. He hasn't been suctioned for 9 days, he gets up earlier in his chair, his left side is moving easier, though very limited. When Paul, a fellow quad who works to improve the life af new quads met with Matt today, he was astonished. He has been working for over 20 years in Saskatoon and has never seen a c3c4 injury be as high functioning as Matt. The doctors are saying that Matt is making them rethink what they know about spinal cord injuries. Another person said he doesn't believe in divine intervention, but someone is sure looking out for Matt.
Matt, the Lord has put you in such a place to reach so many people. Psalms 34:6 'This poor man called, and the Lord heard him; he saved him out of all his troubles. The angel of the Lord encamps around those who fear him, and he delivers them."

On His Feet

Matt had a really good day. This is Day #6 with no suctioning and Matt is feeling great. The exciting thing was in rehab. They decided to try a new machine to see how Matt would do. It is a little complicated to explain, so forgive me if you don't quite understand. I haven't see it myself so I have to use my imagination.
This machine is different from the tilt table, where they strap Matt into it and tilt him into an upright position. He doesn't use his own muscles to do this, it is to see if he can handle the upright position without his blood pressure dropping.
So this "standing" machine looks like a hammock and Matt sits in this hammock/sling. They put straps around Matt's upper body so he won't fall out. In front of Matt is a table that he can rest his arms on that moves with the machine (hammock). Matt puts his feet on the floor on a blue sticky mat so his feet won't slide. So now Matt looks like he is sitting at a desk with his elbows and arms on the table. They slowly raise him up with the machine until Matt is almost in a standing position but his knees are slightly bent. Then the therapist asked Matt to use his arms, bum, and legs to push himself up the rest of the way. Matt was able to move about 3 inches off the hammock! Then he did it again 4 more times but stopped due to exhaustion. Way to go Matt! What a great feeling that must have been to put pressure on your feet for the first time in 7 months! And he had no dizzy spells or blood pressure dropping at all. Another plus!
I can't wait for mom to see him do this today and will give you feedback on her reaction later.
Signed Frosty the Snow-woman!

Deep Freeze

Welcome to the Ice Age! It has finally hit Alberta with a vengeance! -50C with the wind chill this morning. However being a good Sask. girl I put on my ski-pants, 2 jackets, scarf, hat, mitts, Sorel boots. When I arrived at work the staff laughed! However I was warm and they were not. Practicality before fashion when winter comes knocking!
Continues to be cold in Sask. as well. Mat didn't have therapy because the staff couldn't make it. But dad still made Matt work. They bought some scratch and win tickets and dad wanted Matt to scratch it himself. So dad taped a fingernail file to Matt's right index finger, placed a flat surface on Matt's lap and placed the scratch and win ticket on the surface with fun tack (that blue stuff). Well Matt won, so they had to go back downstairs to buy another one. Wouldn't you know it Matt won again! So another trip downstairs. This went on for 3 hours!! Matt, having to scratch on his own got to be pretty tiring, but he kept on until he was finished. Matt also played crib and a game dad used to play when he was young called "High Q" . Not sure exactly what it is but it is a solitary game that consists of moving large pegs into holes, using different strategies until there is only one peg left. Good work Matt, you will have to teach me that one.
No suctioning for 5 days and counting!! What a blessing that is! Matt feels so much better today because the "internal" discomfort he was having has now been removed, so eating was again a thing of pleasure. I think back to how many days in a row Matt would feel terrible, and thank the Lord it isn't like that anymore. You've come a long way, baby! Psalms 92:4-5 "For you make me glad by your deeds, O Lord; I sing for joy at the works of your hands. How great are your works, O lord, how profound your thoughts."

To The Mall

When I phoned dad in the afternoon yesterday I asked to speak to Matthew. First dad had to catch up to him. I was a bit confused until he told me Matt, Nolan, and Lindsay were at the mall and had just went down in the elevator and dad was left holding the bag! Well actually the parcels they had purchased. so when dad finally handed the phone to Matt, I thought it was Nolan. His voice was so strong and he didn't have any difficulty talking at all. Matt had bought a heavy parka for himself and now they were off to have supper. And he can't talk and drive at the same time so was able to speak with dad again. When I asked how the start of the day was, Matt threw up for the first time in a few weeks. However it is hopefully soon rectified once he gets back to the hospital. "Full to the Brim" has a new meaning. I will speak to dad later today so will have more to write.

Tired muscles

Even though Matt's rehab yesterday was limited in the length of time, it was very productive and Matt was feeling sore today. Good!! That means you were working Matt. Tired also from being up in his chair for over 10 hours yesterday. Today was not quite as long, only 7 hours but that was good enough. Rehab consisted of putting the TENS machine on his left arm. It stimulates his muscle to contract and try to give the brain a memory of that arm moving. They didn't have to turn it up very high in order for it to contract, which is great. Also Matt "cycled" with his arms.Tomorrow it sounds like Nolan may take Matt to the mall and go for lunch, so good to rest up.
Matt's breathing is going great. Still haven't talked to him on the phone but Nolan said he sounds and looks so much better than he did at Christmas. Matt's cough is so much stronger he hasn't been suctioned for 2 days. Prayers that before discharge that trach comes out permanently. It will be so much easier on him and us. Suctioning is a time consuming endeavour and I don't like it!! It makes Matt cough so much and it hurts him as well. Travel will be much easier too. James 5:16 "Therefore confess your sins to each other and pray for each other so that you may be healed. The prayer of a righteous man is powerful and effective."
No throwing up for a while which is a definite bonus. Ate well at dinner and supper too. Pack on the pounds, Matt. I am sure there are many of us who would give you their "extra".

New Trach

Wish I could have talked to Matt tonight but he was busy gallivanting around the hospital with friends. Spoke to dad and he stated that Matt had a new trach in yesterday, a smaller one with no cuff, so he can breathe much easier. Before when Matt would talk he would have to use his shoulder and abdominal muscles to breathe. Now dad says he looks more at ease. And his cough is so much more effective as well. Nolan and Lindsay went to visit Matt and are probably there already. Can't wait to talk to him and see what he thinks of Matt's improvements.
Rehab was limited today to just 1 hour, and they are really working on Matt to transfer. I had mentioned before if Matt could transfer he wouldn't need a lift to move him from the bed to the chair and vice versa. The physio had told dad that in the last few days Matt's right arm has gotten much stronger in all aspects, biceps, triceps etc. Keep up the good work Matt!! He played the game of "Sorry" and not sure how that turned out.
My cousin Shauna sent us an interesting website to look at from the states. It is called 'Project Walk", a facility where the motto is if you can feel, you can walk. If anyone wants to check it out it is www.projectwalk.org. A girl from Prince Albert is going in February after she suffered a C5 injury last July, I think. It is only in the states so might be an expense endeavour, but only time will tell. Prayers for continued guidance on God's pathway for Matt. Isaiah 58:11 "The Lord will guide you always; he will satisfy your needs in a sun-scorches land and will strengthen your frame. you will be like a well-watered garden, like a spring whose waters never fail."

Tonight will be a quick blog, 6am comes quickly. Matt talked to his psychologist yesterday and said it went well, but won't tell us what was said. I guess he knows what a snoopy family we are and wants to keep some things private. He met with the activity worker and a fellow quadriplegic Paul Gustafson to discuss some hobbies or sports Matt could get involved in. During rehab Matt was able to be on his stomach again , and using his elbows could lift his head and neck up (like a baby does when first learning) for about 3 minutes. He can roll much quicker from the right to the left side while he is on the mat, however he cannot do it in the bed because the mattress is too soft. He can't pull his hips over so always needs help with that. When he is up on his elbows while on his stomach, he can push and move his body forward slightly, with minimal assistance, just to get him started.
Matt has dropped a few lbs, from 170 to 168. But when I spoke with dad he said they were at ICU and having salt and vinegar chips with ice tea. So I thought he meant at City ICU. No.. they are already visited there and were now at RUH ICU. Matt and dad braved the cold to go out visiting.
With occupational therapy, Matt ate a bowl of soup by himself just using a regular spoon. He finds it difficult to get the angle right and it takes a lot of work, but he perseveres. He also played checkers for a 1/2 hour, but I didn't find out who won. believe me if it was Matt, I would have heard about it so I can guess who lost!! Please pray for guidance for decisions that will have to be made regarding Matt' s future discharge. God has a perfect plan for all of us if we just let him take control. Romans 8:6 'The mind of a sinful man is death, but the mind controlled by the Spirit is life and peace."

Travelling Man

I had phoned dad yesterday morning to discuss some medications that he (dad) was prescribed, but he wasn't able to speak with me. They were getting Matt loaded up into the cab to take him to the movies! So last night mom phoned to update me on Matt's day. She doesn't know what movie he went to, but they took him to the mall on 8th and Acadia with another rehab patient. Matt really seemed to enjoy it. Mom was able to talk to Matt on the phone and he is sounding stronger and he doesn't struggle to talk so much. Matt's breathing has improved with his exercises. Last week he could do 2 sets of 5 repetitions, so he could do it total of 10 times. Now he can do 5 sets of 5 repetitions, which equals 25 times. That was doing it once a day, now he has to increase to twice a day.
Matt told mom he was eating better, but they increased his tube feed to 80 mls per hour instead of 60 mls. Their goal weight for him is 190 lbs. We won't know how he is progressing until his next bath when they weigh him. Matt was already pre-ordering what he wants mom to make and bring with her when she returns. Homemade pre-cooked fries, pork chops, ribs with the bones in etc. Not to found of the stew so that is out.
I have another funny story about Matt. It involves Nolan as well. When Matt was about 7 years old and Nolan 9, they were playing outside while we were busy cleaning the house. Soon Nolan came in to watch TV. We asked where Matt was, and Nolan replied he was still outside. We didn't think much of it until 1/2 hour had passed and Matt hadn't come in. So we went outside to look for him. You could say he was"tied up" with playing...Literally. Here was poor Matt tied to a tree with a sock in his mouth!! Needless to say, after we had rescued Matt we proceeded to look for Nolan. Where did we find him? Hiding under his bed! I think he knew what was going to happen. But Matt was upset with us, because he wanted to play with his brother!! Talk about forgiveness! Ephesians 4:32 "Be kind and compassionate to one another, forgiving each other, just as in Christ God forgave you."

Quiet and Cold

Whew!! Can't believe how cold Saskatchewan is. Was at Jacki's over the weekend and we where complaining because the windchill made it -17. What a bunch of babies we have become!
Matt's weekend was quiet, but had lots of company. When I talked to Matt tonight, I asked him what he was up to and said he was sitting in the chair watching TV. I then asked what dad was doing... Matt replied "laying in my bed". However dad did have to help Matt with the phone occasionally because his arm would get tired.
Matt has been doing breathing exercises to strengthen his lungs. He has to breathe in and hold it for as long as he can. It is a special device dad has to hold for him. Matt doesn't like it too much because it is difficult for him and he gets tired quickly, but he keeps at it whenever he can.
When I talked to Matt, he is still concerned about his left hand. So please pray tonight that his left hand will get motivated and start to perform. If he had his left hand, he would be able to transfer from a wheelchair to a bed more easily, turn in bed, and eventually Matt would not need a motorized wheelchair, he could "downgrade" to one he moves himself. Psalms 32:10 "Many are the woes of the wicked, but the Lord's unfailing love surrounds the man who trusts in him."

Thanks for all the support

Thanks to all for continued support of Matt and our family. Sometimes you feel like your in a bubble alone and it feels great when the bubble pops! Matt had a pretty good day. He bounces back so well from everything. Dad arrived at 1:30 pm and was glad to see Matt looking so chipper. Matt's day consisted of a bath, stretches, 3/4 hour on the mat, 1/2 in the gym, and an outing to Tim Horton's for coffee! Wish it wasn't so cold in Sask. but managed it anyway. Went by cab and really enjoyed it.
Dad said Matt had so much company from home that by the evening he was feeling pretty tired. Matt had also been up since 7 am and didn't nap much during the day. But when Kristen brought Matt some KFC, he seemed to bounce back! He ate most of the chicken, fries, and the drink by himself. However Kristen helped him with the last piece just so he could rest his arm. Thank you Lord for your continued hand upon Matt. Psalms 145:14 "The Lord upholds all those who fall and lifts up all who are bowed down."
Another funny story about Matt came to mind while I was watching my daughter Shaunie. When Matt was learning to use the potty, he would whip his pants down 50 feet from the bathroom and waddle like a penguin the rest of the way. Thought it was quite funny until he started kindergarten and I was in Grade 12 and seen him coming down the hallway with "everything" on display because he needed to use the washroom. You should have seen me run that day1 Now my daughter does the same thing! Thanks for passing that on, Matt!

Blue Day

I could have written last night but was feeling blue regarding some news Matt received yesterday so I decided things always look brighter in the morning so I waited. Matt and mom attended a "Family Conference" to talk about the plans for Matt. They kept asking Matt what he wanted to do when he was discharged and what his plans are. He would just say "I want to feel better". So for now the discharge date from rehab is Feb. 29 (one day after his 21st birthday). They meeting was very discouraging because they feel that they have taken Matt as far as he will go and that he hasn't progressed in the last month. They really pointed at the fact that when we took him home, it was against their wishes and we had set him back. After the meeting Matt was feeling like a burden, that recovery may very well be impossible. I have a few things to say to you Matt. They are just human, and no one knows what the future will hold. Ephesians 6 tells us to put on the full armor of God, take up your shield of faith, because faith in the Lord gives you hope. He has done so much for you Matty, sometimes it seems so long ago that we forget.
And in regards of Matthew not progressing this last month, he can now write his name, not just print it, he plays Sudoku?(not sure how to spell it) and fill in the letter spaces himself, he can lift his right leg off the bed for a few seconds, and is gaining strength in his left arm. So Matt, you do not have to feel like there is no progress. But you do not have to do it yourself. Call on Him for the strength to continue, and every time you have rehab, ask him to carry you past the moment of stopping. Show them what the Lord and you can do together. Ephesians 6:16-18 "...take up the shield of faith, with which you can extinguish all the flaming arrows of the evil one. Take the helmet of salvation and the sword of God. And pray in the Spirit on all occasions with all kinds of prayers and requests."

Big Fatty! We wish!

Well Matt, the tube feeds must be doing something because you have gained 10 lbs in 8 days. They are continuing on the tube feed at night, but he is also eating better again. He doesn't eat breakfast but that will come. So Matt, keep on filling your face. I remember Matt as a little guy eating his meals. He would put his face down by his plate, open his mouth and shovel it in.
Mom and Matt were able to see the neatest wheelchair. It is from Europe and costs $30,000 but it has everything , Matt could even stand up in it. We are looking into having Telemiracle possibly paying for a portion and we would cough up the rest.
Yesterday went to visit the staff from ICU. Rehab went well. Matt did something new that he hasn't been able to do for 7 months. He laid on his stomach, maybe not the same way we do but they have to protect the trach site. Matt has to have his elbows bent and hands beside his head, and he is holding his head up for a short period of time. Then they get him to rock back and forth to strengthen his neck. Hard to explain but hopefully will see it one day. Everything seems to be gaining in strength but Matt is still mad at his left hand and lack of movement. The doctor is encouraging him to think of what Matt has, not what he doesn't have. Matt is not having as many spasms as much as he was having at Christmas. He was even able to get a nice massage, however it hurt a bit because that nasty knot is back. And Matt had trouble sleeping because he had a burning sensation in his right foot. The nerve endings are trying to retrieve signals from the brain but they are not coming through properly so causes him pain.
Lots of company today. Few black rings under his eyes but is feeling better. 2 more days of antibiotics and then he will be done. Tonight he was having trouble breathing, was having a hard time talking on the phone. So the RT came and suctioned Matt for large amount of phlegm, so doing better. It doesn't appear that the trach will be taken out any time soon, I think they are worried if Matt has more respiratory problem. It would be nice if it was removed because next weekend they are hoping Matt can go home for a few days. They are encouraging mom and dad to take Matt out somewhere at least every second weekend. So Matt is looking forward to that.
Mom is returning to work tomorrow so dad is coming in as a replacement. She will be there for the Family meeting which is great. Prayers that Matt will be infection free for a week and continue to gain weight. Go Matt Go!! Psalms 20:6 "Now I know the Lord saves his anointed; he answers him from his holy heaven with the saving power of his right hand."

Home cooked meals

Matt continues on the tube feeds at night, however he is also eating better especially in the evenings. And who could blame him? Mom has been bringing him home cooked meals she had prepared when she was in Weekes. Pizza, stew, chili, etc. Tonight for supper he received a good meal from the hospital but the big baby wanted mom's cooking. However mom makes him work for it. He must turn the pages of his book himself.
Sat up in his chair for 9 hours today and even had a siesta for an hour in the afternoon. Mom finally convinced him to take an Advil for his sore neck because Matt is starting to really dislike taking so many meds. They had Matt quite busy and was able to meet with some players from the paraplegic basketball team. Matt will start attending a support group that is run through the hospital. However after Matt met with 2 psychiatrists, one for a follow-up from RUH and another from City, they think he is doing great. They just can't figure out why he is so positive. And I asked Matt what do they expect, for him to swear, bite, or hit? Actually they do expect that but Matt just replied"Oh, I could never do that". God always amazes me that he provides the much needed inner strength to those who need it the most. He paved the way for Matt, that Matt would arise to the challenges he is facing with dignity and grace. He got it all from me!! And Jacki, stop laughing, it is true!! Actually the following verses give a true picture. 2 Cor. 4;7-8 "But we have this treasure in jars of clay to show that this all-surpassing power is from God and not from us. We are hard pressed on every side, but not crushed; perplexed, but not on despair; persecuted, but not abandoned; struck down, but not destroyed."

Apologies for not writing for awhile. So a little update is needed. Friday was uneventful. Matt had the tube feed on for 12 hours during the night at 40 mls/hour. However by Friday night they decided to increase it to 60 mls/hour. Matt's appetite is just not what it should be because of the lung infection and the antibiotics he is on. They started Matt on intravenous Penicillin and he also takes oral antibiotics as well. Dad went home for a break and is booked for a Dr's appt on Tuesday to see what is happening. Rehab wasn't overly productive because of Matt's weakness from the infection. However I do have a funny story to write, even though I promised mom I wouldn't. She is in Saskatoon, I in Red Deer, what can she do?! Mom helps Matt do leg exercises in bed. She bends those long legs and holds his knees together. Then she places her hands on the outside of his legs and gets him to push against her hands. To finish off he must pull his legs back together. However the clincher is that mom was unable to get her head back in time and he caught her in a WWF style headlock with his legs!! She couldn't get out, his legs were quite strong. So mom, for Matt's sake you have to do that everyday!! Just think of how strong he would get!
Saturday Matt was feeling better. At least he didn't have the dark circles under his eyes anymore. He stayed up in his chair and was feeling rather tired and wanting to go back to bed, but company came from Weekes and he immediately perked up and stayed in his chair for 5 hours. Matt ate better in the evening, which he generally does and didn't become sick. Regarding his trach, they decided not to keep Matt "capped" at night. That means the trach is left open and moisture and oxygen are attached to keep his secretions from getting too thick. Hopefully this will make him sleep better and be ready for the oncoming day. Thanks to all who come and visit and bring a little cheer into Matt's hospital stay. God provides comfort to his people so they in turn can provide comfort to others. 2 Cor. 1:3-4 "Praise be to the God and Father of our Lord Jesus Christ, the Father of compassion and the God of all comfort, who comforts us in all our troubles, so that we can comfort those in any trouble with the comfort we ourselves have received from God." That is a lot of comfort!!

Much Better

Yesterday Matt was feeling better, still not eating as much but his spirits have improved. Had some visitors from PP who were able to watch Matt "work out" in the gym. Then the occupational therapist played a game with Matt called "Connect Four". It is similar to checkers but it stands upright. Matt won that game however Devin challenged Matt to a game. When it seemed quite apparent the Matt would have to concede defeat, he quickly flicked the game to remove all the chips, so Matt, you are still a poor loser!! When we would play games when he was small, the crying that would go on because he had lost was something to behold, and of course the more we laughed the worse he got.
Dad was getting quite concerned about Matt's weight loss and lack of appetite. He discussed with the dietitian some of the food Matt likes and dislikes. At the beginning of the week, mom or dad fill out a card to say what is offered each day and some choices are available. However 90% of the time he never gets what he ordered. So hopefully the discussion with the dietitian will help matters. Because of the concern, they decided to put Matt back on the tube feeds at night. It isn't really a step back if it will help him regain strength and weight. Thank goodness they didn't take the tube feed out.
Mom arrived from her long hiatus from Matt tonight at 8pm. She observed a noticeable difference in the ease of movement for his right hand and arm. Also the left fingers continue to twitch, which is still hopeful. Also his right leg movements are somewhat stronger and he is having less spasms. We realize that Matt's improvement would be better if he had some private physiotherapy that could come when he feels at his best, say in the evening. So mom said she would look into it. Prayers that if this is the right decision, that things will work out, and that God will lead the way. Proverbs 3:7 "Do not be wise in your own eyes; fear the Lord and shun evil. This will bring health to your body and nourishment to your bones."

Another Bad Day

Before I get started, I would just like to thank the person who wrote the devotional message on the comments. We are very much in a world that tells us we must take control of our lives and change what is wrong. The difficulty in doing that is we are unsure of ourselves and often make the wrong choices. It was mentioned that God didn't make us strong, he made us vulnerable so we would turn to him. 1Cor. 1:25 "For the foolishness of God is wiser than man's wisdom, and the weakness of God is stronger than man's strength."
While speaking with dad tonight, he wanted to let me know that Matt's day yesterday wasn't all about eating. He actually only ate until 5 pm and then didn't eat again until tonight at 5 pm. So 24 hours without food isn't great. Matt weighed 174 lbs in November. Then pneumonia hit and the weight plummeted to 165 lbs. The weight today was 162 lbs. That is one skinny man. However Matt hit a record yesterday of being up in his chair for 10 hours, but it may have been too much as today he could hardly stay in his chair for 3 hours and just wanted to lay down. Rehab was very unsuccessful. They took one look at Matt's peaked and pale face and knew it was not a day for miracles. The doctors ordered x-rays of Matt's chest for tomorrow to see if another infection is taking hold. When they suctioned Matt it was very thick, which makes it difficult for Mattt to cough it up on his own. Thank goodness there is no fever at present and prayers that it stays that way.
I believe Matt is just so tired of being sick. He knows that rehab is so important and feels frustrated when he is unable to do it. Prayers that God will guide the physicians and nurses in discovering what bothers Matt's appetite so bad and that Matt will gain weight from now on.
2 Samuel 22:7 "In my distress I called to the Lord; I called out to my God. From his temple he heard my voice; my cry came to his ears."

Sunday: Matt had a tough day on Sunday. Nothing was going well. Everything was bothering him and his neck was really sore. He did not eat anything all day. Dad was feeling bad for Matt and the nurse finally told dad to go home, take a break, and the staff would feed Matt when he got up from his afternoon nap. She said knowing Matt he was just having an off day, and would bounce right back tomorrow. Sure enough that is just what happened. However it is good to know that Matt has far fewer psychological "off" days than others in his position, so he is still pretty positive.
Monday: Matt really picked up today. By the time dad got there in the morning he was up in his chair wanting to eat! And he didn't stop eating all day. The occupational therapist worked with Matt in his room playing games and watching how he could brush his teeth and wash his face. She tried a peg board with small dime size pieces that he had to move, and he did very well. After lunch the physio therapist took Matt to the mat to assess his functional capacity again, just to see if there was any difference from the last one he had before Christmas. tThey stated Matt was gaining in what he could do, that his strength was improving however slowly.
Thanks again to everyone who comes to visit and writes on the blog. Also a great big heartfelt thank you to all who came Dec. 29th hockey game in Porcupine. It was so great for Matt not to think of hospitals and rehab for a short while and it lifted his spirits. We are unsure of the final tally but it was well over $5000. It is a real blessing and can help in so many ways.
Proverbs 18:16 "A gift opens the way for the giver and ushers him into the presence of the great."

Quiet Weekend

Not sure what happened today. We had company and they left a short while ago and didn't want to phone dad so late. Also Jacki and the kids were here for a late Christmas celebration. The kids were so excited to get more presents!
Yesterday Matt was able to get his TV hooked up again right before the Canada/Sweden game. Good thing Canada won! Matt had some relatives for company and since there is no rehab on the weekends, it was pretty quiet. The big concern with Matt is is inability to gain weight. He is so sensitive to coughing spells, and any change in body routine sets him feeling nauseated. So prayers that this will pass and we can start beefing him up to increase his strength. Matt also had some trouble breathing but was relieved quickly. Lamentations 3:22 "Because of the Lord's great love we are not consumed, for his compassions never fail. They are new every morning; great is your faithfulness."
Dad was feeling much better so I think he was able to visit better with Matt. Hopefully have some more exciting news tomorrow.

Parking Ticket

Just got off the phone with dad. He was just getting into the truck when he noticed a parking ticket on his windshield. The main parking lot has been so full the last 2 months he had been parking on the side streets and walking to the hospital. He has been physically unwell for awhile now and today was really bad, so a ticket was the icing on the cake. But what can you do?
Matt is feeling so much better. He was quite constipated and now he is "all cleaned out". His breathing is easier and he was able to sit up in his chair for 8 hours today. Rehab was productive and they are trying different ways to see how Matt can help transferring himself from the bed to the wheelchair. He is still so weak and has lost some weight again from loss of appetite, so it may take some time to build up those muscles. Tonight the menu was Salisbury steak and it was really good. Rehab has been encouraging Matt to eat as much as he can on his own and he does fairly well for a short period of time. However dad was finishing feeding Matt when he throw up all his meal. He has this annoying dry cough and and that's is, everything comes up. So I suggested to dad to buy some Vick's and rub it on the soles of Matt's feet and give him a teaspoon of honey after he eats to coat the throat. It may sound crazy but whenever the girls are sick and they are coughing, I do that every night and it works! Just ask my cousin Shauna, she thought I was crazy until she tried it on Jada. So dad will pick it up in the morning before going to see Matt.
Today dad was a bit shocked when they got back to the room after occupational therapy and the TV was disconnected. Not sure what happened but hopefully they will get it worked out tomorrow. Matt has not been asked to pay for the TV since he got to the hospital, so I guess they decided it was time to start charging. So tonight he is watching "Pirates of the Caribbean" the new one, but unfortunately he missed the hockey game. Need to get the TV up and running for the Canada /Sweden game tomorrow.
Prayers for that left arm and hand to start working to make the transfers easier and that the trach can be removed sometime this month. Luke 11:9-10 "So I say to you; Ask and it will be given to you; seek and you will find; knock and the door will be opened to you. For everyone who asks receives; he who seeks finds; and to him who knocks, the door will be opened."

Keep The Faith

Was able to speak with mom for a few minutes tonight. Matt missed his physio this am because they felt Matt needed a good "cleaning out" before getting him up in his chair. I beg to differ, physio should come before that other stuff but he was able to go to the gym for the afternoon session. We as a family realize the huge amount of physio needed to get Matt up walking again, it isn't easy to exercise that 6 foot 7 inch frame! But we truly believe it is attainable, so prayers that those working with him will come to realize it as well. Job 12:13 "To God belong wisdom and power; counsel and understanding are his." If we could just glimpse at what God has in store and to see what He can see would ease our worries and anxiety. But Hebrews 11:1 states"Now faith is being sure of what we hope for and certain of what we do not see."
Matt said he is feeling better and they now think his lung infection was caused by a virus, not a bacterial infection, so antibiotics will not help. However to be on the safe side they decided to give him antibiotics anyway orally. The medication usually makes him nauseated but he managed to eat most of his meals in spite of the meds side effects.
Matt, even though we are not with you physically, as Jonmarie puts it, you are always in our hearts. Keep the faith Matt. Cheerleaders form across the globe are praying for you.

Happy New Year!

From the Gustafson Family, we would like to extend best wishes to all in the New Year. And i I agree with one of the blog comments, let 2008 kick butt! Matt has settled back into the routine in the hospital. Mom had to go back to work so it is up to dad to do Matt's neck stretches and encourage him to exercise. The occupational therapist was impressed at the improvement in Matt's throwing ability. Believe me, he had lots of practice trying to aim at my head! He can actually lift his arm off the chair's arm rest to throw the ball. Before he would just use his forearm and not his upper arm. Also, we had encouraged Matt to try and help us when we got him dressed. Mom would hold his legs in a bent position, then Matt would count and try to lift his butt so Airene and I could pull up his pants. It worked much better when we were taking his pants off, but Matt tried his best to help and managed to lift his right butt off the bed.
They believed Matt had a chest infection so they took a sputum sample just to be sure and started him on antibiotics. They also said how important chest physio is, so hopefully he gets a good one today.Matt isn't struggling so much to breathe now which is good to hear. Prayers that sometime in January he will get that trach out. It will be so much easier to bring him home next time without it.
We had noticed at home that Matt had a pressure point on his heel, so prayers that it does not get worse. A pressure point is an area that the skin remains red and the skin tends to get thin. Because Matt is susceptible to skin breakdowns, we have to be especially cautious. We had to turn him every 2-3 hours when he was in bed at home.
Thank God we were able to keep Matt at home for as long as we did. He needed a lifting up of his spirits. God is always with us. Deuteronomy 4:39 "Acknowledge and take to heart this day that the Lord is God in heaven above and on the earth below. There is no other."

A nice tribute...

Sorry for not keeping the blog updated the last few days - I've had trouble getting in touch with the family as they has been so busy!

Matt had been feeling poorly since Christmas (trouble breathing and feeling nauseous), but had recovered quite a bit after his big brother Nolan showed up on the the 27th (Nolan couldn't get off work until then). The family basically had another gift exchange on the 27th as Nolan brought gifts from Jacki & Gary and himself. Then they had two games of dice where Matt held the cup himself, and Nolan would sometimes help him lift his elbow so he could dump the dice a little better. Shelley said that whenever Nolan helped in this way, Matt would roll a 1000, so she protested that they were cheating and wouldn't let Nolan help him anymore!!! (poor loser).

Friday (the 28th), Matt's employer held their annual Christmas dinner at the Weekes Arena, and Matt was able to attend. He had a great meal and stayed at the dinner for about 3 hrs and had a wonderful time seeing his coworkers. His coworkers had a scrimmage game of hockey, and Matt hung out in the dressing room while they changed, and then watched the game from inside. By the time he got home, his neck was really sore, but Irene did some really good stretches on his neck to ease the ache.

Yesterday (the 29th), there was a benefit hosted for Matt at the Porcupine Arena that included a hockey game, 50/50 and a silent auction. I guess Matt had cold feet just before the opening ceremonies, and didn't want to go in, but Shelley and dad encouraged him and he was able to get up his nerve and "drive" himself to centre ice (Shelley stayed with him). For those of you who were there, Matt just couldn't look at the crowd he was so nervous, but he was grateful you were there just the same!!! He enjoyed the raising of the Provincial Champion flag and the singing, and was happy to see his former team members get recognized. After the formalities were over, Matt was able to visit with people inside the arena and watch a bit of the game. Mom thought there was approx. 400 people at the function, and we want everyone to know how much we appreciate you attendance and your generosity for Matt! He had a wonderful time and we hope you did as well!

The women of the family are quite exhausted from dealing with the 3 kids - Shaunie, Jonmarie & Matt! Matt's daily care is quite extensive as getting him up in a chair takes all 3 women, and doing his exercises usually takes 2, and suctioning him with a broken suction takes 2 people. So Shelley now needs a vacation from her vacation!!!! Irene was really impressed with how Matt tried to do everything she asked no matter how hard it was to do. When he is lying down, he is able to lift his right leg off the bed about 4 inches, and hold it for a second or 2. Keep of the improvements Matt!

Mom & dad were planning on taking Matt back to Saskatoon today, much to his dismay, but he really needs to go back and start on his daily physio again. Please pray that they have a safe trip back to the city, and that Matt will be able to stay motivated back in the hospital so that he can continue to improve his range of motion. Phil 4:6 "Be anxious for nothing, but in everything by prayer and supplication, with thanksgiving, let your request be made known to God."