To The Mall

When I phoned dad in the afternoon yesterday I asked to speak to Matthew. First dad had to catch up to him. I was a bit confused until he told me Matt, Nolan, and Lindsay were at the mall and had just went down in the elevator and dad was left holding the bag! Well actually the parcels they had purchased. so when dad finally handed the phone to Matt, I thought it was Nolan. His voice was so strong and he didn't have any difficulty talking at all. Matt had bought a heavy parka for himself and now they were off to have supper. And he can't talk and drive at the same time so was able to speak with dad again. When I asked how the start of the day was, Matt threw up for the first time in a few weeks. However it is hopefully soon rectified once he gets back to the hospital. "Full to the Brim" has a new meaning. I will speak to dad later today so will have more to write.

Tired muscles

Even though Matt's rehab yesterday was limited in the length of time, it was very productive and Matt was feeling sore today. Good!! That means you were working Matt. Tired also from being up in his chair for over 10 hours yesterday. Today was not quite as long, only 7 hours but that was good enough. Rehab consisted of putting the TENS machine on his left arm. It stimulates his muscle to contract and try to give the brain a memory of that arm moving. They didn't have to turn it up very high in order for it to contract, which is great. Also Matt "cycled" with his arms.Tomorrow it sounds like Nolan may take Matt to the mall and go for lunch, so good to rest up.
Matt's breathing is going great. Still haven't talked to him on the phone but Nolan said he sounds and looks so much better than he did at Christmas. Matt's cough is so much stronger he hasn't been suctioned for 2 days. Prayers that before discharge that trach comes out permanently. It will be so much easier on him and us. Suctioning is a time consuming endeavour and I don't like it!! It makes Matt cough so much and it hurts him as well. Travel will be much easier too. James 5:16 "Therefore confess your sins to each other and pray for each other so that you may be healed. The prayer of a righteous man is powerful and effective."
No throwing up for a while which is a definite bonus. Ate well at dinner and supper too. Pack on the pounds, Matt. I am sure there are many of us who would give you their "extra".

New Trach

Wish I could have talked to Matt tonight but he was busy gallivanting around the hospital with friends. Spoke to dad and he stated that Matt had a new trach in yesterday, a smaller one with no cuff, so he can breathe much easier. Before when Matt would talk he would have to use his shoulder and abdominal muscles to breathe. Now dad says he looks more at ease. And his cough is so much more effective as well. Nolan and Lindsay went to visit Matt and are probably there already. Can't wait to talk to him and see what he thinks of Matt's improvements.
Rehab was limited today to just 1 hour, and they are really working on Matt to transfer. I had mentioned before if Matt could transfer he wouldn't need a lift to move him from the bed to the chair and vice versa. The physio had told dad that in the last few days Matt's right arm has gotten much stronger in all aspects, biceps, triceps etc. Keep up the good work Matt!! He played the game of "Sorry" and not sure how that turned out.
My cousin Shauna sent us an interesting website to look at from the states. It is called 'Project Walk", a facility where the motto is if you can feel, you can walk. If anyone wants to check it out it is www.projectwalk.org. A girl from Prince Albert is going in February after she suffered a C5 injury last July, I think. It is only in the states so might be an expense endeavour, but only time will tell. Prayers for continued guidance on God's pathway for Matt. Isaiah 58:11 "The Lord will guide you always; he will satisfy your needs in a sun-scorches land and will strengthen your frame. you will be like a well-watered garden, like a spring whose waters never fail."

Tonight will be a quick blog, 6am comes quickly. Matt talked to his psychologist yesterday and said it went well, but won't tell us what was said. I guess he knows what a snoopy family we are and wants to keep some things private. He met with the activity worker and a fellow quadriplegic Paul Gustafson to discuss some hobbies or sports Matt could get involved in. During rehab Matt was able to be on his stomach again , and using his elbows could lift his head and neck up (like a baby does when first learning) for about 3 minutes. He can roll much quicker from the right to the left side while he is on the mat, however he cannot do it in the bed because the mattress is too soft. He can't pull his hips over so always needs help with that. When he is up on his elbows while on his stomach, he can push and move his body forward slightly, with minimal assistance, just to get him started.
Matt has dropped a few lbs, from 170 to 168. But when I spoke with dad he said they were at ICU and having salt and vinegar chips with ice tea. So I thought he meant at City ICU. No.. they are already visited there and were now at RUH ICU. Matt and dad braved the cold to go out visiting.
With occupational therapy, Matt ate a bowl of soup by himself just using a regular spoon. He finds it difficult to get the angle right and it takes a lot of work, but he perseveres. He also played checkers for a 1/2 hour, but I didn't find out who won. believe me if it was Matt, I would have heard about it so I can guess who lost!! Please pray for guidance for decisions that will have to be made regarding Matt' s future discharge. God has a perfect plan for all of us if we just let him take control. Romans 8:6 'The mind of a sinful man is death, but the mind controlled by the Spirit is life and peace."

Travelling Man

I had phoned dad yesterday morning to discuss some medications that he (dad) was prescribed, but he wasn't able to speak with me. They were getting Matt loaded up into the cab to take him to the movies! So last night mom phoned to update me on Matt's day. She doesn't know what movie he went to, but they took him to the mall on 8th and Acadia with another rehab patient. Matt really seemed to enjoy it. Mom was able to talk to Matt on the phone and he is sounding stronger and he doesn't struggle to talk so much. Matt's breathing has improved with his exercises. Last week he could do 2 sets of 5 repetitions, so he could do it total of 10 times. Now he can do 5 sets of 5 repetitions, which equals 25 times. That was doing it once a day, now he has to increase to twice a day.
Matt told mom he was eating better, but they increased his tube feed to 80 mls per hour instead of 60 mls. Their goal weight for him is 190 lbs. We won't know how he is progressing until his next bath when they weigh him. Matt was already pre-ordering what he wants mom to make and bring with her when she returns. Homemade pre-cooked fries, pork chops, ribs with the bones in etc. Not to found of the stew so that is out.
I have another funny story about Matt. It involves Nolan as well. When Matt was about 7 years old and Nolan 9, they were playing outside while we were busy cleaning the house. Soon Nolan came in to watch TV. We asked where Matt was, and Nolan replied he was still outside. We didn't think much of it until 1/2 hour had passed and Matt hadn't come in. So we went outside to look for him. You could say he was"tied up" with playing...Literally. Here was poor Matt tied to a tree with a sock in his mouth!! Needless to say, after we had rescued Matt we proceeded to look for Nolan. Where did we find him? Hiding under his bed! I think he knew what was going to happen. But Matt was upset with us, because he wanted to play with his brother!! Talk about forgiveness! Ephesians 4:32 "Be kind and compassionate to one another, forgiving each other, just as in Christ God forgave you."

Quiet and Cold

Whew!! Can't believe how cold Saskatchewan is. Was at Jacki's over the weekend and we where complaining because the windchill made it -17. What a bunch of babies we have become!
Matt's weekend was quiet, but had lots of company. When I talked to Matt tonight, I asked him what he was up to and said he was sitting in the chair watching TV. I then asked what dad was doing... Matt replied "laying in my bed". However dad did have to help Matt with the phone occasionally because his arm would get tired.
Matt has been doing breathing exercises to strengthen his lungs. He has to breathe in and hold it for as long as he can. It is a special device dad has to hold for him. Matt doesn't like it too much because it is difficult for him and he gets tired quickly, but he keeps at it whenever he can.
When I talked to Matt, he is still concerned about his left hand. So please pray tonight that his left hand will get motivated and start to perform. If he had his left hand, he would be able to transfer from a wheelchair to a bed more easily, turn in bed, and eventually Matt would not need a motorized wheelchair, he could "downgrade" to one he moves himself. Psalms 32:10 "Many are the woes of the wicked, but the Lord's unfailing love surrounds the man who trusts in him."

Thanks for all the support

Thanks to all for continued support of Matt and our family. Sometimes you feel like your in a bubble alone and it feels great when the bubble pops! Matt had a pretty good day. He bounces back so well from everything. Dad arrived at 1:30 pm and was glad to see Matt looking so chipper. Matt's day consisted of a bath, stretches, 3/4 hour on the mat, 1/2 in the gym, and an outing to Tim Horton's for coffee! Wish it wasn't so cold in Sask. but managed it anyway. Went by cab and really enjoyed it.
Dad said Matt had so much company from home that by the evening he was feeling pretty tired. Matt had also been up since 7 am and didn't nap much during the day. But when Kristen brought Matt some KFC, he seemed to bounce back! He ate most of the chicken, fries, and the drink by himself. However Kristen helped him with the last piece just so he could rest his arm. Thank you Lord for your continued hand upon Matt. Psalms 145:14 "The Lord upholds all those who fall and lifts up all who are bowed down."
Another funny story about Matt came to mind while I was watching my daughter Shaunie. When Matt was learning to use the potty, he would whip his pants down 50 feet from the bathroom and waddle like a penguin the rest of the way. Thought it was quite funny until he started kindergarten and I was in Grade 12 and seen him coming down the hallway with "everything" on display because he needed to use the washroom. You should have seen me run that day1 Now my daughter does the same thing! Thanks for passing that on, Matt!

Blue Day

I could have written last night but was feeling blue regarding some news Matt received yesterday so I decided things always look brighter in the morning so I waited. Matt and mom attended a "Family Conference" to talk about the plans for Matt. They kept asking Matt what he wanted to do when he was discharged and what his plans are. He would just say "I want to feel better". So for now the discharge date from rehab is Feb. 29 (one day after his 21st birthday). They meeting was very discouraging because they feel that they have taken Matt as far as he will go and that he hasn't progressed in the last month. They really pointed at the fact that when we took him home, it was against their wishes and we had set him back. After the meeting Matt was feeling like a burden, that recovery may very well be impossible. I have a few things to say to you Matt. They are just human, and no one knows what the future will hold. Ephesians 6 tells us to put on the full armor of God, take up your shield of faith, because faith in the Lord gives you hope. He has done so much for you Matty, sometimes it seems so long ago that we forget.
And in regards of Matthew not progressing this last month, he can now write his name, not just print it, he plays Sudoku?(not sure how to spell it) and fill in the letter spaces himself, he can lift his right leg off the bed for a few seconds, and is gaining strength in his left arm. So Matt, you do not have to feel like there is no progress. But you do not have to do it yourself. Call on Him for the strength to continue, and every time you have rehab, ask him to carry you past the moment of stopping. Show them what the Lord and you can do together. Ephesians 6:16-18 "...take up the shield of faith, with which you can extinguish all the flaming arrows of the evil one. Take the helmet of salvation and the sword of God. And pray in the Spirit on all occasions with all kinds of prayers and requests."

Big Fatty! We wish!

Well Matt, the tube feeds must be doing something because you have gained 10 lbs in 8 days. They are continuing on the tube feed at night, but he is also eating better again. He doesn't eat breakfast but that will come. So Matt, keep on filling your face. I remember Matt as a little guy eating his meals. He would put his face down by his plate, open his mouth and shovel it in.
Mom and Matt were able to see the neatest wheelchair. It is from Europe and costs $30,000 but it has everything , Matt could even stand up in it. We are looking into having Telemiracle possibly paying for a portion and we would cough up the rest.
Yesterday went to visit the staff from ICU. Rehab went well. Matt did something new that he hasn't been able to do for 7 months. He laid on his stomach, maybe not the same way we do but they have to protect the trach site. Matt has to have his elbows bent and hands beside his head, and he is holding his head up for a short period of time. Then they get him to rock back and forth to strengthen his neck. Hard to explain but hopefully will see it one day. Everything seems to be gaining in strength but Matt is still mad at his left hand and lack of movement. The doctor is encouraging him to think of what Matt has, not what he doesn't have. Matt is not having as many spasms as much as he was having at Christmas. He was even able to get a nice massage, however it hurt a bit because that nasty knot is back. And Matt had trouble sleeping because he had a burning sensation in his right foot. The nerve endings are trying to retrieve signals from the brain but they are not coming through properly so causes him pain.
Lots of company today. Few black rings under his eyes but is feeling better. 2 more days of antibiotics and then he will be done. Tonight he was having trouble breathing, was having a hard time talking on the phone. So the RT came and suctioned Matt for large amount of phlegm, so doing better. It doesn't appear that the trach will be taken out any time soon, I think they are worried if Matt has more respiratory problem. It would be nice if it was removed because next weekend they are hoping Matt can go home for a few days. They are encouraging mom and dad to take Matt out somewhere at least every second weekend. So Matt is looking forward to that.
Mom is returning to work tomorrow so dad is coming in as a replacement. She will be there for the Family meeting which is great. Prayers that Matt will be infection free for a week and continue to gain weight. Go Matt Go!! Psalms 20:6 "Now I know the Lord saves his anointed; he answers him from his holy heaven with the saving power of his right hand."

Home cooked meals

Matt continues on the tube feeds at night, however he is also eating better especially in the evenings. And who could blame him? Mom has been bringing him home cooked meals she had prepared when she was in Weekes. Pizza, stew, chili, etc. Tonight for supper he received a good meal from the hospital but the big baby wanted mom's cooking. However mom makes him work for it. He must turn the pages of his book himself.
Sat up in his chair for 9 hours today and even had a siesta for an hour in the afternoon. Mom finally convinced him to take an Advil for his sore neck because Matt is starting to really dislike taking so many meds. They had Matt quite busy and was able to meet with some players from the paraplegic basketball team. Matt will start attending a support group that is run through the hospital. However after Matt met with 2 psychiatrists, one for a follow-up from RUH and another from City, they think he is doing great. They just can't figure out why he is so positive. And I asked Matt what do they expect, for him to swear, bite, or hit? Actually they do expect that but Matt just replied"Oh, I could never do that". God always amazes me that he provides the much needed inner strength to those who need it the most. He paved the way for Matt, that Matt would arise to the challenges he is facing with dignity and grace. He got it all from me!! And Jacki, stop laughing, it is true!! Actually the following verses give a true picture. 2 Cor. 4;7-8 "But we have this treasure in jars of clay to show that this all-surpassing power is from God and not from us. We are hard pressed on every side, but not crushed; perplexed, but not on despair; persecuted, but not abandoned; struck down, but not destroyed."

Apologies for not writing for awhile. So a little update is needed. Friday was uneventful. Matt had the tube feed on for 12 hours during the night at 40 mls/hour. However by Friday night they decided to increase it to 60 mls/hour. Matt's appetite is just not what it should be because of the lung infection and the antibiotics he is on. They started Matt on intravenous Penicillin and he also takes oral antibiotics as well. Dad went home for a break and is booked for a Dr's appt on Tuesday to see what is happening. Rehab wasn't overly productive because of Matt's weakness from the infection. However I do have a funny story to write, even though I promised mom I wouldn't. She is in Saskatoon, I in Red Deer, what can she do?! Mom helps Matt do leg exercises in bed. She bends those long legs and holds his knees together. Then she places her hands on the outside of his legs and gets him to push against her hands. To finish off he must pull his legs back together. However the clincher is that mom was unable to get her head back in time and he caught her in a WWF style headlock with his legs!! She couldn't get out, his legs were quite strong. So mom, for Matt's sake you have to do that everyday!! Just think of how strong he would get!
Saturday Matt was feeling better. At least he didn't have the dark circles under his eyes anymore. He stayed up in his chair and was feeling rather tired and wanting to go back to bed, but company came from Weekes and he immediately perked up and stayed in his chair for 5 hours. Matt ate better in the evening, which he generally does and didn't become sick. Regarding his trach, they decided not to keep Matt "capped" at night. That means the trach is left open and moisture and oxygen are attached to keep his secretions from getting too thick. Hopefully this will make him sleep better and be ready for the oncoming day. Thanks to all who come and visit and bring a little cheer into Matt's hospital stay. God provides comfort to his people so they in turn can provide comfort to others. 2 Cor. 1:3-4 "Praise be to the God and Father of our Lord Jesus Christ, the Father of compassion and the God of all comfort, who comforts us in all our troubles, so that we can comfort those in any trouble with the comfort we ourselves have received from God." That is a lot of comfort!!

Much Better

Yesterday Matt was feeling better, still not eating as much but his spirits have improved. Had some visitors from PP who were able to watch Matt "work out" in the gym. Then the occupational therapist played a game with Matt called "Connect Four". It is similar to checkers but it stands upright. Matt won that game however Devin challenged Matt to a game. When it seemed quite apparent the Matt would have to concede defeat, he quickly flicked the game to remove all the chips, so Matt, you are still a poor loser!! When we would play games when he was small, the crying that would go on because he had lost was something to behold, and of course the more we laughed the worse he got.
Dad was getting quite concerned about Matt's weight loss and lack of appetite. He discussed with the dietitian some of the food Matt likes and dislikes. At the beginning of the week, mom or dad fill out a card to say what is offered each day and some choices are available. However 90% of the time he never gets what he ordered. So hopefully the discussion with the dietitian will help matters. Because of the concern, they decided to put Matt back on the tube feeds at night. It isn't really a step back if it will help him regain strength and weight. Thank goodness they didn't take the tube feed out.
Mom arrived from her long hiatus from Matt tonight at 8pm. She observed a noticeable difference in the ease of movement for his right hand and arm. Also the left fingers continue to twitch, which is still hopeful. Also his right leg movements are somewhat stronger and he is having less spasms. We realize that Matt's improvement would be better if he had some private physiotherapy that could come when he feels at his best, say in the evening. So mom said she would look into it. Prayers that if this is the right decision, that things will work out, and that God will lead the way. Proverbs 3:7 "Do not be wise in your own eyes; fear the Lord and shun evil. This will bring health to your body and nourishment to your bones."

Another Bad Day

Before I get started, I would just like to thank the person who wrote the devotional message on the comments. We are very much in a world that tells us we must take control of our lives and change what is wrong. The difficulty in doing that is we are unsure of ourselves and often make the wrong choices. It was mentioned that God didn't make us strong, he made us vulnerable so we would turn to him. 1Cor. 1:25 "For the foolishness of God is wiser than man's wisdom, and the weakness of God is stronger than man's strength."
While speaking with dad tonight, he wanted to let me know that Matt's day yesterday wasn't all about eating. He actually only ate until 5 pm and then didn't eat again until tonight at 5 pm. So 24 hours without food isn't great. Matt weighed 174 lbs in November. Then pneumonia hit and the weight plummeted to 165 lbs. The weight today was 162 lbs. That is one skinny man. However Matt hit a record yesterday of being up in his chair for 10 hours, but it may have been too much as today he could hardly stay in his chair for 3 hours and just wanted to lay down. Rehab was very unsuccessful. They took one look at Matt's peaked and pale face and knew it was not a day for miracles. The doctors ordered x-rays of Matt's chest for tomorrow to see if another infection is taking hold. When they suctioned Matt it was very thick, which makes it difficult for Mattt to cough it up on his own. Thank goodness there is no fever at present and prayers that it stays that way.
I believe Matt is just so tired of being sick. He knows that rehab is so important and feels frustrated when he is unable to do it. Prayers that God will guide the physicians and nurses in discovering what bothers Matt's appetite so bad and that Matt will gain weight from now on.
2 Samuel 22:7 "In my distress I called to the Lord; I called out to my God. From his temple he heard my voice; my cry came to his ears."

Sunday: Matt had a tough day on Sunday. Nothing was going well. Everything was bothering him and his neck was really sore. He did not eat anything all day. Dad was feeling bad for Matt and the nurse finally told dad to go home, take a break, and the staff would feed Matt when he got up from his afternoon nap. She said knowing Matt he was just having an off day, and would bounce right back tomorrow. Sure enough that is just what happened. However it is good to know that Matt has far fewer psychological "off" days than others in his position, so he is still pretty positive.
Monday: Matt really picked up today. By the time dad got there in the morning he was up in his chair wanting to eat! And he didn't stop eating all day. The occupational therapist worked with Matt in his room playing games and watching how he could brush his teeth and wash his face. She tried a peg board with small dime size pieces that he had to move, and he did very well. After lunch the physio therapist took Matt to the mat to assess his functional capacity again, just to see if there was any difference from the last one he had before Christmas. tThey stated Matt was gaining in what he could do, that his strength was improving however slowly.
Thanks again to everyone who comes to visit and writes on the blog. Also a great big heartfelt thank you to all who came Dec. 29th hockey game in Porcupine. It was so great for Matt not to think of hospitals and rehab for a short while and it lifted his spirits. We are unsure of the final tally but it was well over $5000. It is a real blessing and can help in so many ways.
Proverbs 18:16 "A gift opens the way for the giver and ushers him into the presence of the great."

Quiet Weekend

Not sure what happened today. We had company and they left a short while ago and didn't want to phone dad so late. Also Jacki and the kids were here for a late Christmas celebration. The kids were so excited to get more presents!
Yesterday Matt was able to get his TV hooked up again right before the Canada/Sweden game. Good thing Canada won! Matt had some relatives for company and since there is no rehab on the weekends, it was pretty quiet. The big concern with Matt is is inability to gain weight. He is so sensitive to coughing spells, and any change in body routine sets him feeling nauseated. So prayers that this will pass and we can start beefing him up to increase his strength. Matt also had some trouble breathing but was relieved quickly. Lamentations 3:22 "Because of the Lord's great love we are not consumed, for his compassions never fail. They are new every morning; great is your faithfulness."
Dad was feeling much better so I think he was able to visit better with Matt. Hopefully have some more exciting news tomorrow.

Parking Ticket

Just got off the phone with dad. He was just getting into the truck when he noticed a parking ticket on his windshield. The main parking lot has been so full the last 2 months he had been parking on the side streets and walking to the hospital. He has been physically unwell for awhile now and today was really bad, so a ticket was the icing on the cake. But what can you do?
Matt is feeling so much better. He was quite constipated and now he is "all cleaned out". His breathing is easier and he was able to sit up in his chair for 8 hours today. Rehab was productive and they are trying different ways to see how Matt can help transferring himself from the bed to the wheelchair. He is still so weak and has lost some weight again from loss of appetite, so it may take some time to build up those muscles. Tonight the menu was Salisbury steak and it was really good. Rehab has been encouraging Matt to eat as much as he can on his own and he does fairly well for a short period of time. However dad was finishing feeding Matt when he throw up all his meal. He has this annoying dry cough and and that's is, everything comes up. So I suggested to dad to buy some Vick's and rub it on the soles of Matt's feet and give him a teaspoon of honey after he eats to coat the throat. It may sound crazy but whenever the girls are sick and they are coughing, I do that every night and it works! Just ask my cousin Shauna, she thought I was crazy until she tried it on Jada. So dad will pick it up in the morning before going to see Matt.
Today dad was a bit shocked when they got back to the room after occupational therapy and the TV was disconnected. Not sure what happened but hopefully they will get it worked out tomorrow. Matt has not been asked to pay for the TV since he got to the hospital, so I guess they decided it was time to start charging. So tonight he is watching "Pirates of the Caribbean" the new one, but unfortunately he missed the hockey game. Need to get the TV up and running for the Canada /Sweden game tomorrow.
Prayers for that left arm and hand to start working to make the transfers easier and that the trach can be removed sometime this month. Luke 11:9-10 "So I say to you; Ask and it will be given to you; seek and you will find; knock and the door will be opened to you. For everyone who asks receives; he who seeks finds; and to him who knocks, the door will be opened."

Keep The Faith

Was able to speak with mom for a few minutes tonight. Matt missed his physio this am because they felt Matt needed a good "cleaning out" before getting him up in his chair. I beg to differ, physio should come before that other stuff but he was able to go to the gym for the afternoon session. We as a family realize the huge amount of physio needed to get Matt up walking again, it isn't easy to exercise that 6 foot 7 inch frame! But we truly believe it is attainable, so prayers that those working with him will come to realize it as well. Job 12:13 "To God belong wisdom and power; counsel and understanding are his." If we could just glimpse at what God has in store and to see what He can see would ease our worries and anxiety. But Hebrews 11:1 states"Now faith is being sure of what we hope for and certain of what we do not see."
Matt said he is feeling better and they now think his lung infection was caused by a virus, not a bacterial infection, so antibiotics will not help. However to be on the safe side they decided to give him antibiotics anyway orally. The medication usually makes him nauseated but he managed to eat most of his meals in spite of the meds side effects.
Matt, even though we are not with you physically, as Jonmarie puts it, you are always in our hearts. Keep the faith Matt. Cheerleaders form across the globe are praying for you.

Happy New Year!

From the Gustafson Family, we would like to extend best wishes to all in the New Year. And i I agree with one of the blog comments, let 2008 kick butt! Matt has settled back into the routine in the hospital. Mom had to go back to work so it is up to dad to do Matt's neck stretches and encourage him to exercise. The occupational therapist was impressed at the improvement in Matt's throwing ability. Believe me, he had lots of practice trying to aim at my head! He can actually lift his arm off the chair's arm rest to throw the ball. Before he would just use his forearm and not his upper arm. Also, we had encouraged Matt to try and help us when we got him dressed. Mom would hold his legs in a bent position, then Matt would count and try to lift his butt so Airene and I could pull up his pants. It worked much better when we were taking his pants off, but Matt tried his best to help and managed to lift his right butt off the bed.
They believed Matt had a chest infection so they took a sputum sample just to be sure and started him on antibiotics. They also said how important chest physio is, so hopefully he gets a good one today.Matt isn't struggling so much to breathe now which is good to hear. Prayers that sometime in January he will get that trach out. It will be so much easier to bring him home next time without it.
We had noticed at home that Matt had a pressure point on his heel, so prayers that it does not get worse. A pressure point is an area that the skin remains red and the skin tends to get thin. Because Matt is susceptible to skin breakdowns, we have to be especially cautious. We had to turn him every 2-3 hours when he was in bed at home.
Thank God we were able to keep Matt at home for as long as we did. He needed a lifting up of his spirits. God is always with us. Deuteronomy 4:39 "Acknowledge and take to heart this day that the Lord is God in heaven above and on the earth below. There is no other."

A nice tribute...

Sorry for not keeping the blog updated the last few days - I've had trouble getting in touch with the family as they has been so busy!

Matt had been feeling poorly since Christmas (trouble breathing and feeling nauseous), but had recovered quite a bit after his big brother Nolan showed up on the the 27th (Nolan couldn't get off work until then). The family basically had another gift exchange on the 27th as Nolan brought gifts from Jacki & Gary and himself. Then they had two games of dice where Matt held the cup himself, and Nolan would sometimes help him lift his elbow so he could dump the dice a little better. Shelley said that whenever Nolan helped in this way, Matt would roll a 1000, so she protested that they were cheating and wouldn't let Nolan help him anymore!!! (poor loser).

Friday (the 28th), Matt's employer held their annual Christmas dinner at the Weekes Arena, and Matt was able to attend. He had a great meal and stayed at the dinner for about 3 hrs and had a wonderful time seeing his coworkers. His coworkers had a scrimmage game of hockey, and Matt hung out in the dressing room while they changed, and then watched the game from inside. By the time he got home, his neck was really sore, but Irene did some really good stretches on his neck to ease the ache.

Yesterday (the 29th), there was a benefit hosted for Matt at the Porcupine Arena that included a hockey game, 50/50 and a silent auction. I guess Matt had cold feet just before the opening ceremonies, and didn't want to go in, but Shelley and dad encouraged him and he was able to get up his nerve and "drive" himself to centre ice (Shelley stayed with him). For those of you who were there, Matt just couldn't look at the crowd he was so nervous, but he was grateful you were there just the same!!! He enjoyed the raising of the Provincial Champion flag and the singing, and was happy to see his former team members get recognized. After the formalities were over, Matt was able to visit with people inside the arena and watch a bit of the game. Mom thought there was approx. 400 people at the function, and we want everyone to know how much we appreciate you attendance and your generosity for Matt! He had a wonderful time and we hope you did as well!

The women of the family are quite exhausted from dealing with the 3 kids - Shaunie, Jonmarie & Matt! Matt's daily care is quite extensive as getting him up in a chair takes all 3 women, and doing his exercises usually takes 2, and suctioning him with a broken suction takes 2 people. So Shelley now needs a vacation from her vacation!!!! Irene was really impressed with how Matt tried to do everything she asked no matter how hard it was to do. When he is lying down, he is able to lift his right leg off the bed about 4 inches, and hold it for a second or 2. Keep of the improvements Matt!

Mom & dad were planning on taking Matt back to Saskatoon today, much to his dismay, but he really needs to go back and start on his daily physio again. Please pray that they have a safe trip back to the city, and that Matt will be able to stay motivated back in the hospital so that he can continue to improve his range of motion. Phil 4:6 "Be anxious for nothing, but in everything by prayer and supplication, with thanksgiving, let your request be made known to God."

Twas a Merry Christmas!

Just wanted to give a quick update on Matt's Christmas.... Matt had trouble with his fever on the 24th, trouble breathing,and he wasn't eating - to the point that Mom & Dad tried to convince him that they should return to Saskatoon. Matt was determined that he was going to stay home for Christmas though, and with lots of prayer and diligence on the part of the "doctor" (John) and "nurses" (Mom, Shelley & Irene), and the use of some equipment from the Porcupine Hospital (I can't remember what it was called, but it helped Matt to breathe) Matt's condition had improved that evening. Having got through an emotional day, everyone had a great time celebrating Christ's birthday!! Matt was able to get up in his chair a few times to visit with everyone (there was about 15 adults at the house yesterday for Christmas), play games, and of course, eat turkey dinner! Late last night he was still playing "Scene It" with the family. Praise God for blessing Matt with a wonderful day! Hope everyone had a wonderful Christmas with friends and family, and will post more in a few days.

A fever strikes

Well, despite our prayers to the contrary, Matt developed a fever around 2pm of 101.2. He was adamant that he was going to be all right and not have to go back to Saskatoon early. It seems that God agreed and his temperature has been going down all day and at 10pm SK time, it was only 98.9. Because he felt poorly, he did not get up in his chair today. However, Mom & Dad have to be more strict as he needs to sit up everyday to help clear his lungs. Because of this fever, he did not have any visitors today, but I'm sure he'll be up for some company tomorrow. Matt has able to eat supper (sweet & sour meatballs & rice - one of his favorites!) and keep it down which is good. Please pray that Matt will recover from this fever by tomorrow and have a good day and week. James 5:15 "And prayer of faith will save the sick, and the Lord will raise him up. And if he has committed sins, he will be forgiven"

The cavalry arrived in the form of Shelley, John, Irene and girls at 7:30pm, and Shelley was able to suction Matt and get a lot of secretions out. I guess she's taking over, and Mom is quite happy about that. She'll do the night shift she says.

In case we miss the next few days due to the craziness of the season, we want to wish you all a very Merry Christmas and God's Blessing on each of you.

Finally home!!!

Matt is finally home, and couldn't be happier. It was sure a process to actually get from the hospital to the van, and then to the house, and then into the house.... Special thanks to a neighbor who came to the house to help dad lay the ramp, bring everything into the house including the bed and lift, and help get Matt himself into the house. Mom & dad couldn't have done it without him!

It was fairly late when they arrived in Weekes (8pm), but they had started leaving at 12pm!!! But the hospital was super busy, and Matt has a lot of luggage (extra wheelchair, lift, bed, portable suction, ramps, etc...). The van worked a expected - drove well, ate lots of gas, and was a little cold. But it got them home!

I know some friends had hoped to see Matt this evening, but he was just too tired with all the activity from the day. Mom said he's sound asleep right now! Please pray that Matt will stay healthy with no infections or other complications so that he can remain at the house all week. Praise God that Matt is home for as it says in Psalms 9:1 "I will praise You, O Lord, with my whole heart; I will tell of all Your marvelous works."

Home for Christmas

Sorry I haven't written on the blog for 2 days. Christmas is coming whether I am prepared for it or not, and I realized I am not! We are planning on leaving tomorrow early and driving all day until we get to Weekes. Hopefully everything is still a go. Matt wasn't feeling very well last night. Mom said she knew something was wrong but wasn't sure what it was. He was very flushed and had no appetite. States his body was achy. They took his temp and it was fine, but his pulse was high. Later Matt told mom that he wasn't getting in enough O2, so they checked his O2 sats, and it was only at 83%. Remember the normal range is 97% - 100%. The nurse tried to suction him with no relief. So they finally called down to respiratory, but they were busy in ICU, Matt's breathing became quite heavy and the nurse put O2 on Matt and turned it way up. Eventually when respiratory arrived, Matt's O2 was up to 95% and he was feeling better. He did not have chest physio yesterday and that may have been the problem. Hopefully it was just a mucus plug and was nothing more serious. Matt wants to go home more than anything. Prayers that today they will be on their way to Weekes. Psalms 6:9 "The Lord has heard my cry for mercy; the Lord accepts my prayer".
Mom says they have 5 huge bags worth of stuff for Matt, so dad has to take some of it home in his truck. And they also have to take a manual wheelchair in case the motorized one fails. Therapy is sending home some weights for Matt to use and Airene ( my physiotherapist nanny) and I already have some exercises in mind. The best thing about us being there is we can do Matt's exercises whenever he feels good, not just at certain times of the day. So if he feels good at 10 pm, we can work on him at that time.

We Have Found A Van

Finally we have found a van big enough to transport Matthew. The original idea was to borrow a van from another quad patient, but it was just too small. They tried everything, but Matt would just not fit. Then he became very cold with all the maneuvering. So took awhile to warm up. Another quad patient was able to let us try out her old 1988 van, which will work. It is a bit of a gas guzzler, but it will work!! So it definitely sounds like Matt will be home on the 22nd of December. So now it is safe to tell everyone about a little get together they are planning for Matt at the skating rink in Porcupine There will be a hockey game between Kinistino and Porcupine, there will be a few silent auctions and raffles, and a dance afterwards. So mark December 29th on your calendar and be there at 7:30 p.m. For further information contact Dwayne Thorpe at 278-3163.
Matt didn't have the best day yesterday. Still not feeling well from the antibiotics so he didn't do well at rehab. They had a staff/patient Christmas party, but Matt was only able to atttend for a few minutes. That's alright Matt, you will make up for it when you go home.
I would like to write more but my computer is acting up an it has taken me 1/2 hour to write this, so will write more tonight.

A New Development

I realize Jacki had already written the blog tonight however I received a bit of news that she didn't know about. After dad had spoken to Jacki on the phone, I phoned because...well... I am nosy and like to have first hand knowledge of every day's happenings. Matt was so excited. He had just received a Grey Cup Jersey signed by all the team members of the Saskatchewan Roughriders!! Also a signed bandanna! He couldn't believe it. Apparently, one of the nurses from ICU wrote a letter to the Riders explaining Matt's situation and asking what they could do. Their initial plan was to come and see Matt, however that didn't turn out but what they did was great! So a big thanks to all involved, and if any of the team members are in Saskatoon, swing by the City hospital for a visit. Will take pictures over the holidays to put on the blog.

A little unwell...

Matt had an OK day. Because he has a urinary tract infection, he's back on antibiotics which always make him sick (started on the pills yesterday which partly explains his nausea yesterday as well). Also, they did x-rays today which showed that Matt hasn't had proper bowel movements, and is a little "full". They've started him on medicine (oral fleet) which will help clear that up as well.

Despite the above issues, he still had a pretty good day. He was in and out of his chair about 3 times which is great. I remember when he used to battle when he was encouraged to get in his chair just once for about 1/2 hour. Now he asks to be in his chair so he can scope out the floor, go down to ICU and visit with his former nurses. By the way, he did go to RUH on Sunday for about 2 hrs to visit the staff there. I guess the staff were sure excited to see Matt, and how well he is doing. Anyway, he had a good rehab session where they mostly worked at transferring. Because he's getting stronger, they no longer need 3 people to transfer him. They need to use 2 people right now, but he's getting closer to just 1. Please pray that Matt will continue to strengthen his upper body to assist in this technique and so that he can eventually do this on his own. 1 John 5:14 "Now this is the confidence that we have in Him, that if we ask anything according to His will, He hears us."

A big day

Today, Matt had about 3 hrs of rehab. Maybe a bit too much as he got tired, then didn't want to eat lunch because he felt nauseous, then he had to have gravel. This caused him to sleep from 3pm until 6pm - but once 7pm came along he ate all his supper from the hospital, plus poached eggs courtesy of dad.

Rehab highlights - He has a different therapist today who has a slightly different approach then some of the others, and wanted to see all he could do. She then tried 2 new exercises: 1) She got him sitting up on the mat, then lifted the mat hydraulically so that his feet were just barely above the floor. Then she asked him to straighten out his leg so it would be parallel with the floor. Matt was able to lift each leg one at a time almost level (about 2/3 extension), hold it for a couple seconds, and then back to the floor. Awesome job Matt! 2) She had him lie down on his back with his knees up, and his heels on the bed. Then she moved his legs apart, and he could pull them back together again. Praise God that his quadriceps and his groin muscles are working!!!! Phil 4:4 "Rejoice in the Lord always. Again I will say, rejoice!"

Matt continues to play cards - once someone shuffles for him, he uses his right hand to deal out the cards, put his cards in his holder, play out the cards, and move his own pegs. Also, he has started to go daily to the community computer on the floor to read people's comments. Thanks so much for your support and prayers as Matt continues his recovery.

A very rewarding day!

A normal weekend

As most of you know, Matt doesn't have any physio or planned activities on the weekends, but he was busy none the less as he had lots of company. This is appreciated so much as it helps to pass the time more quickly until Monday when he starts his hard work again (just like a regular work week!). I wasn't able to talk to dad today, so I'm not sure if anything out of the ordinary occurred. However, I did speak to my mom who talked to dad earlier in the day. They had planned to go to RUH to see his old nurses, but I'm not sure if they did or not. Will let you know tomorrow.

As for our Christmas plans, please pray that God will continue to lay the pathway for Matt to be able to go home to Weekes for the week. We will find out Tuesday whether or not we will have a van or not. Mr. Paul Gustafson (not sure if we're related or not), the paraplegic from Saskatoon who speaks at the hospital has told us we could borrow his old van as long as his new one is delivered on Tuesday. We are praying that his van is delivered on time as this had been a major obstacle for Matt getting home. Also pray that Matt's health continues to be strong for the week so that there are no setbacks in that area. Psalm 28:7 "The Lord is my strength and my shield; my heart trusted in Him, and I am helped; therefore my heart greatly rejoices, and with my song I will praise Him."

Best 2 days yet!

Emotionally & physically, Thursday was one of Matt's best days to date. The trip to the mall really boosted his spirits, and seemed to make him realize that there is life outside the hospital. We think he now wants to be part of it, and so he's making a more concentrated effort towards his physio and communication with people. Dad has never seen him eat like he did yesterday - almost continuously. Dad was feeling like a server at a restaurant, but with only one customer, and no tips!!! Also, Matt is no longer being reserved around other patients, but is actively engaging them in conversation. Praise the Lord for this change in outlook! Psalms 139:14"I will praise You, for I am fearfully and wonderfully made; Marvelous are Your works, and that my soul knows very well." Matt sat in his chair for 8 hours (a new record), and was able to hold 300 ml in his bladder without leaking. As well, Matt is being more conscious of doing his own exercising in his room (strengthening his neck muscles), and is really just trying a little bit harder. They are really working on his transfer from the chair to the raised mat, and they are trying different techniques to see which works best.

Today, he had another really good day. Because he's feeling better (pneumonia seems to be gone), he's more upbeat. He was in his chair for 8 1/2 hours - which is better than yesterday, and he also had a great day at physio. Dad said they put him on the tilt table today which is something they haven't done in a while (reminder - this table takes a person from lying down to standing up). They gradually increased the angle to 70 degrees, which is the highest he's ever gone - Way to go Matt! He only had one dizzy spell which is pretty good as his body is still adjusting to being upright. Once he was in his chair again, the therapist had Matt hold a substance similar to putty/playdoh in his right hand. He is able to squeeze this quite tightly and make fairly significant indents into the putty. The therapist than asked Matt to try squeeze the putty in his left hand. Matt was rather skeptical as he feels his left hand has no strength at all. But he tried anyway. Dad said he worked so hard he was sweating, and wouldn't you know, there was a little imprint in the putty! Thanks so much for your continued prayers for Matt's recovery and may God continue to restore his spirit.

First Outing since June

Even with the business of the season, Matt still wanted to go a fight the Christmas shoppers. And so he did. The first outing for 5 1/2 months. He was so worried people would stare at him and he would be too anxious. Dad told him everyone is too busy trying to get their shopping done to bother staring. And sure enough it went great. "Excellent" as dad put it and I have never heard him use those words. Matt was just beaming when he arrived at Midtown. It was like a kid in a candy store for the first time. He just couldn't get over the sights, all the different sounds, and the smells. Also, had to check out the girls walking by as well. Typical guy. They weren't there very long before he seen someone he knew. You know how it is when you go hunting for mushrooms. You don't see any for awhile, then all for a sudden you see hundreds. That's what it was like for Matt at the mall. Dad said his visiting took up all of his time. There were so many people he knew. They told Matt the first outing would be the hardest, and I think it is the fear of the unknown that is so difficult. But once you actually do it, it is a big relief.
Rehab went well. Still trying to increase the strength of his right arm and hand. However the physio states the left arm is definitely improving and getting stronger. Still praying for the left to kick into high moving mode, but praise for hope of regaining full movement. Hebrews 12:12 "Therefore strengthen your feeble arms and weak knees. Make level paths for your feet, so that the lame may not be disabled, but rather healed".
Matt was quite impressed last evening. He had told dad to call the nurse to do his catheter. He tries a bit by himself, and they see how much is left over. The total amount was 500mls, and he didn't bypass or "leak" at all. Great news. Dad had to go and pick up a prescription from the drugstore for an antispasmodic for his bladder. In other words, a pill that stops his bladder spasms, and will help his bladder to tone, so maybe soon he can go on his own. The medication just became available in Canada, so some of the pharmacies don't carry it, and the hospital doesn't either. So glad the doctor knew what pharmacy to send dad to in order to get it. Matt took his first pill last night, so we will have to wait and see.

Disappointing Day

Matt had a disappointing day. They had planned an outing for him to the Midtown Mall. However when the transportation arrived, Matt didn't fit. They tried reclining him, but they were unable to close the door because his feet stuck out. So to "vent" his frustrations, he went to ICU to visit. One of the nurses' stated her husband worked for a different cab company and she contacted him to see if he was free. So they went down and just tried to get Matt into her husband's cab. Matt fit, however the outing had been cancelled already, so hopefully they will go again tomorrow. Dad and Matt still took advantage of being all dressed up with no where to go. They took a spin outside for about 10 mins, but eventually the elements got the better of them and they came back inside.
Matt didn't get much in the way of rehab because he had to go for an ultrasound of his kidneys and bladder. Worried because it is not working properly and want to find out if there is a mechanical problem (tumor, blockage, etc) instead of a spinal cord problem.
It has been an adjustment to move from ICU to rehab. I think Matt is missing the one on one care. Hasn't really got to know the staff yet, as he doesn't see them as much. Hopefully that will change and they will come in to help a bit more with his activities of daily living. Thank goodness for the constant support of dad who is the cheerleader this week. Mom will not be back until next week. Prayers that Matt will continue to improve regardless of setbacks. God knows of our needs and the solutions to our problems, even when we don't. Proverbs 3:5-6 "Trust in the Lord with all your heart; lean not on your own understanding; in all ways acknowledge him, and he will make you paths straight."

Still a Annoying Little Brother

I was able to talk to Matt on the phone today. Sometimes it is like pulling teeth, my own. I was asking him in depth questions about how rehab was going, what exercises they were doing, etc. Pretty soon, he says he has to cough, so I begin speaking to dad. I little longer in the conversation, I ask dad how Matt is doing. Just great. He was watching wrestling on TV. I asked how his cough was, dad laughs and said Matt didn't have to cough, he just didn't want to miss his show!! Little stinker!
Yesterday Matt was treated like a sheik. One of the RN's from RUH came and gave Matt a pedicure and manicure. She spent the whole afternoon with him, which really perked him up. Also more company from Weekes, so even though it was a Sunday, it wasn't a quiet day. Just a little note of thanks for all those who take the time out of their day to visit Matt. It really helps him focus on other things beside the hospital.
Anyway, therapy is going okay. They are continuing to do exercises to make Matt more self reliant. They put Matt on the mat, situate him so he is on his side, then he has to roll onto his back. That is working out pretty well. The tricky one is trying to get him to sit up. They place his left arm in a hoop above his head (he is laying down), bent at the elbow, then while they are holding it in place, they put his right hand behind him so he can push himself up. So while his left arm is pulling, the right arm is pushing. It reminds me of that picture of two kids with a wagon, the caption reading "Are you pushing or pulling back there?" That exercise will take work, but it is progress.
Matt meet with a counsellor today regarding how he is doing emotionally. Matt old me he couldn't tell me what was said, but he did mention the therapist told Matt to be himself, because he has such an amazing attitude. We didn't need a psychologist to tell us that. We already know!!
Matt had a pulmonary test today. I took over one hour. Since Matt wouldn't talk to me because of stinky wrestling, I am not sure what tests were involved, but dad states they were pretty impressed with the outcome, and were generally surprised that Matt has only been off the ventilator for such a short time. There is even rumors going around they may take the trach out before Christmas. While they are at it, they can take that tube out his intestine as well. However, Matt did lose weight when he was sick, and is down to 165 lbs. But dad says they way Matt is eating, he will soon get that weight up. So prayers that if it the right decision they are able to remove both the trach and feeding tube before Christmas. It will make taking him home so much easier. Let us continue to have faith in Matt's progress. Hebrews 11:6 "And without faith it is impossible to please God, because anyone who comes to him must believe that he exists and that he rewards those who earnestly seek him."

Brushing His Teeth

Matt can brush his own teeth. Yesterday, dad was getting the toothbrush ready to brush Matt, teeth. Matt looked quizzically at the brush, then said"let me try". So dad put it in Matt's right hand and away Matt went. He was even able to turn his wrist to get the back of the mouth. He couldn't push really hard, so dad finished up for him. However, Matt must of felt dad didn't do a good job, because later, dad noticed Matt had grabbed the brush off the table and was working away again. Way to show dad how to do it right!
A social worker came in yesterday to tell Matt about having his signature photocopied from before the accident, then having it put into a stamp so we don't have to have power of attorney. He will have to go down to a govt office to make it legal, but then Matt can make his own decisions on what he will put his signature on.
One of the male nurses was really on Matt's case about eating. He told Matt that whenever he feels good, he must eat as much as he can. The nurse also encouraged dad to do whatever he can to make Matt's food more palatable. So dad brought an egg poacher form home, and made Matt poached egg. Dad said he couldn't make them fast enough! Matt sucked them back like a vacuum cleaner! Full of protein which is great. He needs protein in order for his muscles to build. Every movement he makes requires so much effort. Not only are his nerves damaged and the signals are not as strong as they should be, but his muscles have wasted away, so to brush his teeth takes quite a herculean effort.
More company from home in to visit, and the patient from Meadow Lake visited Matt for 2 hours. So even though it was a weekend, Matt was still busy. At 9 pm, feeling tired so hopefully he slept right through without waking up. He told dad when he has those panic attacks, they are awful. Matt wakes up having that overwhelming feeling of dread, and he feels like jumping out of bed and getting away, but he can't, so the cycle continues. Prayers for those feelings to stop and a peace surrounds Matt. 1Peter 5:7 "Cast all your anxiety on him, because he cares for you".

Mom left

I will have to write about yesterday. Unable to contact dad tonight. Mom had to go back to Weekes to work, feeling down and teary, she will be gone for 10 days. God doesn't prevent things from happening, but if we ask he will give us the strength to persevere. Hebrews 5:3
"Not only so, but we also rejoice in our sufferings, because we know that suffering produces perseverance; perseverance, character; and character, hope". We may not rejoice now, but maybe 1 year down the road we will. Hebrews 11:1 "Now faith is being sure of what we hope for and certain of what we do not see".
I think we see all the progress because we are not there for the day by day struggles, but mom, dad and Matt feel progress is slow. So to recap, 6 months ago, Matt was unable to move at all, not able to drink even a tiny sip of water, constant pain, unable to even mouth words due to the ventilator in his mouth, and prognosis was very bleak. So if you look at it that way, you've come a long way, baby!! Yesterday's teleconference was with the doctor in Vancouver, to give tips on what should be done and what may help. The urologist consult found that Matt's urinary sphincter, instead of releasing when he has to pee, actually constricts or tightens, so it is not quite working properly yet. Hoping they may give him some exercises to help that.
Talking about Matt going home for Christmas. Still up in the air. They want him to have an air mattress for the hospital bed, so we can rent one from the hospital for $100/week. Prayers that Matt's pneumonia will be better and he can come home to Weekes.
Matt is getting better at playing crib. He can pull out the card if you hold them, and then lay the card down. Not only that, he can peg on the crib board as well. That is fine motor skills and that is great news. When mom would lift his left hand, he could wiggle his four fingers, and his thumb would quiver. But that is how his right hand started and look what it is doing now. Matt's TV is one that comes out of the wall, like most hospital rooms. If situated so he can reach it, he can turn off the TV, change channels, turn volume up and down. Great job Matt! We are so proud of you! You keep astounding them everyday, and never give up. We have half the country rooting for you. Praise God for continued success. Joshua 1:5 "....as I was with Moses, so I will be with you; I will never leave you nor forsake you."

Exercises

Jacki and the kids are leaving today, so last night was very busy. Jacki and Dad went to see Matt and Grandma got to stay with the kids. They are working on getting Matt to strengthen his neck muscles. When his head goes too far forward, he is unable to lift his head back up. And strong neck muscles are needed for most of his movements. The physio is working on transferring from the chair to the elevated mat, rolling over using the swinging motion of his arms and head, and starting to get him into a sitting position. That one will take more time a work, but it will come. Matt's stomach muscles are getting stronger every day, so time will tell.
Everyone ate in the lunchroom. A 25 year old patient in there keeps coming and asking Matt to join the group. However Matt is still self conscious and doesn't go in there too often. But last night he did. Jacki said that she would hold mini carrots in her hand and Matt would be able to pick them up and put them in his mouth. He dropped a few, but he did that before his accident as well! He doesn't really use his fingers for much, because the tips are still numb and he can't feel with them very well. So when he wants to scratch his nose, he curls his right hand into a fist and scratches with his knuckles.
Today will be a busy day. They have a teleconference with the specialists in Vancouver regarding the strength of his diaphragm. Way back in Sept I think, there was a discussion on implanting a "pacemaker"in his diaphragm to help him with his breathing. Matt's diaphragm still isn't the strongest, so not sure what they will discuss. Then his physio at 1100, urologist consult at 1 pm and then more exercises in the afternoon. So hopefully mom will be able to tell me some good things. Will write again tonight.

Matt's new exercise partner

Matt had some very active visitors for his physio in the gym. Bobby, Jacki's boy, decided to help Matt with his exercises. Bobby loved playing with the balls, climbing the stairs, general 2 1/2 year old stuff. So Jacki could not tell me how Matt's exercises were, because she was preoccupied. And I thought all mom's had eyes in the back of their heads! After the gym, Matt took Amy, Jacki's girl, for a ride in his chair. She sat with him the whole time. Then Bobby got a turn, however he is a bit more busy, so it was a short lived ride.
Matt ate somewhat better today, and Jacki is supposed to encourage fluids, but "forcing" sounds more appropriate. Matt says he is going to swim pretty soon, he is so full. And Jacki tried to help him with his coughing. If you time it just right, when Matt is in the middle of a cough, you push on his stomach to "assist" him with coughing. However Jacki forgot to let go, so when he tried to breathe in, he couldn't because she still had her hand bearing down into his abdomen. She finally caught on when Matt started to turn blue! Well it wasn't quite that bad, but "assisted" breathing now has a whole new meaning!
Mom had bought Matt a Christmas tree, so his room is more festive. There are some stickers on his window as well, which prevents him from spying on the people in the parking lot. Just remember, if you come to visit, someone is watching you!
Whispers is now at the house waiting for surgery. He needs new batteries, but there is quite a waiting list, and it might not get done this year. And the surgeon went home, and the resident on call is not the best when it comes to these types of procedures (sorry mom!), so best to wait until the specialist comes back (dad, bring your tools)!
Last night, I prayed very hard for Matt to be free from anxiety during the night, however I forgot to pray for him to sleep. And wouldn't you know it, Matt was up from 4-6 am, just because he couldn't sleep, but he had no anxiety. I will have to be more specific tonight! Thanks for all the continued prayers for Matt, and keep them coming! James 5:11 "As you know we consider blessed those who have persevered. You have heard of Job's perseverance and have seen what the Lord finally brought about. The Lord is full of compassion and mercy."

Anxiety Begone!

Matt has been having some issues with anxiety attacks at night. He wakes up and can't go back to sleep. Those panic attacks make it hard for him to breathe properly, and his neck becomes really sore from being so tense. They didn't get him up for rehab until mom came, because Matt was so tired with dark circles under his eyes. But eventually he did make it to the gym, and mom was surprised at how much more strength Matt has. She hasn't been to rehab with him for a few weeks. When they hooked Matt up to the bicycle for his arms, he was able to push with his left wrist and arm, even though his hand doesn't move much. When he sits at a table, he is able to reach across and grab the edge of the table with his right hand. Also, by manipulating certain nerves and muscles in his butt, Matt is able to move his legs slightly up and down. The physio bends his knees, and then Matt slowly slides his feet towards his bum to bend his legs more. (When mom explains it, I try to visual it in my head to explain it to you, however it may not be exactly correct).
Since Matt has been on antibiotics, he hasn't been eating or drinking as well. It is more difficult for Matt to stay hydrated in rehab. In ICU, it was one on one care and the staff were continuously in and out to push fluids. In rehab, they only come when he calls with the buzzer, and he cannot drink without someone to help him. So the doctor encouraged Matt to ring every hour for something to drink. They are a little worried his secretions are getting too thick, and his cough isn't as strong. But Matt doesn't want any O2 or moisture at night, so hopefully he will drink enough fluids.
Jacki and the kids came down for a visit. Matt is always glad to see his niece and nephew. And of course Jacki as well, though I don't know why! She is terrible to play games with because she hates to lose! I know where Matt gets it from!
Prayers that the anxiety attacks will diminish, and Matt will get good nights rest. Needs to be strong for his workouts. 1 Thess 5:16 "Be joyful always; pray continually, give thanks in all circumstances, for this is God's will for you in Christ Jesus".

Lots of company

Yesterday was quiet in regards to physio, but very busy with company. When Matt went to sleep at 11 pm, it was a good tired. He was exhausted, but it will help him sleep throughout the night. Friday night they had to suction him quite a bit, and then had to give him gravol for nausea. Mom is not sure how he slept last night, but hopefully it was better.
Yesterday he also joined the ICU staff for a pizza party. It was a party "just because", which is as good of reason as any to have a get together. Eating by himself is still progressing. Matt can get the spoon to his mouth about 5-6 times. The hardest part is getting the food on the spoon, or stabbing it with his fork. But it all helps that fine motor skills to "relearn" what is once knew to do, but now needs repetition to remember how it works properly.
3 more days worth of antibiotics and then the IV can come out. It is in a very awkward place, which makes it a pain, but hopefully this will be the last pneumonia Matt will ever get. Colds, okay, maybe an earache or two, but no more pneumonia!! However the respiratory therapist feels Matt's lungs and immune system have improved so much that he is fighting a lot of it on his own.
Prayers for no more pneumonia and home for Christmas. Praise for continued strength and recovery. Col. 3:15 "Let the peace of Christ rule in your hearts, since as members of one body your were called to peace. And be thankful."

Boot Camp

Matt's day was very busy. Started the day with chest physio. Then stretches for 1 hour prior to going to the gym at 11 am. After lunch he went for more physical therapy at the gym. Matt tries so hard. Anyone who has every had pneumonia can attest for what it does to your strength and motivation. It sucks the life right out of you. But Matt didn't complain. They are really working on his transferring from the chair to the elevated mat. 2 physio therapist are on either side of Matt, who has a transfer belt around his waist. Then with his right hand he pushes slightly away from his chair. They can also feel that his legs are not just dead weight anymore, that if timed just right, he can push off every so slightly with them. You've come a long way Matt! He is still frustrated with his left hand, but it still has a positive response when hooked up to the tens machine, so it will come Matt, just remind everyone who comes in to visit to help you exercise it.

They also had Matt eating with a fork. It has a big foam handle for easier grip. He should be able to finish about a quarter of his meal with it, and dad said he did pretty well. Most times they have to start with special attachments on the wrist, so a fork can fit into a pouch and you scoop it that way. Matt is so strong already that he completely missed that beginner stage. He can scratch the top of his head as well, so the right arm is coming along nicely.
Prayers for continued recovery from pneumonia and better weather. Then Matt can start taking little trips to the mall, the house in Saskatoon, etc. Prayers also for Matt to stay focused on day to day recovery. 2 Cor. 4:18 "So we fix our eyes not on what is seen, but on what is unseen. For what is seen is temporary, but what is unseen is eternal".

Brand New Chair

Sorry about the late blog. Miscommunication. Mom and dad have just moved into the new place. It is a house and has lots of rooms, a fenced in backyard (so Shaunie can't run away!), and a dog and a cat to boot. Thanks so much to the Schekk's for the use of their apartment for the last 5 months. I don't believe Matt would have done as well without the cheerleaders near by. God's blessings on all of you.
Matt got a brand new chair yesterday. It is still not his officially, but we will take it for as long as they let us keep it. Hopefully we can keep it for the Christmas holidays. The physiotherapist brought it yesterday, handed the tools to dad and left. She knows that dad would do a better job of making it just right for Matt. It takes about 45 minutes of adjusting to make it work properly for Matt. Aunty Sandy came up for a few days and bought Matt a Billabong toque/hat. Not sure what that is but I will just have to wait and see. Matt is feeling quite a bit better, enough to tease Aunty and the nurses. He was suctioned a fair bit over the course of the day, and poor Aunty kept having to leave the room, the big baby. Mom was happy to be back with her "baby". She doesn't like to be away from Matt so long. I think he misses her as well. When you are sick it seems the one you want to be with is your mom. I guess we always think they will make it all better. Another blog tonight.

Under the weather

Matt is still under the weather, lots of secretions from the infections. He didn't go for rehab today as he just was too tired. Matt was happy to have company today and tonight, God bless you all. Mom is back and is happy to take over. Prayers for tomorrow that the pneumonia will clear up, Matt's lungs will continue to get stronger and he will feel like eating and drinking more. Thank you so much for all the well wishes and prayers for Matt and our family. God continues to bless us as we take this journey. Psalms 62:8 Trust in him at all times, O people; pour out your hearts to him, for God is our refuge.

Tired

After all the excitement yesterday, Matt was really tired and slept a fair chunk of the day. I just found out Matt was up for 7 hours in his chair yesterday. Also they had got him showered & dressed in his Saskatchewan greens. After the game he had another 10 visitors come to see him. I think security was worried because he followed them right to Matt's room! I can imagine why! Had another game of crib with Nolan after the company had left, so I can believe he would be tired today. Dad said yesterday was one of the best days Matt has had. Thanks to all of you who shared this great day with Matt. I am sure it will be a day no one will forget.
Unfortunately, Matt does has pneumonia and they started antibiotics. Very little rehab today because of a slight mix up and Matt's overall physical fatigue. Mom should be arriving shortly, or may be in Saskatoon already. I think she missed being at the party. She never wants to miss anything! Prayers for God's healing hand on Matt and a quick recovery from the pneumonia. Malachi 4:2 "But for you who revere my name, the sun of righteousness will rise with healing in its wings..."

THEY DID IT!!

Wow, what an exciting game! I don't watch much football, but I still remember the excitement in 1989 when Kent Austin was the QB and Dave Ridgeway kicked that field goal. Today was no different, except I wasn't in Saskatoon. Wish we were there to share in the excitement.
I believe green took over the ICU today. They had an extra room so they moved the bed out and set up a TV in there for Matt and 10 of his friends and family. I was unable to get a hold of dad, but did manage to speak to Nolan for a few minutes. Nolan said the atmosphere was great. Matt stayed up in his chair for the whole game. He still wasn't feeling the best and didn't eat much. however he is getting enough fluids into him which is good. The ICU nurses were able to start an IV, but Nolan wasn't sure if they actually started antibiotics or not. Matt is so much stronger and can cough more efficiently than before so they may wait and see if it clears up on its own. The respiratory therapist did chest physio and suctioned out plenty of the stuff, so no meds would be preferable.
Hopefully I will have more to tell you tomorrow. Thank the Lord the riders won. I believe it really boosted Matt's spirits. I was really impressed with the team. Most of them thanked God for the win. I remember seeing Kent Austin at Nipawin Bible Institute after they had won in 1989, speaking to us about the importance of letting God in to every aspect of our lives. I think he conveys that message to his team. Psalms 119:105 "Your word is a lamp to my feet and a light for my path".

Infection Back

Now we know why Matt was feeling so poor yesterday. Dad noticed Matt was having more trouble breathing, his cough was less effective, and he was spasming more in his limbs. His white blood count was way up, which is a sure sign of infection. The sputum coming up should be yellow and thin, his was thick and yellow-green. So they want to start him on antibiotics again, but they could not get an IV line established, so they were going to get someone up from ICU to do it. I think Matt's vessels have not recovered from the beating they took before. Dad says that even though Matt's coughing is weaker, if Dad times it right, he takes the cap off Matt's trach, pushes on his abdomen and lots of lovelies come out. Better than suctioning him.
But he was in good spirits nevertheless. Nolan and Lindsay arrived last night and visited for about an hour. Today again lots of company. Matt was up in his chair for 4 hours and did pretty well. They all went to the rec room and played crib. Nolan and Matt were about to win when Dad and Cory Ryhorski beat them. Lindsay was holding the cards for Matt.
So for tomorrow's big game, they will be watching at the hospital. Planning on pizza and pop with approximately 10 people coming. So it should be great. Too cold to go out anyway.
Prayers that Matt's infection will clear up quickly and he will be better for rehab on Monday. "If you believe, you will receive whatever you ask for in prayer".

Quiet Day

Matt's day was fairly quiet. Wasn't feeling so hot and nausea was not a welcome companion. However he still manged to eat some food and was up in his chair for 3 hours. His neck gets sore and increases his nausea, but the pain is relieved with Advil. Dad is really enjoying the amenities of rehab. Dad and Matt go and read the paper together in the "living room" and can watch TV or read books.
Physical rehab was short due to a general Friday off for most staff. In the 1/2 hour they applied the TENS machine to Matt's left leg and left arm. It stimulates the nerves and moves the extremity a bit. They didn't need to turn it up too much before the muscles start moving, which is good.
Nolan and Lindsay are driving up from Calgary and are due anytime. Matt worries about Nolan when he is driving and probably won't sleep until he arrives.
Unfortunately John and I are at a conference for the weekend and I don't have my bible at hand, but I will put down my favorite verse. "Trust in the Lord with all your heart; lean not on your own understanding; in all ways acknowledge him and he will make your path straight". I believe it is found in Proverbs.

Back to Old Wheelchair

Matt has lost his zero turn wheelchair. I never realized it wasn't actually his and now someone else needs it. He is still waiting for one that is made for him . So I hope whoever has it enjoys and can use all the gadgets dad had added to it. The old wheelchair is uncomfortable and Matt can only stay up for 3 hours in it. But hopefully his custom made chair will arrive before Christmas. Then he can go home in style!
I had talked to mom for a brief time, and she was excited that they found a hospital bed in Hudson Bay we can use. Just a few more details to work out (like building a ramp into the house) but we have great faith that if Matt is meant to come home, everything will work out.
Today was an assessment day to see how much Matt could do. They were surprised when they asked Matt if he could roll over. He said no but would try. They bent his right leg and placed it over his left leg and darned if he didn't roll over! I asked Matt if he used a bar to pull himself by using his right arm or hand, but he said no. He just used momentum of his body to roll himself. Matt, I love writing the blog with so much good happening. Praise for continued answers to prayer. 1 Thess. 5:16 "Be joyful always; pray continually; give thanks in all circumstances, for this is God's will for you in Christ Jesus".
Just an added note; Nolan is coming to Saskatoon for the weekend and is looking at renting or taking Matt to JT's for the football game. If anyone can make it that would be great. It will be the first time Matt has been off hospital grounds in 5 months. Hopefully it all works out.

Weightlifting

Well, Matt seems to be settling in well on the rehab ward. However he did go down to ICU and spend a 1/2 hour with his old crew (not old as in age, otherwise I may get in trouble!). Dad says he continues to eat really well. First thing he heard tonight when he walked into Matt's room was "I'm hungry". So dad had made some of Big Sky ham and kraft dinner, and a vacuum cleaner couldn't do a better job! Lots of nice protein to build those muscles. I had asked dad yesterday what weight Matt is able to lift. When Matt had first started, it was 0.25 lbs. Now it is up to 2 1/2 lbs. Great work Matt! The workouts really tire him out so he has a good sleep late afternoon and early evening.
Matt's secretions are getting a bit thick, so respiratory came down and hooked him back up to O2 and moisture for the night. So they uncap him and take out the inner cannula. His cuff is still deflated so he can talk. Also encouraged to drink lots of secretions. Prayers that secretions stay manageable and they are able to suction them out. Mark 11:24 "Therefore I tell you, whatever you ask for in prayer, believe that you have received it, and it will be yours". Still gets suctioned 4 times a day, which is not unusual.
Matt's getting to know some of the other patients in rehab. It is difficult because for 5 months he has really been on his own, but I'm sure it won't take him long. Dad says the facility has a laundry to wash Matt's clothes, and a microwave that is accessible to warm up food. So seems to be geared for everything.
Matt has been having the occasional hot flash. Will say to dad he is feeling warm. Dad will feel him and not notice any difference, However within a minute Matt will be pouring sweat. This a normal process and will diminishes as time goes on. After Matt's injury, he constantly fluctuated between hot and cold, so now it is only once every 2nd day. However they cautioned Matt to be aware that it could indicate and infection, so if the fluctuation in temp gets worse, to let them know.

THE BIG MOVE

Matt has now moved on up in the world (just like the Jefferson's from the 70's). He is in a private room in rehab. Finally! What an answer to prayer. I think God was tired or listening to us. So no more sleeping in for Matt! There wasn't a dry eye in ICU when they moved Matt. They had become very protective over him. But they all know this is the best place for him.
Dad says the view from Matt's room is great. It overlooks the Kinsmen Park and the university bridge. He seems to enjoy the facility. There is a communal dining area, and dad said for supper there were over 30 other patients, all different genders and ages. And Matt ate like a horse. Grandpa Gustafson used to say about himself that he doesn't eat much, he just eats long and fast. Matt it a chip off the Gustafson block. Dad had to go out and buy extra food.
Rehab was tough today. They worked Matt for 1 1/2 hours and he was tired. They are really working on what Matt could do to help with the transferring. For instance, when he transfers from his chair to the mat (it is elevated and at the same height as his chair), they got Matt to put some weight on his feet and try to swing himself over, also incorporating the use of his right arm. They were impressed by what he could do. Unlike a dead weight, Matt was able to assist, even if it was minimally. Also, when he was laying flat on this mat, they asked if he could lift his bum up. Dad said Matt was just sweating he was working so hard. And by gosh if he didn't do it. Matt, words are so vague when it comes to expressing how we truly feel. Proud just doesn't cut it. Great sense of jubilation is more like it! Rehab is so difficult for them to do on Matt because they need to work on everything. Shoulders, legs, arms, abdomen, the works. But they have a very willing patient so it makes their job easier.
Praise for God's continued grace and prayers for more! 1 Peter 4:11 "...If anyone serves, he should do it with the strength God provides, so that in all things God may be praised through Jesus Christ".

One More Game To Go!

What an exciting game! Just one more win and then the Grey Cup is Saskatchewan's. It has been a long time coming. Matt had a busy day prior to game time. Dinner, then a whirlpool, then up in his chair at 2 pm. By the time the game started, he was so sleepy he slept through some of it. But he was up for the most important part. Tonight cousin Chris is his nurse, which he likes. Nothing like family looking out for you.
Matt has now been capped for 36 hours, so he isn't getting O2 or moisture anymore at night. No more trach trials! He is doing his own breathing. Rehab better find him a bed because he is ready!
Matt is a bit frustrated because his left side is so slow. Some days it moves slightly, the next day hardly at all. But it also didn't start to move until Sept. 28th, while the right side started Aug. 16th. So it has a ways to catch up. It was so good to see Matt throw the ball and bend his own arm. I even have a video of it. I tried to post it on the blog, but wouldn't upload. I sent it to Jacki and she will try again tomorrow.
Things are starting to look up for Christmas. The ball is definitely rolling and hopefully everything will be ironed out when the time arrives. Prayers that Matt's strength physically and mentally will continue to improve and that the left side will start responding better. Psalms 86 "Hear my prayer, O Lord; listen to my cry for mercy. In the day of my trouble I will call to you, for you will answer me".

Company and presents

Matt had a really good day, sister Shelley, John and Jonmarie made a quick one day trip up to see him. Shelley brought him some new clothes that are long enough for his long legs. He was happy to see them and beat his sister in a game of Scrabble. He also had company from home which he enjoys, thank you all. He had his cousin Chris for his RN today and there is always lots of teasing going on. Matt has lots of fun with all the staff and is known to give them a hard time and some laughs as well. He is doing so well off the ventilator, that they would really like him to move to rehab as quick as possible to open up an ICU bed, they know it is the best place for him to be. He is looking forward to the Rider game tomorrow, ready for a good game and hopefully a win. The Riders have a look of supporters and a lot riding on them. Go Riders. We will have lots of fun cheering them on. We had snow today so he didn't go outside, but had a great day anyway. We thank God for his blessings on Matt and our family. Isaiah 26:12 All that we have accomplished you have done for us, O Lord.

Lots of Company

Matt had a sleepy day today. He didn't get a lot of sleep last night, so thought he should sleep all day. Went for rehab for an hour, was having trouble with his neck so they had to be careful about what they did. Did some e-rays on his neck and they all came back fine. Lots of very tight muscles so will need more massages. Had lots of company today and got to do lots of talking. Didn't eat as much today, but will make up for it tomorrow. Matt is still off the ventilator. Praise our Lord. Prayers for tonight that Matt will continue to improve in his movement, his neck will relax and his lungs will continue to grow stronger each day. Psalm 68:19 Praise be to the Lord, to God our Savior, who daily bears our burdens.

Breathing going well, Praise God

Matt had a busy day, he went up to rehab for a good hour to work out. He had company from RUH and enjoys when they drop by. He still gets tired after rehab and likes to nap. He is eating well and still loves his oven roasted chicken sub in the evening. Tonight he was going to have a Tim Hortons chocolate donut with the staff. They are spoiling him and he loves it. He is getting stronger in his right arm and hand, he can pick up a sponge ball and throw it at you. He is still off the vent and is doing really great, his lungs are getting stronger all the time. Praise God. He says hi to everyone back home and he misses you all. Prayers for tonight Matt will have a good nights rest and he will continue to get more movement on his left side. Romans 12:12 Be joyful in hope, patient in affliction, faithful in prayer.

Off the Ventilator

Can you believe it? I am still reeling from yesterday's big news and them mom slapped me back on my...posterior with more great news! They actually wheeled the ventilator out of his room. True it is still outside of his room, but he hasn't used it for over 3 days. He will be capped during the day, and be on the trach trial at night, with the cuff deflated, the inner cannula in for suctioning purposes, supplemental O2, and moisture to help keep his secretions from getting too thick. But no forced air into his lungs. He is breathing on his own! Praise God! Psalms 105:1 "Give thanks to the Lord, call on his name; make known among the nations what he has done".
They had a meeting with all the departments involved in Matt's care. They had a long discussion about Matt going home for Christmas. There was some scepticism, and the physician voiced her concerns about Matt going home. Most of the questions were answered and hopefully they can help us get everything in place. We need to look at getting a ramp built for him to get into the house, transportation (Leonard Jays has graciously offered the loan of his van), needs a hospital bed for the house, O2 for when he needs it. However the physician was still worried. Finally she told us that Matt had 3 things going for him. 1) His spinal cord is not severed, 2) He is young and the most determined man she has met, 3) Matt is her hero. I think that comment opened the floodgates for a lot of the staff. They all stated that Matt is just such a joy to have in there. Not many men who have gone through what he has gone through are so optimistic, his personality has never changed, and he is so determined. They are just so worried what could happen to him when he is not under their care.
The doctor went on to say that right now there is no bed in rehab because truthfully, they never expected Matt to be off the ventilator with the severity and location of his injury, and the long duration of being on the ventilator. Not to mention a collapsed lung, 3 chest tubes, and countless pneumonia's. They also never believed when they started the trach trials he would progress so quickly. "Leaps and bounds" are the terms they used. I used this verse at the beginning of Matt's journey, and now I use it as praise, not a prayer. Job 9:10 "He performs wonders that cannot be fathomed, miracles that cannot be counted."
There is continued talk of taking out his feeding tube. He is still only at 175 lbs, but he doesn't have much for muscles, which weigh quite a bit. He didn't eat as well today because he was tired. With only one sleeping pill, Matt isn't sleeping very good at night, but that will take some getting used to. It is not easy to go off sleeping pills. Matt also had a whirlpool bath, so that always plays him out. Prayers that Matt will have a good night sleep, and regain strength for tomorrow.

Almost There

Matt, you continue to amaze me. Last week, the capping of the trach had barely started and now, you are just sailing! Last night, Matt did an amazing 9 hours of being capped. I just couldn't believe it until mom told me he went 14 & 1/2 hours today!! And Matt has now been on the trach trial for 2 and 1/2 days (they never did put him on the "full" ventilator last night). Matt has been on O2 intermittently throughout the day at 1L/min with nasal prongs, those little tubes that go in your nose. A few times Matt's O2 sats dropped, so for about 5 mins they increased his O@ to 2L/min (which still isn't very much) and he recovered nicely. But mom said tonight they may encourage him to take a short break, even for just a few hours. He was looking very tired and his secretions are starting to get thick, because when he is capped he gets no moisture. But she won't know until tomorrow whether or not they convinced Matt.
They are trying to cut down Matt's sleeping pill to one a night because the way Matt is going, they think he will be upstairs in rehab by next week!! So no more sleeping in, he will have to be up before 9 am to get ready for his workouts! All this news is so exciting. I looked back in the blog when Matt was still in RUH and not moving, chest tubes in, and skinny as a board, and thinking at that time this day was so far away. And here we are! You just show them what you can do, Matt. The Lord is good. Psalms 150:2 "Praise Him for his acts of power, praise him for his surpassing greatness".
Mat had more company today, which is good because Dad went home for awhile. So mom will have to rely on someone else to fix Matt's wheelchair, because I know how she is with mechanical things, not the best. Sorry Mom! That's a dad thing to do. You can help him get stronger and make him do his exercises! Thanks again and again for all those who continue to pray for Matt's progress and read the blog. It is so comforting to know that so many people care for Matt and our family.

Capping of trach going well

Last night, Matt completed 6 hours of being capped. Also he is still on the trach trail from yesterday, so that will be 36 hours. For those who are new to the blog or haven't read it for awhile, capping and trach trial are considered two different things. Trach trail refers to deflating the cuff in his trachea so he can speak and he is on minimal assistance of the ventilator. It still supplies him some moisture and O2, when he is in his room. However the capping refers to taking out the inner cannula of the trach, and putting a red cap on it, so Matt must breath through his nose and mouth. As you know, Matt has an extremely long neck, so he needs to work a bit harder to get the air he breathes to his lungs. So great job Matt and I love to say I knew you could do it! Today they again have capped his trach, and will probably go for another 6 hours. However tonight they may put him back on the ventilator, and not keep his trach deflated. Mom said she could tell he was tired, but Matt is so determined that he won't admit when he has had enough. But they don't want Matt to overdue it, so are encouraging him to speak up when he is tired. We don't want any setbacks. (But I think Matt likes to hear his own voice, that he feels nervous when he can't speak. It is very scary when you can't talk, this way during the night he can call out if he needs something). However there is One who can always hear you, Matt. Psalms 130:1 "Out of the depths I cry to you, O Lord; O Lord, hear my voice. Let your ears be attentive to my cry for mercy".
Matt went outside today, but it was too cold and was having some steering difficulties, so they came back in. Matt is eating extremely well and is getting no supplementary feeding from the tube in his abdomen. He was able to talk to Nolan on the phone, but otherwise had a quiet day for company. Dad is leaving tomorrow but mom will be there until she works again. Matt did not have any rehab this weekend or today because of holidays. Will get back on track tomorrow.

Another Win

Matt was pretty excited today over the roughriders win. They had it set up in ICU so the nurses could watch some of the game, and they invited Matt for their party. There was pizza and pop, and Mattt was in his roughrider outfit. At our house, we had a birthday party for Jonmarie and Jacki dressed Amy in her roughrider outfit, so Matt and Amy are good luck. I must apologize for giving false information. Matt did receive a second hand wheelchair 3 days ago. It isn't the best, but it does fit him better. However there were many adjustments that needed to be made, and the staff just didn't have the time. So last night dad spent 1 & 1/2 hours trying to fix it for Matt. He also rigged up a holding compartment for Matt's O2 tank on the wheelchair, so Matt would be free to boogy where he wants to. It is working great. This wheelchair is called a mid-drive. It is similar to dad's lawnmower, zero turn radius with the big wheels in front and the small wheels at the back.
Matt was having so much pain in his neck, that dad had suggested they give Matt Advil 1/2 hour before getting him up in the chair, because getting him in the chair causes him the most pain. They tried it and it seems to be working. (They give the Advil in his feeding tube, to try and prevent stomach upset). Matt ate like a horse today and when mom phoned at 8:00, she was out buying him a sub because he was still hungry! Just like old times. You had to eat fast in our house, otherwise the food would be gone. Mom also mentioned that Matt had his trach capped for 4 hours, and still counting! Possibly tomorrow I will know the full extent of the time he lasted without the ventilator. For a least an hour of that time he went without any O2 as well. Well done Matt! You will have that thing out before you know it. Matt is now able to scratch his nose without bending at the neck. He still has to really concentrate and it takes him awhile, but he can do it. Matt, progress is being made everyday! Deuteronomy 31:8 "The Lord himself goes before you and will be with you, he will never leave you nor forsake you. Do not be afraid; do not be discouraged".

Long Week-End

Matt had a quiet day as with the long week end all his therapy is on hold. He took a tour around the hospital to see all the Christmas decorations, didn't go outside because his chair was giving him some trouble. He had some company and is always happy to visit. His appetite is getting better and was happy with the homemade Pizza Pop from one of the mom's at home. He is very tired of hospital food and says it all tastes the same. He was on the trach trail for 17 hours and they capped it for one hour. He will try for longer today. He continues to get stronger with his breathing, Praise the Lord. Prayers for today are that Matt will get more sensation in his hands and His left side will start moving more easier. Matt sends his love to all and thanks you for your prayers, jokes, food, visits, messages and support. Psalm 28:7 The Lord is my strength and my shield; my heart trusts in him, and I am helped.