A nice tribute...

Sorry for not keeping the blog updated the last few days - I've had trouble getting in touch with the family as they has been so busy!

Matt had been feeling poorly since Christmas (trouble breathing and feeling nauseous), but had recovered quite a bit after his big brother Nolan showed up on the the 27th (Nolan couldn't get off work until then). The family basically had another gift exchange on the 27th as Nolan brought gifts from Jacki & Gary and himself. Then they had two games of dice where Matt held the cup himself, and Nolan would sometimes help him lift his elbow so he could dump the dice a little better. Shelley said that whenever Nolan helped in this way, Matt would roll a 1000, so she protested that they were cheating and wouldn't let Nolan help him anymore!!! (poor loser).

Friday (the 28th), Matt's employer held their annual Christmas dinner at the Weekes Arena, and Matt was able to attend. He had a great meal and stayed at the dinner for about 3 hrs and had a wonderful time seeing his coworkers. His coworkers had a scrimmage game of hockey, and Matt hung out in the dressing room while they changed, and then watched the game from inside. By the time he got home, his neck was really sore, but Irene did some really good stretches on his neck to ease the ache.

Yesterday (the 29th), there was a benefit hosted for Matt at the Porcupine Arena that included a hockey game, 50/50 and a silent auction. I guess Matt had cold feet just before the opening ceremonies, and didn't want to go in, but Shelley and dad encouraged him and he was able to get up his nerve and "drive" himself to centre ice (Shelley stayed with him). For those of you who were there, Matt just couldn't look at the crowd he was so nervous, but he was grateful you were there just the same!!! He enjoyed the raising of the Provincial Champion flag and the singing, and was happy to see his former team members get recognized. After the formalities were over, Matt was able to visit with people inside the arena and watch a bit of the game. Mom thought there was approx. 400 people at the function, and we want everyone to know how much we appreciate you attendance and your generosity for Matt! He had a wonderful time and we hope you did as well!

The women of the family are quite exhausted from dealing with the 3 kids - Shaunie, Jonmarie & Matt! Matt's daily care is quite extensive as getting him up in a chair takes all 3 women, and doing his exercises usually takes 2, and suctioning him with a broken suction takes 2 people. So Shelley now needs a vacation from her vacation!!!! Irene was really impressed with how Matt tried to do everything she asked no matter how hard it was to do. When he is lying down, he is able to lift his right leg off the bed about 4 inches, and hold it for a second or 2. Keep of the improvements Matt!

Mom & dad were planning on taking Matt back to Saskatoon today, much to his dismay, but he really needs to go back and start on his daily physio again. Please pray that they have a safe trip back to the city, and that Matt will be able to stay motivated back in the hospital so that he can continue to improve his range of motion. Phil 4:6 "Be anxious for nothing, but in everything by prayer and supplication, with thanksgiving, let your request be made known to God."

Twas a Merry Christmas!

Just wanted to give a quick update on Matt's Christmas.... Matt had trouble with his fever on the 24th, trouble breathing,and he wasn't eating - to the point that Mom & Dad tried to convince him that they should return to Saskatoon. Matt was determined that he was going to stay home for Christmas though, and with lots of prayer and diligence on the part of the "doctor" (John) and "nurses" (Mom, Shelley & Irene), and the use of some equipment from the Porcupine Hospital (I can't remember what it was called, but it helped Matt to breathe) Matt's condition had improved that evening. Having got through an emotional day, everyone had a great time celebrating Christ's birthday!! Matt was able to get up in his chair a few times to visit with everyone (there was about 15 adults at the house yesterday for Christmas), play games, and of course, eat turkey dinner! Late last night he was still playing "Scene It" with the family. Praise God for blessing Matt with a wonderful day! Hope everyone had a wonderful Christmas with friends and family, and will post more in a few days.

A fever strikes

Well, despite our prayers to the contrary, Matt developed a fever around 2pm of 101.2. He was adamant that he was going to be all right and not have to go back to Saskatoon early. It seems that God agreed and his temperature has been going down all day and at 10pm SK time, it was only 98.9. Because he felt poorly, he did not get up in his chair today. However, Mom & Dad have to be more strict as he needs to sit up everyday to help clear his lungs. Because of this fever, he did not have any visitors today, but I'm sure he'll be up for some company tomorrow. Matt has able to eat supper (sweet & sour meatballs & rice - one of his favorites!) and keep it down which is good. Please pray that Matt will recover from this fever by tomorrow and have a good day and week. James 5:15 "And prayer of faith will save the sick, and the Lord will raise him up. And if he has committed sins, he will be forgiven"

The cavalry arrived in the form of Shelley, John, Irene and girls at 7:30pm, and Shelley was able to suction Matt and get a lot of secretions out. I guess she's taking over, and Mom is quite happy about that. She'll do the night shift she says.

In case we miss the next few days due to the craziness of the season, we want to wish you all a very Merry Christmas and God's Blessing on each of you.

Finally home!!!

Matt is finally home, and couldn't be happier. It was sure a process to actually get from the hospital to the van, and then to the house, and then into the house.... Special thanks to a neighbor who came to the house to help dad lay the ramp, bring everything into the house including the bed and lift, and help get Matt himself into the house. Mom & dad couldn't have done it without him!

It was fairly late when they arrived in Weekes (8pm), but they had started leaving at 12pm!!! But the hospital was super busy, and Matt has a lot of luggage (extra wheelchair, lift, bed, portable suction, ramps, etc...). The van worked a expected - drove well, ate lots of gas, and was a little cold. But it got them home!

I know some friends had hoped to see Matt this evening, but he was just too tired with all the activity from the day. Mom said he's sound asleep right now! Please pray that Matt will stay healthy with no infections or other complications so that he can remain at the house all week. Praise God that Matt is home for as it says in Psalms 9:1 "I will praise You, O Lord, with my whole heart; I will tell of all Your marvelous works."

Home for Christmas

Sorry I haven't written on the blog for 2 days. Christmas is coming whether I am prepared for it or not, and I realized I am not! We are planning on leaving tomorrow early and driving all day until we get to Weekes. Hopefully everything is still a go. Matt wasn't feeling very well last night. Mom said she knew something was wrong but wasn't sure what it was. He was very flushed and had no appetite. States his body was achy. They took his temp and it was fine, but his pulse was high. Later Matt told mom that he wasn't getting in enough O2, so they checked his O2 sats, and it was only at 83%. Remember the normal range is 97% - 100%. The nurse tried to suction him with no relief. So they finally called down to respiratory, but they were busy in ICU, Matt's breathing became quite heavy and the nurse put O2 on Matt and turned it way up. Eventually when respiratory arrived, Matt's O2 was up to 95% and he was feeling better. He did not have chest physio yesterday and that may have been the problem. Hopefully it was just a mucus plug and was nothing more serious. Matt wants to go home more than anything. Prayers that today they will be on their way to Weekes. Psalms 6:9 "The Lord has heard my cry for mercy; the Lord accepts my prayer".
Mom says they have 5 huge bags worth of stuff for Matt, so dad has to take some of it home in his truck. And they also have to take a manual wheelchair in case the motorized one fails. Therapy is sending home some weights for Matt to use and Airene ( my physiotherapist nanny) and I already have some exercises in mind. The best thing about us being there is we can do Matt's exercises whenever he feels good, not just at certain times of the day. So if he feels good at 10 pm, we can work on him at that time.

We Have Found A Van

Finally we have found a van big enough to transport Matthew. The original idea was to borrow a van from another quad patient, but it was just too small. They tried everything, but Matt would just not fit. Then he became very cold with all the maneuvering. So took awhile to warm up. Another quad patient was able to let us try out her old 1988 van, which will work. It is a bit of a gas guzzler, but it will work!! So it definitely sounds like Matt will be home on the 22nd of December. So now it is safe to tell everyone about a little get together they are planning for Matt at the skating rink in Porcupine There will be a hockey game between Kinistino and Porcupine, there will be a few silent auctions and raffles, and a dance afterwards. So mark December 29th on your calendar and be there at 7:30 p.m. For further information contact Dwayne Thorpe at 278-3163.
Matt didn't have the best day yesterday. Still not feeling well from the antibiotics so he didn't do well at rehab. They had a staff/patient Christmas party, but Matt was only able to atttend for a few minutes. That's alright Matt, you will make up for it when you go home.
I would like to write more but my computer is acting up an it has taken me 1/2 hour to write this, so will write more tonight.

A New Development

I realize Jacki had already written the blog tonight however I received a bit of news that she didn't know about. After dad had spoken to Jacki on the phone, I phoned because...well... I am nosy and like to have first hand knowledge of every day's happenings. Matt was so excited. He had just received a Grey Cup Jersey signed by all the team members of the Saskatchewan Roughriders!! Also a signed bandanna! He couldn't believe it. Apparently, one of the nurses from ICU wrote a letter to the Riders explaining Matt's situation and asking what they could do. Their initial plan was to come and see Matt, however that didn't turn out but what they did was great! So a big thanks to all involved, and if any of the team members are in Saskatoon, swing by the City hospital for a visit. Will take pictures over the holidays to put on the blog.

A little unwell...

Matt had an OK day. Because he has a urinary tract infection, he's back on antibiotics which always make him sick (started on the pills yesterday which partly explains his nausea yesterday as well). Also, they did x-rays today which showed that Matt hasn't had proper bowel movements, and is a little "full". They've started him on medicine (oral fleet) which will help clear that up as well.

Despite the above issues, he still had a pretty good day. He was in and out of his chair about 3 times which is great. I remember when he used to battle when he was encouraged to get in his chair just once for about 1/2 hour. Now he asks to be in his chair so he can scope out the floor, go down to ICU and visit with his former nurses. By the way, he did go to RUH on Sunday for about 2 hrs to visit the staff there. I guess the staff were sure excited to see Matt, and how well he is doing. Anyway, he had a good rehab session where they mostly worked at transferring. Because he's getting stronger, they no longer need 3 people to transfer him. They need to use 2 people right now, but he's getting closer to just 1. Please pray that Matt will continue to strengthen his upper body to assist in this technique and so that he can eventually do this on his own. 1 John 5:14 "Now this is the confidence that we have in Him, that if we ask anything according to His will, He hears us."

A big day

Today, Matt had about 3 hrs of rehab. Maybe a bit too much as he got tired, then didn't want to eat lunch because he felt nauseous, then he had to have gravel. This caused him to sleep from 3pm until 6pm - but once 7pm came along he ate all his supper from the hospital, plus poached eggs courtesy of dad.

Rehab highlights - He has a different therapist today who has a slightly different approach then some of the others, and wanted to see all he could do. She then tried 2 new exercises: 1) She got him sitting up on the mat, then lifted the mat hydraulically so that his feet were just barely above the floor. Then she asked him to straighten out his leg so it would be parallel with the floor. Matt was able to lift each leg one at a time almost level (about 2/3 extension), hold it for a couple seconds, and then back to the floor. Awesome job Matt! 2) She had him lie down on his back with his knees up, and his heels on the bed. Then she moved his legs apart, and he could pull them back together again. Praise God that his quadriceps and his groin muscles are working!!!! Phil 4:4 "Rejoice in the Lord always. Again I will say, rejoice!"

Matt continues to play cards - once someone shuffles for him, he uses his right hand to deal out the cards, put his cards in his holder, play out the cards, and move his own pegs. Also, he has started to go daily to the community computer on the floor to read people's comments. Thanks so much for your support and prayers as Matt continues his recovery.

A very rewarding day!

A normal weekend

As most of you know, Matt doesn't have any physio or planned activities on the weekends, but he was busy none the less as he had lots of company. This is appreciated so much as it helps to pass the time more quickly until Monday when he starts his hard work again (just like a regular work week!). I wasn't able to talk to dad today, so I'm not sure if anything out of the ordinary occurred. However, I did speak to my mom who talked to dad earlier in the day. They had planned to go to RUH to see his old nurses, but I'm not sure if they did or not. Will let you know tomorrow.

As for our Christmas plans, please pray that God will continue to lay the pathway for Matt to be able to go home to Weekes for the week. We will find out Tuesday whether or not we will have a van or not. Mr. Paul Gustafson (not sure if we're related or not), the paraplegic from Saskatoon who speaks at the hospital has told us we could borrow his old van as long as his new one is delivered on Tuesday. We are praying that his van is delivered on time as this had been a major obstacle for Matt getting home. Also pray that Matt's health continues to be strong for the week so that there are no setbacks in that area. Psalm 28:7 "The Lord is my strength and my shield; my heart trusted in Him, and I am helped; therefore my heart greatly rejoices, and with my song I will praise Him."

Best 2 days yet!

Emotionally & physically, Thursday was one of Matt's best days to date. The trip to the mall really boosted his spirits, and seemed to make him realize that there is life outside the hospital. We think he now wants to be part of it, and so he's making a more concentrated effort towards his physio and communication with people. Dad has never seen him eat like he did yesterday - almost continuously. Dad was feeling like a server at a restaurant, but with only one customer, and no tips!!! Also, Matt is no longer being reserved around other patients, but is actively engaging them in conversation. Praise the Lord for this change in outlook! Psalms 139:14"I will praise You, for I am fearfully and wonderfully made; Marvelous are Your works, and that my soul knows very well." Matt sat in his chair for 8 hours (a new record), and was able to hold 300 ml in his bladder without leaking. As well, Matt is being more conscious of doing his own exercising in his room (strengthening his neck muscles), and is really just trying a little bit harder. They are really working on his transfer from the chair to the raised mat, and they are trying different techniques to see which works best.

Today, he had another really good day. Because he's feeling better (pneumonia seems to be gone), he's more upbeat. He was in his chair for 8 1/2 hours - which is better than yesterday, and he also had a great day at physio. Dad said they put him on the tilt table today which is something they haven't done in a while (reminder - this table takes a person from lying down to standing up). They gradually increased the angle to 70 degrees, which is the highest he's ever gone - Way to go Matt! He only had one dizzy spell which is pretty good as his body is still adjusting to being upright. Once he was in his chair again, the therapist had Matt hold a substance similar to putty/playdoh in his right hand. He is able to squeeze this quite tightly and make fairly significant indents into the putty. The therapist than asked Matt to try squeeze the putty in his left hand. Matt was rather skeptical as he feels his left hand has no strength at all. But he tried anyway. Dad said he worked so hard he was sweating, and wouldn't you know, there was a little imprint in the putty! Thanks so much for your continued prayers for Matt's recovery and may God continue to restore his spirit.

First Outing since June

Even with the business of the season, Matt still wanted to go a fight the Christmas shoppers. And so he did. The first outing for 5 1/2 months. He was so worried people would stare at him and he would be too anxious. Dad told him everyone is too busy trying to get their shopping done to bother staring. And sure enough it went great. "Excellent" as dad put it and I have never heard him use those words. Matt was just beaming when he arrived at Midtown. It was like a kid in a candy store for the first time. He just couldn't get over the sights, all the different sounds, and the smells. Also, had to check out the girls walking by as well. Typical guy. They weren't there very long before he seen someone he knew. You know how it is when you go hunting for mushrooms. You don't see any for awhile, then all for a sudden you see hundreds. That's what it was like for Matt at the mall. Dad said his visiting took up all of his time. There were so many people he knew. They told Matt the first outing would be the hardest, and I think it is the fear of the unknown that is so difficult. But once you actually do it, it is a big relief.
Rehab went well. Still trying to increase the strength of his right arm and hand. However the physio states the left arm is definitely improving and getting stronger. Still praying for the left to kick into high moving mode, but praise for hope of regaining full movement. Hebrews 12:12 "Therefore strengthen your feeble arms and weak knees. Make level paths for your feet, so that the lame may not be disabled, but rather healed".
Matt was quite impressed last evening. He had told dad to call the nurse to do his catheter. He tries a bit by himself, and they see how much is left over. The total amount was 500mls, and he didn't bypass or "leak" at all. Great news. Dad had to go and pick up a prescription from the drugstore for an antispasmodic for his bladder. In other words, a pill that stops his bladder spasms, and will help his bladder to tone, so maybe soon he can go on his own. The medication just became available in Canada, so some of the pharmacies don't carry it, and the hospital doesn't either. So glad the doctor knew what pharmacy to send dad to in order to get it. Matt took his first pill last night, so we will have to wait and see.

Disappointing Day

Matt had a disappointing day. They had planned an outing for him to the Midtown Mall. However when the transportation arrived, Matt didn't fit. They tried reclining him, but they were unable to close the door because his feet stuck out. So to "vent" his frustrations, he went to ICU to visit. One of the nurses' stated her husband worked for a different cab company and she contacted him to see if he was free. So they went down and just tried to get Matt into her husband's cab. Matt fit, however the outing had been cancelled already, so hopefully they will go again tomorrow. Dad and Matt still took advantage of being all dressed up with no where to go. They took a spin outside for about 10 mins, but eventually the elements got the better of them and they came back inside.
Matt didn't get much in the way of rehab because he had to go for an ultrasound of his kidneys and bladder. Worried because it is not working properly and want to find out if there is a mechanical problem (tumor, blockage, etc) instead of a spinal cord problem.
It has been an adjustment to move from ICU to rehab. I think Matt is missing the one on one care. Hasn't really got to know the staff yet, as he doesn't see them as much. Hopefully that will change and they will come in to help a bit more with his activities of daily living. Thank goodness for the constant support of dad who is the cheerleader this week. Mom will not be back until next week. Prayers that Matt will continue to improve regardless of setbacks. God knows of our needs and the solutions to our problems, even when we don't. Proverbs 3:5-6 "Trust in the Lord with all your heart; lean not on your own understanding; in all ways acknowledge him, and he will make you paths straight."

Still a Annoying Little Brother

I was able to talk to Matt on the phone today. Sometimes it is like pulling teeth, my own. I was asking him in depth questions about how rehab was going, what exercises they were doing, etc. Pretty soon, he says he has to cough, so I begin speaking to dad. I little longer in the conversation, I ask dad how Matt is doing. Just great. He was watching wrestling on TV. I asked how his cough was, dad laughs and said Matt didn't have to cough, he just didn't want to miss his show!! Little stinker!
Yesterday Matt was treated like a sheik. One of the RN's from RUH came and gave Matt a pedicure and manicure. She spent the whole afternoon with him, which really perked him up. Also more company from Weekes, so even though it was a Sunday, it wasn't a quiet day. Just a little note of thanks for all those who take the time out of their day to visit Matt. It really helps him focus on other things beside the hospital.
Anyway, therapy is going okay. They are continuing to do exercises to make Matt more self reliant. They put Matt on the mat, situate him so he is on his side, then he has to roll onto his back. That is working out pretty well. The tricky one is trying to get him to sit up. They place his left arm in a hoop above his head (he is laying down), bent at the elbow, then while they are holding it in place, they put his right hand behind him so he can push himself up. So while his left arm is pulling, the right arm is pushing. It reminds me of that picture of two kids with a wagon, the caption reading "Are you pushing or pulling back there?" That exercise will take work, but it is progress.
Matt meet with a counsellor today regarding how he is doing emotionally. Matt old me he couldn't tell me what was said, but he did mention the therapist told Matt to be himself, because he has such an amazing attitude. We didn't need a psychologist to tell us that. We already know!!
Matt had a pulmonary test today. I took over one hour. Since Matt wouldn't talk to me because of stinky wrestling, I am not sure what tests were involved, but dad states they were pretty impressed with the outcome, and were generally surprised that Matt has only been off the ventilator for such a short time. There is even rumors going around they may take the trach out before Christmas. While they are at it, they can take that tube out his intestine as well. However, Matt did lose weight when he was sick, and is down to 165 lbs. But dad says they way Matt is eating, he will soon get that weight up. So prayers that if it the right decision they are able to remove both the trach and feeding tube before Christmas. It will make taking him home so much easier. Let us continue to have faith in Matt's progress. Hebrews 11:6 "And without faith it is impossible to please God, because anyone who comes to him must believe that he exists and that he rewards those who earnestly seek him."

Brushing His Teeth

Matt can brush his own teeth. Yesterday, dad was getting the toothbrush ready to brush Matt, teeth. Matt looked quizzically at the brush, then said"let me try". So dad put it in Matt's right hand and away Matt went. He was even able to turn his wrist to get the back of the mouth. He couldn't push really hard, so dad finished up for him. However, Matt must of felt dad didn't do a good job, because later, dad noticed Matt had grabbed the brush off the table and was working away again. Way to show dad how to do it right!
A social worker came in yesterday to tell Matt about having his signature photocopied from before the accident, then having it put into a stamp so we don't have to have power of attorney. He will have to go down to a govt office to make it legal, but then Matt can make his own decisions on what he will put his signature on.
One of the male nurses was really on Matt's case about eating. He told Matt that whenever he feels good, he must eat as much as he can. The nurse also encouraged dad to do whatever he can to make Matt's food more palatable. So dad brought an egg poacher form home, and made Matt poached egg. Dad said he couldn't make them fast enough! Matt sucked them back like a vacuum cleaner! Full of protein which is great. He needs protein in order for his muscles to build. Every movement he makes requires so much effort. Not only are his nerves damaged and the signals are not as strong as they should be, but his muscles have wasted away, so to brush his teeth takes quite a herculean effort.
More company from home in to visit, and the patient from Meadow Lake visited Matt for 2 hours. So even though it was a weekend, Matt was still busy. At 9 pm, feeling tired so hopefully he slept right through without waking up. He told dad when he has those panic attacks, they are awful. Matt wakes up having that overwhelming feeling of dread, and he feels like jumping out of bed and getting away, but he can't, so the cycle continues. Prayers for those feelings to stop and a peace surrounds Matt. 1Peter 5:7 "Cast all your anxiety on him, because he cares for you".

Mom left

I will have to write about yesterday. Unable to contact dad tonight. Mom had to go back to Weekes to work, feeling down and teary, she will be gone for 10 days. God doesn't prevent things from happening, but if we ask he will give us the strength to persevere. Hebrews 5:3
"Not only so, but we also rejoice in our sufferings, because we know that suffering produces perseverance; perseverance, character; and character, hope". We may not rejoice now, but maybe 1 year down the road we will. Hebrews 11:1 "Now faith is being sure of what we hope for and certain of what we do not see".
I think we see all the progress because we are not there for the day by day struggles, but mom, dad and Matt feel progress is slow. So to recap, 6 months ago, Matt was unable to move at all, not able to drink even a tiny sip of water, constant pain, unable to even mouth words due to the ventilator in his mouth, and prognosis was very bleak. So if you look at it that way, you've come a long way, baby!! Yesterday's teleconference was with the doctor in Vancouver, to give tips on what should be done and what may help. The urologist consult found that Matt's urinary sphincter, instead of releasing when he has to pee, actually constricts or tightens, so it is not quite working properly yet. Hoping they may give him some exercises to help that.
Talking about Matt going home for Christmas. Still up in the air. They want him to have an air mattress for the hospital bed, so we can rent one from the hospital for $100/week. Prayers that Matt's pneumonia will be better and he can come home to Weekes.
Matt is getting better at playing crib. He can pull out the card if you hold them, and then lay the card down. Not only that, he can peg on the crib board as well. That is fine motor skills and that is great news. When mom would lift his left hand, he could wiggle his four fingers, and his thumb would quiver. But that is how his right hand started and look what it is doing now. Matt's TV is one that comes out of the wall, like most hospital rooms. If situated so he can reach it, he can turn off the TV, change channels, turn volume up and down. Great job Matt! We are so proud of you! You keep astounding them everyday, and never give up. We have half the country rooting for you. Praise God for continued success. Joshua 1:5 "....as I was with Moses, so I will be with you; I will never leave you nor forsake you."

Exercises

Jacki and the kids are leaving today, so last night was very busy. Jacki and Dad went to see Matt and Grandma got to stay with the kids. They are working on getting Matt to strengthen his neck muscles. When his head goes too far forward, he is unable to lift his head back up. And strong neck muscles are needed for most of his movements. The physio is working on transferring from the chair to the elevated mat, rolling over using the swinging motion of his arms and head, and starting to get him into a sitting position. That one will take more time a work, but it will come. Matt's stomach muscles are getting stronger every day, so time will tell.
Everyone ate in the lunchroom. A 25 year old patient in there keeps coming and asking Matt to join the group. However Matt is still self conscious and doesn't go in there too often. But last night he did. Jacki said that she would hold mini carrots in her hand and Matt would be able to pick them up and put them in his mouth. He dropped a few, but he did that before his accident as well! He doesn't really use his fingers for much, because the tips are still numb and he can't feel with them very well. So when he wants to scratch his nose, he curls his right hand into a fist and scratches with his knuckles.
Today will be a busy day. They have a teleconference with the specialists in Vancouver regarding the strength of his diaphragm. Way back in Sept I think, there was a discussion on implanting a "pacemaker"in his diaphragm to help him with his breathing. Matt's diaphragm still isn't the strongest, so not sure what they will discuss. Then his physio at 1100, urologist consult at 1 pm and then more exercises in the afternoon. So hopefully mom will be able to tell me some good things. Will write again tonight.

Matt's new exercise partner

Matt had some very active visitors for his physio in the gym. Bobby, Jacki's boy, decided to help Matt with his exercises. Bobby loved playing with the balls, climbing the stairs, general 2 1/2 year old stuff. So Jacki could not tell me how Matt's exercises were, because she was preoccupied. And I thought all mom's had eyes in the back of their heads! After the gym, Matt took Amy, Jacki's girl, for a ride in his chair. She sat with him the whole time. Then Bobby got a turn, however he is a bit more busy, so it was a short lived ride.
Matt ate somewhat better today, and Jacki is supposed to encourage fluids, but "forcing" sounds more appropriate. Matt says he is going to swim pretty soon, he is so full. And Jacki tried to help him with his coughing. If you time it just right, when Matt is in the middle of a cough, you push on his stomach to "assist" him with coughing. However Jacki forgot to let go, so when he tried to breathe in, he couldn't because she still had her hand bearing down into his abdomen. She finally caught on when Matt started to turn blue! Well it wasn't quite that bad, but "assisted" breathing now has a whole new meaning!
Mom had bought Matt a Christmas tree, so his room is more festive. There are some stickers on his window as well, which prevents him from spying on the people in the parking lot. Just remember, if you come to visit, someone is watching you!
Whispers is now at the house waiting for surgery. He needs new batteries, but there is quite a waiting list, and it might not get done this year. And the surgeon went home, and the resident on call is not the best when it comes to these types of procedures (sorry mom!), so best to wait until the specialist comes back (dad, bring your tools)!
Last night, I prayed very hard for Matt to be free from anxiety during the night, however I forgot to pray for him to sleep. And wouldn't you know it, Matt was up from 4-6 am, just because he couldn't sleep, but he had no anxiety. I will have to be more specific tonight! Thanks for all the continued prayers for Matt, and keep them coming! James 5:11 "As you know we consider blessed those who have persevered. You have heard of Job's perseverance and have seen what the Lord finally brought about. The Lord is full of compassion and mercy."

Anxiety Begone!

Matt has been having some issues with anxiety attacks at night. He wakes up and can't go back to sleep. Those panic attacks make it hard for him to breathe properly, and his neck becomes really sore from being so tense. They didn't get him up for rehab until mom came, because Matt was so tired with dark circles under his eyes. But eventually he did make it to the gym, and mom was surprised at how much more strength Matt has. She hasn't been to rehab with him for a few weeks. When they hooked Matt up to the bicycle for his arms, he was able to push with his left wrist and arm, even though his hand doesn't move much. When he sits at a table, he is able to reach across and grab the edge of the table with his right hand. Also, by manipulating certain nerves and muscles in his butt, Matt is able to move his legs slightly up and down. The physio bends his knees, and then Matt slowly slides his feet towards his bum to bend his legs more. (When mom explains it, I try to visual it in my head to explain it to you, however it may not be exactly correct).
Since Matt has been on antibiotics, he hasn't been eating or drinking as well. It is more difficult for Matt to stay hydrated in rehab. In ICU, it was one on one care and the staff were continuously in and out to push fluids. In rehab, they only come when he calls with the buzzer, and he cannot drink without someone to help him. So the doctor encouraged Matt to ring every hour for something to drink. They are a little worried his secretions are getting too thick, and his cough isn't as strong. But Matt doesn't want any O2 or moisture at night, so hopefully he will drink enough fluids.
Jacki and the kids came down for a visit. Matt is always glad to see his niece and nephew. And of course Jacki as well, though I don't know why! She is terrible to play games with because she hates to lose! I know where Matt gets it from!
Prayers that the anxiety attacks will diminish, and Matt will get good nights rest. Needs to be strong for his workouts. 1 Thess 5:16 "Be joyful always; pray continually, give thanks in all circumstances, for this is God's will for you in Christ Jesus".

Lots of company

Yesterday was quiet in regards to physio, but very busy with company. When Matt went to sleep at 11 pm, it was a good tired. He was exhausted, but it will help him sleep throughout the night. Friday night they had to suction him quite a bit, and then had to give him gravol for nausea. Mom is not sure how he slept last night, but hopefully it was better.
Yesterday he also joined the ICU staff for a pizza party. It was a party "just because", which is as good of reason as any to have a get together. Eating by himself is still progressing. Matt can get the spoon to his mouth about 5-6 times. The hardest part is getting the food on the spoon, or stabbing it with his fork. But it all helps that fine motor skills to "relearn" what is once knew to do, but now needs repetition to remember how it works properly.
3 more days worth of antibiotics and then the IV can come out. It is in a very awkward place, which makes it a pain, but hopefully this will be the last pneumonia Matt will ever get. Colds, okay, maybe an earache or two, but no more pneumonia!! However the respiratory therapist feels Matt's lungs and immune system have improved so much that he is fighting a lot of it on his own.
Prayers for no more pneumonia and home for Christmas. Praise for continued strength and recovery. Col. 3:15 "Let the peace of Christ rule in your hearts, since as members of one body your were called to peace. And be thankful."

Boot Camp

Matt's day was very busy. Started the day with chest physio. Then stretches for 1 hour prior to going to the gym at 11 am. After lunch he went for more physical therapy at the gym. Matt tries so hard. Anyone who has every had pneumonia can attest for what it does to your strength and motivation. It sucks the life right out of you. But Matt didn't complain. They are really working on his transferring from the chair to the elevated mat. 2 physio therapist are on either side of Matt, who has a transfer belt around his waist. Then with his right hand he pushes slightly away from his chair. They can also feel that his legs are not just dead weight anymore, that if timed just right, he can push off every so slightly with them. You've come a long way Matt! He is still frustrated with his left hand, but it still has a positive response when hooked up to the tens machine, so it will come Matt, just remind everyone who comes in to visit to help you exercise it.

They also had Matt eating with a fork. It has a big foam handle for easier grip. He should be able to finish about a quarter of his meal with it, and dad said he did pretty well. Most times they have to start with special attachments on the wrist, so a fork can fit into a pouch and you scoop it that way. Matt is so strong already that he completely missed that beginner stage. He can scratch the top of his head as well, so the right arm is coming along nicely.
Prayers for continued recovery from pneumonia and better weather. Then Matt can start taking little trips to the mall, the house in Saskatoon, etc. Prayers also for Matt to stay focused on day to day recovery. 2 Cor. 4:18 "So we fix our eyes not on what is seen, but on what is unseen. For what is seen is temporary, but what is unseen is eternal".

Brand New Chair

Sorry about the late blog. Miscommunication. Mom and dad have just moved into the new place. It is a house and has lots of rooms, a fenced in backyard (so Shaunie can't run away!), and a dog and a cat to boot. Thanks so much to the Schekk's for the use of their apartment for the last 5 months. I don't believe Matt would have done as well without the cheerleaders near by. God's blessings on all of you.
Matt got a brand new chair yesterday. It is still not his officially, but we will take it for as long as they let us keep it. Hopefully we can keep it for the Christmas holidays. The physiotherapist brought it yesterday, handed the tools to dad and left. She knows that dad would do a better job of making it just right for Matt. It takes about 45 minutes of adjusting to make it work properly for Matt. Aunty Sandy came up for a few days and bought Matt a Billabong toque/hat. Not sure what that is but I will just have to wait and see. Matt is feeling quite a bit better, enough to tease Aunty and the nurses. He was suctioned a fair bit over the course of the day, and poor Aunty kept having to leave the room, the big baby. Mom was happy to be back with her "baby". She doesn't like to be away from Matt so long. I think he misses her as well. When you are sick it seems the one you want to be with is your mom. I guess we always think they will make it all better. Another blog tonight.

Under the weather

Matt is still under the weather, lots of secretions from the infections. He didn't go for rehab today as he just was too tired. Matt was happy to have company today and tonight, God bless you all. Mom is back and is happy to take over. Prayers for tomorrow that the pneumonia will clear up, Matt's lungs will continue to get stronger and he will feel like eating and drinking more. Thank you so much for all the well wishes and prayers for Matt and our family. God continues to bless us as we take this journey. Psalms 62:8 Trust in him at all times, O people; pour out your hearts to him, for God is our refuge.

Tired

After all the excitement yesterday, Matt was really tired and slept a fair chunk of the day. I just found out Matt was up for 7 hours in his chair yesterday. Also they had got him showered & dressed in his Saskatchewan greens. After the game he had another 10 visitors come to see him. I think security was worried because he followed them right to Matt's room! I can imagine why! Had another game of crib with Nolan after the company had left, so I can believe he would be tired today. Dad said yesterday was one of the best days Matt has had. Thanks to all of you who shared this great day with Matt. I am sure it will be a day no one will forget.
Unfortunately, Matt does has pneumonia and they started antibiotics. Very little rehab today because of a slight mix up and Matt's overall physical fatigue. Mom should be arriving shortly, or may be in Saskatoon already. I think she missed being at the party. She never wants to miss anything! Prayers for God's healing hand on Matt and a quick recovery from the pneumonia. Malachi 4:2 "But for you who revere my name, the sun of righteousness will rise with healing in its wings..."

THEY DID IT!!

Wow, what an exciting game! I don't watch much football, but I still remember the excitement in 1989 when Kent Austin was the QB and Dave Ridgeway kicked that field goal. Today was no different, except I wasn't in Saskatoon. Wish we were there to share in the excitement.
I believe green took over the ICU today. They had an extra room so they moved the bed out and set up a TV in there for Matt and 10 of his friends and family. I was unable to get a hold of dad, but did manage to speak to Nolan for a few minutes. Nolan said the atmosphere was great. Matt stayed up in his chair for the whole game. He still wasn't feeling the best and didn't eat much. however he is getting enough fluids into him which is good. The ICU nurses were able to start an IV, but Nolan wasn't sure if they actually started antibiotics or not. Matt is so much stronger and can cough more efficiently than before so they may wait and see if it clears up on its own. The respiratory therapist did chest physio and suctioned out plenty of the stuff, so no meds would be preferable.
Hopefully I will have more to tell you tomorrow. Thank the Lord the riders won. I believe it really boosted Matt's spirits. I was really impressed with the team. Most of them thanked God for the win. I remember seeing Kent Austin at Nipawin Bible Institute after they had won in 1989, speaking to us about the importance of letting God in to every aspect of our lives. I think he conveys that message to his team. Psalms 119:105 "Your word is a lamp to my feet and a light for my path".

Infection Back

Now we know why Matt was feeling so poor yesterday. Dad noticed Matt was having more trouble breathing, his cough was less effective, and he was spasming more in his limbs. His white blood count was way up, which is a sure sign of infection. The sputum coming up should be yellow and thin, his was thick and yellow-green. So they want to start him on antibiotics again, but they could not get an IV line established, so they were going to get someone up from ICU to do it. I think Matt's vessels have not recovered from the beating they took before. Dad says that even though Matt's coughing is weaker, if Dad times it right, he takes the cap off Matt's trach, pushes on his abdomen and lots of lovelies come out. Better than suctioning him.
But he was in good spirits nevertheless. Nolan and Lindsay arrived last night and visited for about an hour. Today again lots of company. Matt was up in his chair for 4 hours and did pretty well. They all went to the rec room and played crib. Nolan and Matt were about to win when Dad and Cory Ryhorski beat them. Lindsay was holding the cards for Matt.
So for tomorrow's big game, they will be watching at the hospital. Planning on pizza and pop with approximately 10 people coming. So it should be great. Too cold to go out anyway.
Prayers that Matt's infection will clear up quickly and he will be better for rehab on Monday. "If you believe, you will receive whatever you ask for in prayer".

Quiet Day

Matt's day was fairly quiet. Wasn't feeling so hot and nausea was not a welcome companion. However he still manged to eat some food and was up in his chair for 3 hours. His neck gets sore and increases his nausea, but the pain is relieved with Advil. Dad is really enjoying the amenities of rehab. Dad and Matt go and read the paper together in the "living room" and can watch TV or read books.
Physical rehab was short due to a general Friday off for most staff. In the 1/2 hour they applied the TENS machine to Matt's left leg and left arm. It stimulates the nerves and moves the extremity a bit. They didn't need to turn it up too much before the muscles start moving, which is good.
Nolan and Lindsay are driving up from Calgary and are due anytime. Matt worries about Nolan when he is driving and probably won't sleep until he arrives.
Unfortunately John and I are at a conference for the weekend and I don't have my bible at hand, but I will put down my favorite verse. "Trust in the Lord with all your heart; lean not on your own understanding; in all ways acknowledge him and he will make your path straight". I believe it is found in Proverbs.

Back to Old Wheelchair

Matt has lost his zero turn wheelchair. I never realized it wasn't actually his and now someone else needs it. He is still waiting for one that is made for him . So I hope whoever has it enjoys and can use all the gadgets dad had added to it. The old wheelchair is uncomfortable and Matt can only stay up for 3 hours in it. But hopefully his custom made chair will arrive before Christmas. Then he can go home in style!
I had talked to mom for a brief time, and she was excited that they found a hospital bed in Hudson Bay we can use. Just a few more details to work out (like building a ramp into the house) but we have great faith that if Matt is meant to come home, everything will work out.
Today was an assessment day to see how much Matt could do. They were surprised when they asked Matt if he could roll over. He said no but would try. They bent his right leg and placed it over his left leg and darned if he didn't roll over! I asked Matt if he used a bar to pull himself by using his right arm or hand, but he said no. He just used momentum of his body to roll himself. Matt, I love writing the blog with so much good happening. Praise for continued answers to prayer. 1 Thess. 5:16 "Be joyful always; pray continually; give thanks in all circumstances, for this is God's will for you in Christ Jesus".
Just an added note; Nolan is coming to Saskatoon for the weekend and is looking at renting or taking Matt to JT's for the football game. If anyone can make it that would be great. It will be the first time Matt has been off hospital grounds in 5 months. Hopefully it all works out.

Weightlifting

Well, Matt seems to be settling in well on the rehab ward. However he did go down to ICU and spend a 1/2 hour with his old crew (not old as in age, otherwise I may get in trouble!). Dad says he continues to eat really well. First thing he heard tonight when he walked into Matt's room was "I'm hungry". So dad had made some of Big Sky ham and kraft dinner, and a vacuum cleaner couldn't do a better job! Lots of nice protein to build those muscles. I had asked dad yesterday what weight Matt is able to lift. When Matt had first started, it was 0.25 lbs. Now it is up to 2 1/2 lbs. Great work Matt! The workouts really tire him out so he has a good sleep late afternoon and early evening.
Matt's secretions are getting a bit thick, so respiratory came down and hooked him back up to O2 and moisture for the night. So they uncap him and take out the inner cannula. His cuff is still deflated so he can talk. Also encouraged to drink lots of secretions. Prayers that secretions stay manageable and they are able to suction them out. Mark 11:24 "Therefore I tell you, whatever you ask for in prayer, believe that you have received it, and it will be yours". Still gets suctioned 4 times a day, which is not unusual.
Matt's getting to know some of the other patients in rehab. It is difficult because for 5 months he has really been on his own, but I'm sure it won't take him long. Dad says the facility has a laundry to wash Matt's clothes, and a microwave that is accessible to warm up food. So seems to be geared for everything.
Matt has been having the occasional hot flash. Will say to dad he is feeling warm. Dad will feel him and not notice any difference, However within a minute Matt will be pouring sweat. This a normal process and will diminishes as time goes on. After Matt's injury, he constantly fluctuated between hot and cold, so now it is only once every 2nd day. However they cautioned Matt to be aware that it could indicate and infection, so if the fluctuation in temp gets worse, to let them know.

THE BIG MOVE

Matt has now moved on up in the world (just like the Jefferson's from the 70's). He is in a private room in rehab. Finally! What an answer to prayer. I think God was tired or listening to us. So no more sleeping in for Matt! There wasn't a dry eye in ICU when they moved Matt. They had become very protective over him. But they all know this is the best place for him.
Dad says the view from Matt's room is great. It overlooks the Kinsmen Park and the university bridge. He seems to enjoy the facility. There is a communal dining area, and dad said for supper there were over 30 other patients, all different genders and ages. And Matt ate like a horse. Grandpa Gustafson used to say about himself that he doesn't eat much, he just eats long and fast. Matt it a chip off the Gustafson block. Dad had to go out and buy extra food.
Rehab was tough today. They worked Matt for 1 1/2 hours and he was tired. They are really working on what Matt could do to help with the transferring. For instance, when he transfers from his chair to the mat (it is elevated and at the same height as his chair), they got Matt to put some weight on his feet and try to swing himself over, also incorporating the use of his right arm. They were impressed by what he could do. Unlike a dead weight, Matt was able to assist, even if it was minimally. Also, when he was laying flat on this mat, they asked if he could lift his bum up. Dad said Matt was just sweating he was working so hard. And by gosh if he didn't do it. Matt, words are so vague when it comes to expressing how we truly feel. Proud just doesn't cut it. Great sense of jubilation is more like it! Rehab is so difficult for them to do on Matt because they need to work on everything. Shoulders, legs, arms, abdomen, the works. But they have a very willing patient so it makes their job easier.
Praise for God's continued grace and prayers for more! 1 Peter 4:11 "...If anyone serves, he should do it with the strength God provides, so that in all things God may be praised through Jesus Christ".

One More Game To Go!

What an exciting game! Just one more win and then the Grey Cup is Saskatchewan's. It has been a long time coming. Matt had a busy day prior to game time. Dinner, then a whirlpool, then up in his chair at 2 pm. By the time the game started, he was so sleepy he slept through some of it. But he was up for the most important part. Tonight cousin Chris is his nurse, which he likes. Nothing like family looking out for you.
Matt has now been capped for 36 hours, so he isn't getting O2 or moisture anymore at night. No more trach trials! He is doing his own breathing. Rehab better find him a bed because he is ready!
Matt is a bit frustrated because his left side is so slow. Some days it moves slightly, the next day hardly at all. But it also didn't start to move until Sept. 28th, while the right side started Aug. 16th. So it has a ways to catch up. It was so good to see Matt throw the ball and bend his own arm. I even have a video of it. I tried to post it on the blog, but wouldn't upload. I sent it to Jacki and she will try again tomorrow.
Things are starting to look up for Christmas. The ball is definitely rolling and hopefully everything will be ironed out when the time arrives. Prayers that Matt's strength physically and mentally will continue to improve and that the left side will start responding better. Psalms 86 "Hear my prayer, O Lord; listen to my cry for mercy. In the day of my trouble I will call to you, for you will answer me".

Company and presents

Matt had a really good day, sister Shelley, John and Jonmarie made a quick one day trip up to see him. Shelley brought him some new clothes that are long enough for his long legs. He was happy to see them and beat his sister in a game of Scrabble. He also had company from home which he enjoys, thank you all. He had his cousin Chris for his RN today and there is always lots of teasing going on. Matt has lots of fun with all the staff and is known to give them a hard time and some laughs as well. He is doing so well off the ventilator, that they would really like him to move to rehab as quick as possible to open up an ICU bed, they know it is the best place for him to be. He is looking forward to the Rider game tomorrow, ready for a good game and hopefully a win. The Riders have a look of supporters and a lot riding on them. Go Riders. We will have lots of fun cheering them on. We had snow today so he didn't go outside, but had a great day anyway. We thank God for his blessings on Matt and our family. Isaiah 26:12 All that we have accomplished you have done for us, O Lord.

Lots of Company

Matt had a sleepy day today. He didn't get a lot of sleep last night, so thought he should sleep all day. Went for rehab for an hour, was having trouble with his neck so they had to be careful about what they did. Did some e-rays on his neck and they all came back fine. Lots of very tight muscles so will need more massages. Had lots of company today and got to do lots of talking. Didn't eat as much today, but will make up for it tomorrow. Matt is still off the ventilator. Praise our Lord. Prayers for tonight that Matt will continue to improve in his movement, his neck will relax and his lungs will continue to grow stronger each day. Psalm 68:19 Praise be to the Lord, to God our Savior, who daily bears our burdens.

Breathing going well, Praise God

Matt had a busy day, he went up to rehab for a good hour to work out. He had company from RUH and enjoys when they drop by. He still gets tired after rehab and likes to nap. He is eating well and still loves his oven roasted chicken sub in the evening. Tonight he was going to have a Tim Hortons chocolate donut with the staff. They are spoiling him and he loves it. He is getting stronger in his right arm and hand, he can pick up a sponge ball and throw it at you. He is still off the vent and is doing really great, his lungs are getting stronger all the time. Praise God. He says hi to everyone back home and he misses you all. Prayers for tonight Matt will have a good nights rest and he will continue to get more movement on his left side. Romans 12:12 Be joyful in hope, patient in affliction, faithful in prayer.

Off the Ventilator

Can you believe it? I am still reeling from yesterday's big news and them mom slapped me back on my...posterior with more great news! They actually wheeled the ventilator out of his room. True it is still outside of his room, but he hasn't used it for over 3 days. He will be capped during the day, and be on the trach trial at night, with the cuff deflated, the inner cannula in for suctioning purposes, supplemental O2, and moisture to help keep his secretions from getting too thick. But no forced air into his lungs. He is breathing on his own! Praise God! Psalms 105:1 "Give thanks to the Lord, call on his name; make known among the nations what he has done".
They had a meeting with all the departments involved in Matt's care. They had a long discussion about Matt going home for Christmas. There was some scepticism, and the physician voiced her concerns about Matt going home. Most of the questions were answered and hopefully they can help us get everything in place. We need to look at getting a ramp built for him to get into the house, transportation (Leonard Jays has graciously offered the loan of his van), needs a hospital bed for the house, O2 for when he needs it. However the physician was still worried. Finally she told us that Matt had 3 things going for him. 1) His spinal cord is not severed, 2) He is young and the most determined man she has met, 3) Matt is her hero. I think that comment opened the floodgates for a lot of the staff. They all stated that Matt is just such a joy to have in there. Not many men who have gone through what he has gone through are so optimistic, his personality has never changed, and he is so determined. They are just so worried what could happen to him when he is not under their care.
The doctor went on to say that right now there is no bed in rehab because truthfully, they never expected Matt to be off the ventilator with the severity and location of his injury, and the long duration of being on the ventilator. Not to mention a collapsed lung, 3 chest tubes, and countless pneumonia's. They also never believed when they started the trach trials he would progress so quickly. "Leaps and bounds" are the terms they used. I used this verse at the beginning of Matt's journey, and now I use it as praise, not a prayer. Job 9:10 "He performs wonders that cannot be fathomed, miracles that cannot be counted."
There is continued talk of taking out his feeding tube. He is still only at 175 lbs, but he doesn't have much for muscles, which weigh quite a bit. He didn't eat as well today because he was tired. With only one sleeping pill, Matt isn't sleeping very good at night, but that will take some getting used to. It is not easy to go off sleeping pills. Matt also had a whirlpool bath, so that always plays him out. Prayers that Matt will have a good night sleep, and regain strength for tomorrow.

Almost There

Matt, you continue to amaze me. Last week, the capping of the trach had barely started and now, you are just sailing! Last night, Matt did an amazing 9 hours of being capped. I just couldn't believe it until mom told me he went 14 & 1/2 hours today!! And Matt has now been on the trach trial for 2 and 1/2 days (they never did put him on the "full" ventilator last night). Matt has been on O2 intermittently throughout the day at 1L/min with nasal prongs, those little tubes that go in your nose. A few times Matt's O2 sats dropped, so for about 5 mins they increased his O@ to 2L/min (which still isn't very much) and he recovered nicely. But mom said tonight they may encourage him to take a short break, even for just a few hours. He was looking very tired and his secretions are starting to get thick, because when he is capped he gets no moisture. But she won't know until tomorrow whether or not they convinced Matt.
They are trying to cut down Matt's sleeping pill to one a night because the way Matt is going, they think he will be upstairs in rehab by next week!! So no more sleeping in, he will have to be up before 9 am to get ready for his workouts! All this news is so exciting. I looked back in the blog when Matt was still in RUH and not moving, chest tubes in, and skinny as a board, and thinking at that time this day was so far away. And here we are! You just show them what you can do, Matt. The Lord is good. Psalms 150:2 "Praise Him for his acts of power, praise him for his surpassing greatness".
Mat had more company today, which is good because Dad went home for awhile. So mom will have to rely on someone else to fix Matt's wheelchair, because I know how she is with mechanical things, not the best. Sorry Mom! That's a dad thing to do. You can help him get stronger and make him do his exercises! Thanks again and again for all those who continue to pray for Matt's progress and read the blog. It is so comforting to know that so many people care for Matt and our family.

Capping of trach going well

Last night, Matt completed 6 hours of being capped. Also he is still on the trach trail from yesterday, so that will be 36 hours. For those who are new to the blog or haven't read it for awhile, capping and trach trial are considered two different things. Trach trail refers to deflating the cuff in his trachea so he can speak and he is on minimal assistance of the ventilator. It still supplies him some moisture and O2, when he is in his room. However the capping refers to taking out the inner cannula of the trach, and putting a red cap on it, so Matt must breath through his nose and mouth. As you know, Matt has an extremely long neck, so he needs to work a bit harder to get the air he breathes to his lungs. So great job Matt and I love to say I knew you could do it! Today they again have capped his trach, and will probably go for another 6 hours. However tonight they may put him back on the ventilator, and not keep his trach deflated. Mom said she could tell he was tired, but Matt is so determined that he won't admit when he has had enough. But they don't want Matt to overdue it, so are encouraging him to speak up when he is tired. We don't want any setbacks. (But I think Matt likes to hear his own voice, that he feels nervous when he can't speak. It is very scary when you can't talk, this way during the night he can call out if he needs something). However there is One who can always hear you, Matt. Psalms 130:1 "Out of the depths I cry to you, O Lord; O Lord, hear my voice. Let your ears be attentive to my cry for mercy".
Matt went outside today, but it was too cold and was having some steering difficulties, so they came back in. Matt is eating extremely well and is getting no supplementary feeding from the tube in his abdomen. He was able to talk to Nolan on the phone, but otherwise had a quiet day for company. Dad is leaving tomorrow but mom will be there until she works again. Matt did not have any rehab this weekend or today because of holidays. Will get back on track tomorrow.

Another Win

Matt was pretty excited today over the roughriders win. They had it set up in ICU so the nurses could watch some of the game, and they invited Matt for their party. There was pizza and pop, and Mattt was in his roughrider outfit. At our house, we had a birthday party for Jonmarie and Jacki dressed Amy in her roughrider outfit, so Matt and Amy are good luck. I must apologize for giving false information. Matt did receive a second hand wheelchair 3 days ago. It isn't the best, but it does fit him better. However there were many adjustments that needed to be made, and the staff just didn't have the time. So last night dad spent 1 & 1/2 hours trying to fix it for Matt. He also rigged up a holding compartment for Matt's O2 tank on the wheelchair, so Matt would be free to boogy where he wants to. It is working great. This wheelchair is called a mid-drive. It is similar to dad's lawnmower, zero turn radius with the big wheels in front and the small wheels at the back.
Matt was having so much pain in his neck, that dad had suggested they give Matt Advil 1/2 hour before getting him up in the chair, because getting him in the chair causes him the most pain. They tried it and it seems to be working. (They give the Advil in his feeding tube, to try and prevent stomach upset). Matt ate like a horse today and when mom phoned at 8:00, she was out buying him a sub because he was still hungry! Just like old times. You had to eat fast in our house, otherwise the food would be gone. Mom also mentioned that Matt had his trach capped for 4 hours, and still counting! Possibly tomorrow I will know the full extent of the time he lasted without the ventilator. For a least an hour of that time he went without any O2 as well. Well done Matt! You will have that thing out before you know it. Matt is now able to scratch his nose without bending at the neck. He still has to really concentrate and it takes him awhile, but he can do it. Matt, progress is being made everyday! Deuteronomy 31:8 "The Lord himself goes before you and will be with you, he will never leave you nor forsake you. Do not be afraid; do not be discouraged".

Long Week-End

Matt had a quiet day as with the long week end all his therapy is on hold. He took a tour around the hospital to see all the Christmas decorations, didn't go outside because his chair was giving him some trouble. He had some company and is always happy to visit. His appetite is getting better and was happy with the homemade Pizza Pop from one of the mom's at home. He is very tired of hospital food and says it all tastes the same. He was on the trach trail for 17 hours and they capped it for one hour. He will try for longer today. He continues to get stronger with his breathing, Praise the Lord. Prayers for today are that Matt will get more sensation in his hands and His left side will start moving more easier. Matt sends his love to all and thanks you for your prayers, jokes, food, visits, messages and support. Psalm 28:7 The Lord is my strength and my shield; my heart trusts in him, and I am helped.

Mom's Back

Sorry about missing yesterday's blog - lack of communication between mom and myself. Matt was so glad to see mom - he really missed her! He always says she is his biggest cheerleader. She had some discussions with the respiratory therapist to see what the plans are for Matthew. They are just so scared of pushing him too quickly but have now decided to cap his trach every day. Today he did it for one hour and his oxygen saturation did drop a bit. He continues to do the trach trials for 15 hours per day. He did his exercise again where he is strapped to the table, however, he only made it to 60 degrees and his blood pressure dropped. While he is in this position they do exercises on his arms.
They took Matthew's catheter out as they are trying to train his bladder. So far he is doing okay. They do not want his bladder to fill more than 500 ml at a time so they have to re catheterize him about every three hours. Having a problem trying to get a wheelchair. The one that is best for Matt is unavailable due to cost as Sask Abilities is unwilling to pay for it. So we are looking at the second best wheelchair - still unsure when it is coming. He has been having a lot of neck pain so they will do an x-ray tomorrow. He had an interesting visitor today. One of the doctor's that looked after him at RUH came to visit. He is a doctor from Winnipeg and had just done a locum at RUH. He told Matthew not to give up no matter what people say - he will be better one day as long as he continues to believe. Isaiah 40:29 "He gives strength to the weary and increases the power of the weak".

Matt and his Harem

Well, Matt was back to his old self. Waking up late, ate 2/3 of his lunch and then had BLT for a snack. Was able to go upstairs for rehab. Today they tried something new. They strapped Matt on a table that looks like and x-ray table. Then they slowly (over a period of 15 mins) tilt the table so Matt would eventually be in a standing position. They must do it slowly because his body is not used to being in the upright position and his blood pressure will drop into his socks if they do it too quickly. Matt made it to about 70 degrees, and then his blood pressure went too low and his pulse rate was above 170 beats per minute. But he recovered nicely and they were happy with how well he did. There are mirrors all around, and Matt commented that this was a view he hadn't seen in awhile, seeing himself standing up. I was happy for him as well, because they wouldn't be doing that exercise unless they believe Matt will walk again. So we have more believers on his side, which is great! Matt was still feeling like doing something, so back to ICU for a "fill up " of O2, then off to find Rocky. Couldn't be found, so Matt and dad went outside for about 1/2 hour. Was able to chat with Jacki on the cell phone. More company when they returned, so dad left for awhile. By the time he came back, Matt was getting a massage, a pedicure and manicure, plus another nurse was getting supplies ready for washing his hair. Dad had to fight past 3 women to feed Matt his foot long sub. Just like a Sultan and his harem. I could almost hear Matt purring. Psalms 30:11 "You turned my wailing into dancing; you removed my sackcloth and clothed me with joy"."They may possibly cap the trach tonight, if not he has been on the trach trial and average fo 16 hours per day. Capping is just one more step closer to getting rid of the ventilator all together. Prayers for continued success, and for mom's safe journey after being away for 1 & 1/2 weeks (will return tomorrow).

Pukey Day

Matt's old friend emesis (throwing up) came back for a visit. Dad was wondering why Matt was sleeping at noon. When he woke up for lunch, Matt said he really didn't feel like eating. The nurses didn't want to get him up in his chair to go for rehab, but Matt insisted. He was feeling so bad that he couldn't even operate his chair. But he still wanted to go. He was very pale and they put him on the mat to do some upper body exercises. There was a new therapist on, and asked Matt if his legs were in spasms. Matt replied that he was moving them. She was so impressed she had to find out how much he actually could do. The left still has minimal movement, but the right is getting stronger, though he is unable to bend the knee. Unfortunately the exercises were a bit much in Matt's state that he got sick on the mat. But we are so proud of you Matt, to have the determination to do your exercises even when you are so sick. 2 Samuel 22:33 "For it is God who arms me with strength and makes my way perfect." The nurses gave him gravol when he got back, so he slept from 3-5 pm. At supper, Matt was able to eat about half, but then he needed suctioning and threw everything up. But dad was happy this evening, because Matt was able to finish 1/2 sub, some Ensure and some tea. Matt was much more perky and stated he felt better. Hopefully it was just a 12 hour flu bug and tomorrow will be a better day. Psalms 51:10 "Create in me a pure heart, O God, and renew a steadfast spirit within me."

Exercises

I can say one thing for Matt, he is a brave soul. Today Dad and him went for a spin outside. The weather was cold! I didn't even want to walk to my car! But Matt was all dressed up and ready for winter. They are now able to go themselves, without a respiratory therapist or a nurse. Matt also made a trip to rehab. They put him on the machine that moves his legs, which helps his brain remember the movements and to strengthen his butt & leg muscles. He was on it for 50 mins, but I am unsure how much is from the machine and how much Matt has to do.
One of my prayers is almost answered. Matt is finally able to scratch his nose if he puts his head down. They are really working on being able to do it without bending his head. I was always scratching his nose while I was there! Sometimes I think it wasn't even itchy, he just wanted to see me do it! Matt had more company and went to visit Rocky, but was unable to go into his room because Rocky was sick. No more germs for Matt. Hope Rocky will feel better soon. Tonight is the first night Matt will be without nutrition from the tube feed. They feel his weight is more stable at 180 lbs, and that he is eating enough on his own to keep his weight up. First step towards getting that tube out. Thanks to all those who continue to think about Matt and pray for his recovery. Jude 2 "Mercy, peace and love be yours in abundance."

Quiet Day

Sunday's are a day of rest, and this one was no exception. Matt did have a whirlpool bath, and then was up in his chair for the afternoon. Ate his leftover Chinese food. Gary and him watched movies, and bet on a few football games, in which Matt won $5. More company in to visit, which is always a welcome change. Matt had an afternoon siesta, and then ate 2/3 of his supper. I was able to talk to him on the phone again. I would ask him a question..silence.. then I asked him if he was tired.. "no, not really".. so again I would ask him a question.. "What?" he would ask. So finally I asked what he was doing... "watching TV". And if anyone knows Matt, when he even walks by a TV, you can be in the middle of the conversation, and he zones right out. So finally I told him I would kick him in his posterior if he didn't listen. He just proceeded to tell dad on me! Big baby. But before we even began to speak to each other, Matt was getting his "red hoody" on. No, not anything like that, just the cap on his trach. It has a red cap, so it sounds like a red hoody. So hopefully Matt will have it on for a least hours, but I will find out tomorrow.
I often quote from Proverbs, but it is one of the best books of the bible. Lots of great stuff in there. Proverbs 18:10 'The name of the Lord is a strong tower; the righteous run to it and are safe."

House full of kids

The blog is late, it was all Jacki's fault. She came for a visit, both of us went and seen cousin Patti curl in Red Deer until 11:30 pm, and her Bobby wakes up at 6:00 am. So all her fault. Anyway, Matt had an interesting day yesterday. First thing in the morning, had a episode where he de-sated, but turned out it was just a mucus plug in the tube. Then Dad and Matt went up to rehab to visit Rocky. They took the portable O2 with them, but the nurse said to keep an eye on it, was not sure how long the tank would last. So 25 mins into the visit, dad checked the tank, it was on red (empty). The rehab nurse came to check, and the O2 wasn't even on! So Matt had been without O2 for 25 mins!. He said he was fine, but dad was worried so they went back to ICU, got it straightened out, and resumed their visit. Way to show them, Matt. You are a tough one! Had a haircut and a bath, so is all ready for the weekend. Last night, Matt convinced the resp. therapist to cap his trach again. They didn't want to but Matt insisted and completed 2 hours. He likes it because he can talk much louder (which he needs to so he can compete with Gary). Gary arrived yesterday evening, and today they watched a couple of movies and Matt showed him around the hospital. Once the staff figured out the best way to sit Matt in his chair, he can control the wheelchair like anything. Gary and Matt played Trivia Pursuit Star Wars edition, which Gary won, only because he is such a nerd! Matt is now able to use the call bell to call the nurse. It is flat, and they put it close to his hand, and he is able to lift up his hand and hit the bell himself. More company from home, which Matt really enjoyed because he finagled a massage from one of them. It's those big Bambi eyes that gets them every time. I know, because he used it on me all the time. So tonight they are taking Matt Chinese food, by special order, and I may possibly speak to Matt on the phone. Prayers that Matty keeps his wonderful spirit and praise that he has so many prayers for him! James 5:16 "Therefore confess your sins to each other and pray for each other so that you may be healed. The prayer of a righteous man is powerful and effective."

Another Good Day

Matt was a hungry man yesterday. Usually Matt doesn't eat too much of his dinner at 12:00, and yesterday it was no exception. However Dad got him a BLT and fries, which he gobbled in no time. Supper was also eaten without exception, which was another first, because it was the hospital food. As anyone who has been in the hospital, the food leaves much to be desired. The weather was cold, but Dad and Matt braved the element's and went outside for a spin around the grounds. Then off to "exemisises" (what Jonmarie calls exercises). Last week, when Matt had sat on the floor with support, then put his hands behind him, he was able to support himself for 3 mins. Now he was able to hold himself for 6 mins. They also practiced rolling on the floor. With help, he was able to do it 4 times. But dad said the 3rd time, Matt almost did it himself. Keep up the hard work, Matt. It will pay off.
They did no further capping of the trach yesterday, however Matt still did 13 hours with the cuff down, and minimal support from the ventilator. With the cuff down, he talked to mom on the phone. I think she is having a hard time being away from Matt. It is like being away when your baby rolls for the first time. As a mother, you don't want to miss anything! Hebrews 10:23 "Let us hold unswervingly to the hope we profess, for he who promised is faithful."

God Is With Us

I am always amazed at the power of prayer. Exodus 15:11 " Who among the gods is like you, O Lord? Who is like you- majestic in holiness, awesome in glory, working wonders?"Matt had such a good day with only a few minor setbacks. They capped Matt's trach today. But let me explain it to you first. When Matt has his cuff deflated, he is still hooked up to the ventilator at the lowest setting and moisture is continuously running. But with the trach capped, the inner cannula of the trach is removed and the cuff deflated, so he can only breathe with his nose and mouth. The respiratory therapist then puts Matt on nasal prongs, so O2 is still entering his system to give him and extra boost. It is hard work, and Matt lasted over 1 hour. 1 hour & 15 mins to be exact. We are so proud of you! God is watching over you always. Matt had emesis again after he ate dinner, but he was having trouble breathing and they suctioned him, which always makes him gag (it would make anyone gag!).
But to me the best news of all is when I was able to hear Matt's voice on the phone. He now has a phone in his room. It is a bit complicated, and is only working if he phones out. But to hear his voice was so encouraging. His sense of humor is still as sharp, I laughed for 15 mins. Matt is trying to grow a beard, and states he looks like a mexican! He received a carved pumpkin and a mask (pirate) from one of the nurses, so Halloween was full of "Shiver me timbers" But the worst was, when he was sleeping one of the nurses painted his toenails lime green! And he knows which one did it, though no one is talking. Matt said they better watch out once he is mobile! Prayers that everyone has a safe Halloween!!

At a standstill

We seem to be in neutral at this point. We are hoping they change their plan of not pushing the trach trial longer than 13 hours. Matt really wants to continue moving forward, so lets pray that will happen. Proverbs 4:25 "Let your eyes look straight ahead, fix your gaze directly before you." He had lots of company, which is great and even better with the cuff deflated so he can talk, instead of reading his lips (which Matt knows I am not good at, he would just roll his eyes in disgust!). Matt's appetite is improving slowly, and he ate very well today. A bit of nausea when getting up in his chair, but it was a rough ride. Enough said. Massage therapist was in again to work out those kinks. She has a hard time doing it herself, so it wasn't as good as she would have liked, but it is better than nothing. Still hoping he will go upstairs tomorrow or Thursday to rehab for a few hours. Needs to continue building those muscles. Gary is coming this weekend, and then Matt could give him a workout. Just ask him to play a game of Trivia Pursuit Matt, that should keep him quiet! We continue to thank all those who respond to the blog, who read it, who take encouragement from it, and for those who come and see Matt. Every act of encouragement keeps him looking ahead and looking up. Romans 15:5 "May the God who gives endurance and encouragement give you a spirit of unity among yourselves as you follow Christ Jesus, so that with one heart and mouth you may glorify the God and Father of our Lord Jesus Christ."

Double Touble

Isn't a great title, but oh well. Matt was up in his chair today at 1 pm. The occupational therapist and physical therapist were there to assess Matt's muscle strength. The last time they had tested him was 2 weeks ago. They were really surprised to find Matt had doubled his strength in his right arm, hand, and shoulder. Way to work hard Matt! Little by little , it will continue to improve. They had also hooked him up to muscle stimulation with electrodes to his bicep and triceps. They didn't think Matt was so strong yet, and when they asked him to bend his elbow, he nearly knocked himself out with a punch! After that they turned it down, and used less stimulus to help him along. Practice those punches for when Gary gets there! They are continuing with Matt being off the ventilator during the day (13-14 hours), and on it at night. Hoping he will be able to go to rehab for part of the day starting Wed. or Thurs. They also refitted him for a new "touchie cushie" or a bum cushion for his wheelchair. It works on the same principle as his air mattress, so feels like he is sitting on the clouds. I need that for when I am marking papers! Thanks again to dad for all the info. Matt, we are daily reminded of God's great goodness and mercy. We are so glad you are pushing ahead and keeping strong in faith. Ephesians 1:16 "I have no stopped giving thanks for you, remembering you in my prayers."

Tim Horton's

Matt right hand is getting so much stronger, he was able to pick up one of Tim Horton's timbits today. He could almost get it to his mouth, but it fell out of his grasp. Once they put it in Matt's hand and closed his fingers around it, he could then bring it too his mouth. Keep up the good work. Those timbits will put weight on your body! Matt was also able to pick up a ball that was put close to his hand, then he flicked his wrist, and threw the ball over the side of the bed! So much progress is great to hear. Tubby time in the whirlpool today, so his body is now as clean as his hair! Mom was glad to see him looking and smelling so good before she left. She must return to work again, and will not be back until next Wednesday. She will be amazed at what Matt can do by then. Trach trials continue to go well, and they are going to continue to keep Matt on the ventilator at night, to make sure that his infection is gone and ensure he is getting enough moisture. While during the trach trials, Matt is on 35%O2 with moisture (that is the lowest it can go), and his cuff is deflated so he can talk. But at night, the ventilator helps him to breathe and the O2 and moisture are higher. The deadline is Christmas for Matt to be off the ventilator, so they don't want any setbacks. This way, they can almost guarantee success. Matt 6:34 "Therefore do not worry about tomorrow for tomorrow will worry about itself. Each day has enough trouble of its own."

Lazy Day

Sorry the blog is so late. Mom is in Prince Albert celebrating at Aunty Sandy's surprise birthday party, and I was unable to get a hold of her. Dad said Matt had a lazy day yesterday, which is only right on a weekend. The trach trial had started at 9:30 am, and when dad left at 11:00 pm, he was still on it. So definitely over 14 hours. They were going to try it while he was sleeping, so hopefully update you later today. Did not eat as well yesterday, but he also had such a quiet day that didn't build up an appetite. Had his hair washed, so again he is one spiffy looking guy.
They finally found Matt a new bed, a 7 footer. Took them a long time to find one to fit him. Dad says he looks great in it. They were worried about foot drop, because of his feet hanging over the edge of the bed. A very difficult condition to fix so thank the Lord for the proper size bed. Psalms 105:3-4"Glory in His holy name; let the hearts of those rejoice who seek the Lord. Seek the Lord and his strength; seek his face evermore". Matt watched Colorado be defeated again, and he is not too happy about it. But I hope the win the Roughriders had the other night makes up for it.

The new leg machine

Today Matt had his first go at the leg machine (for 20 minutes) - a motorized bike that peddles his legs which will help to strengthen his leg & butt muscles. Matt was a bit disappointed that he couldn't put much effort himself into the machine, but he forgets that his biggest muscle (i.e. butt) has disappeared in the last 4 months. As he uses this machine more, he will only get stronger. He also had a stint at the arm machine for 10 minutes. Since he has an IV in his left arm, they couldn't strap his arms in as tight, and therefore he couldn't do quite as much as yesterday. But the IV should only be there for another 4 days and then he'll be able to make a better effort (IV is for the antibiotics to fight his lung infection).

Matt had another great trach trial today for 9 hours and 5 mins. It could be longer, but mom is still at the hospital and we do not know when they put him back on the ventilator. He had also had lots of company who came bearing food (gotta love those cookies!) He's really enjoying the homemade goodies! Quick note from Nolan, states Matt looks great and was he was so surprised when he saw Matt lift his hand to his nose by himself. He was actually teasing Matt by putting a french fry in his hand, and watching him try to get it to his mouth (the meanie!!!). Matt kept saying -"stupid fry"! This is great practice for Matt - anything to keep him motivated. Joshua 1: 9 "Have I not commanded you? Be strong and of good courage: do not be afraid, do not be dismayed, for the Lord your God is with you wherever you go."

9 hours

Matt did an incredible 9 hour trach trial today! Was very exciting and I think he was very proud of himself. And he did this with an infection still hovering, so well done Matt! Another workout day in the gym, and Matt was on the mat today. They propped him up with his arms behind him and palms on the ground, like when you sit on the floor to watch TV. They assisted him but he was able to sit that way for 3 minutes. Strengthens his stomach muscles and his arm muscles. They tried to get him to roll over, but that one still needs more practice. Ate around 3000 calories all day, which was great, but still not maintaining his weight. Matt could eat a horse and not maintain his weight! He was very excited for his friend Rocky, who was able to drive a car today with a driver trainer. I am not sure how he did, but wish him the best. Once Matt masters the wheelchair, next will be the Jeep Cherokee! Watch out Weekes! They are having trouble finding a wheelchair for Matt. They wanted to get him a second hand one, but there is none in Sk. to fit his size. Hopefully they will see the need to custom make him one, regardless of price. So big praise today for the trach trial and prayers for continued big steps forward. Phil 4:6 "Do not be anxious about anything, but in everything, by prayer and petition, with thanksgiving, present your requests to God."

Long Day

With Matt only getting the one sleeping pill, he is awake much earlier and doesn't sleep in the afternoon. So that makes for a long day. But it was also busy. It was tubby time, and I am sure that feels great. Hopefully they let him have a bit of a soak. His trach trials are going awesome, with today being a grand total of 6hours, 20 min. He does get pretty tired, but knows it is for the best. He also went outside today, and motored around in his chair. He can only do it by himself for a short time. His hand movement has improved, but his muscle strength is very weak. They gave him so more exercises to do. Mom had spoken with the doctor, and he said there was still swelling around the spinal cord, which causes compression. That can remain anywhere up to 18 months, so we will continue to see progress as that swelling slowly goes down. So by that standard, Matt is doing great. They have also encouraged him to do exercises himself every 20 mins. Sometimes it is easy to forget, so they put a sign on his board. And when company comes, encourage him to show you what he can do. Matt still feels numbness in his hands and feet, but when you think about it, when you watch TV in a chair for even 2 hours, everything is stiff, sore, and you may have numbness in the butt! So Matt, it will come. You just must continue to work hard and believe. Your cheering squad is always in your corner. Psalms 54:4 "Surely God is my help; the Lord is the one who sustains me."

Breathing Keeps Improving

Matt's trach trial lasted 5 3/4 hours today. They were hoping for 6, but when they reached 5 1/2 hours, Matt wanted to come off. However, they kept encouraging him to push a little harder, and Mom was right there cheering him on. He had been awake at 8:30 am, and hadn't slept since, so he was tired. But they got an extra 15 mins from him. Way to go Matt! That extra 15 mins is hard earned. They did suction Matt for lots of thick mucous, but it was still okay. O2 levels are still great. Thanks again for continued company. It really encourages Matt and keeps him focused on family and friends, and that they are an important process in the healing. Eating well, and weight was again up to 174lbs, had taken a bit of a dip before. Watched Nolan play some video games. Watch it Nolan, Matt is memorizing what you are doing and will soon kick your butt! Last night they gave Matt's sleeping pills earlier than usual, and want to see if that helps him so he is not so groggy in the morning. Maybe then he would be able to eat breakfast, which he doesn't feel up to doing right now. All in all a good day. I encourage everyone who believes to pray when they read this blog for Matt's continued success in his trach trials and movements. James 5:15 "And the prayer offered in faith will make the sick person well; the Lord will raise him up." Matt this is a verse for you, Mark 11: 24 "Therefore I tell you, whatever you ask for in prayer, believe that you have received it, and it will be yours."

5 hours

Matt did a trach trial for 5 HOURS today. Even with the infection he is still barrelling ahead. He also sat up in his chair for 5 hours as well. Let's pray that his new chair will come sooner than later, as his current chair is very uncomfortable. It was workout time today, as Matt went downstairs to the gym, where they put him on the machine that moves his arms. From what I understand, Matt has to do some of it on his own, but the machine helps stabilize his arms. I think Matt's feeling a bit discouraged that the movement, and especially the strength is so slow in coming. But remember Matt, that each nerve ending has to heal. They have been without brain stimulus for a long time and need lots of "reminders" and practice. 3 1/2 months without much movement really eats your muscles. I read an article about people in space, that their muscles waste away very quickly with no exertion from very little gravity. Same thing with Matt. It will come. Jacki and kids left today, but big brother Nolan showed up to cheer Matt on. Brought a few movies along with his brotherly love, and they are all set. A note of praise. By the end of December, the wonderful apartment that mom and dad have been using is needed by the owners. Today, a nurse offered her house for 3 months while they are in New Zealand. So another answer to prayer. Job 26:24-26 "Remember to extol his work, which men have praised in song. All mankind has seen it; men gaze on it from afar. How great is God- beyond our understanding."

Strong Matt

The infection is not keeping Matt down as much this time. He still was able to do a 4 hour trach trial, but did have more trouble at the end. He also ate a little better today with no emesis. Need to build up that body, so has to keep the food in. Mom said he had lots of mucous, but he is so strong with his coughing that he is able to bring it up himself, so very little suctioning today. He was up in his chair, but only for 2 1/2 hours. His neck gets so sore, the chair is not built for him so gets uncomfortable. What chair could accommodate those long legs! Just a note that Jacki and the kids are leaving tomorrow, so need some visitors who like to play Yahtzee or dice. Maybe even a game of trivia pursuit, but let me warn you, he has all the answers memorized. He said he doesn't but that is the only way he could beat me! A real inspirational discussion was had by mom and a physician who doesn't know Matt, but had read through his files from RUH. He wanted mom to know that Matt has far exceeded anything they thought he would do. Everyone is amazed by Matt's continued recovery. Thank goodness we relied on faith of the power from above and not faith in man. Hebrews 11:1 "Now faith is being sure of what we hope for and certain of what we do not see." Prayers for Matt's continued recovery and the ventilator off before Christmas.

Infection comes knocking again...

Matt did not have a good day today, he has infection in his lungs again, so the trach trials are on hold. He is taking antibiotics which they feel is causing some of the nausea. He was up in the chair for a couple hours, but was not feeling well so went back to bed. He fell asleep and was sleeping all afternoon and early evening. He also was having a hard time keeping any food down so had mostly fluids. Jacki went and spent the evening with him, and though he did a lot of coughing he still enjoyed the crossword and Suduko puzzles. Wasn't to thrilled that Edmonton lost to the B.C. lions, Oilers lost to Calgary and Boston beat Cleveland. Not a great day for his teams. He did eat better tonight was able to keep 2 slices of pizza and some real mashed potatoes and homemade hamburgers down. Prayers for today are that the infection will clear up quickly and the trach trials can begin again as the vent is the problem with the infection in the lungs. Thank you for the continued prayers and support. Nahum 1:7 "The Lord is good, a refuge in times of trouble. He cares for those who trust in him."

Trach Trials going well, Praise God

Matt was able to do a 4 hour trach trial today, with no trouble. He felt really good, so they will try a little longer tomorrow. He was up in the chair for 3 hours, but his neck started to bother him so he was put back to bed. No nausea today which is another answer to our prayers. Keeping his food down well and is really happy to have home made food. His Dad went home today, so makes for a hole in his day. Lots of company today which is always good for lots of smiles. He say Hi to everyone and thank you all for the many prayers on his behalf. He is kept busy with rehab for a part of his day and likes to bug the staff at City. Is getting to know all the staff and they keep him on his toes. 2 Chronicles 15:7 But as for you, be strong and do not give up, for your work will be rewarded.

Wheelchair ordered

Matt's days are really busy lately. He has been having lots of company and deflates the cuff so he can talk. During that time he was up in his chair for 3 hours. Was tired in the afternoon after 3 1/2 hour trach trial and physio, but a good tired. Also had massage therapy for an hour, so that would make anyone relaxed! We had forgot to mention that Matt moved his middle finger on his left hand yesterday. Some days his movements are more pronounced, and spasms are less. So those are good days. Matt's custom made wheelchair was ordered, which will be great to have one that fits that tall drink of water! Mom says Matt was a little less talkative and quiet today. I think he is feeling with the ordering of the chair that they feel he will never walk. But it is just until he does walk. We know that it will be awhile and he might as well be comfortable. Then we can donate it back for someone who really needs it. Prays that Matt will remain strong in faith. Psalms 62:2 "He alone is my rock and my salvation; he is my fortress, I will never be shaken."

Whirlpool bath

Today was a busy day for Matt. He had a whirlpool bath, and then went to the gym to listen to a speaker who was quad because of a accident at the age of 17 in 1984. He is an wheelchair rugby player and showed the people present all some different styles of chairs and boards to play certain sports. He was very interesting to listen to. Matt also did a 3 hr trach trail and sat up in the chair for around 4 hrs. He beat his sister in Yahtze and then she beat him Golf. So they both came out even. He was very tired and had a nap after he was back in bed. He was able to eat some dinner and then his sub in the evening. This evening he had some trouble with his pulse going up and lots of secretions, but all in all a good day. Prayers for tomorrow that Matt will continue to do well with his trach trails and his muscles continue to strengthen. Romans 12: Be joyful in hope, patient in affliction, and faithful in prayer. God bless each and everyone of you.

Weight up and rubs his nose

Matt had another good day. He was able to do another 2 hours trach trail and also had the cuff down so he could do some talking. Was up in his chair for 5 1/2 hours and did really well. He went up to rehab and was able to do some work on the arm and hand pulleys using both wrists. His right arm is much stronger than the left, but was able to do a little with his left. He had a couple bouts of nausea, but was able to keep everything down. Took a trip outside and to see our beautiful fall weather. Ate well today and after his weight was checked is now up to 176lbs. If they feel he is gaining enough they may do away with the tube feedings all together. For the first time was able to lift up his right hand to rub his nose, all smiles. Lots of company today, loves to visit and get all the news. Praise the Lord. Prayers for continued success with the trach trails and with rehab. Isaiah 26:12 All that we have accomplished you have done for us, O Lord.