Mom's Back

Sorry about missing yesterday's blog - lack of communication between mom and myself. Matt was so glad to see mom - he really missed her! He always says she is his biggest cheerleader. She had some discussions with the respiratory therapist to see what the plans are for Matthew. They are just so scared of pushing him too quickly but have now decided to cap his trach every day. Today he did it for one hour and his oxygen saturation did drop a bit. He continues to do the trach trials for 15 hours per day. He did his exercise again where he is strapped to the table, however, he only made it to 60 degrees and his blood pressure dropped. While he is in this position they do exercises on his arms.
They took Matthew's catheter out as they are trying to train his bladder. So far he is doing okay. They do not want his bladder to fill more than 500 ml at a time so they have to re catheterize him about every three hours. Having a problem trying to get a wheelchair. The one that is best for Matt is unavailable due to cost as Sask Abilities is unwilling to pay for it. So we are looking at the second best wheelchair - still unsure when it is coming. He has been having a lot of neck pain so they will do an x-ray tomorrow. He had an interesting visitor today. One of the doctor's that looked after him at RUH came to visit. He is a doctor from Winnipeg and had just done a locum at RUH. He told Matthew not to give up no matter what people say - he will be better one day as long as he continues to believe. Isaiah 40:29 "He gives strength to the weary and increases the power of the weak".

Matt and his Harem

Well, Matt was back to his old self. Waking up late, ate 2/3 of his lunch and then had BLT for a snack. Was able to go upstairs for rehab. Today they tried something new. They strapped Matt on a table that looks like and x-ray table. Then they slowly (over a period of 15 mins) tilt the table so Matt would eventually be in a standing position. They must do it slowly because his body is not used to being in the upright position and his blood pressure will drop into his socks if they do it too quickly. Matt made it to about 70 degrees, and then his blood pressure went too low and his pulse rate was above 170 beats per minute. But he recovered nicely and they were happy with how well he did. There are mirrors all around, and Matt commented that this was a view he hadn't seen in awhile, seeing himself standing up. I was happy for him as well, because they wouldn't be doing that exercise unless they believe Matt will walk again. So we have more believers on his side, which is great! Matt was still feeling like doing something, so back to ICU for a "fill up " of O2, then off to find Rocky. Couldn't be found, so Matt and dad went outside for about 1/2 hour. Was able to chat with Jacki on the cell phone. More company when they returned, so dad left for awhile. By the time he came back, Matt was getting a massage, a pedicure and manicure, plus another nurse was getting supplies ready for washing his hair. Dad had to fight past 3 women to feed Matt his foot long sub. Just like a Sultan and his harem. I could almost hear Matt purring. Psalms 30:11 "You turned my wailing into dancing; you removed my sackcloth and clothed me with joy"."They may possibly cap the trach tonight, if not he has been on the trach trial and average fo 16 hours per day. Capping is just one more step closer to getting rid of the ventilator all together. Prayers for continued success, and for mom's safe journey after being away for 1 & 1/2 weeks (will return tomorrow).

Pukey Day

Matt's old friend emesis (throwing up) came back for a visit. Dad was wondering why Matt was sleeping at noon. When he woke up for lunch, Matt said he really didn't feel like eating. The nurses didn't want to get him up in his chair to go for rehab, but Matt insisted. He was feeling so bad that he couldn't even operate his chair. But he still wanted to go. He was very pale and they put him on the mat to do some upper body exercises. There was a new therapist on, and asked Matt if his legs were in spasms. Matt replied that he was moving them. She was so impressed she had to find out how much he actually could do. The left still has minimal movement, but the right is getting stronger, though he is unable to bend the knee. Unfortunately the exercises were a bit much in Matt's state that he got sick on the mat. But we are so proud of you Matt, to have the determination to do your exercises even when you are so sick. 2 Samuel 22:33 "For it is God who arms me with strength and makes my way perfect." The nurses gave him gravol when he got back, so he slept from 3-5 pm. At supper, Matt was able to eat about half, but then he needed suctioning and threw everything up. But dad was happy this evening, because Matt was able to finish 1/2 sub, some Ensure and some tea. Matt was much more perky and stated he felt better. Hopefully it was just a 12 hour flu bug and tomorrow will be a better day. Psalms 51:10 "Create in me a pure heart, O God, and renew a steadfast spirit within me."

Exercises

I can say one thing for Matt, he is a brave soul. Today Dad and him went for a spin outside. The weather was cold! I didn't even want to walk to my car! But Matt was all dressed up and ready for winter. They are now able to go themselves, without a respiratory therapist or a nurse. Matt also made a trip to rehab. They put him on the machine that moves his legs, which helps his brain remember the movements and to strengthen his butt & leg muscles. He was on it for 50 mins, but I am unsure how much is from the machine and how much Matt has to do.
One of my prayers is almost answered. Matt is finally able to scratch his nose if he puts his head down. They are really working on being able to do it without bending his head. I was always scratching his nose while I was there! Sometimes I think it wasn't even itchy, he just wanted to see me do it! Matt had more company and went to visit Rocky, but was unable to go into his room because Rocky was sick. No more germs for Matt. Hope Rocky will feel better soon. Tonight is the first night Matt will be without nutrition from the tube feed. They feel his weight is more stable at 180 lbs, and that he is eating enough on his own to keep his weight up. First step towards getting that tube out. Thanks to all those who continue to think about Matt and pray for his recovery. Jude 2 "Mercy, peace and love be yours in abundance."

Quiet Day

Sunday's are a day of rest, and this one was no exception. Matt did have a whirlpool bath, and then was up in his chair for the afternoon. Ate his leftover Chinese food. Gary and him watched movies, and bet on a few football games, in which Matt won $5. More company in to visit, which is always a welcome change. Matt had an afternoon siesta, and then ate 2/3 of his supper. I was able to talk to him on the phone again. I would ask him a question..silence.. then I asked him if he was tired.. "no, not really".. so again I would ask him a question.. "What?" he would ask. So finally I asked what he was doing... "watching TV". And if anyone knows Matt, when he even walks by a TV, you can be in the middle of the conversation, and he zones right out. So finally I told him I would kick him in his posterior if he didn't listen. He just proceeded to tell dad on me! Big baby. But before we even began to speak to each other, Matt was getting his "red hoody" on. No, not anything like that, just the cap on his trach. It has a red cap, so it sounds like a red hoody. So hopefully Matt will have it on for a least hours, but I will find out tomorrow.
I often quote from Proverbs, but it is one of the best books of the bible. Lots of great stuff in there. Proverbs 18:10 'The name of the Lord is a strong tower; the righteous run to it and are safe."

House full of kids

The blog is late, it was all Jacki's fault. She came for a visit, both of us went and seen cousin Patti curl in Red Deer until 11:30 pm, and her Bobby wakes up at 6:00 am. So all her fault. Anyway, Matt had an interesting day yesterday. First thing in the morning, had a episode where he de-sated, but turned out it was just a mucus plug in the tube. Then Dad and Matt went up to rehab to visit Rocky. They took the portable O2 with them, but the nurse said to keep an eye on it, was not sure how long the tank would last. So 25 mins into the visit, dad checked the tank, it was on red (empty). The rehab nurse came to check, and the O2 wasn't even on! So Matt had been without O2 for 25 mins!. He said he was fine, but dad was worried so they went back to ICU, got it straightened out, and resumed their visit. Way to show them, Matt. You are a tough one! Had a haircut and a bath, so is all ready for the weekend. Last night, Matt convinced the resp. therapist to cap his trach again. They didn't want to but Matt insisted and completed 2 hours. He likes it because he can talk much louder (which he needs to so he can compete with Gary). Gary arrived yesterday evening, and today they watched a couple of movies and Matt showed him around the hospital. Once the staff figured out the best way to sit Matt in his chair, he can control the wheelchair like anything. Gary and Matt played Trivia Pursuit Star Wars edition, which Gary won, only because he is such a nerd! Matt is now able to use the call bell to call the nurse. It is flat, and they put it close to his hand, and he is able to lift up his hand and hit the bell himself. More company from home, which Matt really enjoyed because he finagled a massage from one of them. It's those big Bambi eyes that gets them every time. I know, because he used it on me all the time. So tonight they are taking Matt Chinese food, by special order, and I may possibly speak to Matt on the phone. Prayers that Matty keeps his wonderful spirit and praise that he has so many prayers for him! James 5:16 "Therefore confess your sins to each other and pray for each other so that you may be healed. The prayer of a righteous man is powerful and effective."

Another Good Day

Matt was a hungry man yesterday. Usually Matt doesn't eat too much of his dinner at 12:00, and yesterday it was no exception. However Dad got him a BLT and fries, which he gobbled in no time. Supper was also eaten without exception, which was another first, because it was the hospital food. As anyone who has been in the hospital, the food leaves much to be desired. The weather was cold, but Dad and Matt braved the element's and went outside for a spin around the grounds. Then off to "exemisises" (what Jonmarie calls exercises). Last week, when Matt had sat on the floor with support, then put his hands behind him, he was able to support himself for 3 mins. Now he was able to hold himself for 6 mins. They also practiced rolling on the floor. With help, he was able to do it 4 times. But dad said the 3rd time, Matt almost did it himself. Keep up the hard work, Matt. It will pay off.
They did no further capping of the trach yesterday, however Matt still did 13 hours with the cuff down, and minimal support from the ventilator. With the cuff down, he talked to mom on the phone. I think she is having a hard time being away from Matt. It is like being away when your baby rolls for the first time. As a mother, you don't want to miss anything! Hebrews 10:23 "Let us hold unswervingly to the hope we profess, for he who promised is faithful."

God Is With Us

I am always amazed at the power of prayer. Exodus 15:11 " Who among the gods is like you, O Lord? Who is like you- majestic in holiness, awesome in glory, working wonders?"Matt had such a good day with only a few minor setbacks. They capped Matt's trach today. But let me explain it to you first. When Matt has his cuff deflated, he is still hooked up to the ventilator at the lowest setting and moisture is continuously running. But with the trach capped, the inner cannula of the trach is removed and the cuff deflated, so he can only breathe with his nose and mouth. The respiratory therapist then puts Matt on nasal prongs, so O2 is still entering his system to give him and extra boost. It is hard work, and Matt lasted over 1 hour. 1 hour & 15 mins to be exact. We are so proud of you! God is watching over you always. Matt had emesis again after he ate dinner, but he was having trouble breathing and they suctioned him, which always makes him gag (it would make anyone gag!).
But to me the best news of all is when I was able to hear Matt's voice on the phone. He now has a phone in his room. It is a bit complicated, and is only working if he phones out. But to hear his voice was so encouraging. His sense of humor is still as sharp, I laughed for 15 mins. Matt is trying to grow a beard, and states he looks like a mexican! He received a carved pumpkin and a mask (pirate) from one of the nurses, so Halloween was full of "Shiver me timbers" But the worst was, when he was sleeping one of the nurses painted his toenails lime green! And he knows which one did it, though no one is talking. Matt said they better watch out once he is mobile! Prayers that everyone has a safe Halloween!!

At a standstill

We seem to be in neutral at this point. We are hoping they change their plan of not pushing the trach trial longer than 13 hours. Matt really wants to continue moving forward, so lets pray that will happen. Proverbs 4:25 "Let your eyes look straight ahead, fix your gaze directly before you." He had lots of company, which is great and even better with the cuff deflated so he can talk, instead of reading his lips (which Matt knows I am not good at, he would just roll his eyes in disgust!). Matt's appetite is improving slowly, and he ate very well today. A bit of nausea when getting up in his chair, but it was a rough ride. Enough said. Massage therapist was in again to work out those kinks. She has a hard time doing it herself, so it wasn't as good as she would have liked, but it is better than nothing. Still hoping he will go upstairs tomorrow or Thursday to rehab for a few hours. Needs to continue building those muscles. Gary is coming this weekend, and then Matt could give him a workout. Just ask him to play a game of Trivia Pursuit Matt, that should keep him quiet! We continue to thank all those who respond to the blog, who read it, who take encouragement from it, and for those who come and see Matt. Every act of encouragement keeps him looking ahead and looking up. Romans 15:5 "May the God who gives endurance and encouragement give you a spirit of unity among yourselves as you follow Christ Jesus, so that with one heart and mouth you may glorify the God and Father of our Lord Jesus Christ."

Double Touble

Isn't a great title, but oh well. Matt was up in his chair today at 1 pm. The occupational therapist and physical therapist were there to assess Matt's muscle strength. The last time they had tested him was 2 weeks ago. They were really surprised to find Matt had doubled his strength in his right arm, hand, and shoulder. Way to work hard Matt! Little by little , it will continue to improve. They had also hooked him up to muscle stimulation with electrodes to his bicep and triceps. They didn't think Matt was so strong yet, and when they asked him to bend his elbow, he nearly knocked himself out with a punch! After that they turned it down, and used less stimulus to help him along. Practice those punches for when Gary gets there! They are continuing with Matt being off the ventilator during the day (13-14 hours), and on it at night. Hoping he will be able to go to rehab for part of the day starting Wed. or Thurs. They also refitted him for a new "touchie cushie" or a bum cushion for his wheelchair. It works on the same principle as his air mattress, so feels like he is sitting on the clouds. I need that for when I am marking papers! Thanks again to dad for all the info. Matt, we are daily reminded of God's great goodness and mercy. We are so glad you are pushing ahead and keeping strong in faith. Ephesians 1:16 "I have no stopped giving thanks for you, remembering you in my prayers."

Tim Horton's

Matt right hand is getting so much stronger, he was able to pick up one of Tim Horton's timbits today. He could almost get it to his mouth, but it fell out of his grasp. Once they put it in Matt's hand and closed his fingers around it, he could then bring it too his mouth. Keep up the good work. Those timbits will put weight on your body! Matt was also able to pick up a ball that was put close to his hand, then he flicked his wrist, and threw the ball over the side of the bed! So much progress is great to hear. Tubby time in the whirlpool today, so his body is now as clean as his hair! Mom was glad to see him looking and smelling so good before she left. She must return to work again, and will not be back until next Wednesday. She will be amazed at what Matt can do by then. Trach trials continue to go well, and they are going to continue to keep Matt on the ventilator at night, to make sure that his infection is gone and ensure he is getting enough moisture. While during the trach trials, Matt is on 35%O2 with moisture (that is the lowest it can go), and his cuff is deflated so he can talk. But at night, the ventilator helps him to breathe and the O2 and moisture are higher. The deadline is Christmas for Matt to be off the ventilator, so they don't want any setbacks. This way, they can almost guarantee success. Matt 6:34 "Therefore do not worry about tomorrow for tomorrow will worry about itself. Each day has enough trouble of its own."

Lazy Day

Sorry the blog is so late. Mom is in Prince Albert celebrating at Aunty Sandy's surprise birthday party, and I was unable to get a hold of her. Dad said Matt had a lazy day yesterday, which is only right on a weekend. The trach trial had started at 9:30 am, and when dad left at 11:00 pm, he was still on it. So definitely over 14 hours. They were going to try it while he was sleeping, so hopefully update you later today. Did not eat as well yesterday, but he also had such a quiet day that didn't build up an appetite. Had his hair washed, so again he is one spiffy looking guy.
They finally found Matt a new bed, a 7 footer. Took them a long time to find one to fit him. Dad says he looks great in it. They were worried about foot drop, because of his feet hanging over the edge of the bed. A very difficult condition to fix so thank the Lord for the proper size bed. Psalms 105:3-4"Glory in His holy name; let the hearts of those rejoice who seek the Lord. Seek the Lord and his strength; seek his face evermore". Matt watched Colorado be defeated again, and he is not too happy about it. But I hope the win the Roughriders had the other night makes up for it.

The new leg machine

Today Matt had his first go at the leg machine (for 20 minutes) - a motorized bike that peddles his legs which will help to strengthen his leg & butt muscles. Matt was a bit disappointed that he couldn't put much effort himself into the machine, but he forgets that his biggest muscle (i.e. butt) has disappeared in the last 4 months. As he uses this machine more, he will only get stronger. He also had a stint at the arm machine for 10 minutes. Since he has an IV in his left arm, they couldn't strap his arms in as tight, and therefore he couldn't do quite as much as yesterday. But the IV should only be there for another 4 days and then he'll be able to make a better effort (IV is for the antibiotics to fight his lung infection).

Matt had another great trach trial today for 9 hours and 5 mins. It could be longer, but mom is still at the hospital and we do not know when they put him back on the ventilator. He had also had lots of company who came bearing food (gotta love those cookies!) He's really enjoying the homemade goodies! Quick note from Nolan, states Matt looks great and was he was so surprised when he saw Matt lift his hand to his nose by himself. He was actually teasing Matt by putting a french fry in his hand, and watching him try to get it to his mouth (the meanie!!!). Matt kept saying -"stupid fry"! This is great practice for Matt - anything to keep him motivated. Joshua 1: 9 "Have I not commanded you? Be strong and of good courage: do not be afraid, do not be dismayed, for the Lord your God is with you wherever you go."

9 hours

Matt did an incredible 9 hour trach trial today! Was very exciting and I think he was very proud of himself. And he did this with an infection still hovering, so well done Matt! Another workout day in the gym, and Matt was on the mat today. They propped him up with his arms behind him and palms on the ground, like when you sit on the floor to watch TV. They assisted him but he was able to sit that way for 3 minutes. Strengthens his stomach muscles and his arm muscles. They tried to get him to roll over, but that one still needs more practice. Ate around 3000 calories all day, which was great, but still not maintaining his weight. Matt could eat a horse and not maintain his weight! He was very excited for his friend Rocky, who was able to drive a car today with a driver trainer. I am not sure how he did, but wish him the best. Once Matt masters the wheelchair, next will be the Jeep Cherokee! Watch out Weekes! They are having trouble finding a wheelchair for Matt. They wanted to get him a second hand one, but there is none in Sk. to fit his size. Hopefully they will see the need to custom make him one, regardless of price. So big praise today for the trach trial and prayers for continued big steps forward. Phil 4:6 "Do not be anxious about anything, but in everything, by prayer and petition, with thanksgiving, present your requests to God."

Long Day

With Matt only getting the one sleeping pill, he is awake much earlier and doesn't sleep in the afternoon. So that makes for a long day. But it was also busy. It was tubby time, and I am sure that feels great. Hopefully they let him have a bit of a soak. His trach trials are going awesome, with today being a grand total of 6hours, 20 min. He does get pretty tired, but knows it is for the best. He also went outside today, and motored around in his chair. He can only do it by himself for a short time. His hand movement has improved, but his muscle strength is very weak. They gave him so more exercises to do. Mom had spoken with the doctor, and he said there was still swelling around the spinal cord, which causes compression. That can remain anywhere up to 18 months, so we will continue to see progress as that swelling slowly goes down. So by that standard, Matt is doing great. They have also encouraged him to do exercises himself every 20 mins. Sometimes it is easy to forget, so they put a sign on his board. And when company comes, encourage him to show you what he can do. Matt still feels numbness in his hands and feet, but when you think about it, when you watch TV in a chair for even 2 hours, everything is stiff, sore, and you may have numbness in the butt! So Matt, it will come. You just must continue to work hard and believe. Your cheering squad is always in your corner. Psalms 54:4 "Surely God is my help; the Lord is the one who sustains me."

Breathing Keeps Improving

Matt's trach trial lasted 5 3/4 hours today. They were hoping for 6, but when they reached 5 1/2 hours, Matt wanted to come off. However, they kept encouraging him to push a little harder, and Mom was right there cheering him on. He had been awake at 8:30 am, and hadn't slept since, so he was tired. But they got an extra 15 mins from him. Way to go Matt! That extra 15 mins is hard earned. They did suction Matt for lots of thick mucous, but it was still okay. O2 levels are still great. Thanks again for continued company. It really encourages Matt and keeps him focused on family and friends, and that they are an important process in the healing. Eating well, and weight was again up to 174lbs, had taken a bit of a dip before. Watched Nolan play some video games. Watch it Nolan, Matt is memorizing what you are doing and will soon kick your butt! Last night they gave Matt's sleeping pills earlier than usual, and want to see if that helps him so he is not so groggy in the morning. Maybe then he would be able to eat breakfast, which he doesn't feel up to doing right now. All in all a good day. I encourage everyone who believes to pray when they read this blog for Matt's continued success in his trach trials and movements. James 5:15 "And the prayer offered in faith will make the sick person well; the Lord will raise him up." Matt this is a verse for you, Mark 11: 24 "Therefore I tell you, whatever you ask for in prayer, believe that you have received it, and it will be yours."

5 hours

Matt did a trach trial for 5 HOURS today. Even with the infection he is still barrelling ahead. He also sat up in his chair for 5 hours as well. Let's pray that his new chair will come sooner than later, as his current chair is very uncomfortable. It was workout time today, as Matt went downstairs to the gym, where they put him on the machine that moves his arms. From what I understand, Matt has to do some of it on his own, but the machine helps stabilize his arms. I think Matt's feeling a bit discouraged that the movement, and especially the strength is so slow in coming. But remember Matt, that each nerve ending has to heal. They have been without brain stimulus for a long time and need lots of "reminders" and practice. 3 1/2 months without much movement really eats your muscles. I read an article about people in space, that their muscles waste away very quickly with no exertion from very little gravity. Same thing with Matt. It will come. Jacki and kids left today, but big brother Nolan showed up to cheer Matt on. Brought a few movies along with his brotherly love, and they are all set. A note of praise. By the end of December, the wonderful apartment that mom and dad have been using is needed by the owners. Today, a nurse offered her house for 3 months while they are in New Zealand. So another answer to prayer. Job 26:24-26 "Remember to extol his work, which men have praised in song. All mankind has seen it; men gaze on it from afar. How great is God- beyond our understanding."

Strong Matt

The infection is not keeping Matt down as much this time. He still was able to do a 4 hour trach trial, but did have more trouble at the end. He also ate a little better today with no emesis. Need to build up that body, so has to keep the food in. Mom said he had lots of mucous, but he is so strong with his coughing that he is able to bring it up himself, so very little suctioning today. He was up in his chair, but only for 2 1/2 hours. His neck gets so sore, the chair is not built for him so gets uncomfortable. What chair could accommodate those long legs! Just a note that Jacki and the kids are leaving tomorrow, so need some visitors who like to play Yahtzee or dice. Maybe even a game of trivia pursuit, but let me warn you, he has all the answers memorized. He said he doesn't but that is the only way he could beat me! A real inspirational discussion was had by mom and a physician who doesn't know Matt, but had read through his files from RUH. He wanted mom to know that Matt has far exceeded anything they thought he would do. Everyone is amazed by Matt's continued recovery. Thank goodness we relied on faith of the power from above and not faith in man. Hebrews 11:1 "Now faith is being sure of what we hope for and certain of what we do not see." Prayers for Matt's continued recovery and the ventilator off before Christmas.

Infection comes knocking again...

Matt did not have a good day today, he has infection in his lungs again, so the trach trials are on hold. He is taking antibiotics which they feel is causing some of the nausea. He was up in the chair for a couple hours, but was not feeling well so went back to bed. He fell asleep and was sleeping all afternoon and early evening. He also was having a hard time keeping any food down so had mostly fluids. Jacki went and spent the evening with him, and though he did a lot of coughing he still enjoyed the crossword and Suduko puzzles. Wasn't to thrilled that Edmonton lost to the B.C. lions, Oilers lost to Calgary and Boston beat Cleveland. Not a great day for his teams. He did eat better tonight was able to keep 2 slices of pizza and some real mashed potatoes and homemade hamburgers down. Prayers for today are that the infection will clear up quickly and the trach trials can begin again as the vent is the problem with the infection in the lungs. Thank you for the continued prayers and support. Nahum 1:7 "The Lord is good, a refuge in times of trouble. He cares for those who trust in him."

Trach Trials going well, Praise God

Matt was able to do a 4 hour trach trial today, with no trouble. He felt really good, so they will try a little longer tomorrow. He was up in the chair for 3 hours, but his neck started to bother him so he was put back to bed. No nausea today which is another answer to our prayers. Keeping his food down well and is really happy to have home made food. His Dad went home today, so makes for a hole in his day. Lots of company today which is always good for lots of smiles. He say Hi to everyone and thank you all for the many prayers on his behalf. He is kept busy with rehab for a part of his day and likes to bug the staff at City. Is getting to know all the staff and they keep him on his toes. 2 Chronicles 15:7 But as for you, be strong and do not give up, for your work will be rewarded.

Wheelchair ordered

Matt's days are really busy lately. He has been having lots of company and deflates the cuff so he can talk. During that time he was up in his chair for 3 hours. Was tired in the afternoon after 3 1/2 hour trach trial and physio, but a good tired. Also had massage therapy for an hour, so that would make anyone relaxed! We had forgot to mention that Matt moved his middle finger on his left hand yesterday. Some days his movements are more pronounced, and spasms are less. So those are good days. Matt's custom made wheelchair was ordered, which will be great to have one that fits that tall drink of water! Mom says Matt was a little less talkative and quiet today. I think he is feeling with the ordering of the chair that they feel he will never walk. But it is just until he does walk. We know that it will be awhile and he might as well be comfortable. Then we can donate it back for someone who really needs it. Prays that Matt will remain strong in faith. Psalms 62:2 "He alone is my rock and my salvation; he is my fortress, I will never be shaken."

Whirlpool bath

Today was a busy day for Matt. He had a whirlpool bath, and then went to the gym to listen to a speaker who was quad because of a accident at the age of 17 in 1984. He is an wheelchair rugby player and showed the people present all some different styles of chairs and boards to play certain sports. He was very interesting to listen to. Matt also did a 3 hr trach trail and sat up in the chair for around 4 hrs. He beat his sister in Yahtze and then she beat him Golf. So they both came out even. He was very tired and had a nap after he was back in bed. He was able to eat some dinner and then his sub in the evening. This evening he had some trouble with his pulse going up and lots of secretions, but all in all a good day. Prayers for tomorrow that Matt will continue to do well with his trach trails and his muscles continue to strengthen. Romans 12: Be joyful in hope, patient in affliction, and faithful in prayer. God bless each and everyone of you.

Weight up and rubs his nose

Matt had another good day. He was able to do another 2 hours trach trail and also had the cuff down so he could do some talking. Was up in his chair for 5 1/2 hours and did really well. He went up to rehab and was able to do some work on the arm and hand pulleys using both wrists. His right arm is much stronger than the left, but was able to do a little with his left. He had a couple bouts of nausea, but was able to keep everything down. Took a trip outside and to see our beautiful fall weather. Ate well today and after his weight was checked is now up to 176lbs. If they feel he is gaining enough they may do away with the tube feedings all together. For the first time was able to lift up his right hand to rub his nose, all smiles. Lots of company today, loves to visit and get all the news. Praise the Lord. Prayers for continued success with the trach trails and with rehab. Isaiah 26:12 All that we have accomplished you have done for us, O Lord.

Keep the Movement Coming

I was driving home from swimming and was thinking what I should pray specifically about for Matt. From a nursing perspective, I know what a huge thing it would be for Matt to bend his elbow. So while I was driving, prayers for Matt to bend his elbow were heard, because tonight Mom told me that Matt could bend his right elbow by himself! An answer to pray before I even asked it! 1 Chronicles 16:8-9 "Give thanks to the Lord, call on his name; make known among the nations what he has done. Sing to him, sing praise to him; tell of all his wonderful acts." Matt was able to lift his arm off the bed, bend it at the elbow at a 90 degree angle. He could hold it only a second, but what an accomplishment! Jacki said he was just sweating and panting hard. Go Matt! (Jacki and the kids arrived today the same time as mom. Bobby gave Matt 2 very wet kisses!) The physio also was amazed at how well Matt has done in the last week. He is able to curl his right fist into a ball, however the tip of the thumb and forefinger still can't bend. His left leg movements, though slight, are just as strong as his right leg. Just his toes are not quite as strong. His left hand is only a quiver in his pinkie and thumb, but the antispasmodic meds may be inhibiting some of that movement. It will come. They were able to complete a trach trial today for 2 hours. Matt was beginning to get tired, but it was another plus! No de-sating either. And they also deflated the cuff when Matt had company so he could talk. They left it deflated for over 2 hours. The respiratory therapist feel that Matt's left lung and diaphragm are increasing in strength all the time. Will be off that vent by Christmas, right Matt? Has had some nausea, but they have changed the times they give the meds and that seems to be working. Has more of an appetite. Which reminds me,Bev, ginger snap , peanut butter, and oatmeal macaroon cookies are some thing he likes to eat. E-mail me for the recipes if you don't have. Thanks again for everyone who reads the blog and keeps Matt in their prayers. Matt has shown the benefits of prayer.

Getting organized...

Just to let everyone know, we were not able to do the blog yesterday as the power has been out at Shelley's since yesterday at 6pm, and dad & I were unable to hook up for me to get an update. We should be back on track for this week.

Anyway, Matt has been doing awesome. I understand that the hospital staff have changed the timing of his meds to try to prevent the nausea that plagues him most days. It seems to have worked today as he was able to eat all his meals without feeling sick. Lets pray that this trend continues! He had lost of visitors today and yesterday which is great as Matt really perks up when he has people to talk too. Since he is an official coach potato, he can converse on many topics that he sees on TV - his favorites being football and baseball right now. He watched the last quarter of the Rider game today (was asleep for most of the game as he didn't know it was on - part time fan!), and is currently cheering on the Rockies in the MLB semi-final.

Physically, Matt was able to sit in his chair for 3 hrs today and 4 hrs yesterday, and also had his cuff deflated for about 2-3 hrs each day so he could talk to his visitors. He didn't have a trach trial today, but had one yesterday for 1/2 hour (they stopped as this was the first time in a while and didn't want to overdue it - but I guess Matt did great). Please pray for continued success in his trach trials so that his lungs will get stronger, and he will become more independent.

Sorry Blog is so late

I know how many people start their day by reading the blog and when it is not there, it is similar to starting your day without coffee! Mom went home yesterday morning and was glad to be home, but having separation anxiety too. Dad states Matt had a good day, and the physiotherapist is so impressed with Matt. He works so hard, but doesn't complain. During his exercises he just sweats but keeps going. He was trying to show his friends his trick of Dad putting his arm on his leg, then Matt swings his arm off his leg, places it on a ball beside his leg, squeezes his hand, and grasps the ball. Isaiah 35:3 "Strengthen the feeble hands, steady the knees that give way." Matt, I speak for many to say we are so proud of you and the number one goal is to have Matt home for Christmas, even for a few days. What a homecoming that will be! They also deflated his cuff for a total of 4 1/2 hours yesterday and did really well. Was feeling sick again but didn't throw up. Ate a sub that dad brought and watched a movie with one of his friends who came to visit. Was a bit upset they were not showing the Colorado/Arizona game, but a movie is alright, especially with a friend. I also forgot to mention a young women is coming to give Matt massage therapy. He had one treatment already and must have felt great! WIll have more news later.

Another Good Day

Before I get started just want to clarify it was 1/4 lb weights and not 1/2 lb weights. Still good though. Physio/Occupational therapist come up every day for one hour and work with Matt. Today they brought him a remote control for the TV that he can control with his head. She was so amazed at how fast Matt understood. Usually she has to explain it many times. She also stated she felt some movement in Matt's left middle toe, although he couldn't see it. Small blessings lead up to big things. He was only sick once today and otherwise ate fine. Still needs more protein in his diet to help him heal. Had quite a few visitors and they are always welcome. They were even able to hear Matt talk when the respiratory therapist deflated his cuff. Tomorrow Matt is meeting with a fellow who was injured years ago and is now a paraplegic. He is a computer whiz and will set Matt up with a computer that is eye/voice activated so he can play some games and surf the net. Just temporary until he gets the use of his hands back. He will have to buy the computer, so we will look into that. No way Gary could beat him then! On a sad note, the rookie's are being called into the game because the head cheerleader needs to go back to work. Mom is leaving in the morning, first time in 3 months. But the rookie's are ready to go, cheering all the way. And the head coach is always with Matt. Joshua 1:5 (shortened version) "I will never leave you nor forsake you." But any one who wants to stop in for a few minutes, especially in the evenings would be great. The more the merrier!

Workout

Matt was able to go to the rehab department to check it out today. Soon Matt, soon. Eventually that will be were you are. Tried out his chair again today, didn't do quite as well as yesterday, but he has been doing some exercises so it plays him out. He didn't eat very well either, and when he did eat well he threw up. So then he really has no energy. They are no longer able to establish an IV's so he has been taking some of his meds by mouth, and makes his stomach upset. But back to Matt's workout, they have him lifting 1/2 lb weights with his right wrist. The therapist lifts his hand off the bed, then Matt has to lift his hand up to his shoulder. He was able to do it twice. States it feels like he is lifting 100lb weight. That will eventually be what you lift, Matt. You must just take one day at a time. A month ago 1/2 lb weight would have been impossible. He is also much stronger when he clenches his right fist, but the pointer finger and thumb still need more work. They are more numb than his other three fingers. 2 Samuel 22:33 "It is God who arms me with strength and makes my way perfect." Phil 4:13 "I can do everything through him who gives me strength."

On The Move Again

Matt was in a powered chair today for a short time. It isn't the one made for him, but it will do. It is one with hand controls, so they were unsure if Matt would be strong enough in his right hand. They had to make a few adjustments but by the 3rd attempt he was moving the chair himself with the controls. He couldn't go far but imagine that few minutes of freedom. Careful walking in the hospital now! Matt will soon be on the loose! He gets tired quickly, but that is to be expected. It is taking everything he has right now to move, and that is exhausting. He is also out of isolation, which is great because Jacki and Amy are coming down and we don't want any sick babies! He is feeling and looking better. They gave him his sleeping pills early last night and he was sleeping by midnight, so less groggy today. Matt is eating better as well, however he doesn't eat until after 3pm, still a bit nauseous before that. Pray that God will continue to lead the way and that we trust in him. Romans 15:13 "May the God of hope fill you with all joy and peace as you trust in him, so that you may overflow with hope by the power of the Holy Spirit."

Mediocre Day

Not too much to report today. Matt had no further episodes of de-sating. But they also stated they will not start any trach trails until they feel he is stronger. Hopefully that will change. Very sleepy for most of the day and some friends were unable to visit. They also didn't get him up in his chair either, so maybe tomorrow the will start to push a little bit more. All good athletes need a kick start once in awhile, and Matt will have to work harder than anyone. But he had a good supper and no emesis. Small blessings are always there, you just have to look. James 1:12 Blessed is the man who persevere under trial, because when he has stool the test, he will receive the crown of life that God has promised to those who love him."

A Very Happy Thanksgiving

Matt gave us something to really be thankful for. He rolled his left leg slightly and again moved his left pinkie finger! Make a joyful noise! "I will enter in his gates with thanksgiving in my heart, I will enter in his courts with praise. I will say this is the day that the Lord has made." They were very worried with the new med if it would inhibit his movement, which it can do, but it also promotes movement by preventing some of those spasms that make movement impossible during range of motion or exercise. Talk about a mouthful. Ate well today with no emesis. Have to take it really slow to get his stomach used to more food. They are again turning off his tube feed form 7am until 12am. Would be nice to eliminate one more tube. However that left lung of Matt's is continuing to give him problems. He de-sated again today, once he was down to 62% O2. They think it is a spontaneous pneumothorax, which means that his lung spontaneously collapses and then regains normal lung function within a short time. Still not great but on chest x-ray his lungs were clear. So please pray for healing of his diaphragm and lungs so that soon the ventilator will come out. Psalms 95:7 "for he is our God and we are the people of his pasture, the flock under his care."

Lots of Company

Matt was surrounded by members of the Relitz clan today. Makes such a difference when company comes and breaks up the routine. Had no diarrhea today, but was so hungry at supper, maybe ate too much too fast and everything surfaced again. But he is looking better even though he is so tired. He had a difficult night. He de-sated twice, which he hasn't done for quite awhile. O2 went down to 72% times 2, both times when they laid him on his left side. Lung still isn't strong but we will see. There were able to deflate the cuff for about 2 hours so he could visit and was up in his chair for 2 hours. He's neck is still so sore, with huge knots the size of crab apples. Needs a good massage! Any takers? Mom may have to go back to work this week, and Matt's having a hard time with the idea. Please pray that the right decisions for what needs to be done will come to us clearly and that we follow the path. Psalms 56:4 "In God, whose work I praise, in God I trust; I will not be afraid, What can mortal man do to me?"

Foot Long Sub

Matt had a better day today, not as much nausea. He still had to be suctioned for a large amount of secretions, but is feeling better. Was able to get up in his chair for three hours. Yesterday we said he couldn't have company, which is wrong, he can but you have to wear a gown and gloves. Matt and his friends that stopped by yesterday had a good laugh and looked really cute in their costumes. They thought they should take them home. Today Matt was able to eat a lot better and was able to polish off a foot long sub, a Gatorade, a ginger ale and two digestive cookies, all for his midnight snack. The nurse and I thought for sure he would be sick, but he did great. Thank You to everyone for their prayers and support as Matt continues on this road to recovery. Prayers for tomorrow that all infections would clear up and Matt's lungs will get stronger. Psalm 118: 24 " This is the day that the Lord has made, We will rejoice and be glad in it."

New Day

Much better day, but did receive a bit of bad news. Matt has an infection called C. Diff., which is a very potent bug that can really hit people in Matt's condition. He must now be in isolation and not many people will be able to visit, and he will not be allowed out of his room for up to a week. This certain "bug" causes lots of vomiting and diarrhea, so will make him weak and dehydrated. However they started him on the right antibiotics for it and are monitoring him closely. He slept until noon because of his night, and managed to eat a little soup without throwing up. They had to put him on a new medication for his spasms. When they try to do his exercises, the spasms are inhibiting his range of motion. The side effects are not great. He has stopped moving his left fingers and he has numbness in his right hand. Not sure which is worse. But they did hook him up to a shoulder sling, which allows him to bring a spoon (that is hooked to his right hand with elastics) to his mouth. They tried ice cream and the therapist put it on his spoon, but Matt managed to get it to his mouth a few times. First time to feed himself in over 3 months. Great job Matty! They will not do any trach trials until the infection clears up, but they are still deflating the cuff for 2 hours so he can talk. Goodness and mercy can be found, if we just look. Hebrews 4:16 "Let us then approach the throne of grace with confidence, so that we may receive mercy and find grace to help us our time of need."

Keeping Nothing Down

Take a step, lose a step. Pattern continues. One of his worst days yet for throwing up. Drank water, threw it up, drank tea, throw it up. Lot 8 lbs since last week. They are still unsure what is causing all the problems, but started him on an IV again for fluids, because he is becoming dehydrated. They did get him up this am at 7:30 am, but it was really cold outside and he didn't enjoy it too much. Also got his hair washed so smells spiffy. Hard days will continue to happen, but we must be thankful for everything. Just the fact that Matt is in a nice, clean bed with a very expensive air mattress, he has mom for a cheerleader and dad to run interference, and trained professionals to help him. I heard a friend of mine say we need to start "Thanks Living". Thanksgiving is just one day of the year, but "thanks living" runs year round. 1Thess. 5:16 "Be joyful always; pray continually, give thanks in all circumstances, for this is God's will for you in Christ Jesus". Rejoice that today is nearly over, and tomorrow is a new day with no mistakes.

Sleepy Day

Matt had a very sleepy day, lots of nausea and gravol. They are not sure what is causing all the gas build up, but are trying a new med to see if they can control it. He is also starting to spasm much more so it is difficult to keep everything moving. He was up in the wheelchair for a couple hours and took a short walk around third floor. He is still on antibiotics for the lung infection and has five days left of that. He ate well late last night and enjoys home made food. He had his cousin Chris as his RN yesterday and gave him a hard time. Prayers for today that he will have a better day and continue to improve in mobility. Philippians 4:6 Do not be anxious about anything, but in everything, by prayer and petition, with thanksgiving, present your request to God.

Great Day for Matt, Bad Day for Others from PP

Matt had very exciting news today. He will get his motorized wheelchair next week, and the physiotherapist thinks he will be strong enough in his right hand to move the controls. Otherwise he would have to steer with his head and neck, and would be a lot more difficult. He is now able to have his hand on his leg, then use his shoulder muscles to put his hand on the ball by his leg. Then he can squeeze it lightly, grasp it in his hand, and turn his wrist so the ball faces upward. If mom holds his arm up, he can release the ball when he wants. Great job Matty! Feels much better today and had his cuff deflated for 2 hours with no trouble. He is also eating better due to new anti-nausea medication, so they have stopped his tube feeds from 10 am until 7 pm. As long as he eats 900 calories in that time, they will continue to shut it off. If he keeps this up, they may be able to remove the tube feed all together. He is now up to 176 lbs, a far cry from the 154 lbs he was 1 1/2 months ago. More company in to see him. Relatives from B.C. plus people from home. Also a RN from RUH was in and thrilled with his continued progress. But on a sad note, we would like everyone to pray for a family in Porcupine, who's little boy is in very critical condition in RUH. I used this verse in the beginning of Matt's struggles when there was very little hope. Job 9:10 "He performs wonders that cannot be fathomed, miracles that cannot be counted".

Wings and ribs

Matt had a sleepy day with some nausea. He is still on antibiotics for the infection in his lungs and we are praying this will clear it up. No trach trials until infection is gone. He did eat a little today, he tried the mild and lemon and pepper wings but found them to spicy for now so he stuck to the ribs. He finds he is more hungry at night than in the morning. He was up in his chair today and was happy for the company this afternoon. Was able to have the cuff down for two hours, which because he can talk makes it much nicer to visit. Thanks you so much to the people who have been coming to see him as it makes the days much happier. He is always happy to hear from the ones who write on the blog and send mail to the hospital. Thank you all so much for praying for Matt as he continues his journey to recovery. Psalm 27:14 Wait for the Lord; be strong and take heart and wait for the Lord.

Little Tired

Matt was groggy most of the day from the Gravol he is receiving for nausea. They notice whenever his trach is moved too much or it becomes irritated, he feels more sick. Also the antibiotics he is on can make you sick to your stomach as well, so maybe when they are down he will improve. However he did not throw up and ate quite well. Thank the Lord for small blessings. He was all dressed up in his roughrider gear for the big game. I had brought him my roughrider jersey from 1988, and the riders won the Grey Cup the following year so it is good luck. Got a visit from Rocky who is now in a motorized chair and showing Matt what he has to look forward too. More good times ahead. Visitors from Matt's old job were in to visit, which he always enjoys. Moved his middle finger on his left hand today as well, but needs to concentrate very hard. Keep it up Matt! Practice, practice, practice. Romans 15:13 "So may the God of your hope fill you with all joy and peace in believing that by the power of the Holy Spirit you may abound and be overflowing with hope."

Too Much Estrogen

Today Shauna, myself, Jonmarie, mom, and dad were in to visit Matt. Dad and mom took Jonmarie out to play in the park. The female nurse and respiratory therapist were in the room and asked Matt how he was feeling. He said he was fine but there was too much estrogen in the air! Maybe some will rub off! But maybe it was all that positive energy that helped Matt move his Left pinkie and ring finger for the first time! More great news! Praise the Lord. Matt did have a pretty good day, but he does have an infection in his lungs which he is getting antibiotics for. They did have to suction him more today, but he is so much stronger he can cough it up. Ate well with no vomiting today. Up in his chair all dressed and looking spiffy. And they had given him a whirlpool bath so he even smelled spiffy (unlike the regular stinky boy smell!) Watched "Wild Hogs" on his portable DVD player, so funny. Had a sad moment thinking about home and missing his friends. But you know Matt, you can't keep a good man down. Continue to pray that Matt will get breathing on his own and able to leave the ventilator behind...Psalms 118:8 "It is better to trust and take refuge in the Lord than to put confidence in man."

Looking Great

The girls and I travelled from Red Deer today to see Matt's progress. I spent the latter part of the evening with him and didn't get back to Auntie Karen's until 1 am. Excuse for the late blog entry. Matt's day didn't start so well and hoping to pinpoint the nausea. But he was up in his chair and able to enjoy the beautiful fall weather. By the time I arrived, he was bright, cheerful, and really awake, the night hawk. To be able to talk, the respiratory therapist deflated the cuff of his trach so air could pass through his voice box. So great to hear that raspy voice. He stayed that way for 3 hours, with no assistance from the machine except oxygen. He didn't even break a sweat! So great to see those finger movements and was even able to give Matt a little Swedish massage! Neck muscles are really tight. Also a scalp massage, so he owes me big time! Looks so strong and hoping to be off the respirator soon. Then big plans to be home for Christmas holidays! Ephesians 1:6 "So we praise God for the glorious grace he has poured out on us who belong to his dear son."

All Dressed Up

For the first time in 3 months, Matthew was all dressed in a T-Shirt Kim Logan had given him, sweatpants, socks. Mom said he looked like a million dollars. Sat up in his chair for 4 hours, tired him out though and did get a bit nauseous. But he still ate well for supper, almost a whole chicken burger (without the bun). They managed to keep his temp down today with just Tylenol, still unsure where the infection is but pray that it will clear on its own with no antibiotics. The physiotherapist did a functional assessment to see what Matt's mobility level is at, and stated that she felt muscle tone in his left forearm and his left thumb quivering, which is great. She gave him some exercises to do to strengthen what he has for mobility. They are hoping to start his trach trials tomorrow, he had to switch to a portable ventilator and thought it might be better to let him adjust. Nolan got to see Matt's "partner in crime" Rocky, who was with Matt in ICU in RUH. He is in rehab and is off his ventilator, and had his motorized wheelchair already. Things to look forward to. Hebrews 11:1 "Now faith is being sure of what we hope for and certain of what we do not see."

Quiet Day

Well all the excitement of the move is over. Matt slept well considering it was a new place with different sounds and people. Will take awhile to get to know the staff, but the seem really pleased that Matt is finally there. The respiratory therapist was in to see him, and think they will start the trach trials tomorrow. Their speciality is getting people weaned off the trach, so they know how to push and when to step back. Hopefully the trials will go well. Unfortunately Matt has another temp, but his lungs were clear so it is an infection somewhere else. The believe it is a urinary tract infection so poor Matt again had to have the catheter put in. Very unpleasant. They also noted Matt was more nauseated after physio, so they don't give him Gravol as quickly and he seems to be more alert for the rest of the day. They were unable to get him up in his chair, but he sat up in his bed at 80 degrees for most of the day, which is great for his lungs and blood pressure. After being in bed so long, your body has a difficult time adjusting to being upright, so it's training your body all over again. They also said Matt needs to eat more protein, and the hospital food is not quite to Matt's liking, so we have to come up with some recipes that he will enjoy and increase his protein intake. 1 Peter 5:7 "Cast all your anxieties on him because he cares for you." Pray for Matt in his new endeavour.

THE BIG MOVE

The day finally arrived. By 4:30 p.m. Matt was moved to City Hospital ICU via ambulance. He was having a rough day with his nausea, and was only able to sit up in his chair for an hour. But mom said when he got to City, even though he was apprehensive and worried, he looked brighter and was even able to eat soup, spaghetti, and some bacon, the most he has eaten in a week. We have waited so long it was a bit of a shock it happened just like that, no warning at all. But we will take it! It is a great move forward, but scary too. Matt and mom became so familiar with the comings and goings of the ICU at RUH, the staff were great, and now they are in unfamiliar waters. But the staff at RUH were very happy for Matt, and they knew City was where he needed to be so he continue forward in his progress. Matt's new room is big and private, and the ICU is much quieter, so hopefully he will get to sleep at night without the use of sleeping pills. Matt, the road ahead will be the toughest thing you will ever do, but with so many people cheering for you and the Great Physician by your side, you can't go wrong. 1 Peter 5:10
"And the God of all grace, who called you to his eternal glory in Christ, after you have suffered a little while, will himself restore you and make you strong, firm and steadfast."

News From Nolan

Nolan and Lindsay arrived this evening from Calgary. Matt brightened up immediately, and seemed really alert and happy. Nolan could not believe the progress Matt has made in the last 2 months since he saw him. He was stunned to see Matt move his fingers and big toe on his right foot. Matt was even able to put slight pressure with his big toe against Nolan's hand. Also, when Matt tried to move his left hand, there was no movement but he noticed Matt's bicep contracting, which is great. His right hand is also getting stronger. He can move his 4 fingers off the bed, and curl them up a bit as well. And the grip with his pointy finger and thumb is improving as well. Hopefully within the next few days, physio is going to rig up a sling that when Matt moves his shoulder, it will lift his hand. Such progress is great. Psalms 47 1 "Clap your hands, all you nations; shout to God with cries of joy." Lots of continued prayers that the nausea will subside and he will be able to eat more. They even gave him some baby Oval, which Matt doesn't care for, but I think he is getting flashbacks from when he was a baby and we gave it all the time for 14 months! No trach trials again today, but Matt was really tired from all the Gravol. Scarlett O'Hara from Gone With The Wind would say, "Tomorrow is another day."

A Fun Time

Well the Riders were so close, but close is only good in Horse Shoe. Matt had a good time watching the game with friends and family. Tried a little pizza and coke and sat up for the entire game. He was really tired this evening, but was a good tired. He wanted me to thank the ones that could come and share the game, or parts of it with him, meant a lot to him and us. He also had other company and it sure helps pass the day. Thanks also to the staff that let us use their room to watch the game. He was a little nauseous this evening and needed a little gravol to settle his stomach. Prayers for today are that his appetite will improve and his breathing trials will go well. ( If someone listen, or stretches out a hand, or whispers a word of encouragement, or attempts to understand a lonely person, extraordinary things begin to happen. - Lorettaa Girzartis) Psalm 63:7 Because you are my help, I sing in the shadows of your wings.

Okay Day

Matt was tired today and slept quite a bit. He didn't feel well, but still managed to eat a few of Auntie Sandy's flax cookies! He worries when things go wrong, and we continue to pray that they will start going right more often. He was able to have a bath again today, because he is preparing for the big rider game tomorrow. They were able to book one of the conference rooms at the hospital with a big screen TV, so if anyone wants to join him for the game, just come on down. Mom is going to buy some chips and finger food, so it should be a good time. Sorry I have to miss it. The girls and I will be heading out to Saskatoon next weekend, and hoping to see him at City Hospital! Matt started his trach trials today, but only lasted 10 mins. Tomorrow will be better. If he could get off the ventilator, he may be able to go home for Christmas. That would be a great present. Isaiah 41:13 "For I am the Lord, your God, who takes hold of your right hand and says to you, Do no fear; I will help you. " That's why Matt's right hand is moving, God has a hold of it!

Double,Double

Matt was feeling much better today, was able to go for a walk around more of the campus and get a double, double at Tim Hortons. He enjoyed some Timbits and his auntie Sandy's flax cookies. Was able to keep his food down today, praise the Lord. He was more wide awake and able to visit with his company. He got to see some pictures of the Philippines which was a treat. Had a meeting with the Dr and she explained to us what they had in the works for Matt's move to City. They are hoping that it will be no longer than two weeks. The trach trials will hopefully be a go for tomorrow. Prayers for tomorrow, that the trach trails will start again and Matt will continue to get stronger. Thank you all for your continued prayers and support. Psalm 37:24 Though he stumble, he will not fall, for the Lord upholds him with his hand.

A step back

Matt ran into another road block today. He started vomiting this morning, they did some e-rays and found out that he is again plugged up. They had to stop his tube feeds for a part of the day and start him on some more meds. They also suspect he has some more infections, so did blood work and cultures to see. He was very sleepy for most of the day and part of the evening. He felt better later this evening, and was happy with a pedicure and a manicure. Thank you so much Krista and the rest of the staff for making him feel so special. He also had some company which he didn't know were there, but it helped brighten my day. Our prayers for tonight are that Matt will have a good rest and keep on smiling. Psalm 63:7 Because you are my help, I sing in the shadow of your wings. Psalm 62:8 Trust in him at all times; ye people, pour out you heart before him: God is a refuge for us.

A Beautiful day to be outside

It was a beautiful day and Matt went for a tour of the grounds and some of the places on campus. He remembered some of the places from the tour they took in school and enjoyed a chance to see a lot of young people. He was outside for about two hours and then went for a frappa. He was really tired for a while but all in all had a great day. They are going to start the trach trials tomorrow, so that is the big prayer for tonight. They feel he is now strong enough to try again praise the Lord. It will be one of Matt's hardest battles to recovery. Thank you so much for all the company, blog comments, cards and prayers they are a highlight of Matt's day. 1 Thessalonians 5:17,18 Pray without ceasing. In everything give thanks for this is the will of God in Christ Jesus concerning you.

Lots of Friends

Praise God Matt had a better day today. He was able to get up and go outside for a tour, went past the little school house and up college drive for a bit, got to smell the diesel from all the buses. He got to visit with lots of friends the last couple days and that always brightens his day. Only one vomiting session today, so did keep down a little food. He also had a lot of pockets of secretions in his lungs and was suctioned a large amount. Things are at a stand still with City, talked with a couple people today, but not much progress. Thank God also for the wonderful staff that we have gotten to know and have helped with Matt's care, they have been so encouraging to us all. Prayers for today are that a solution will be found, Matt's lungs will clear up so he will be able to get off the ventilator and get moved to rehab. Psalms 11:24 Therefore I say unto you, What things soever ye desire, when ye pray, believe that you receive them, and ye shall have them.

Reality Bites

Bit of an emotional day today. The realization of the severity of his injury and just how long it will take until full recovery hit Matt today hard, but tears can be cathartic and a little self-pity is okay. The next step is looking up and forward to the coming morning and realize every day is a step closer to getting back home. Physically the day was pretty good, sat up in his chair again for 3 hours and had less vomiting as well. His stomach is so small that he eats very little at one time, just spreads it out over the day. They believe he is ready to start his trach trials and once he is at City, things will move along quicker in the rehab department. Mom will hopefully talk with the CEO tomorrow and see if things can start happening for Matt's benefit. Please pray that Matt will get to City within the week and that the nurses will be just as wonderful as they are in RUH. Psalms 77:13-14 "Your ways, O God, are holy. What god is so great as our God? You are the God who performs miracles; you display your power among the peoples."

Strength and Patience

Matt is still having trouble with vomiting, but in the evening was able to keep down some macaroni and cheese, a glass of coke, and chocolate milk. He 's cough is much stronger and he is easier to suction. He watched some of the Riders game, but because they had given him some gravol he slept through a lot of it. Not to much happening today, just waiting for an opening at City. Prayers for today much the same, also that he will get movement to his left side, plus strength and patience for tomorrow. Psalm 71:14 But I will hope continually, and will yet praise thee more and more.

Waiting Game

Less throwing up today and was able to keep down a vanilla shake. Matt's still impacted, or full of, well, same thing you walk through in the pasture. But they gave him medicine in the feed tube to help clear it up. In regards to infections, Matt's seems to be in the clear. No one has said anything, and the old saying "No news is good news" seems to apply here. Matt is being catheterized every 6 hours now to try and train his bladder to fill, and then to hold it. So far not doing too bad. He was also able to get another bath in a real bath tub, not just sponge baths. There is a big push to move Matt to City hospital where the rehab can finally begin, however there are doors that need to be opened, and wheels to be turned. Unfortunately politics are involved with everything so it is a bit of a waiting game. Please pray that these doors will open and Matt can finally begin to focus on rehabilitation, not just recovery. Just a quick thanks to mom who is able to be Matt's advocate, and is Matt's full time trainer, always in his corner and giving him pep talks for the next round. Thanks Mom!! Proverbs 31:28-29 "Her children arise and call her blessed; her husband also, and he praises her: Many women do noble things, but you surpass them all."

Praise the Lord

Matt had a much better day today. He had a period of being sick after Physio this morning, but was able to keep down some soup, a few fries and a piece of ice cream cake. He also was able to go for a bath on 6th floor which sure made him feel better. Lots of company which always makes his day. Talking to the Dr. today and we are not sure when he will be able to go to City Hospital. We are finding out that there is lots of Politics in Health Care. RUH feels Matt is ready to be transferred out of acute care but City Hospital is full. Please pray for guidance on what we should do as we feel Matt needs to start Rehab as quick as possible. Prayers for tonight are that Matt's left lung will start working to full capacity and he will be able to start rehab. Mark 10:39 With Men it is impossible, but not with God: for with God all things are possible.

Chicken and fries

Matt is still having trouble with the vomiting, not sure what is the problem. He was able to get up today for a good 3 hours, which helps get everything working better. He had lots of company today and was happy to see everyone. He enjoys reading the blog comments. The staff also help brighten his day and keep him smiling. Not to much change, he was able to eat a few fries and a chicken strip, but that all came up along with his orange frappa. Prayers for today that Matt will be able to keep down food, gain some weight and get his own ventilator. Psalms 42:5 Tells us to "Hope in God and wait expectantly for Him"

Skinny Matt

Sometimes being skinny is not an asset. Matt is down to 157 lbs again, and is still throwing up in the mornings. They have increased his tube feeds and will not feed him in the mornings before physio, to see if all the movement is making him sick. They will try and feed him more frequently throughout the day in small amounts, instead of 3 big meals. Still enjoying his Frappos and soup. He had a great day in his chair, spent 3 hours in it and was really alert. Even went outside and enjoyed the very crisp summer weather (still technically summer until 21st). Tonight they suctioned him for lots of stuff in his lungs, but he rebounds quicker and his O2 levels are staying up. Mom said he is on the lowest setting on the respirator he has ever been, so continues to work hard all day, but is getting more conditioned. City Hospital was over to see Matt and it sounds encouraging he may be over there soon, it would be great to start more rehab and work on Matt's continued movement. He is now able to bend the outside 3 fingers on his right hand, so keep on doing those finger push-ups Matt. I don't have a verse tonight, but the words of a great song come to mind. "Shout to the Lord, all the earth let us sing, power and majesty praise to the King. Mountains bow down and the seas will roar, at the sound of your name. I sing for joy at the work of your hands, forever I'll love you, forever I'll stand. Nothing compares to the promise I have in you"

Praise God

Matt had a much better day. He had a low grade fever off and on, but only one episode with vomiting. He was able to keep down a orange frappe, some supper and then this evening he ate some macaroni and cheese. His weight is down again, so we are all pleased that he eating again. He said he was feeling much better this evening. We still don't know about the infections as the results were not in yet. He was happy to have company today. Our prayers for tonight are that Matt will continue to eat, no infections and his body will continue to heal to a full recovery. Psalms 57:2 I will cry unto God most high, unto God that performeth all things for me.

Patience and Prayer

Matt was feeling a little better today, played a few games of Golf with his sister and had lots of smiles for Amy. They had to take another sample of secretions tonight as he still has quite a bit of mucus in his lungs. They still do not know if he has another infection. He didn't get up in his chair, but they sat him up in his bed which makes into a chair. They had put a patch behind his ear to cut down on the secretions in his mouth, it didn't work as all it did was dry up his lungs and then they had a hard time suctioning him. They took out the catheter because of infection and now must train his bladder again. He was able to eat a few grapes and drink a Pepsi today, said they tasted great. Tomorrow they will try food again, I promised him some onion rings from A&W and a strawberry milkshake. Our prayers for tonight are Patience to deal with the many set backs and faith to trust God in all things. Hebrews 10:23 Let us hold fast the profession of our faith without wavering; for he is faithful that promised.

Chaos reigns

A staff shortage caused Matt to be doubled up today (1 nurse per 2 patients), which means he wasn't able to get up in his chair. They were very busy and it is hard to meet every person's needs. Had lots of company and watched the Riders lose only their third game this season. He had an okay day, but still feels like vomiting when he tries to eat. Lots of secretions in his lungs, so quite a bit of suction needed. They feel that something is brewing, but not sure what it is. Our prayer for tomorrow is that Matt's infections will be gone and he will be able to eat once more. Hebrews 12:1(c),3 says Let us run with patience the race that is set before us looking unto Jesus the author and finisher of our faith.

A New Puppy

Matt started the day with a bit of nausea after Physio. He wasn't able to eat today as his stomach just wasn't up to it, they will try again tomorrow. He felt better today and seemed to be breathing easier. They still don't know what or if any more infections are present, but maybe tomorrow. He had lots of company today, and also got a surprise from a family of another patient. The family had bought a toy puppy in a basket for their relative and the nurse brought it over for Matt to see. It looks and feels like it is real as it has a breathing motion. The family and some of the staff went and bought Matt one, his eyes lit up when they gave it to him. He has it sitting on his right side so he can feel it with his right hand. It was a wonderful surprise and a real pick me up. He is thinking of calling it Whispers, he told Jacki it is a he and is very quiet. He also beat Jacki in a game of Golf, which made him smile after losing so many games to her. The Lord says in Eph 6: 13, 17 "Take all the help you can get, every weapon God has issued, so that when it's all over you'll still be on your feet.... God's Word is an indispensable weapon." Prayers for tomorrow are that Matt infections will all be gone and he can start eating food again so he can continue to heal.

Sweet Amy...

Matt sure enjoyed seeing little niece Amy today. She looks at him with her big eyes and smiles, and Matt just grins. He really wishes he could hold her.... He's also a little jealous because she's started to roll. Our goal is for Matt to be walking when she does. Keep praying - Acts 3:6 "...In the name of Jesus Christ of Nazareth rise up and walk".

So, overall not a great day, but better than yesterday. Although he didn't throw up this morning, he did throw up this afternoon again which is very tiring. We now fear that that he once again has pneumonia due to some of the vomit getting in his lungs (aspirates). A culture will be sent tonight and we will know the results tomorrow. Please pray that we are wrong and that he doesn't have pneumonia, but if he does, that it will be dealt with quickly and effectively. Psalms 46:10 tells us to Be still, and know that I am God. Besides a "down" afternoon, Matt was pretty bright-eyed and bushy-tailed this evening and was able to visit, laugh, and talk about food (he hasn't eaten since Wednesday, but feels he'll be ready for food tomorrow). Also, Matt really enjoyed the video from his friends in Porcupine - especially the homemade 3-wheeler! Thanks everyone who drops by to visit,sends messages and well wishes, they really brighten Matt's day.

A rough day

Matt had a really rough day. He had started throwing up last evening, it continued through the night and all during the day. He has been running a low grade fever for the last three days. They were not sure what was the matter so they took some x-rays and then took him to the main floor to see if the feeding tube was not in the right place again. They put in a new feeding tube and changed the rate of how much he is getting. He will still be able to eat, which is now a regular diet, but if he has a day like today he will continue to get enough nutrient ion. He has gained about 10 lbs, which for Matt is not very noticeable. He had lots of company to see him, but they were not able to get in as he was sleeping most of the day from all the Gravol he was given. The Dr.'s from City Hospital were in to see Matt today and they are trying to make the arrangements to get him moved to the I C U their so they can also start his rehab. Matt is so blessed to have so many caring Nurses and staff at R U H, they are so good to him and us. Prayers for tonight and tomorrow are that Matt's infections and vomiting will subside and he will again be eating and on his way to a full recovery. Thank you for your continued prayers and kind thoughts. John 16:23, 24 says "Verily. Verily, I say to you, whatsoever ye shall ask the Father in My Name He will give it you...ask and ye shall receive, that your joy may be full."

No More Infections, Please!

Today Matt had a swab taken to see whether he has MRSA, a relatively nasty infection that can be dangerous in patients like Matt. Apparently a patient 2 beds down from Matt had it, so as a precaution they want to make sure he doesn't have it. The results won't be in for a few days, so lots of prayers that the test results are negative. He did throw up after supper, but they feel it was from a nasty coughing spell so soon after eating. All that food gone to waste! Thank goodness for the feeding tube. He was up for over 2 hours in his chair and had tons of company, which always brightness Matt's day. Another high note was meeting the author of the book "Healing Nuggets". The christian nurse brought him in to talk and pray with Matt. Just a note: Matt hasn't had any breathing trials for awhile. They have lowered his O2 to 33%, the lowest it has been since the pneumonia. They want him to work harder all day instead of really hard for 1 hour and spend the next 4 hours recuperating. As a family, we would like to send out our gratitude to everyone who has donated money towards Matt's recuperation and recovery. The generosity of people is astounding and mom couldn't be with Matt without it. The light is shining bright throughout Saskatchewan and beyond. 2 Corinthians 9:7-8 "Each man should give what he has decided in his heart to give, not reluctantly or under compulsion, for God loves a cheerful giver. An God is able to make all grace abound to you, so that in all things at all times, having all that you need, you will abound in every good work".

Two Steps Forward, One Step Back

I am so happy to write the title on progress rather than regression. Mom says Matt's strength is improving everyday, more in his right leg then in his right arm, which is a little strange but we will take it. Today when mom put her hand to the bottom of Matt's big toe, she could feel him putting pressure against it. Also when she held his right arm at the elbow and wrist, she could feel and see slight pulling by Matt. Keep it up Matt! They are thinking of trying Matt on a regular diet tomorrow, instead of the soft one he is getting now. Soft eggs and mushy cereal doesn't sound appetizing and I am sure Matt is tired of baby food! At 6 foot 7 inches he probably wants a HE-MAN meal. Just think, last week he was barely able to drink water, and now look. Real food. On the downside he had a bit of trouble with his breathing this evening, not in great distress but they did have to bag and suction him for about 40 mins, which really plays him out. But he is bouncing back so much better after those episodes, that it is just a speed bump now, instead of a mountain. So amazing that when I read the comments, there are people as far away as Florida reading this blog. Internet is good for somethings. There is goodness every where if we just look. Matt 6:22 "The eye is a lamp of the body. If your eyes are good, your whole body will be full of light". Keep the lights on!

Putting on weight

I am not sure how Matt is putting on weight, he sleeps until 3:00 pm! Dad usually goes in the morning to feed Matt his breakfast, and was a little upset that Matt slept through it. I think Dad enjoys feeding Matt as much as Matt likes eating! Mom did say they are continuing to feed him through the tube during the evening and nighttime to make sure he doesn't start to lose again. But those frappes that mom gets him have over 600 calories, so a few more of those and he is set. Regarding the infection, it is a urinary tract infection and they have to change Matt's catheter. It is extremely painful and Matt doesn't want it done, but it is the best way to prevent the infection from getting worse. Lots of prayers on helping Matt with the pain. Mom also said that though he isn't moving anything different since yesterday, those movements are getting stronger. Keep it up Matt! You have a whole country cheering for you, from Nanaimo B.C. to Newfoundland, plus an all star international squad as well. I read a verse from an e-mail I received from Esther and Henry Penner in Yorton about Matt. Lam. 3:22-23 " Because of the Lord's great love we are not consumed, for his compassions never fail. They are new every morning; great is your faithfulness."

Go Roughriders!

Matt had a good day, especially when the Roughriders won. He even had a few of the nurses watching with him when it wasn't to busy. He also had a few ketchup chips, however they were harder to swallow because of his sore throat. They took a sputum swab and throat swab to see what infection he has. The already started him on a very expensive antibiotic to make sure it doesn't progress into anything bad, like pneumonia. Mom says Matt"s chest muscles are getting stronger so hopefully he will be able to cough more effectively and keep the bad stuff from settling into his lungs. Matt's leg movement remains the same. But they noticed when they laid Matt's right hand sideways, the outside 3 fingers bent a little. Whether that was active movement or just spontaneous they were not sure, but I will take it as positive. He was also able to turn his right wrist slightly as well, so things are starting to click. It may not be very fast, but like the turtle that won the race, it is the outcome we are looking for. The christian male nurse came to see Matt and pray with him. Matt really likes him and has enjoyed the book he gave him "Healing Nuggets". I know I have used this verse before, but it is so good. Romans 15:13 "May the God of hope fill you with all joy and peace as you trust in him, so that you may overflow with hope by the power of the Holy Spirit".

Sleepy Day

Just wanted everyone to know that Mom has been doing the blog for over a week. We were on holidays and wanted her to know she did a great job. Matt's day was that of a typical teenager, he slept until 3:00 p.m. However they had woken him up a few times for his exercises. He did only one trach trial for 1 hr 10 min. Matt also did something today that no one can figure out. He can slightly roll his right leg back and forth! Usually it would start with his right arm, but Matt is so unique that he just has to do it differently! Cheers for Matt and his individuality! Thanks be to God. Matt was able to eat mashed potatoes and gravy today, but had a hard time swallowing the turkey because his throat is sore. They believe he has another infection, that originated from a urinary tract infection. His trach was finally healed and now it is infected as well. The infection is also causing his backside to breakdown. Prayers that it will heal quickly and no pneumonia will develop. Matt states he wants us to pray for Beaner, a young fellow from Porcupine that was injured in a motor vehicle accident last night and is in the hospital too. In John 14:1, Jesus says" Do not let your hearts be troubled. Trust in God; trust also in me".

Getting Stronger

Matt had a bath today, they took him up to the 6 th floor to use the tub, he said it felt great. He was really tired after his bath and trach trial, so slept a lot of the morning. His right hand and arm are getting stronger, he can move all five fingers and put some pressure on the thumb and fore finger. He can move his toes a little bit easier also, still has to concentrate to get things to move. He was able to eat a cookie today and also some cake, he had a Carmel frappa and a Iced Cappuccino from Tim Horton's that his nurse brought him. She also did a manicure and pedicure for him. Thank you all so much for lifting Matt up in prayer day by day. Psalm 146: 1 tells us Praise ye the Lord. Praise the Lord, O my soul. Psalm 121:1 states I will lift up mine eyes unto the hills, from whence cometh my help.

Fries and soup

Matt had another good day. He was able to have a full fluid diet and then they tried fries at supper, they were harder to swallow so didn't have too many. He enjoyed the potato soup and ice cream, but the coffee was the best. Tomorrow he will get another frappa, will try strawberry this time. He did get to go outside for awhile and also did two trach trials. He was very tired this afternoon so did some sleeping. He got a Rider jersey and hat from some friends, was excited about that. Matt was happy to have company. He so enjoys the Nurses and staff they are all so good at making his day as good as they can. We are so thankful to them all. Psalm 105:1 states O Give thanks unto the Lord call upon his name: make known his deeds among the people. Matt is always happy to read all the comments on the Blog and says Hi to all.

Swallowing assessment a go

Praise the Lord Matt's swallowing assessment went well. He was able to have a orange frappe drink and was smiling from ear to ear. For the next few days he will get a fluid diet, and then if he does okay will go to soft dental and then on to the good stuff. Staff were very excited for him as were we. He was able to go outside today and did a tour of the main floor. Company in so day went very fast. He is doing well on portable vent. Psalms 118:29 says O give thanks unto the Lord, for he is good: for his mercy endureth for ever. Our prayers for tomorrow are that Matt will continue to get stronger and start moving his left hand.Jeremiah 29:12 says Then you will call upon me and come and pray to me and I will listen to you.

Matt says Hi to all

Matt had a very good day today. They put a size 6 trach tube in from an 8, they also deflated the cuff that fits around the trach to keep the air in, so he was able to talk and hear his voice for the first time in two months. He was excited to be able to communicate with visitors and staff. His voice was quite husky but nice to hear him talk. They also put a new feeding tube in, so now is getting some calories again. They set him up on a portable vent, it will a bit easier to get around. It is the same kind that they have on order for him. He will go for his swallowing assessment tomorrow at 3 o'clock. Lots of company today, which always brings a smile to his face. Prayers for tomorrow, swallowing assessment and lungs and diaphragm to stenghten so he will be able to breath on his own. Thank you all for lifting Matt up in prayer and praise God for what he has done and will continue to do. Isaiah 25:1 says O Lord, you are my God, I will exalt you and praise your name, for in perfect faithfulness you have done marvelous things, things planned long ago.

Patience and Faith

Matt is happy to be able to have company. It definitely makes the days and evenings go faster to see other faces. Today was another day of not much happening. This morning the nurse noticed that Matt's feeding tube had been pulled partly out, so they had to stop the feeds and get the Dr. to look at it. They decided to take him back to surgery and put a new one in, that will be done sometime tomorrow. His swallowing assessment is also scheduled for tomorrow. They were able to keep the fevers down today with the fan and cool cloths. Matt enjoys reading the e-mails, cards and the blog comments, they always brings a smile or two. Our prayers for tomorrow is that the feeding tube will be replaced in the morning and that the assessment will go well. Hebrew 10:23 says Let us hold unswervingly to the hope we profess, for he who promised is faithful.

Another good day

Matt had a good day today. He had lots of company and a fun loving nurse to help him through the day. He was able to do three trails and even though he gets very tired he tried his best. His fever went up several times during the night and day, but so far they have kept it down with a fan and very light covers. He will also do another swallowing assessment on Tuesday. He is very anxious about the assessment and really needs your prayers to stay calm and have faith in his ability to succeed in all he needs to get through. Hebrews 11:1 states "Faith is the substance of things hoped for, the evidence of things not seen."

A Good Day

Matt had a good day today, very positive Nurses and staff. He was able to get up and go outside for awhile. Did two trails and did well. They changed some of the vent settings so he is doing more work on his own during the day and then giving more support during the night so he gets more rest. They are trying to get his lungs stronger. Had a fever during the night and this morning, but was good all day. Thank You for your continued prayers for a full recovery, it is such a blessing to know so many people care and are praying for Matt and our family. John 16:24 Ask and keep on asking and you will receive, so that your joy may be full and complete.

A different day

Today started out fine, Matt looked good and was in good spirits. He did two trails in morning and afternoon and did well. He had a different Dr. and with that came different ideas. Not sure what it was all about, but from what I gathered he decided that Matt is getting to tired on the trials so has told Matt he only has to do what he thinks he can do and they were not going to push him. He is also going to put in an order for an portable vent. Came away not to sure what direction we are going and what it all means. Matt was very discouraged and not sure what to think. Please continue to pray for guidance for Medical staff and also for us, also that Matt will continue to be positive about his recovery. Hebrews 4:16 Let us therefore come boldly unto the throne of grace, that we may obtain mercy, and find grace to help in time of need.

More Excitement

I couldn't wait until this evenings news to write in the blog. It was just too good. Matt moved the toes on his right foot! Mom of course was visiting other people and he was trying to get her attention by clicking. He then told her to watch his right foot. She said she could hardly believe it. Just like dad did, she called the nurse over to confirm what she had seen. What great news! Way to go Matt! Psalms 145:3 "Great is the Lord and most worthy of praise; his greatness no one can fathom". Had also had 2 breathing trials so far, 1:10 and 1:10. That is as long as they will let him go. He did de-sat after laying on his right side, or his bad side, but again after some physio and suctioning, the o2 went back up. Tonight is his last dose of antibiotics and so far he is clear from any more infections. He's had a bit of diarrhea, hopefully it isn't a virus, just too many meds to keep everything soft, and the nutritionist said they may change his food as well. But we will see tomorrow. Also a fellow from City Hospital rehab came to see Matt, and currently there a re no beds, but maybe we will see in a few weeks. Right now ICU is still the best place for his lungs, but the rest is obviously wanting to get on with rehab! Sorry Matt, cannot divide you up and send pieces to where they must go. Your too good-looking just in one piece!

Hills and Valleys

Some good points to the day and not so good points. Matt had his 1st breathing trial this am and did really well, almost 2 hours. However this afternoon they tried a 2nd one and he kept de-sating, his O2 levels kept dropping and they could not get them up. They bagged him and suctioned him for quite awhile before things got a bit better. Then chest physio came in to do his regular physio, and Matt's O2 levels dropped again. They were quite worried about another collapsed lung or a clot, so did x-rays and found nothing. However his charge nurse heard a lot of crackles in his left lung, or his good lung, and did more physio and suctioned a large amount of loose phlegm, and Matt improved almost immediately. All this makes him quite tired so they did no further trials for the rest of the day. But a few good notes: he had both tubes removed from his nose, and he made the nurse take them out right at 4:00 on the dot. Felt great! Also mom noticed he tried to push against her hand with his index finger and she felt a light pressure. Before he was moving his fingers with no resistance, so it's like push-ups for his fingers. He was also up in his chair for 2 hours and did really well. Prayers for the night time, as Matt gets quite anxious whenever anything goes wrong with his lungs. 1John 4:4 "You, dear children, are from God and have overcome them., because the one who is in you is greater than the one who is in the world".

Painful Day

Well, Matt finally had surgery for the insertion of the tube into his small intestine at 4:20, and with any surgery it will cause him pain. Has been fasting since midnight last night and cannot have nothing through the tube for another 24 hours. That will be one hungry boy. Prior to surgery another tube was put in his other nostril to drain excess fluid and air from his stomach. It was a large tube and Matt said it hurt so bad. He had broke his nose in hockey this year and it still is painful, so this sure didn't help. He was able to do 3 breathing trials:1 hr 40 min, 1 hr, & the last was 35 mins. During the last trial, they accidentally pulled on the large tube in his nostril and that was the real cherry on the top. They have been trying to get Matt to do more exercises with his right hand, and he seems to be moving his fingers better. They also noticed more spasms in his legs and left hand, so were are hoping that is good news, that the brain is trying to send impulses to those parts of the body and the wiring is trying to re-route itself. Not sure, but hope is the best medicine, and as one surgeon writes"true hope can only come from Christ". Psalms 16:8 "I have set the Lord always before me. Because he is at my right hand. I will not be shaken". Prayers for a better day tomorrow, Matt.

Another Day

The am started throwing up again times 3. Ordered new anti-nausea medication because the Gravol isn't really working and it makes him sleepy. They will be putting the tube into his small intestine tomorrow morning. They will have to put him under anesthetic, so prayers that he will come out of it okay. Physio worked with him and states can feel the muscle in his right arm is strengthening. Matt also states he is trying to move his right leg because he has more sensation in that leg than in the left leg. He also had 3 breathing trails for total of 4 hours and did really well. They would have done 4 but they had an emergency. Mom feels his chest muscles are getting a bit stronger and he can cough up some of the mucus to the top now. They also had a psychologist in to assess whether Matt is depressed or not, and was impressed by Matt's spirit in such a situation. I found a quote in scripture that seems to be written for Matt. Hebrews 12:12-13 "Therefore strengthen your feeble arms and weak knees. Make level paths for your feet so that the lame may not be disabled, but rather healed."

One day at a time....

Well, Matt did not get sick or nauseous this morning - first time in a few days, and we were told he had a great sleep last night (unlike the rest of Saskatoon residents who heard the thunderstorm all night!) Thus, he was alert and felt really good for most of the day. He did 3 breathing trials (I can't remember how long the first 2 were), and the last one was only 40 minutes at 6:30 pm - but he was pretty tired by then as he had sat up in his bed for an hour before that. We played about 3 games of card golf (9 holes only), and this time the luck was on my side, and Matt pouted!! - It was quite funny! I'm sure we'll have a rematch tomorrow. Let's pray that Matt has another restful night - "Seek the Lord, and his strength: seek his face evermore." Psalms 105:4