Tuesday, October 9, 2007
On The Move Again
Matt was in a powered chair today for a short time. It isn't the one made for him, but it will do. It is one with hand controls, so they were unsure if Matt would be strong enough in his right hand. They had to make a few adjustments but by the 3rd attempt he was moving the chair himself with the controls. He couldn't go far but imagine that few minutes of freedom. Careful walking in the hospital now! Matt will soon be on the loose! He gets tired quickly, but that is to be expected. It is taking everything he has right now to move, and that is exhausting. He is also out of isolation, which is great because Jacki and Amy are coming down and we don't want any sick babies! He is feeling and looking better. They gave him his sleeping pills early last night and he was sleeping by midnight, so less groggy today. Matt is eating better as well, however he doesn't eat until after 3pm, still a bit nauseous before that. Pray that God will continue to lead the way and that we trust in him. Romans 15:13 "May the God of hope fill you with all joy and peace as you trust in him, so that you may overflow with hope by the power of the Holy Spirit."
Monday, October 8, 2007
Mediocre Day
Not too much to report today. Matt had no further episodes of de-sating. But they also stated they will not start any trach trails until they feel he is stronger. Hopefully that will change. Very sleepy for most of the day and some friends were unable to visit. They also didn't get him up in his chair either, so maybe tomorrow the will start to push a little bit more. All good athletes need a kick start once in awhile, and Matt will have to work harder than anyone. But he had a good supper and no emesis. Small blessings are always there, you just have to look. James 1:12 Blessed is the man who persevere under trial, because when he has stool the test, he will receive the crown of life that God has promised to those who love him."
Sunday, October 7, 2007
A Very Happy Thanksgiving
Matt gave us something to really be thankful for. He rolled his left leg slightly and again moved his left pinkie finger! Make a joyful noise! "I will enter in his gates with thanksgiving in my heart, I will enter in his courts with praise. I will say this is the day that the Lord has made." They were very worried with the new med if it would inhibit his movement, which it can do, but it also promotes movement by preventing some of those spasms that make movement impossible during range of motion or exercise. Talk about a mouthful. Ate well today with no emesis. Have to take it really slow to get his stomach used to more food. They are again turning off his tube feed form 7am until 12am. Would be nice to eliminate one more tube. However that left lung of Matt's is continuing to give him problems. He de-sated again today, once he was down to 62% O2. They think it is a spontaneous pneumothorax, which means that his lung spontaneously collapses and then regains normal lung function within a short time. Still not great but on chest x-ray his lungs were clear. So please pray for healing of his diaphragm and lungs so that soon the ventilator will come out. Psalms 95:7 "for he is our God and we are the people of his pasture, the flock under his care."
Saturday, October 6, 2007
Lots of Company
Matt was surrounded by members of the Relitz clan today. Makes such a difference when company comes and breaks up the routine. Had no diarrhea today, but was so hungry at supper, maybe ate too much too fast and everything surfaced again. But he is looking better even though he is so tired. He had a difficult night. He de-sated twice, which he hasn't done for quite awhile. O2 went down to 72% times 2, both times when they laid him on his left side. Lung still isn't strong but we will see. There were able to deflate the cuff for about 2 hours so he could visit and was up in his chair for 2 hours. He's neck is still so sore, with huge knots the size of crab apples. Needs a good massage! Any takers? Mom may have to go back to work this week, and Matt's having a hard time with the idea. Please pray that the right decisions for what needs to be done will come to us clearly and that we follow the path. Psalms 56:4 "In God, whose work I praise, in God I trust; I will not be afraid, What can mortal man do to me?"
Foot Long Sub
Matt had a better day today, not as much nausea. He still had to be suctioned for a large amount of secretions, but is feeling better. Was able to get up in his chair for three hours. Yesterday we said he couldn't have company, which is wrong, he can but you have to wear a gown and gloves. Matt and his friends that stopped by yesterday had a good laugh and looked really cute in their costumes. They thought they should take them home. Today Matt was able to eat a lot better and was able to polish off a foot long sub, a Gatorade, a ginger ale and two digestive cookies, all for his midnight snack. The nurse and I thought for sure he would be sick, but he did great. Thank You to everyone for their prayers and support as Matt continues on this road to recovery. Prayers for tomorrow that all infections would clear up and Matt's lungs will get stronger. Psalm 118: 24 " This is the day that the Lord has made, We will rejoice and be glad in it."
Thursday, October 4, 2007
New Day
Much better day, but did receive a bit of bad news. Matt has an infection called C. Diff., which is a very potent bug that can really hit people in Matt's condition. He must now be in isolation and not many people will be able to visit, and he will not be allowed out of his room for up to a week. This certain "bug" causes lots of vomiting and diarrhea, so will make him weak and dehydrated. However they started him on the right antibiotics for it and are monitoring him closely. He slept until noon because of his night, and managed to eat a little soup without throwing up. They had to put him on a new medication for his spasms. When they try to do his exercises, the spasms are inhibiting his range of motion. The side effects are not great. He has stopped moving his left fingers and he has numbness in his right hand. Not sure which is worse. But they did hook him up to a shoulder sling, which allows him to bring a spoon (that is hooked to his right hand with elastics) to his mouth. They tried ice cream and the therapist put it on his spoon, but Matt managed to get it to his mouth a few times. First time to feed himself in over 3 months. Great job Matty! They will not do any trach trials until the infection clears up, but they are still deflating the cuff for 2 hours so he can talk. Goodness and mercy can be found, if we just look. Hebrews 4:16 "Let us then approach the throne of grace with confidence, so that we may receive mercy and find grace to help us our time of need."
Wednesday, October 3, 2007
Keeping Nothing Down
Take a step, lose a step. Pattern continues. One of his worst days yet for throwing up. Drank water, threw it up, drank tea, throw it up. Lot 8 lbs since last week. They are still unsure what is causing all the problems, but started him on an IV again for fluids, because he is becoming dehydrated. They did get him up this am at 7:30 am, but it was really cold outside and he didn't enjoy it too much. Also got his hair washed so smells spiffy. Hard days will continue to happen, but we must be thankful for everything. Just the fact that Matt is in a nice, clean bed with a very expensive air mattress, he has mom for a cheerleader and dad to run interference, and trained professionals to help him. I heard a friend of mine say we need to start "Thanks Living". Thanksgiving is just one day of the year, but "thanks living" runs year round. 1Thess. 5:16 "Be joyful always; pray continually, give thanks in all circumstances, for this is God's will for you in Christ Jesus". Rejoice that today is nearly over, and tomorrow is a new day with no mistakes.
Sleepy Day
Matt had a very sleepy day, lots of nausea and gravol. They are not sure what is causing all the gas build up, but are trying a new med to see if they can control it. He is also starting to spasm much more so it is difficult to keep everything moving. He was up in the wheelchair for a couple hours and took a short walk around third floor. He is still on antibiotics for the lung infection and has five days left of that. He ate well late last night and enjoys home made food. He had his cousin Chris as his RN yesterday and gave him a hard time. Prayers for today that he will have a better day and continue to improve in mobility. Philippians 4:6 Do not be anxious about anything, but in everything, by prayer and petition, with thanksgiving, present your request to God.
Monday, October 1, 2007
Great Day for Matt, Bad Day for Others from PP
Matt had very exciting news today. He will get his motorized wheelchair next week, and the physiotherapist thinks he will be strong enough in his right hand to move the controls. Otherwise he would have to steer with his head and neck, and would be a lot more difficult. He is now able to have his hand on his leg, then use his shoulder muscles to put his hand on the ball by his leg. Then he can squeeze it lightly, grasp it in his hand, and turn his wrist so the ball faces upward. If mom holds his arm up, he can release the ball when he wants. Great job Matty! Feels much better today and had his cuff deflated for 2 hours with no trouble. He is also eating better due to new anti-nausea medication, so they have stopped his tube feeds from 10 am until 7 pm. As long as he eats 900 calories in that time, they will continue to shut it off. If he keeps this up, they may be able to remove the tube feed all together. He is now up to 176 lbs, a far cry from the 154 lbs he was 1 1/2 months ago. More company in to see him. Relatives from B.C. plus people from home. Also a RN from RUH was in and thrilled with his continued progress. But on a sad note, we would like everyone to pray for a family in Porcupine, who's little boy is in very critical condition in RUH. I used this verse in the beginning of Matt's struggles when there was very little hope. Job 9:10 "He performs wonders that cannot be fathomed, miracles that cannot be counted".
Wings and ribs
Matt had a sleepy day with some nausea. He is still on antibiotics for the infection in his lungs and we are praying this will clear it up. No trach trials until infection is gone. He did eat a little today, he tried the mild and lemon and pepper wings but found them to spicy for now so he stuck to the ribs. He finds he is more hungry at night than in the morning. He was up in his chair today and was happy for the company this afternoon. Was able to have the cuff down for two hours, which because he can talk makes it much nicer to visit. Thanks you so much to the people who have been coming to see him as it makes the days much happier. He is always happy to hear from the ones who write on the blog and send mail to the hospital. Thank you all so much for praying for Matt as he continues his journey to recovery. Psalm 27:14 Wait for the Lord; be strong and take heart and wait for the Lord.
Saturday, September 29, 2007
Little Tired
Matt was groggy most of the day from the Gravol he is receiving for nausea. They notice whenever his trach is moved too much or it becomes irritated, he feels more sick. Also the antibiotics he is on can make you sick to your stomach as well, so maybe when they are down he will improve. However he did not throw up and ate quite well. Thank the Lord for small blessings. He was all dressed up in his roughrider gear for the big game. I had brought him my roughrider jersey from 1988, and the riders won the Grey Cup the following year so it is good luck. Got a visit from Rocky who is now in a motorized chair and showing Matt what he has to look forward too. More good times ahead. Visitors from Matt's old job were in to visit, which he always enjoys. Moved his middle finger on his left hand today as well, but needs to concentrate very hard. Keep it up Matt! Practice, practice, practice. Romans 15:13 "So may the God of your hope fill you with all joy and peace in believing that by the power of the Holy Spirit you may abound and be overflowing with hope."
Too Much Estrogen
Today Shauna, myself, Jonmarie, mom, and dad were in to visit Matt. Dad and mom took Jonmarie out to play in the park. The female nurse and respiratory therapist were in the room and asked Matt how he was feeling. He said he was fine but there was too much estrogen in the air! Maybe some will rub off! But maybe it was all that positive energy that helped Matt move his Left pinkie and ring finger for the first time! More great news! Praise the Lord. Matt did have a pretty good day, but he does have an infection in his lungs which he is getting antibiotics for. They did have to suction him more today, but he is so much stronger he can cough it up. Ate well with no vomiting today. Up in his chair all dressed and looking spiffy. And they had given him a whirlpool bath so he even smelled spiffy (unlike the regular stinky boy smell!) Watched "Wild Hogs" on his portable DVD player, so funny. Had a sad moment thinking about home and missing his friends. But you know Matt, you can't keep a good man down. Continue to pray that Matt will get breathing on his own and able to leave the ventilator behind...Psalms 118:8 "It is better to trust and take refuge in the Lord than to put confidence in man."
Friday, September 28, 2007
Looking Great
The girls and I travelled from Red Deer today to see Matt's progress. I spent the latter part of the evening with him and didn't get back to Auntie Karen's until 1 am. Excuse for the late blog entry. Matt's day didn't start so well and hoping to pinpoint the nausea. But he was up in his chair and able to enjoy the beautiful fall weather. By the time I arrived, he was bright, cheerful, and really awake, the night hawk. To be able to talk, the respiratory therapist deflated the cuff of his trach so air could pass through his voice box. So great to hear that raspy voice. He stayed that way for 3 hours, with no assistance from the machine except oxygen. He didn't even break a sweat! So great to see those finger movements and was even able to give Matt a little Swedish massage! Neck muscles are really tight. Also a scalp massage, so he owes me big time! Looks so strong and hoping to be off the respirator soon. Then big plans to be home for Christmas holidays! Ephesians 1:6 "So we praise God for the glorious grace he has poured out on us who belong to his dear son."
Wednesday, September 26, 2007
All Dressed Up
For the first time in 3 months, Matthew was all dressed in a T-Shirt Kim Logan had given him, sweatpants, socks. Mom said he looked like a million dollars. Sat up in his chair for 4 hours, tired him out though and did get a bit nauseous. But he still ate well for supper, almost a whole chicken burger (without the bun). They managed to keep his temp down today with just Tylenol, still unsure where the infection is but pray that it will clear on its own with no antibiotics. The physiotherapist did a functional assessment to see what Matt's mobility level is at, and stated that she felt muscle tone in his left forearm and his left thumb quivering, which is great. She gave him some exercises to do to strengthen what he has for mobility. They are hoping to start his trach trials tomorrow, he had to switch to a portable ventilator and thought it might be better to let him adjust. Nolan got to see Matt's "partner in crime" Rocky, who was with Matt in ICU in RUH. He is in rehab and is off his ventilator, and had his motorized wheelchair already. Things to look forward to. Hebrews 11:1 "Now faith is being sure of what we hope for and certain of what we do not see."
Tuesday, September 25, 2007
Quiet Day
Well all the excitement of the move is over. Matt slept well considering it was a new place with different sounds and people. Will take awhile to get to know the staff, but the seem really pleased that Matt is finally there. The respiratory therapist was in to see him, and think they will start the trach trials tomorrow. Their speciality is getting people weaned off the trach, so they know how to push and when to step back. Hopefully the trials will go well. Unfortunately Matt has another temp, but his lungs were clear so it is an infection somewhere else. The believe it is a urinary tract infection so poor Matt again had to have the catheter put in. Very unpleasant. They also noted Matt was more nauseated after physio, so they don't give him Gravol as quickly and he seems to be more alert for the rest of the day. They were unable to get him up in his chair, but he sat up in his bed at 80 degrees for most of the day, which is great for his lungs and blood pressure. After being in bed so long, your body has a difficult time adjusting to being upright, so it's training your body all over again. They also said Matt needs to eat more protein, and the hospital food is not quite to Matt's liking, so we have to come up with some recipes that he will enjoy and increase his protein intake. 1 Peter 5:7 "Cast all your anxieties on him because he cares for you." Pray for Matt in his new endeavour.
Monday, September 24, 2007
THE BIG MOVE
The day finally arrived. By 4:30 p.m. Matt was moved to City Hospital ICU via ambulance. He was having a rough day with his nausea, and was only able to sit up in his chair for an hour. But mom said when he got to City, even though he was apprehensive and worried, he looked brighter and was even able to eat soup, spaghetti, and some bacon, the most he has eaten in a week. We have waited so long it was a bit of a shock it happened just like that, no warning at all. But we will take it! It is a great move forward, but scary too. Matt and mom became so familiar with the comings and goings of the ICU at RUH, the staff were great, and now they are in unfamiliar waters. But the staff at RUH were very happy for Matt, and they knew City was where he needed to be so he continue forward in his progress. Matt's new room is big and private, and the ICU is much quieter, so hopefully he will get to sleep at night without the use of sleeping pills. Matt, the road ahead will be the toughest thing you will ever do, but with so many people cheering for you and the Great Physician by your side, you can't go wrong. 1 Peter 5:10
"And the God of all grace, who called you to his eternal glory in Christ, after you have suffered a little while, will himself restore you and make you strong, firm and steadfast."
"And the God of all grace, who called you to his eternal glory in Christ, after you have suffered a little while, will himself restore you and make you strong, firm and steadfast."
Sunday, September 23, 2007
News From Nolan
Nolan and Lindsay arrived this evening from Calgary. Matt brightened up immediately, and seemed really alert and happy. Nolan could not believe the progress Matt has made in the last 2 months since he saw him. He was stunned to see Matt move his fingers and big toe on his right foot. Matt was even able to put slight pressure with his big toe against Nolan's hand. Also, when Matt tried to move his left hand, there was no movement but he noticed Matt's bicep contracting, which is great. His right hand is also getting stronger. He can move his 4 fingers off the bed, and curl them up a bit as well. And the grip with his pointy finger and thumb is improving as well. Hopefully within the next few days, physio is going to rig up a sling that when Matt moves his shoulder, it will lift his hand. Such progress is great. Psalms 47 1 "Clap your hands, all you nations; shout to God with cries of joy." Lots of continued prayers that the nausea will subside and he will be able to eat more. They even gave him some baby Oval, which Matt doesn't care for, but I think he is getting flashbacks from when he was a baby and we gave it all the time for 14 months! No trach trials again today, but Matt was really tired from all the Gravol. Scarlett O'Hara from Gone With The Wind would say, "Tomorrow is another day."
A Fun Time
Well the Riders were so close, but close is only good in Horse Shoe. Matt had a good time watching the game with friends and family. Tried a little pizza and coke and sat up for the entire game. He was really tired this evening, but was a good tired. He wanted me to thank the ones that could come and share the game, or parts of it with him, meant a lot to him and us. He also had other company and it sure helps pass the day. Thanks also to the staff that let us use their room to watch the game. He was a little nauseous this evening and needed a little gravol to settle his stomach. Prayers for today are that his appetite will improve and his breathing trials will go well. ( If someone listen, or stretches out a hand, or whispers a word of encouragement, or attempts to understand a lonely person, extraordinary things begin to happen. - Lorettaa Girzartis) Psalm 63:7 Because you are my help, I sing in the shadows of your wings.
Friday, September 21, 2007
Okay Day
Matt was tired today and slept quite a bit. He didn't feel well, but still managed to eat a few of Auntie Sandy's flax cookies! He worries when things go wrong, and we continue to pray that they will start going right more often. He was able to have a bath again today, because he is preparing for the big rider game tomorrow. They were able to book one of the conference rooms at the hospital with a big screen TV, so if anyone wants to join him for the game, just come on down. Mom is going to buy some chips and finger food, so it should be a good time. Sorry I have to miss it. The girls and I will be heading out to Saskatoon next weekend, and hoping to see him at City Hospital! Matt started his trach trials today, but only lasted 10 mins. Tomorrow will be better. If he could get off the ventilator, he may be able to go home for Christmas. That would be a great present. Isaiah 41:13 "For I am the Lord, your God, who takes hold of your right hand and says to you, Do no fear; I will help you. " That's why Matt's right hand is moving, God has a hold of it!
Double,Double
Matt was feeling much better today, was able to go for a walk around more of the campus and get a double, double at Tim Hortons. He enjoyed some Timbits and his auntie Sandy's flax cookies. Was able to keep his food down today, praise the Lord. He was more wide awake and able to visit with his company. He got to see some pictures of the Philippines which was a treat. Had a meeting with the Dr and she explained to us what they had in the works for Matt's move to City. They are hoping that it will be no longer than two weeks. The trach trials will hopefully be a go for tomorrow. Prayers for tomorrow, that the trach trails will start again and Matt will continue to get stronger. Thank you all for your continued prayers and support. Psalm 37:24 Though he stumble, he will not fall, for the Lord upholds him with his hand.
Thursday, September 20, 2007
A step back
Matt ran into another road block today. He started vomiting this morning, they did some e-rays and found out that he is again plugged up. They had to stop his tube feeds for a part of the day and start him on some more meds. They also suspect he has some more infections, so did blood work and cultures to see. He was very sleepy for most of the day and part of the evening. He felt better later this evening, and was happy with a pedicure and a manicure. Thank you so much Krista and the rest of the staff for making him feel so special. He also had some company which he didn't know were there, but it helped brighten my day. Our prayers for tonight are that Matt will have a good rest and keep on smiling. Psalm 63:7 Because you are my help, I sing in the shadow of your wings. Psalm 62:8 Trust in him at all times; ye people, pour out you heart before him: God is a refuge for us.
Wednesday, September 19, 2007
A Beautiful day to be outside
It was a beautiful day and Matt went for a tour of the grounds and some of the places on campus. He remembered some of the places from the tour they took in school and enjoyed a chance to see a lot of young people. He was outside for about two hours and then went for a frappa. He was really tired for a while but all in all had a great day. They are going to start the trach trials tomorrow, so that is the big prayer for tonight. They feel he is now strong enough to try again praise the Lord. It will be one of Matt's hardest battles to recovery. Thank you so much for all the company, blog comments, cards and prayers they are a highlight of Matt's day. 1 Thessalonians 5:17,18 Pray without ceasing. In everything give thanks for this is the will of God in Christ Jesus concerning you.
Tuesday, September 18, 2007
Lots of Friends
Praise God Matt had a better day today. He was able to get up and go outside for a tour, went past the little school house and up college drive for a bit, got to smell the diesel from all the buses. He got to visit with lots of friends the last couple days and that always brightens his day. Only one vomiting session today, so did keep down a little food. He also had a lot of pockets of secretions in his lungs and was suctioned a large amount. Things are at a stand still with City, talked with a couple people today, but not much progress. Thank God also for the wonderful staff that we have gotten to know and have helped with Matt's care, they have been so encouraging to us all. Prayers for today are that a solution will be found, Matt's lungs will clear up so he will be able to get off the ventilator and get moved to rehab. Psalms 11:24 Therefore I say unto you, What things soever ye desire, when ye pray, believe that you receive them, and ye shall have them.
Sunday, September 16, 2007
Reality Bites
Bit of an emotional day today. The realization of the severity of his injury and just how long it will take until full recovery hit Matt today hard, but tears can be cathartic and a little self-pity is okay. The next step is looking up and forward to the coming morning and realize every day is a step closer to getting back home. Physically the day was pretty good, sat up in his chair again for 3 hours and had less vomiting as well. His stomach is so small that he eats very little at one time, just spreads it out over the day. They believe he is ready to start his trach trials and once he is at City, things will move along quicker in the rehab department. Mom will hopefully talk with the CEO tomorrow and see if things can start happening for Matt's benefit. Please pray that Matt will get to City within the week and that the nurses will be just as wonderful as they are in RUH. Psalms 77:13-14 "Your ways, O God, are holy. What god is so great as our God? You are the God who performs miracles; you display your power among the peoples."
Strength and Patience
Matt is still having trouble with vomiting, but in the evening was able to keep down some macaroni and cheese, a glass of coke, and chocolate milk. He 's cough is much stronger and he is easier to suction. He watched some of the Riders game, but because they had given him some gravol he slept through a lot of it. Not to much happening today, just waiting for an opening at City. Prayers for today much the same, also that he will get movement to his left side, plus strength and patience for tomorrow. Psalm 71:14 But I will hope continually, and will yet praise thee more and more.
Saturday, September 15, 2007
Waiting Game
Less throwing up today and was able to keep down a vanilla shake. Matt's still impacted, or full of, well, same thing you walk through in the pasture. But they gave him medicine in the feed tube to help clear it up. In regards to infections, Matt's seems to be in the clear. No one has said anything, and the old saying "No news is good news" seems to apply here. Matt is being catheterized every 6 hours now to try and train his bladder to fill, and then to hold it. So far not doing too bad. He was also able to get another bath in a real bath tub, not just sponge baths. There is a big push to move Matt to City hospital where the rehab can finally begin, however there are doors that need to be opened, and wheels to be turned. Unfortunately politics are involved with everything so it is a bit of a waiting game. Please pray that these doors will open and Matt can finally begin to focus on rehabilitation, not just recovery. Just a quick thanks to mom who is able to be Matt's advocate, and is Matt's full time trainer, always in his corner and giving him pep talks for the next round. Thanks Mom!! Proverbs 31:28-29 "Her children arise and call her blessed; her husband also, and he praises her: Many women do noble things, but you surpass them all."
Friday, September 14, 2007
Praise the Lord
Matt had a much better day today. He had a period of being sick after Physio this morning, but was able to keep down some soup, a few fries and a piece of ice cream cake. He also was able to go for a bath on 6th floor which sure made him feel better. Lots of company which always makes his day. Talking to the Dr. today and we are not sure when he will be able to go to City Hospital. We are finding out that there is lots of Politics in Health Care. RUH feels Matt is ready to be transferred out of acute care but City Hospital is full. Please pray for guidance on what we should do as we feel Matt needs to start Rehab as quick as possible. Prayers for tonight are that Matt's left lung will start working to full capacity and he will be able to start rehab. Mark 10:39 With Men it is impossible, but not with God: for with God all things are possible.
Chicken and fries
Matt is still having trouble with the vomiting, not sure what is the problem. He was able to get up today for a good 3 hours, which helps get everything working better. He had lots of company today and was happy to see everyone. He enjoys reading the blog comments. The staff also help brighten his day and keep him smiling. Not to much change, he was able to eat a few fries and a chicken strip, but that all came up along with his orange frappa. Prayers for today that Matt will be able to keep down food, gain some weight and get his own ventilator. Psalms 42:5 Tells us to "Hope in God and wait expectantly for Him"
Wednesday, September 12, 2007
Skinny Matt
Sometimes being skinny is not an asset. Matt is down to 157 lbs again, and is still throwing up in the mornings. They have increased his tube feeds and will not feed him in the mornings before physio, to see if all the movement is making him sick. They will try and feed him more frequently throughout the day in small amounts, instead of 3 big meals. Still enjoying his Frappos and soup. He had a great day in his chair, spent 3 hours in it and was really alert. Even went outside and enjoyed the very crisp summer weather (still technically summer until 21st). Tonight they suctioned him for lots of stuff in his lungs, but he rebounds quicker and his O2 levels are staying up. Mom said he is on the lowest setting on the respirator he has ever been, so continues to work hard all day, but is getting more conditioned. City Hospital was over to see Matt and it sounds encouraging he may be over there soon, it would be great to start more rehab and work on Matt's continued movement. He is now able to bend the outside 3 fingers on his right hand, so keep on doing those finger push-ups Matt. I don't have a verse tonight, but the words of a great song come to mind. "Shout to the Lord, all the earth let us sing, power and majesty praise to the King. Mountains bow down and the seas will roar, at the sound of your name. I sing for joy at the work of your hands, forever I'll love you, forever I'll stand. Nothing compares to the promise I have in you"
Tuesday, September 11, 2007
Praise God
Matt had a much better day. He had a low grade fever off and on, but only one episode with vomiting. He was able to keep down a orange frappe, some supper and then this evening he ate some macaroni and cheese. His weight is down again, so we are all pleased that he eating again. He said he was feeling much better this evening. We still don't know about the infections as the results were not in yet. He was happy to have company today. Our prayers for tonight are that Matt will continue to eat, no infections and his body will continue to heal to a full recovery. Psalms 57:2 I will cry unto God most high, unto God that performeth all things for me.
Monday, September 10, 2007
Patience and Prayer
Matt was feeling a little better today, played a few games of Golf with his sister and had lots of smiles for Amy. They had to take another sample of secretions tonight as he still has quite a bit of mucus in his lungs. They still do not know if he has another infection. He didn't get up in his chair, but they sat him up in his bed which makes into a chair. They had put a patch behind his ear to cut down on the secretions in his mouth, it didn't work as all it did was dry up his lungs and then they had a hard time suctioning him. They took out the catheter because of infection and now must train his bladder again. He was able to eat a few grapes and drink a Pepsi today, said they tasted great. Tomorrow they will try food again, I promised him some onion rings from A&W and a strawberry milkshake. Our prayers for tonight are Patience to deal with the many set backs and faith to trust God in all things. Hebrews 10:23 Let us hold fast the profession of our faith without wavering; for he is faithful that promised.
Sunday, September 9, 2007
Chaos reigns
A staff shortage caused Matt to be doubled up today (1 nurse per 2 patients), which means he wasn't able to get up in his chair. They were very busy and it is hard to meet every person's needs. Had lots of company and watched the Riders lose only their third game this season. He had an okay day, but still feels like vomiting when he tries to eat. Lots of secretions in his lungs, so quite a bit of suction needed. They feel that something is brewing, but not sure what it is. Our prayer for tomorrow is that Matt's infections will be gone and he will be able to eat once more. Hebrews 12:1(c),3 says Let us run with patience the race that is set before us looking unto Jesus the author and finisher of our faith.
Saturday, September 8, 2007
A New Puppy
Matt started the day with a bit of nausea after Physio. He wasn't able to eat today as his stomach just wasn't up to it, they will try again tomorrow. He felt better today and seemed to be breathing easier. They still don't know what or if any more infections are present, but maybe tomorrow. He had lots of company today, and also got a surprise from a family of another patient. The family had bought a toy puppy in a basket for their relative and the nurse brought it over for Matt to see. It looks and feels like it is real as it has a breathing motion. The family and some of the staff went and bought Matt one, his eyes lit up when they gave it to him. He has it sitting on his right side so he can feel it with his right hand. It was a wonderful surprise and a real pick me up. He is thinking of calling it Whispers, he told Jacki it is a he and is very quiet. He also beat Jacki in a game of Golf, which made him smile after losing so many games to her. The Lord says in Eph 6: 13, 17 "Take all the help you can get, every weapon God has issued, so that when it's all over you'll still be on your feet.... God's Word is an indispensable weapon." Prayers for tomorrow are that Matt infections will all be gone and he can start eating food again so he can continue to heal.
Friday, September 7, 2007
Sweet Amy...
Matt sure enjoyed seeing little niece Amy today. She looks at him with her big eyes and smiles, and Matt just grins. He really wishes he could hold her.... He's also a little jealous because she's started to roll. Our goal is for Matt to be walking when she does. Keep praying - Acts 3:6 "...In the name of Jesus Christ of Nazareth rise up and walk".
So, overall not a great day, but better than yesterday. Although he didn't throw up this morning, he did throw up this afternoon again which is very tiring. We now fear that that he once again has pneumonia due to some of the vomit getting in his lungs (aspirates). A culture will be sent tonight and we will know the results tomorrow. Please pray that we are wrong and that he doesn't have pneumonia, but if he does, that it will be dealt with quickly and effectively. Psalms 46:10 tells us to Be still, and know that I am God. Besides a "down" afternoon, Matt was pretty bright-eyed and bushy-tailed this evening and was able to visit, laugh, and talk about food (he hasn't eaten since Wednesday, but feels he'll be ready for food tomorrow). Also, Matt really enjoyed the video from his friends in Porcupine - especially the homemade 3-wheeler! Thanks everyone who drops by to visit,sends messages and well wishes, they really brighten Matt's day.
So, overall not a great day, but better than yesterday. Although he didn't throw up this morning, he did throw up this afternoon again which is very tiring. We now fear that that he once again has pneumonia due to some of the vomit getting in his lungs (aspirates). A culture will be sent tonight and we will know the results tomorrow. Please pray that we are wrong and that he doesn't have pneumonia, but if he does, that it will be dealt with quickly and effectively. Psalms 46:10 tells us to Be still, and know that I am God. Besides a "down" afternoon, Matt was pretty bright-eyed and bushy-tailed this evening and was able to visit, laugh, and talk about food (he hasn't eaten since Wednesday, but feels he'll be ready for food tomorrow). Also, Matt really enjoyed the video from his friends in Porcupine - especially the homemade 3-wheeler! Thanks everyone who drops by to visit,sends messages and well wishes, they really brighten Matt's day.
Thursday, September 6, 2007
A rough day
Matt had a really rough day. He had started throwing up last evening, it continued through the night and all during the day. He has been running a low grade fever for the last three days. They were not sure what was the matter so they took some x-rays and then took him to the main floor to see if the feeding tube was not in the right place again. They put in a new feeding tube and changed the rate of how much he is getting. He will still be able to eat, which is now a regular diet, but if he has a day like today he will continue to get enough nutrient ion. He has gained about 10 lbs, which for Matt is not very noticeable. He had lots of company to see him, but they were not able to get in as he was sleeping most of the day from all the Gravol he was given. The Dr.'s from City Hospital were in to see Matt today and they are trying to make the arrangements to get him moved to the I C U their so they can also start his rehab. Matt is so blessed to have so many caring Nurses and staff at R U H, they are so good to him and us. Prayers for tonight and tomorrow are that Matt's infections and vomiting will subside and he will again be eating and on his way to a full recovery. Thank you for your continued prayers and kind thoughts. John 16:23, 24 says "Verily. Verily, I say to you, whatsoever ye shall ask the Father in My Name He will give it you...ask and ye shall receive, that your joy may be full."
Wednesday, September 5, 2007
No More Infections, Please!
Today Matt had a swab taken to see whether he has MRSA, a relatively nasty infection that can be dangerous in patients like Matt. Apparently a patient 2 beds down from Matt had it, so as a precaution they want to make sure he doesn't have it. The results won't be in for a few days, so lots of prayers that the test results are negative. He did throw up after supper, but they feel it was from a nasty coughing spell so soon after eating. All that food gone to waste! Thank goodness for the feeding tube. He was up for over 2 hours in his chair and had tons of company, which always brightness Matt's day. Another high note was meeting the author of the book "Healing Nuggets". The christian nurse brought him in to talk and pray with Matt. Just a note: Matt hasn't had any breathing trials for awhile. They have lowered his O2 to 33%, the lowest it has been since the pneumonia. They want him to work harder all day instead of really hard for 1 hour and spend the next 4 hours recuperating. As a family, we would like to send out our gratitude to everyone who has donated money towards Matt's recuperation and recovery. The generosity of people is astounding and mom couldn't be with Matt without it. The light is shining bright throughout Saskatchewan and beyond. 2 Corinthians 9:7-8 "Each man should give what he has decided in his heart to give, not reluctantly or under compulsion, for God loves a cheerful giver. An God is able to make all grace abound to you, so that in all things at all times, having all that you need, you will abound in every good work".
Tuesday, September 4, 2007
Two Steps Forward, One Step Back
I am so happy to write the title on progress rather than regression. Mom says Matt's strength is improving everyday, more in his right leg then in his right arm, which is a little strange but we will take it. Today when mom put her hand to the bottom of Matt's big toe, she could feel him putting pressure against it. Also when she held his right arm at the elbow and wrist, she could feel and see slight pulling by Matt. Keep it up Matt! They are thinking of trying Matt on a regular diet tomorrow, instead of the soft one he is getting now. Soft eggs and mushy cereal doesn't sound appetizing and I am sure Matt is tired of baby food! At 6 foot 7 inches he probably wants a HE-MAN meal. Just think, last week he was barely able to drink water, and now look. Real food. On the downside he had a bit of trouble with his breathing this evening, not in great distress but they did have to bag and suction him for about 40 mins, which really plays him out. But he is bouncing back so much better after those episodes, that it is just a speed bump now, instead of a mountain. So amazing that when I read the comments, there are people as far away as Florida reading this blog. Internet is good for somethings. There is goodness every where if we just look. Matt 6:22 "The eye is a lamp of the body. If your eyes are good, your whole body will be full of light". Keep the lights on!
Monday, September 3, 2007
Putting on weight
I am not sure how Matt is putting on weight, he sleeps until 3:00 pm! Dad usually goes in the morning to feed Matt his breakfast, and was a little upset that Matt slept through it. I think Dad enjoys feeding Matt as much as Matt likes eating! Mom did say they are continuing to feed him through the tube during the evening and nighttime to make sure he doesn't start to lose again. But those frappes that mom gets him have over 600 calories, so a few more of those and he is set. Regarding the infection, it is a urinary tract infection and they have to change Matt's catheter. It is extremely painful and Matt doesn't want it done, but it is the best way to prevent the infection from getting worse. Lots of prayers on helping Matt with the pain. Mom also said that though he isn't moving anything different since yesterday, those movements are getting stronger. Keep it up Matt! You have a whole country cheering for you, from Nanaimo B.C. to Newfoundland, plus an all star international squad as well. I read a verse from an e-mail I received from Esther and Henry Penner in Yorton about Matt. Lam. 3:22-23 " Because of the Lord's great love we are not consumed, for his compassions never fail. They are new every morning; great is your faithfulness."
Sunday, September 2, 2007
Go Roughriders!
Matt had a good day, especially when the Roughriders won. He even had a few of the nurses watching with him when it wasn't to busy. He also had a few ketchup chips, however they were harder to swallow because of his sore throat. They took a sputum swab and throat swab to see what infection he has. The already started him on a very expensive antibiotic to make sure it doesn't progress into anything bad, like pneumonia. Mom says Matt"s chest muscles are getting stronger so hopefully he will be able to cough more effectively and keep the bad stuff from settling into his lungs. Matt's leg movement remains the same. But they noticed when they laid Matt's right hand sideways, the outside 3 fingers bent a little. Whether that was active movement or just spontaneous they were not sure, but I will take it as positive. He was also able to turn his right wrist slightly as well, so things are starting to click. It may not be very fast, but like the turtle that won the race, it is the outcome we are looking for. The christian male nurse came to see Matt and pray with him. Matt really likes him and has enjoyed the book he gave him "Healing Nuggets". I know I have used this verse before, but it is so good. Romans 15:13 "May the God of hope fill you with all joy and peace as you trust in him, so that you may overflow with hope by the power of the Holy Spirit".
Sleepy Day
Just wanted everyone to know that Mom has been doing the blog for over a week. We were on holidays and wanted her to know she did a great job. Matt's day was that of a typical teenager, he slept until 3:00 p.m. However they had woken him up a few times for his exercises. He did only one trach trial for 1 hr 10 min. Matt also did something today that no one can figure out. He can slightly roll his right leg back and forth! Usually it would start with his right arm, but Matt is so unique that he just has to do it differently! Cheers for Matt and his individuality! Thanks be to God. Matt was able to eat mashed potatoes and gravy today, but had a hard time swallowing the turkey because his throat is sore. They believe he has another infection, that originated from a urinary tract infection. His trach was finally healed and now it is infected as well. The infection is also causing his backside to breakdown. Prayers that it will heal quickly and no pneumonia will develop. Matt states he wants us to pray for Beaner, a young fellow from Porcupine that was injured in a motor vehicle accident last night and is in the hospital too. In John 14:1, Jesus says" Do not let your hearts be troubled. Trust in God; trust also in me".
Saturday, September 1, 2007
Getting Stronger
Matt had a bath today, they took him up to the 6 th floor to use the tub, he said it felt great. He was really tired after his bath and trach trial, so slept a lot of the morning. His right hand and arm are getting stronger, he can move all five fingers and put some pressure on the thumb and fore finger. He can move his toes a little bit easier also, still has to concentrate to get things to move. He was able to eat a cookie today and also some cake, he had a Carmel frappa and a Iced Cappuccino from Tim Horton's that his nurse brought him. She also did a manicure and pedicure for him. Thank you all so much for lifting Matt up in prayer day by day. Psalm 146: 1 tells us Praise ye the Lord. Praise the Lord, O my soul. Psalm 121:1 states I will lift up mine eyes unto the hills, from whence cometh my help.
Friday, August 31, 2007
Fries and soup
Matt had another good day. He was able to have a full fluid diet and then they tried fries at supper, they were harder to swallow so didn't have too many. He enjoyed the potato soup and ice cream, but the coffee was the best. Tomorrow he will get another frappa, will try strawberry this time. He did get to go outside for awhile and also did two trach trials. He was very tired this afternoon so did some sleeping. He got a Rider jersey and hat from some friends, was excited about that. Matt was happy to have company. He so enjoys the Nurses and staff they are all so good at making his day as good as they can. We are so thankful to them all. Psalm 105:1 states O Give thanks unto the Lord call upon his name: make known his deeds among the people. Matt is always happy to read all the comments on the Blog and says Hi to all.
Wednesday, August 29, 2007
Swallowing assessment a go
Praise the Lord Matt's swallowing assessment went well. He was able to have a orange frappe drink and was smiling from ear to ear. For the next few days he will get a fluid diet, and then if he does okay will go to soft dental and then on to the good stuff. Staff were very excited for him as were we. He was able to go outside today and did a tour of the main floor. Company in so day went very fast. He is doing well on portable vent. Psalms 118:29 says O give thanks unto the Lord, for he is good: for his mercy endureth for ever. Our prayers for tomorrow are that Matt will continue to get stronger and start moving his left hand.Jeremiah 29:12 says Then you will call upon me and come and pray to me and I will listen to you.
Tuesday, August 28, 2007
Matt says Hi to all
Matt had a very good day today. They put a size 6 trach tube in from an 8, they also deflated the cuff that fits around the trach to keep the air in, so he was able to talk and hear his voice for the first time in two months. He was excited to be able to communicate with visitors and staff. His voice was quite husky but nice to hear him talk. They also put a new feeding tube in, so now is getting some calories again. They set him up on a portable vent, it will a bit easier to get around. It is the same kind that they have on order for him. He will go for his swallowing assessment tomorrow at 3 o'clock. Lots of company today, which always brings a smile to his face. Prayers for tomorrow, swallowing assessment and lungs and diaphragm to stenghten so he will be able to breath on his own. Thank you all for lifting Matt up in prayer and praise God for what he has done and will continue to do. Isaiah 25:1 says O Lord, you are my God, I will exalt you and praise your name, for in perfect faithfulness you have done marvelous things, things planned long ago.
Monday, August 27, 2007
Patience and Faith
Matt is happy to be able to have company. It definitely makes the days and evenings go faster to see other faces. Today was another day of not much happening. This morning the nurse noticed that Matt's feeding tube had been pulled partly out, so they had to stop the feeds and get the Dr. to look at it. They decided to take him back to surgery and put a new one in, that will be done sometime tomorrow. His swallowing assessment is also scheduled for tomorrow. They were able to keep the fevers down today with the fan and cool cloths. Matt enjoys reading the e-mails, cards and the blog comments, they always brings a smile or two. Our prayers for tomorrow is that the feeding tube will be replaced in the morning and that the assessment will go well. Hebrew 10:23 says Let us hold unswervingly to the hope we profess, for he who promised is faithful.
Sunday, August 26, 2007
Another good day
Matt had a good day today. He had lots of company and a fun loving nurse to help him through the day. He was able to do three trails and even though he gets very tired he tried his best. His fever went up several times during the night and day, but so far they have kept it down with a fan and very light covers. He will also do another swallowing assessment on Tuesday. He is very anxious about the assessment and really needs your prayers to stay calm and have faith in his ability to succeed in all he needs to get through. Hebrews 11:1 states "Faith is the substance of things hoped for, the evidence of things not seen."
Saturday, August 25, 2007
A Good Day
Matt had a good day today, very positive Nurses and staff. He was able to get up and go outside for awhile. Did two trails and did well. They changed some of the vent settings so he is doing more work on his own during the day and then giving more support during the night so he gets more rest. They are trying to get his lungs stronger. Had a fever during the night and this morning, but was good all day. Thank You for your continued prayers for a full recovery, it is such a blessing to know so many people care and are praying for Matt and our family. John 16:24 Ask and keep on asking and you will receive, so that your joy may be full and complete.
Friday, August 24, 2007
A different day
Today started out fine, Matt looked good and was in good spirits. He did two trails in morning and afternoon and did well. He had a different Dr. and with that came different ideas. Not sure what it was all about, but from what I gathered he decided that Matt is getting to tired on the trials so has told Matt he only has to do what he thinks he can do and they were not going to push him. He is also going to put in an order for an portable vent. Came away not to sure what direction we are going and what it all means. Matt was very discouraged and not sure what to think. Please continue to pray for guidance for Medical staff and also for us, also that Matt will continue to be positive about his recovery. Hebrews 4:16 Let us therefore come boldly unto the throne of grace, that we may obtain mercy, and find grace to help in time of need.
Thursday, August 23, 2007
More Excitement
I couldn't wait until this evenings news to write in the blog. It was just too good. Matt moved the toes on his right foot! Mom of course was visiting other people and he was trying to get her attention by clicking. He then told her to watch his right foot. She said she could hardly believe it. Just like dad did, she called the nurse over to confirm what she had seen. What great news! Way to go Matt! Psalms 145:3 "Great is the Lord and most worthy of praise; his greatness no one can fathom". Had also had 2 breathing trials so far, 1:10 and 1:10. That is as long as they will let him go. He did de-sat after laying on his right side, or his bad side, but again after some physio and suctioning, the o2 went back up. Tonight is his last dose of antibiotics and so far he is clear from any more infections. He's had a bit of diarrhea, hopefully it isn't a virus, just too many meds to keep everything soft, and the nutritionist said they may change his food as well. But we will see tomorrow. Also a fellow from City Hospital rehab came to see Matt, and currently there a re no beds, but maybe we will see in a few weeks. Right now ICU is still the best place for his lungs, but the rest is obviously wanting to get on with rehab! Sorry Matt, cannot divide you up and send pieces to where they must go. Your too good-looking just in one piece!
Wednesday, August 22, 2007
Hills and Valleys
Some good points to the day and not so good points. Matt had his 1st breathing trial this am and did really well, almost 2 hours. However this afternoon they tried a 2nd one and he kept de-sating, his O2 levels kept dropping and they could not get them up. They bagged him and suctioned him for quite awhile before things got a bit better. Then chest physio came in to do his regular physio, and Matt's O2 levels dropped again. They were quite worried about another collapsed lung or a clot, so did x-rays and found nothing. However his charge nurse heard a lot of crackles in his left lung, or his good lung, and did more physio and suctioned a large amount of loose phlegm, and Matt improved almost immediately. All this makes him quite tired so they did no further trials for the rest of the day. But a few good notes: he had both tubes removed from his nose, and he made the nurse take them out right at 4:00 on the dot. Felt great! Also mom noticed he tried to push against her hand with his index finger and she felt a light pressure. Before he was moving his fingers with no resistance, so it's like push-ups for his fingers. He was also up in his chair for 2 hours and did really well. Prayers for the night time, as Matt gets quite anxious whenever anything goes wrong with his lungs. 1John 4:4 "You, dear children, are from God and have overcome them., because the one who is in you is greater than the one who is in the world".
Painful Day
Well, Matt finally had surgery for the insertion of the tube into his small intestine at 4:20, and with any surgery it will cause him pain. Has been fasting since midnight last night and cannot have nothing through the tube for another 24 hours. That will be one hungry boy. Prior to surgery another tube was put in his other nostril to drain excess fluid and air from his stomach. It was a large tube and Matt said it hurt so bad. He had broke his nose in hockey this year and it still is painful, so this sure didn't help. He was able to do 3 breathing trials:1 hr 40 min, 1 hr, & the last was 35 mins. During the last trial, they accidentally pulled on the large tube in his nostril and that was the real cherry on the top. They have been trying to get Matt to do more exercises with his right hand, and he seems to be moving his fingers better. They also noticed more spasms in his legs and left hand, so were are hoping that is good news, that the brain is trying to send impulses to those parts of the body and the wiring is trying to re-route itself. Not sure, but hope is the best medicine, and as one surgeon writes"true hope can only come from Christ". Psalms 16:8 "I have set the Lord always before me. Because he is at my right hand. I will not be shaken". Prayers for a better day tomorrow, Matt.
Monday, August 20, 2007
Another Day
The am started throwing up again times 3. Ordered new anti-nausea medication because the Gravol isn't really working and it makes him sleepy. They will be putting the tube into his small intestine tomorrow morning. They will have to put him under anesthetic, so prayers that he will come out of it okay. Physio worked with him and states can feel the muscle in his right arm is strengthening. Matt also states he is trying to move his right leg because he has more sensation in that leg than in the left leg. He also had 3 breathing trails for total of 4 hours and did really well. They would have done 4 but they had an emergency. Mom feels his chest muscles are getting a bit stronger and he can cough up some of the mucus to the top now. They also had a psychologist in to assess whether Matt is depressed or not, and was impressed by Matt's spirit in such a situation. I found a quote in scripture that seems to be written for Matt. Hebrews 12:12-13 "Therefore strengthen your feeble arms and weak knees. Make level paths for your feet so that the lame may not be disabled, but rather healed."
Sunday, August 19, 2007
One day at a time....
Well, Matt did not get sick or nauseous this morning - first time in a few days, and we were told he had a great sleep last night (unlike the rest of Saskatoon residents who heard the thunderstorm all night!) Thus, he was alert and felt really good for most of the day. He did 3 breathing trials (I can't remember how long the first 2 were), and the last one was only 40 minutes at 6:30 pm - but he was pretty tired by then as he had sat up in his bed for an hour before that. We played about 3 games of card golf (9 holes only), and this time the luck was on my side, and Matt pouted!! - It was quite funny! I'm sure we'll have a rematch tomorrow. Let's pray that Matt has another restful night - "Seek the Lord, and his strength: seek his face evermore." Psalms 105:4
Saturday, August 18, 2007
The Road Continues
Matt starts every morning throwing up. They believe it may be the medication, but feel that they have to continue and treat the nausea with Gravol, which makes him quite sleepy for the rest of the day. So they were only able to do 2 breathing trials today. However they lasted 1 hr 35 min & 1 hr 50 min, the longest he has done since before the pneumonia. Way to push through Matt.! Jacki said they played 2 card games of golf. Jacki had to show Matt his cards and play for him, but he still managed to beat her both times. He has not lost his knack for winning (and gloating!). Matt's movement is about the same as before. But he also mentioned today that his feeling sensation is getting stronger, though it is still not up to par, but that will come as well. Progress of any kind is always great to hear. Job 42:2 "I know that you can still do all things, no plan of yours can be thwarted." Great verse my mom and Jacki found. They were with Matt since this afternoon, however were unable to see him for a few hours because he was sleeping. His body needs a rest sometimes. Take it when you can, Matty.
Friday, August 17, 2007
Not much change
Well, today was an off day for Matt - not really a bad day, but not as good as it could have been. Matt was only able to do 2 breathing trials today - 40 min, and 1 hr & 40 min. He was throwing up quite a bit this morning during and after physio which makes him tired and thus the 1st breathing trial was more difficult. However, during the 2nd trial he had lots of visitors which kept his mind off the breathing. He was happy to see little 5 month old niece Amy, although she wants to pull out his feeding tube! No real change in his movement, but no backtracking thank the Lord! Finally, although we thought the they would insert a smaller trach today, we were incorrect as they only change the trach once a month, and Matt's had been changed at the end of July. Thus, we don't expect this trach to be changed until around Aug 29. Hopefully the insertion of the feeding tube will be next week. The tape that keeps the tube in his nose in place bothers him, and I am sure he would like to get rid of it. Continue to pray for continued healing and Matt's perserverance. Psalms 27:7 "Hear my voice when I call, O Lord; be merciful to me and answer me."
Thursday, August 16, 2007
Keep it Coming
Another good day. Better than yesterday. Matt did 3 breathing trials; 1hr 25min, 1hr 10min, 1hr 15min. He could have gone longer but they didn't want to tire him out. Today he was able to move all the fingers on his Rt hand, spreading them apart. His index finger(pointer) can now move up and down, which is another hurdle. The next is to actually bend the fingers, but he will get there. The physio could feel his forearm muscles working while he was doing it, so that was great. The Doctors were asking him what he did to make his fingers move. At the beginning of August, John had told him about a fellow who was a quad for 7 months, and everyday would tell his brain to tell his finger to move. So that is what Matt said he was doing. They want him to do the same for his chest muscles. They work from about the same level of the spinal cord as the fingers, so they know the nerve conduction is working. It will take a lot more time though. Matt says he is concentrating on moving his feet already, but they told him to focus more on his Lt hand for now. Tomorrow they will insert a smaller trach, hopefully that will help with his swallowing. Also next week, they will do the surgery to put a tube directly into Matt's small intestine, so he can get the tube out of his nose. Hopefully that will help his swallowing as well. Unfortunately he is back to water, no Popsicles until the swallowing assessment is passed. If the sugary stuff gets in his lungs, big trouble. He seemed to be okay with that. Water is much safer. Matt astounds me every day, how he has faced such adversity. Acts 1:8 "But you will receive power when the Holy Spirit comes on you".
Wednesday, August 15, 2007
I wasn't able to speak to mom and dad until quite late, and I started to have doubts that yesterday had even happen. But, yes, Matt continued to show slight progress in the movement of his finger, doubting Thomas that I am! At first he had to really concentrate on what he was doing, constantly telling his brain to move his finger. By this evening, he was moving it side to side whenever anyone asked. Some of the nurses would ask him a second time, because it was just so amazing. The physio said his nerve conduction is probably reaching C8, which is even better. He was quite tired today with big rings under his eyes, from lack of sleep no doubt! They only did 2 breathing trials that totaled 2 hours. They also tried to deflate the cuff n the trachea, to see if Matt could talk, but it was too difficult today, so maybe again tomorrow. While he was up in his chair his blood pressure really went down, but he still managed to get outside for awhile. Dad said this evening when he went to visit, Matt said hi to him and fell into a deep sleep. Maybe a much needed rest. Continue to pray to and praise the Lord. Psalms 25:1 "To you, O Lord, I lift up my soul; in you I trust, O my God".
Tuesday, August 14, 2007
Great is thy Faithfullness
Huge achievement today. Dad had went to see Matt this evening and Matt started clicking at Dad to get his attention. He had a big smile on his face and told dad to watch his rt index finger. Dad said he looked down, and there was the smallest movement he had ever seen. He asked Matt if it was a tremor or if Matt was doing it. Matt replied that yes, he wanted his finger to move. Dad then called the nurse over and Matt moved it again, no more than a few millimeters but he did it! Shout it from the rooftops! Psalms 111:2-4 "Great are the works for the Lord; they are pondered by all who delight in them. Glorious and majestic are his deeds, and his righteousness endures forever. He has caused his wonders to be remembered; the Lord is gracious and compassionate". Dad said Matt was like a little light bulb, with that wonderful smile of his. To understand fully, to move his finger, all the motor pathways above C7 must be working, so since his arms are big muscles, and he has lost so much of them, he isn't able to move his arm but that doesn't mean he can't. Obviously the pathways are working from C1-C7, it will take a lot of work and perseverance for the arms to move. The rest of his day was pretty good as well. Sat up for 2 hours, went outside, did 4 breathing trials again totalling 4 1/2 hours, which is still really good. I forgot to ask about anything else because the other news was too exciting. Thanks for all the prayers, and keep up the good work! Like one of you said on the comments, 3rd days the charm!
Two in a Row
Another great day. Matt had 4 breathing trials that totaled 5 hours, 10 min. We are so proud of you Matt. Keep praying that God will continue to strengthen Matt beyond our expectations. Luke 1:37 "For nothing is impossible with God". He had his last chest tube out today as well. Sat up in his chair for 2 hours 20 min with the new neck brace. He was having some difficulty again so they stuffed some towels in and felt much better. Last night he was able to have 2 Popsicles. Great stuff. He did find them a bit sweet since he has had nothing but water for 6 weeks. He did throw up again this am so the may hold off on the Popsicles at night but continue to give them to him in the daytime. Very happy with this. He even got a tic tac, which was also new. They decided not to put the PICC line in and opted for changing the IV site to the right hand, which is less swollen. He is also beginning to feel the urge to push out his... well...poo poo. No delicate term for it I guess. But great news none the less. He did have a slight fever again at 38.3. Great prayers on keeping it stable. Deuteronomy 32:3 "I will proclaim the name of the Lord. Oh, praise the greatness of our God".
Sunday, August 12, 2007
Good Day
Today really felt like Matt may be on the upswing. They were able to take 2 of the chest tubes out, which did cause him a lot of pain, but it was much wanted pain. He was able to do 4 breathing trials: 30,45,1hr,40. The Dr Matt has had for the last week has been excellent, really pushing for Matt o get better and trying to give Matt as much hope as he can. Unfortunately he is a locum from Winnipeg and will be leaving tomorrow, but hopefully the ball stays rolling. Matt temp only went up once today,and it was 38.1. Not too bad. Swelling in his feet have gone down but now his hands are so swollen that it was difficult to do his range of motion exercises. Prayers that the swelling continues to improve. They will insert the PICC line in tomorrow morning and they hope that will help the swelling to go down, so Matt doesn't have to be poked for IV's anymore. Hard on the tissue for such a long time and the meds going into the veins are sometimes hard on them. Also had a good sleep from 1 am until 6 am. Doesn't seem like much to us but it is a big improvement on what he normally gets. Prayers for what we want are always good, but prayers for thanskgiving are needed as well. Psalms 86:12-13 "I will praise you , O Lord my God, with all my heart; I will glorify you name forever. For great is your love toward me; you have delivered me from the depths of the grave."
Saturday, August 11, 2007
Up and Down
Matt's day was up and down. He stared throwing up this am and they are worried it is the tube feeding. May still consider a surgical tube in his intestine from the outside of his body. Like Matt says, just another place for infection. Little worried about it so need prayers for guidance. Because of his throwing up, they did not get him in his chair today, but the did convert his bed so he could sit up in bed. He did three breathing trials, 30, 40, 45. They really had to push him with the 3rd one, was extremely tired but dad and mom were both there cheering him on. They also gave him some ativan to help relax him, but it really made him more groggy for the rest of the day. They will insert a PICC line tomorrow, a IV line in his antecubital space or elbow joint which goes into a vessel just above his heart. The IV line on his arm blew and he had major swelling. Hopefully he will have on of the chest tubes removed tomorrow,and then one each of the next 2 consecutive days. Noted also to have swelling in his feet, retaining more fluid then normal. Pray it is not his kidneys. God can accomplish all things, beyond our comprehension. What is impossible for us is possible with God. 2 Corinthians 4:16 Therefore we do not lose heart. Though outwardly we are wasting away, yet inwardly we are being renewed day by day".
Friday, August 10, 2007
Visitors
Matt's day was pretty stable again. They will leave the chest tubes in until Sunday, but they are no longer draining. They just want to make sure. He was up for 2 hours in his chair with a new neck brace. He had some difficulties with it and they had to put the old one on for the last hour, but hopefully it only needs a few minor adjustments. He also did really well with his three breathing trials, 30 min, 30 min, & 40 min. Great job Matt. The pulmonary specialist told mom that his right lung is working well now, but only half on his left lung is working. Also his diaphragm is weak as well so he is really pushing himself. Matt is now allowed to start seeing visitors, but it is no guarantee that they will be able to see him. Even family is often not allowed in when he is having a difficult time or other patients are having trouble. So it is really the luck of the draw if you are allowed to see him. The one DR. has been really great with Matt and tells him to keep believing. James 1: 6 "But when he asks, he must believe and not doubt, because he who doubts is like a wave of the sea, blown and tossed by the wind".
Thursday, August 9, 2007
Neutral Day
I know the big question tonight is did Matt pass his swallowing assessment. The answer is no. A big disappointment but they will do it again next week. He can drink water okay, but has difficulty with food, where the epiglottis (prevents food from going down the trachea) isn't losing properly. But they are going to give him some exercises to do to see if it will improve. There is also the possibility of getting a surgical tube into his stomach. After awhile, the tube in his nose will start to break down his tissue, so surgery may be the only option. The chest tubes are still in but he still completed 2 breathing trials and did well on both. He was also up in his chair for an hour, which was good. They also moved him back to the main ICU, where he gets his TV back. There was no steps backwards, but none forward either. It is difficult that progress is so slow, but I often turn to Paul's words in Corinthians, about his sufferings in prison. "Indeed in our hearts we felt the sentence of death. But this happened that we might not rely on ourselves but on God, who raises the dead. He has delivered us from such a deadly peril, and he will deliver us. On him we have set our hope that he will continue to deliver us."
Wednesday, August 8, 2007
Tubes Still In
Matt's day was alright. They did take the chest tube out of the abscess in his right lung, but just to put a bigger one in. They were able to drain even more from the abscess which is good. Matt was able to do 2 breathing trails, 25 min and 30 min. The 2nd one they did while he was up in the chair and the transfer back to the bed. He did great. Way to go Matt! He seemed to have less difficulty breathing, which may be from the sedation he received for the insertion of the bigger chest tube. The Dr. was amazed Matt has done so well so soon after his near death experience. Thank the Lord for small miracles. They also assessed the nerve conduction to his diaphragm (EMG). Results won't be back until Friday. However the resp. therapist noticed Matt's diaphragm skipped every 10-12 breaths, which could have been from birth or damage since the pneumonia. Could be why he struggles to breathe sometimes. But even with that, Matt had a good day, with more to come. Prayers for tomorrow, it is the day for his swallowing assessment. Go Matt!!
Tuesday, August 7, 2007
Prayers for Tomorrow
The Long weekend is over and back in Red Deer. Mom had been writing on the blog since Friday from Saskatoon because the computer in Weekes wasn't working. I had been able to visit with Matt last night and we had a great visit, with a few blonde moments thrown in that he really teased me about. This am he was a bit more subdued, had tried a breathing trial, and we really had to encourage him to do the whole 20 mins. His anxiety level is higher then before, and rightly so. He had a terrible set back this weekend. He also completed another breathing trail with mom present, and he sweats like anything. They explained that his body reacts like it has completed a 500 metre dash.However they would like to see him off the respirator so prayers for Matt's anxiety and peace of mind. Tomorrow will be a big day hopefully. They would like to move two of the chest tubes because they are no longer draining. The reason for this is they believe some air escapes when Matt breathes and may be causing him the feeling of inadequate air intake during the breathing trials. In the morning they are performing an EMG, which is a nerve conduction test on his diaphragm, to see if there is nerve damage, which we don't want. Prayers that the results are okay. Another plus is they will definitely do his swallowing assessment on Thursday. The physio therapist tested him quickly and feels he is doing much better, and that he will probably pass the test. They didn't want Matt to suffer another disappointment and had chose to wait. Hard sometimes to wait for positive outcomes but patience is a virtue all of us have had to learn. Romans 12:12 "Be joyful in hope, patient in affliction, faithful in prayer".
Sunday, August 5, 2007
God's Grace
Matt had another very tough day, this morning his blood pressure dropped to 50/10, oxygen level to below 80 and his pulse was 28. They called a code blue, but thanks to very good nurses who knew just what to do, they were able to revive Matt. It was discovered that the tube on the outside of his lung had quite working and his lung partially collapsed. After a long day it was decided to put another tube up higher and get rid of all the air. The procedure seems to have worked as the last x-ray was much better. Matt was resting comfortable at 2300 hours. He wants to thanks everyone for all their prayers and to let you all know he will get through this. He believes God does not make mistakes. Phil:4:13 I can do all things through Christ who strengthens me.
Saturday, August 4, 2007
Resting Day
Matt had a resting day today. After all the trauma of yesterday he did a lot of sleeping. His lung is still draining and he still has a temp. His Oxygen stats stayed up most of the day. Thanks you for all the prayers for Matt. We keep him updated about the blog comments. John 16:23 Whatever you ask the Father in My name He will give you.
Friday, August 3, 2007
Another Bump
Matt hit another bump in the road today. After they inserted another feeding tube that goes into his intestines they could not get his oxygen stats to come back up. After trying for 90 minutes they decided to sent him for a CT scan. They discovered a pocket of infection in the right lung, so decided to put a drain tube in to the pocket. As they were putting in the tube, they got air on the outside of the lung so another tube was needed to drain the air out of that. Matt was in considerable pain and states this is the worst day he has had. We thank God for the wonderful Nurses and staff who got not only Matthew but us as well through a long and stressful day. We thank each of you for the many prayers and encouraging words. Hebrews 5:8 He learned obedience by things which he suffered.
Thursday, August 2, 2007
Same Place
Matt stayed at RUH today. He may still be moved if more critical cases come in, but so far so good. The girls and I travelled to Saskatoon with Jacki and her 2 kids to visit. Looks better. Breathing is easier, they did not have to suction as much, and has a bit of pink in his cheeks. Also I noticed he was stronger in his neck and shoulder muscles. Still really skinny, appr 155 lbs, so they are putting a feeding tube in his nose right to the small intestine to see if they can stop his throwing up (which he does about 2 times a day). He can not afford to lose any more wait. He did 3 breathing trials, first 2 were 30 mins long (that is the max they will do because they don't want him to regress). The last trail tonight was more difficult but he did last 15 mins. Has to use his shoulders quite a bit to get a deep breath. Matt is still waiting for the okay to have some water again, so need lots of prayers that will happen soon. Psalms 40:1 "I waited patiently for the Lord; he turned to me and heard my cry".
Wednesday, August 1, 2007
Possibly Another Move
Matt had 4 breathing trials. 1st was unsuccessful, crackles in the lungs, suctioned for large amounts of mucus after 1 hour long chest physio. 2 trial 30 min, had another chest physio and was much better. 3rd trial 30 min with suctioning of more mucus. last trial tonight was again unsuccessful, Matt was quite anxious and they feel the trial was too late at night. He did have a hair cut last night and mom says he looks good. A bad day was had by all emotionally though. Like marathon runners, a brick wall hit. Matt may be moved to City Hospital tomorrow due to the fact the Long weekend is approaching and they are a max capacity. Matt does not want to go, feels comfortable where he is because he knows so many of the staff. Phil 4:6 "Do not be anxious about anything, but in everything by prayer and petition, with thanksgiving, present your requests to God".
Tuesday, July 31, 2007
A Bit Better
Matt seemed to have a better day. His O2 sats are the best they have been for awhile. Mom thinks the move regarding that aspect has improved. Air quality seems to be better. Matt does have a window in his room, which is another bonus. Staff and administration had a meeting and things have improved. Still not up to par,but hopefully within the next few days. Matt was able to get a DVD player so he can at least watch movies. Mom had a discussion with the director of nursing who was very understanding and Matt did not have that particular nurse again. Matt did 2 breathing trials, 25 mins and 30 mins. He is still quite anxious when he does them and they are trying to encourage him to go for longer periods. Only when he is off the respirator can he be moved to rehab. So that's our big prayer for today. Please remember to thank God for all the little blessings as well (no temp, DVD player, different nurse, window). 1 Thess 5:16-18 "Be joyful always, pray continuously, give thanks in all circumstances for this is God's will for you in Christ Jesus".
Monday, July 30, 2007
Bad Move
I know many are wondering about Matt's swallowing assessment, but it was not done today. Administration decided they were closing the ICU for renovations and moved them to very inadequate conditions. Respiratory therapist is 5 mins away, there is no ice machine close by , there are no cardiac monitors, no tv hook ups, very hot and cramped conditions. And it will be like this for 10 days. Matt's temp continues to climb, and he has a terrible wound were the trach "fell out" (it was sutured in place). Also a nurse told Matt he could do more for himself, so she put his suction on a clipboard close to his face so he could suction his own mouth. She wanted to make up a schedule for how often Matt could have water, ice pack for his sore neck, and wet cloths for his fevered head. "We cannot run for your every whim every 2 mins". Matt can only move his head and shoulders. Very difficult to help himself. Imagine yourself dug in the sand up to your neck, and only then can you think about what Matt must be feeling. He is reliant on someone for everything. I am sorry I am writing so emotional, but I felt people should know what we are dealing with. He was only breathing on his own twice, 45 mins each time, but with the move they were unable to do anymore. They were not able to get him up in his chair as well. Very hard to stay positive when a loved one suffers so much. Pray that God is opening a door for Matt to be moved to more adequate conditions. 1 Peter 5:7 "Cast all your anxiety on him, because he cares for you".
Sunday, July 29, 2007
Much needed rest
Matt's trach came out during the night. Unsure exactly what happened, but they inserted a new one. Quite a bit of discharge from it due to the infection. He then began throwing up, possibly from the Penicillin they are crushing and putting down his nasogasric tube(tube in his nose). They started him on Gravol to see if that would help.(I also forgot to mention that he had a mouth guard made by the in house dentist because he was grinding his teeth, due to stress and anxiety. However they haven't used it because he is more relaxed, we think). Mom states he did a breathing test for 35 mins today, but he was practically comatose for the rest of the day. They suspected it may be depression, but we think that his body is finally getting a much needed rest. They didn't even get him up in his chair or try any further breathing on his own, he was so lethargic (tired). I know have used this verse before, but it fits so well. Matt 11: 28 "Come to me all who are weary and burdened, and I will give you rest".
Saturday, July 28, 2007
Another Saturday
Matt was in better spirits today, the new sleeping pill didn't help a whole lot, but he was more at peace today. He had two trials of breathing on his own, 30 and 35 mins. His o2 sats stayed above 90% the whole time. He had two spikes in temperature, but was easily relieved with Tylenol. He also stayed up in his wheelchair for 2 hours today, and again went outside in the heat. The minister came to pray with him, and Matt wants him to come again on Monday before they retest his swallowing reflex. He so wants to pass. Mom says he is getting better with his swallowing, so let's lift our voices loud to the Lord that Matt will pass the test. Isaiah 41:13 "For I am the Lord, your God, who takes hold of your right hand and says to you, Do not fear: I will help you". Thanks for all the great comments from everyone, they really lift our spirits.
Small Blessings
Mom states Matt had a little better day physically. He was able to breathe on is own twice, 10 mins. then 15. His temp was high all day, above 39 degrees, but finally went down in the evening. They started him on a new antibiotic, which we pray will do the trick. Also, they are going to try him on a new sleeping pill, he is just not getting enough sleep. They did move him back to a room with a TV, which is great. But more importantly, Matt's spiritual healing took a big leap. A christian nurse looked after him who seemed to understand Matt's fears and explained that medical science can only do so much, but belief in God has no boundaries. He prayed with Matt and told him he must not only ask for God's help, but also believe with all his heart. Matt seemed to relax more and his attitude perked up. James 1:5-6 "If any of you lack wisdom, he should ask God, who gives generously to all without finding fault, and it will be given to him. But when he asks, he must believe and not doubt, because he who doubts is like a wave of the sea, blown and tossed by the wind".
Thursday, July 26, 2007
A Bad Move
Well, today was another off day. Matt was moved to a new room due to renovations and he doesn't even have a TV. He has become so anxious because he has no distractions. We are feeling some of the staff have really given up on him, so please pray that they will see Matt as an individual, not a lost case. He attempted to breathe on his own twice, but he was so anxious that he couldn't do it for very long. Please pray for us as a family so we do not lose faith and give into despair. It has been an extremely difficult time for all of us, and thank all of you for your continued prayers and thoughts.
Regarding Visitors
Thank you everyone for all the comments and concern you are showing for Matt. We have had a number of people who really want to see Matt. Unfortunately he is still classified as critical, and with his breathing difficulties, pneumonia, and inability to speak properly, we think it would be too much for Matt. They tell us his body is using up as much calories as a marathon runner, and you can imagine with 4 weeks of training how exhausted his body is!! We will update his visiting status when his condition improves.
Wednesday, July 25, 2007
Good Morning, Bad Evening
Matt had a really good morning, had been able to breathe on his own twice, once for 1hr 20 min, then 1 hour. B when they tried to do it this eve, he only lasted 35 mins, stating he was just too tired. The nurse stated he was quite warm, and realized he had a raging temperature. His oxygen sats should be between 96-98%, they could not get it above 82%. The respiratory therapist had to manually bag him for 45 mins. They are unsure if it is another pneumonia, partially collapsed lung, or infection around the trach site. Unfortunately he is already on an antibiotic, which obviously is not working. Please pray that God will renew Matt's strength. He is becoming so discouraged, and is losing physical strength to fight another infection. Please pray also for wisdom for the nurses and doctors, pray that they won't give up on Matt. Eph. 6:18 And pray in the Spirit on all occassions with al kinds of prayers and requests".
Tuesday, July 24, 2007
Better Day
Matt's breathing improved a bit today. He was able to breath on his own 3 times, 45 min, 1 hour, 40 min. They are really trying to push him to change the way he breathes. With a spinal cord injury like Matt's, he is unable to use the same muscles you normally use for breathing, so instead your diaphragm is working harder, and he must learn to use his shoulders to breathe. He does much better when he is in his chair, but they are finding he is still to tall for it. Unfortunately they cannot order a custom made chair for him until September, so that is one huge prayer request. Also, the neck brace is a little too small as well, and they cannot make him one because of his trach. So prayers for a solution are needed. Matt 7:7"Ask and it shall be given onto you, seek and yea shall find, knock and the door shall be open unto you".
Monday, July 23, 2007
Did Not Pass
Matt's morning wasn't so great. Difficult time breathing, pain in his neck, couldn't cool off. He had his swallowing assessment at 3 pm, and did not pass. There is problems with the muscles around the injured area in his neck, and he would choke if he had too much food or liquid. So he can only have 2 tsp of water a day, plus ice chips to chew on, but must be suctioned and not swallowed. He did sit up in the chair for 1 1/2 hours, but his neck hurt so bad that he wanted to go back to bed. Also, he did breathe on his own twice, so they may push him to 3 times tomorrow. Please pray that his neck will heal and be less painful. Also pray that he will get a neck brace that fits him better. He has lost 30 lbs since his accident and nothing fits anymore.
"Trust in the Lord with all your heart, lean not on your own understanding, in all ways acknowledge him, and he will make your paths straight". (Just returned to Red Deer, haven't unpacked my bible so unsure where the verse is found, almost certain it is Proverbs)
"Trust in the Lord with all your heart, lean not on your own understanding, in all ways acknowledge him, and he will make your paths straight". (Just returned to Red Deer, haven't unpacked my bible so unsure where the verse is found, almost certain it is Proverbs)
Tough Day
It was a long day today. Matt had trouble with his breathing off and on. He did manage to breath on his own, once for 20 mins and again for 55 mins. They did not get him up in his chair today, he just wasn't up to it. Hopefully tomorrow will be a better day so he can still have his swallowing assessment. While I was in their with him, I was having a difficult time seeing him in pain and discomfort. He said not to worry, God was worrying for me. Then when it was time to say our nightly prayers, he asked if the nurse would join us. What a great brother I have. Romans 5:2 "through whom we have gained access by faith into this grace in which we now stand. And we rejoice in the hope of the glory of God".
Saturday, July 21, 2007
Trudging along
Matt was able to breath on his own 3 times today, and could have spoonfuls of water and chew some ice. His temp was stable all day, and he was able to go outside again for a few minutes. Matt was quite exhausted from all the excitement yesterday. Had a difficult time resting because he said everytime he closes his eyes, he worries. Isaiah 41:10 "Fear thou not for I am with you, be not dismayed, for I am your God". Pray that Matt will have a good and restful sleep tonight and continue to heal spiritually and physically.
Friday, July 20, 2007
Wonderful Busy Day
Matt had a really good day today!!! First of all, he had an excellent sleep last night which let him feel refreshed and alert today. Second, he really enjoyed getting his hair washed with real shampoo (not hospital guk!), and his teeth brushed with Crest (they previously used peroxide - ugh!). Then after dinner, they hospital staff capped off the trach for 50 minutes, which means that he was able to breath on his own with no assistance - way to go Matt! After this, they did a swallowing assessement with some ice cubes, and he did okay with that. If all goes well they will do another big swallowing and chewing assessment on Monday. Finally, the highlight of his day was he was able to get up in the Wheelchair and take a little trip outside. He was so trilled to be outside for the first time in 3 weeks. The only downside to the day is that Matt has a slight temperature again this evening and he is so afraid of pneumonia getting worse again. Please pray for Matthew to stay calm and let his body get rid of this infection. Psalms 57:1-2 "Have mercy on me, O God, have mercy on me, for in my soul takes refuge. I will refuge in the shadow of your wings untils the disaster has passed. I cry out to God most High, to God, who fullfills his purpose for me".
Thursday, July 19, 2007
New Chair
Sorry it took so long for this update. I travelled with my girls today to Saskatoon, then spent time with Matt and watched a movie with him. He got to sit up in his wheelchair today, with the neck brace and did really well. States his neck is stiff tonight from sitting up, but otherwise okay. Doing well with the breathing. So happy to see him without the vent. Trying to wean him off the oxygen machine , hopefully in a few days. Eph. 6:18"And pray in the Spirit on all occasions with all kinds of prayers and requests".
P.S I was able to see all the cards and letters from people who care so much for Matt. I realized how much his wonderful personality has touched so many. Thank you from all of us.
P.S I was able to see all the cards and letters from people who care so much for Matt. I realized how much his wonderful personality has touched so many. Thank you from all of us.
Wednesday, July 18, 2007
New trach
Matt had surgery for the new trach at 1200 a is doing much better. They had also wanted to insert a feeding tube into his stomach. The cons were having more surgery and that most people with this are considered invalids. Pros were it would be easier to feed and Matt could get rid of the tube in his nose. We were not sure the answer, but God very strongly told us to ask Matt. At the time mom asked him , he had been quite groggy, but suddenly he was alert and orientated and made the decision not to have it done. A minister then came in to pray with Matt, who became more relaxed and had one of his best days for awhile "Come to me all you who are weary and burdened and I will give you rest" Matt 11:28
Another pothole
Well, not such a great night. Matt had so much trouble with the trach. Tey had put in a talking trach, which is different then a normal trach. It has holes in it and Matt was unable to keep his oxygen levels up, similiar to trying to breath in a plastic bag. They were hoping he would improve but went into a respiratory arrest and they had to manual assist his breathing. So off to surgery again to get the normal trach in and hopefully that will enable him to breathe easier.
One is hard pressed to see light at the end of the tunnel, but God says "Cast all your anxiety on him, because he cares for you. 1 Peter 5:7 We realize many will be down when you read this, but keep your spirits up, we love how much you care for Matt.
One is hard pressed to see light at the end of the tunnel, but God says "Cast all your anxiety on him, because he cares for you. 1 Peter 5:7 We realize many will be down when you read this, but keep your spirits up, we love how much you care for Matt.
Tuesday, July 17, 2007
Trach is in
Matt finally had has surgery for the trach insertion. Things went alright, however they had attempted to put his feeding tube in through his nose instead of his mouth. He had difficulty with this and they had to take it out. Hopefully they will reinsert it later when he calms down a bit. The trach is bothering him because it isn't what he is used to and feels like he isn't getting enough air. Pray that he will get used to it soon. Psalms 34:4 I sought the Lord and he answered me and delivered me from all my fears. Another plus is there is a wheelchair on order from Ontario and hopefully will get it within the week.
Waiting
Sorry for not having a blog for yesterday. We were waiting for the surgery to insert Matt's tracheostomy so he won't have the ventilator tube in his mouth. But still waiting. Mom said Matt's day was alright, he is feeling anxious because he still has no movement, but Luke 1:37 for nothing is impossible with the Lord. Please continue to pray for healing and thank Him for small miracles. Matt's pneumonia seems to have subsided and is breathing easier with the ventilator. I will update again later once he has the trach inserted.
Sunday, July 15, 2007
Fiesty Matt
Matt had a bit of a difficult night, very restless and unable to sleep. He is getting stronger in the neck area and was tossing his head back and forth. The nurse told him to calm done or he would pull the ventilator out. Sure enough that is what he did! Think it gave him quite a scare!
Dad said when he went to visit Matt, there was a fellow in the next bed who's 1 year old came to visit him. Dad noticed the boy was playing peek-a-boo behind the curtain. He soon realized it was not with him but with Matt, who was lifting his eyebrows and rolling them, which the little boy thought was quite funny. Little children are not hindered by what they see. He could see past all the tubes and see Matt as he truly is. Let us all see Matt this way Romans 8:25" But if we hope for what we do not see, we wait for it with patience."
Dad said when he went to visit Matt, there was a fellow in the next bed who's 1 year old came to visit him. Dad noticed the boy was playing peek-a-boo behind the curtain. He soon realized it was not with him but with Matt, who was lifting his eyebrows and rolling them, which the little boy thought was quite funny. Little children are not hindered by what they see. He could see past all the tubes and see Matt as he truly is. Let us all see Matt this way Romans 8:25" But if we hope for what we do not see, we wait for it with patience."
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